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Post Info TOPIC: MAVYRET Ziggy Starting in April 2018


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RE: MAVYRET Ziggy Starting in April 2018
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Congratulations Zig on your UND (and the other good bloodwork). I am glad you found a facility to get your labs done. Your UND is one piece of very good news for you (and for all of us), at least a comfort for you after the other such terrible times you and your family have been forced through because of the fires.

Good, you at least received those verbals, that all your labs were normal. Nice your iron load has resolved itself. With your 8 weeks of Mav ending June, this UND actually adds up to being 6 months later, so technically you are SVR24! I am so glad you are cured up - one less thing (one less really big thing!) that you don't have to deal with anymore - you need all of your strength, will and attention to deal with the rest of what is happening to you right now - so good you have no need to fret about having a hep c infection anymore.

Thank you for keeping us updated here, on this part, and, via your go-fund-me-page updates.    https://www.gofundme.com/camp-fire-homeless-victim

You are smart and strong, and resilient (for sure!), as proven by how MUCH of a survivor you have been and are - keep pulling, we know you are doing your very best and that is all one can do under these difficult circumstances. You will get things sorted one way or another, but i am sorry for the troubles you have now. One small HUGE thing is not having HCV on top of anything! Thinking you you, and wishing things would start going easier /your way. I am so happy you have this UND under your belt. C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Ziggy,

Very glad to hear your bloodwork is outstandingly perfect

It sucks that you lost your records and medical history, but what matters most is that you are a survivor.

Thanks for letting us know. 

I hope 2019 will be a good year for you



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 

Tig


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Hi Ziggy,

I‘m so glad you checked in. How’s Mom doing and the rest of your family? Please let them all know your cyber family is thinking about them!

I know you’re relieved to get back all of those excellent test results. I‘m sorry you lost all of your personal records and journal. The results are what’s most important today and they’re perfect. I think the old records will be in the Cloud somewhere and recoverable. Your insurance company should be able to track down some, if not all of them. The one that’s most important has been determined, Undetected and that alone is reason to celebrate!

Keep us updated when you have two minutes to yourself. I imagine there aren’t enough hours in the day right now to even think straight. We’re always here for you



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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ZIGGY Good to hear from you!

So glad about the SVR, Congratulations!...you did good. One your way to "outstanding" health , perhaps those bad memories can be left in the ashes. Thanks for checking in'

BB, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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so glad you can continue forward knowing that you are cured. maybe there will be some online lab reports you can get copies of when you find home base.

cured... what a nice word. hang in there



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Hey Ziggy!  Congratulations of the SVR12!!!!!!  "Outstandingly perfect" is what we all want to hear when our doctor reports our labs.

So much was lost in the fire.  Sooo sorry  It must be strange to lose those personal accounts.  You will soon be a certified expert in leaving the past behind to create the future.

My congratulations and my sympathy.

Thanks so much for checking in.  We've missed you.

 

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Update:

 

I found a lab and did my bloodwork.  My Hep C DR called me and said ALL my bloodwork is.....outstandingly perfect.  Even my iron levels are normal.  No viral load...etc...

 

Due to my whole town burning down, there is no hospital up there...no medical records.  I think I may have found a place where I can get my records.

 

All my medical records of my whole life are gone now too.  All my breast cancer and...I had a whole notebook with all my HEP C stuff, all organized in order.  When my whole house burnt....that went too.

 

But...I guess I can get the last results that shows....I am a survivor, 3 months after my treatment.

 

Thank you EVERYONE ... That has supported me.

 

Be back soon with results bloodwork.

 

Love yas...



-- Edited by Ziggy65 on Wednesday 26th of December 2018 01:28:43 AM



-- Edited by Ziggy65 on Wednesday 26th of December 2018 01:30:08 AM

__________________

53 yrs female, Northern California, GT1b.  Let it go for 10 years after first DX in 2007.  First Treatment:  8 Week Mavyret starting April 11th to June 5th, 2018.  Viral load was undetected after 4th week of treatment and after 3 months after treatment.  See Pre-Treatment Test Results in Bio.



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Thanks for the update, Ziggy, and for checking in.

Talk about one day at a time! You just keep taking steps in the right direction.  This is such a huge thing to rebuild but you will rebuild it. I guess you are forced to give it time.  Give yourself credit right now for your strength and compassion. 

                        We will continue on your GoFundMe campaign as we can afford to.  I know ever dollar counts.

