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Trial for people who failed DAA treatment
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Hey guys, i haven't posted in a while but was contacted by my study place about a trial for people who failed DAA treatment so I thought I would run this by you. As some of you know I failed Harvoni twice. The first was 12 weeks and the second was 24 weeks. Anyway, has anyone had any experience with the dru...
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HR
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has anybody here changed the time of day they take their harvoni?
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i had my first side effects today; and i am considering that i may have to change the time of day i take my pill. has anyone done this along their treatment? i will call the pharmacy and get their advice, of course. sill i am wondering if anyone here has done this? i'm just getting ready in case these side ef...
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5-1-18
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56
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A quick question about low
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mallani wrote: My doc gave me the choice of finishing 1.5 days early. Being stubborn and stupid, I'm going to carry on and finish on Friday as planned. Good on you for finishing up! Might as well get that last bit in, for all the good it can do!
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michaeltoan
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1
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423
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Change your toothbrush and razors.
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I just thought I'd remind everyone, something the doc didn't bother to mention to me starting treatment this time , but they did tell m in 03..and I didn't listen. Not taking any chances this time. It may be overkill, but awhile back I went on ebay and bought a huge box of disposable toothbrushes ( they su...
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Deidre
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65
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8626
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Autoimmune conditions/disease and hep C
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Pre HCV treatment, I was informed that I tested positive (ANA +) for autoimmune hepatitis. Though I am SVR- for 1.5 yrs (and my liver enzymes are normal), I have developed numerous autoimmune conditions since treatment (oral lichen planus, AIH, Sjögren’s Syndrome...). This road began 4 months aft...
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Trudylookinglass
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13
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Approved for 24 weeks Harvoni after post Sovaldi / Ribavirin relapse.
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Very good news! I just got approval to re-treat with 24 weeks Harvoni (no Ribavirin). I did 24 weeks Sovaldi / Ribavirin last year 7/2014 thru 1/2015, Then I tested positive VL again in April. I feel like a big factor in my failing to achieve SVR was due to my Sov/Riba treatment being compromised 15 week...
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wmlj1960
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164
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Sofosbuvir/Daclatasvir interaction with sertraline and risperidone
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I've been placed on sofosbuvir/daclatasvir for 24 weeks. I was able to get the drugs at subsidized rate which is 1/5 the actual cost of the drugs here. The entire 24 week course of treatment cost 614.94 usd. I began taking the pills four days ago. So far there has been no side effect. I've also been taking...
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beertastic
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12
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Josh Haynie
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Advice harvoni go to walla walla tomorrow to talk with a pharmacist
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Josh Haynie
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6
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1162
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Harvoni and rashes or in my case shingles
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Hi everyone I don't come on here much because I have cirrhosis n some other deceases n I'm pretty tired most of the time, but I have another question. Has anyone experienced shingles? I've had herpes of some kind for 30 or so years, I usually get outbreaks on my upper leg, which has happened twice since...
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kbonavena2
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5
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2319
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The SS Epclusa arrival
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Finally, after a month of delays and multiple Lab-Jabbings, the SS Epclusa is sailing in to my dock. Got this from HMO: _____ Greetings-I have ordered the Epclusa. Please contact me on Thursday if you have not heard back from me.NameOfPharm NPGastroenterology _____________ Now that is More Like It...
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LamontCranston
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39
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3662
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4 week blood work
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Well, actually it ended up being 5 week, but spoke to the doctor tonight and virus was undetected. Pretty sweet to hear :)
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Jenny1
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1
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1282
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New Member - just started Zepatier
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Hello I started Zepatier three weeks ago after being diagnosed with HCV 1a, I was quite nervous about starting treatment as i was unsure how it was going to affect me after hearing about the possible side effects. First week - Feeling positive - i exercised for 30 - 45 minutes daily, i had horrid stoma...
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Jen
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81
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Accepted for Transplant
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Here I go...accepted on transplant list, inactive (but the clock is ticking) until all the tests are completed. Will have a laproscopic ablation next Thursday. Using that approach due to tumor in an area of liver that sits on top of stomach. I have never been an idle person but would never have thought...
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boxers
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22
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2412
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Jen Needs Your Help
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Hi Guys I really need some information to help me care for my brother OK, this is the low down. two years ago he was told he had between 2 - 5 years to live if he stopped drinking. He has Cirrhosis of the liver stage 3 - 4 (still drinking) He has HCV, HBV, HDV - HCV untreated diagnosed 1996 - HBV underwent tre...
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Jen
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9
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1566
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Genotype 3 treatment progress
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Hi all, I have been traveling for the past 6 weeks thus have not been posting or reading. A few things were pretty surprising to me whilst running about. Firstly, I did not enjoy my time away any less being on Solvaldi, Daclynza and ribavarine. If anything, I have felt more energetic, alert and alive s...
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JakeAms
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6
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2919
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My Harvoni journey is coming to an end
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I am on the countdown now. I have 9 pills left. SEPTEMBER 25 Once I changed over and am now taking my pill at night I am doing so much better. I had lost some weight but have regained it now that my appetite returned I really feel great and healthy with loads of energy!!! Man, those first few weeks were toug...