Are there any job prospects out there, other hospitals?  

Let us know when you get your bloodwork, but don't fret. Keep planning the party.

 

Cheddy

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Hi Ziggy,

Thanks for the update. I check on you daily and am relieved to hear from you. Thank goodness you have found a place to land, even if temporary. Recovery starts with baby steps and you’ll be running in no time, I’m sure of it. Your daughter is made of the same steel you are, together you will both succeed. Hopefully you’ll be able to put your heads together now that you have made this first step and can find the lodging she will need. 

If you can get back to work in a larger facility, maybe they’ll have lab services that can do your blood work. Either way, you’ll get it done and the results will be party worthy! I’m sure of that, too!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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thanks for checking in with us Zig 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Stay strong Zig. You CAN do this - YOU can do anything!, and you will, because you have to. Keep pulling, there is only one direction to go - forward. Keep trying, keep fighting, keep looking - you will get there, it will come, bit by bit - first steps first, you are right to concentrate on getting at least you and your Mom better situated. We can only imagine how hard this all is for you (and many), thank goodness you are made of such strong resourceful stuff. WE are all so sorry for all you are having to go through. There will be a time when this starts to turn, at least a little bit, more and more to your favour. I hope very soon. Hang in there. We know you are doing the very best you can - proud of you for being SUCH a survivor. C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Thanks for checking in Ziggy. Ill continue sending you my very best wishes during this horrible time. And much love and admiration for your courage and grace too



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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UPDATE:

Greetings my lovely Hep C Family.

 

We all have 2 more nights here at the hotel.  I am going to have to split up from the rest of family, take my 75 yr old mother and go live in a strangers bedroom so I can go back to work.  It is a (spiritual) sister...so we will be safe.

 

My daughters family on the other hand still have no place to go.  They are looking for a 3 bedroom house to rent.  But there seems to be nothing left in Chico due to 30,000 others that have become homeless due to this disaster.  Therefore...I am on edge..leaving them here at this hotel.

 

We can't get anything done here for this hotel is on top of a mountain, no cell phone reception and no gas station.  You have to fill up before you get up here.

 

IThe hospital burnt down but I think I found a place I can go get my....3 months after treatment....bloodwork.

 

I will update soon.

 

Love you ALL!!!####



-- Edited by Ziggy65 on Wednesday 28th of November 2018 11:36:37 PM

__________________

53 yrs female, Northern California, GT1b.  Let it go for 10 years after first DX in 2007.  First Treatment:  8 Week Mavyret starting April 11th to June 5th, 2018.  Viral load was undetected after 4th week of treatment and after 3 months after treatment.  See Pre-Treatment Test Results in Bio.



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Cheddy wrote:

Done. 

If you can afford to help, here's the link to get Ziggy on her feet and into a home (somewhere).  It also provides more information about her situation. 

                            https://www.gofundme.com/camp-fire-homeless-victim

If you can't afford anything - no guilt.

 


 bumping for ease of use



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Very good you did the go-fund-me page. Wish we had additional ways to help. Just keep doing whatever you can and the best you can to find a new locale for you and your family Ziggy. We already know how strong and diligent you are - be steadfast. Please check in when you are able. C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Hey Zigs,

We’re one big family... Our bond is forever! Hold onto hope, Sister.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Thankful because

                        "I'm alive"    ...



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Oh my gosh you guys...

You are all angels sent from heaven.  Everyone that is helping us are nearly strangers.  You guys, Facebook associates, RedCross, FEMA.  I dont know what to say.

Feel free to add me on Facebook so you can get my uodates if you'd like.  Just make sure you put from Hep C Forum so I know whom you are.  I don't add if I don't know who they are.  Most of the peeps on there are my music festival friends.  I go by (River Jaye) on FB.  

I am thankful today to have my family with me and were all alive.

I guess Im a survivor of breast cancer, Hep C and a survivor of life.  Almighty God must want me here for a reason.

I not going anywhere. I will always be on this forum.

Love you all.

Peace!

 

 



-- Edited by Ziggy65 on Thursday 22nd of November 2018 02:48:36 PM



-- Edited by Ziggy65 on Thursday 22nd of November 2018 02:49:50 PM

__________________

53 yrs female, Northern California, GT1b.  Let it go for 10 years after first DX in 2007.  First Treatment:  8 Week Mavyret starting April 11th to June 5th, 2018.  Viral load was undetected after 4th week of treatment and after 3 months after treatment.  See Pre-Treatment Test Results in Bio.



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Done. 

If you can afford to help, here's the link to get Ziggy on her feet and into a home (somewhere).  It also provides more information about her situation. 

                            https://www.gofundme.com/camp-fire-homeless-victim

If you can't afford anything - no guilt.

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Hi Ziggy,

So glad to hear from you and to know you’re safe. Far from okay, but safe and that’s important. I’m happy that you’re with your family and have a roof over your head. We all wish we could take some of the weight off your shoulders. It must be terribly stressful right now. Don’t let those old habits take over your line of thinking. Do your best to drop the smoking, I know how easy it is to slip. 

Don’t worry too much about your blood work. It will continue to be undetected, I’m sure of that. Don’t forget to keep taking care of yourself, hydrating and rest, when time permits. I can’t imagine how much you’re juggling right now. I’m thankful you are able to spend Thanksgiving safely and with your family.

Thanks for the funding information. I encourage everyone than can afford to help, to do so. Every dollar helps! This will help Ziggy (River) and those she is taking care of. 

Ziggy's Help Line



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Sending you all my best prayers and well wishes Ziggy. Hang in there darling.



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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on it zig. so glad you added the link. hope i can help more after the weekend.

i'm so sorry this is happening to you and your loved ones.cry

5



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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ZIGGY!!!

Am I ever glad to hear from you. I cannot begin to imagine this devastation. It's like I have smoke in my own eyes. So many of you!  Are people coming together?  Are there any decent public resources?  Insurance?  Are you working?  Nurses have got to be in high demand.

I will check out your GoFundMe page for a means of lending a hand.  Learn to except help.  Fact is, everybody needs it. You give it all of the time.

Keep that River flowing. If at all tolerable now, put out the cigarettes, girlfriend.  Won't help. Maybe that's another time.

All the best to you and yours.

BTW, I read a good article in the New York Times today online.  I think it's called Giving Thanks Without Rolling Your Eyes.  It's excellent for the details and there is something for everyone.

More to you soon.

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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I was suppose to do my blood draw this upcoming week.  The hospital burnt down.  The whole town.

I'm devistated.  Everything is gone.  It was a nightmere trying to excape fir the whole town was blowing up everywhere.

I hate excepting help.  But I do have a GoFundMe thing going on.

https://www.gofundme.com/camp-fire-homeless-victim

Part of my story is on there.  I go by River.

 

I am at a hotel with family.  We made it out alive. Tomorrow us Thanksgiving and the town is bringing us dinner.  Then we all have to split up and go find places to live.

Ill updatelater

PS:  I started smoking again.

Ziggy

 

 



__________________

53 yrs female, Northern California, GT1b.  Let it go for 10 years after first DX in 2007.  First Treatment:  8 Week Mavyret starting April 11th to June 5th, 2018.  Viral load was undetected after 4th week of treatment and after 3 months after treatment.  See Pre-Treatment Test Results in Bio.



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Oh how awful Ziggy. I'm so sorry. We all want to try and help in any way we can. Please do (when you can) do the paypal thing Tig suggested, or some alternative like that, and/or PM Cheddy, so we can all try to figure out how to help. Do what you have to do, I know you already are. Our hearts and minds are with you. C. 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Oh Ziggy, I am saddened for you by this news. It is hard to imagine how hard this must be for you. I asked a large group today before meditation to remember you, Iris and others in California. Please be as gentle with yourself as possible..as I write that I wonder under the circumstances if it could sound trite..but know my intention is in the best way for you to be gentle and kind to yourself and accept the help that comes your way. I'm with Tig, if we can help let us know. Thinking of you with empathy and compassionately.

 

ps



__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks and 6 months!

Club Zero Member.

PoloSilver



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Sending all my prayers and well wishes to you Ziggy and all the other people suffering from these fires and tragedies. Please do let us know how we can help financially.



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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Listen to Cheddy! Provide us with a PayPal link and we can try to help you get through this. Let us know what you need. We’re here for you... 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Ziggy,

You must be inundated but when you have a chance please let us know how we can help.  If it is with emergency funds, we will need some personal information.  You can send me a private message and I'll see what I can do.

no



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Oh dear Ziggy, I'm so sorry to hear your bad news. I do hope you will find somewhere to sleep. Perhaps the hospital down in Chico will have a job or resources?