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gabbiegal
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13
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Naproxen (Anti Inflammatory) in conjunction with Epclusa?
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Hi. Can anyone confirm or deny please, if Naproxen, an anti inflammatory medicine is not allowed while using Epclusa? I have looked over all of my papers and do not see it listed but seem to remember someone saying I could not use it while on treatment? I might be wrong but have that stuck in my head. Real...
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HepCGtype2
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3
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All Aboard Harvoni Train- It Worked for ME
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It has been a long time between posts for me. So many trial studies and so many years. I eventually ended up with one of the top doc's in Hep C trials, treatment... At the University of Pennsylvania. But there too, many, many trial studies until... The last two of note, the original single drug in Harvon...
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scotu
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All is going well @ day 56 on Zepatier !!!
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Hello to all , Day 56 on the Zepatier , Went to the Doctor today she said I am @ for my VL AND I am a non-responder !!! 29 more days of med's and then a few more check-up's and I should be ok ! Feeling pretty good !!! ...
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Rick
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9
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1712
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JJust Finished
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While it was fresh in my mind, I wanted to pass on the experience of HEP C Treatment with Harvoni. APROVAL : It took a long time to get approval from Express Scripts. Mainly because of incompetence on their part. I had been approved for 8 weeks of treatment (I was at Stage 2/3 Fibrosis, and count was only ab...
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TurkMcK
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6
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1550
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4 weeks, 5.6mill to 0, Epclusa labs
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Amazing drug this Epclusa, ...It took me from 56million to Zero in 4 weeks. Kaboom. _______________ From: My HM0 pharm guy Greetings-On August 21, 2017 there was no Hepatitis C virus detected. We will check again for the virus on September 18, 2017. _____________ I am flat-out amazed at the effectiv...
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LamontCranston
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Epclusa side effects
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Been on the epclusa for one week, take my pill at 4 pm. Feel good in the morning till about 1. Lot of stomach term oil, real short like 5 second headaches, crazy body ache,fatigue and then real tired. Is everyone else going thru this ? Am I being a Salley ?
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Dave z
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14
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Starting Epclusa 7/5/17!
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Hello everyone, I must admit that I am excited and nervous to be starting Epclusa tomorrow! I was diagnosed in 1994. The past 23 years have been a whirlwind raising 4 kids! Still have one left at home, so thought it was a good time to start treatment. I have been waiting for a drug that doesn't have nasty s...
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BeHappy44
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15
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2079
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dual hospital register
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Do most of those that need a transplant try to get on the list at more than one hospital? My transplant Dr. is more or less a recruiter for Swedish (we are on the east side of the state). Had MRI on Mon. the 7th and never heard from him so I called on Friday, was told I have HCC...WOW! can't believe they never ca...
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boxers
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7
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epclusa -fever?
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I am on day 45 of epclusa with no real side effects. However I have developed a low grade fever - this is Day 3 of it. don't have any side effects of a virus... Just fever ranging from 99 to 100. I have not seen this as a side effect anywhere but wondering if anyone else has experienced something similar? If it...
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BeHappy44
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877
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Just started treatment
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Hello everyone.
I just started treatment on Epclusa and took my first dose a few minutes ago. I have lots of water ready and I'm pretty excited and nervous. Those pills are huge and I've always been horrible at swallowing pills but it went down surprisingly easy. The shape probably helps with that alo...
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CodeNinja
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25
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Be careful what you wish for...(Epclusa bonus sides)
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So last week I was in here musing over how I was disappointed that I was still fairly constipated despite the "promise" of a liberating side effect. As my second week of Epclusa got underway, I was almost back to my old self. One glass of water, 2 cups of java and baboom. Well, today, I felt so happy that I h...
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LamontCranston
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6
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1126
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my Doctor at the the liver Institute emailed me-on a Sunday!!!
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just checked my emails for Sunday and my doctor had emailed me the following: "Hi, just saw your most recent labs and wanted to let you know that your viral load is not detected!This is exactly what we want!! Let me know if you need anything or have any questions. Continue taking your meds!!! Have a gr...
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gabbiegal
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735
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My doctor's visit today
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ok, I'm going to do my best to post in a way that makes sense. I indeed did ask for a got my Baseline report and the results of blood test done at 3 weeks (Monday of this week) here we go: Quantative VL 3 weeks ago 6811894 ALT 36 AST 45 Quantative VL today 41 ALT 7 AST 13. I am Soooooooo...
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gabbiegal
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9
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855
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DENIAL OF HARVONI - THE DUMMIES GUIDE TO APPEALS!
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I am in the process of appealing the denial of Harvoni from CDPHP (CHP) here in NYS. I initially thought my Dr did that but unfortunately it's all up to me. I will need supporting doc from my Drs but I do all the legwork. I can guarantee, I won't just be limited to the form there will be several attachment...
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shadow10cats
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