Sad sad news for you and your town, such a beautiful place too, my bio grandparents had lived Magalia when they were alive. Didn't know that town burned too, the coverage down here is not good as the are focused on the Woolsey fire in the news. 

Say, did the Honey Run bridge burn too? Can't remember how far it was from Paradise but it didn't seem far. That would be a tragedy too since it's the only covered bridge in California.

Sending you healing energy. Animals ok? >>hugs <<

Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


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Hey Ziggy,

I‘m so saddened by your news. The pictures I’m seeing each hour this fire continues it’s wrath, the worse they get. Is there anything that we can do for you, individually or as a group? I know there are members in your area that might be able to shed more light on available resources and as Cheddy mentioned, we can mobilize ourselves individually and send some things to help. How tragic for all involved. Iris mentioned being close to the danger, too. There are fires everywhere. 

Please keep us informed, when possible and above all else, stay safe. You are in our hearts, thoughts and prayers...



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Ziggy 

well holy sh!t I am so so sorry for you. Hope you got pets and ones away from the fire. Weve been seeing footage on our news, terrifying, heartbreaking and horrifying...looks like hell instead of paradise.

I sure hope you can find a safe place to be.

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Oh Ziggy, I hope you are coping, just don't know how in these circumstances. The worse possible consequences for someone caught up in a fire, I have had fire go either side of my house so know the fear, but I didn't loose everything. All my thoughts and prayers.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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ziggy, i'm so sorry. sending love and prayers



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Ziggy, this is horrific.  No house, no job, no where to sleep?!  What public resources are there? Are there shelters go go to?  Do you have family or friends to stay with.  Do you have friends who need shelter too so that you could pool together and help each other put something together?  Are all of the hotels and motels full?   

Your whole life is going to change now into a clean slate. It's going to be a long haul recreating a normal world. What resources to you have? What funds?  Do you have a plan?  A  partner?  Pets? So many questions.  I'm glad you have good work skills and can put things together as you have in the past.

Seriously. I would like to know what we can do to reverse  this nightmare

I'm sure you are swamped but when you can answer these questions.  We can send clothing or something.  You just let me know and I will see what I can do.

With heart,

Cheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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My house has completely burned to the ground.  I am a victim of the Camp Fire in California.

 

Paradise and Magalia are completely gone.  I am homeless.  Lost my job at the hospital cause its gone.  Still have my other sales job but no where to sleep.

 

Update later.



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53 yrs female, Northern California, GT1b.  Let it go for 10 years after first DX in 2007.  First Treatment:  8 Week Mavyret starting April 11th to June 5th, 2018.  Viral load was undetected after 4th week of treatment and after 3 months after treatment.  See Pre-Treatment Test Results in Bio.



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I am waaaay more afraid of catching the actual flu (or a disease that I am not inoculated against) than i ever would be of getting the inoculation itself! Way too many risks in it for me if i actually catch a bad flu. When I was younger and never/rarely got the flu, I was lackadaisical - now that I am older, and started to catch flu's, I changed my long-kept tune - i now, very willingly, line up for my flu shot! Most of the time the flu shots work for most people, at least to some degree, if they should not protect you enough from actually getting a flu then they can at least minimize the severity of the flu you do get. If we keep having big pandemics, I've hedged my bets - i will be a survivor! wink C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Ziggy65 wrote:

Thanks Tigs...

I guess Im getting my first flu shot ever.....UGH


 let us know how the adventure goes, i'm sure you'll be fine-lottsa ppl get them



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Thanks Tigs...

I guess Im getting my first flu shot ever.....UGH



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53 yrs female, Northern California, GT1b.  Let it go for 10 years after first DX in 2007.  First Treatment:  8 Week Mavyret starting April 11th to June 5th, 2018.  Viral load was undetected after 4th week of treatment and after 3 months after treatment.  See Pre-Treatment Test Results in Bio.

Tig


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The flu shot won’t impact your treatment or test results. Aside from the occasional soreness at the injection site, they don’t cause any difficulties and are recommended. They only protect you from the strain(s) included in the vaccination, not all strains lurking our streets. They determine what strain is most likely to affect the general population and develop the annual vaccine to fight it, not all.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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ughcry. a surgery ctrwould have to be moe careful. so sorry about this for you.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Question:

I have two part time jobs.  One of my jobs is for three hours in the mornings doing clerical work at a hospital in an outpatient surgery center.

They are wanting me to get a flu shot.  I am the only one in thus dept that has refused it.  I am against it.  But, if I don't get it, I have to wear a mask at my desk for the whole time I am there.

 

What are the cons as far as it effecting my bloodwork, liver, etc...?

 

Suggestions?



-- Edited by Ziggy65 on Tuesday 9th of October 2018 01:17:48 AM



-- Edited by Ziggy65 on Tuesday 9th of October 2018 01:18:43 AM

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53 yrs female, Northern California, GT1b.  Let it go for 10 years after first DX in 2007.  First Treatment:  8 Week Mavyret starting April 11th to June 5th, 2018.  Viral load was undetected after 4th week of treatment and after 3 months after treatment.  See Pre-Treatment Test Results in Bio.



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Zig,

 

Just to get back to you about your ques. on your WBC counts (higher eosinophils % and your lower lymphocytes %) - actually, at the moment, you note it is only the eosinophil % that is on the high side - there is no accompanying indication of what your lab considers "normal range" - your lymphocytes may not have been that low (prior), and your eosinophils, past or now, may not be that elevated. Ask your lab and doc how much from normal they might be out of wack and why.

 

As long as you are feeling OK (that is the main thing), just ask the doc about your WBC's next time you see him - when you go for bloods again (I hope you do manage to get the ones repeated I already mentioned below) you can ask if they plan to do the WBC's again as well. In my book anything that has been out of range (if it holds any possible significance) and there is no easy, obvious explanation for it, and it does not just resolve on it's own, then any persisting out-of-range test result should be repeated in future, until it has normalized or can be explained.

 

Your doc would have been acting on your blood tests results if he was concerned about any of the results anyway, so i would not be fretting unduly. But that is not to say you should just forget it - inquire with him as to why these percentages are up or down, by how much, and why they do that - then you'll have less mysteries. We aren't docs, so we can't know the answers, the docs can guess good, but they can't tell us what they think if we don't ask them the questions.

 

Back in a July 1 post I made to you (below), we had already kinda glossed over your first WCB results, there i mentioned it can be explained by something as simple as having allergies/allergic reactions/asthma and such (or dealing with infections of some sorts).

 

So, as long as you are feeling well/OK/not sick ... then just be sure to follow-up on these labs (all of them) at the appropriate opportunity, as a matter of course. 

 

I don't know if you ever mentioned things like this before, if you have any allergy type-things going on with you normally, on a regular basis or not, if you have asthma or other such things, but if your WBC counts keep showing that your lymphocyte % is little low, and eosinophil % is little high, then they could look for blame on fighting things like infections/allergic-type things. 

 

You are looking better and better everyday - what a world of difference from where you were pre-treatment, now sporting lovely cured-up labs like these - stupendous! Quite smokin too! Allll-most the epitome of perfect!  C. winkbiggrin

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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I'm so very happy for you, Ziggy.  Well done!  What a relief it is to be getting on.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Congratulations Ziggy, you must be over the moon. What wonderful news! clap.gif



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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YAY!! Congrats Ziggy!!

biggrin  biggrin  biggrin  biggrin  biggrin



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Congratulations!!!
Those numbers look great, I too wonder what those tests are that show elevations, my. Dr. doesn't seem to do much more than CBC, liver panel and viral load, I had to ask for an AFP to be added.
So cool that you were able to quit smooking too, congratulations on that as well, a major hurdle! Looks like wellness is yours, may that persever as you go on with life. Many blessings to you.

BTW, your cat (avatar) is beautiful...looks very much like my Skye Blue boy, what a lover he was.

Best...Iris

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Aw! and ahhhhh. biggrin Beauty SVR12 Zig. All as it should be. Rest easy now. Another special day and milestone for you. aww

How ya feelin' ? I am betting you are feelin pretty dang fine! You are VERY official now. Good beans. smile C.

So, in about another 12 weeks from now try to have them give you another set of labs for your SVR24 - all as below, repeat the VL, get an AFP, as well as the LFT's, an iron load, and maybe a repeat GGT, as well, start getting them to agree to repeating your U/S's and fibroscans if you can. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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wo0h00 ziggy



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO

Tig


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Those are excellent, Ziggy! Especially that one at the top! Congratulations, Warrior, SVR12 it is. You are officially rid of the Beast that tried to destroy you. What a special day!

419B7E85-5BCD-4FED-BF52-C328F6A5F79A.jpeg



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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