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Autoimmune conditions/disease and hep C
(Preview)
Pre HCV treatment, I was informed that I tested positive (ANA +) for autoimmune hepatitis. Though I am SVR- for 1.5 yrs (and my liver enzymes are normal), I have developed numerous autoimmune conditions since treatment (oral lichen planus, AIH, Sjögren’s Syndrome...). This road began 4 months aft...
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Trudylookinglass
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13
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641
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Approved for 24 weeks Harvoni after post Sovaldi / Ribavirin relapse.
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1 2 3 4
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(Preview)
Very good news! I just got approval to re-treat with 24 weeks Harvoni (no Ribavirin). I did 24 weeks Sovaldi / Ribavirin last year 7/2014 thru 1/2015, Then I tested positive VL again in April. I feel like a big factor in my failing to achieve SVR was due to my Sov/Riba treatment being compromised 15 week...
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wmlj1960
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164
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16169
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Sofosbuvir/Daclatasvir interaction with sertraline and risperidone
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I've been placed on sofosbuvir/daclatasvir for 24 weeks. I was able to get the drugs at subsidized rate which is 1/5 the actual cost of the drugs here. The entire 24 week course of treatment cost 614.94 usd. I began taking the pills four days ago. So far there has been no side effect. I've also been taking...
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beertastic
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12
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1230
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Josh Haynie
(Preview)
Advice harvoni go to walla walla tomorrow to talk with a pharmacist
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Josh Haynie
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6
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1004
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Harvoni and rashes or in my case shingles
(Preview)
Hi everyone I don't come on here much because I have cirrhosis n some other deceases n I'm pretty tired most of the time, but I have another question. Has anyone experienced shingles? I've had herpes of some kind for 30 or so years, I usually get outbreaks on my upper leg, which has happened twice since...
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kbonavena2
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5
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2143
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The SS Epclusa arrival
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Finally, after a month of delays and multiple Lab-Jabbings, the SS Epclusa is sailing in to my dock. Got this from HMO: _____ Greetings-I have ordered the Epclusa. Please contact me on Thursday if you have not heard back from me.NameOfPharm NPGastroenterology _____________ Now that is More Like It...
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LamontCranston
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39
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2936
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4 week blood work
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Well, actually it ended up being 5 week, but spoke to the doctor tonight and virus was undetected. Pretty sweet to hear :)
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Jenny1
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1
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1235
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New Member - just started Zepatier
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1 2
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(Preview)
Hello I started Zepatier three weeks ago after being diagnosed with HCV 1a, I was quite nervous about starting treatment as i was unsure how it was going to affect me after hearing about the possible side effects. First week - Feeling positive - i exercised for 30 - 45 minutes daily, i had horrid stoma...
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Jen
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81
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5848
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Accepted for Transplant
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Here I go...accepted on transplant list, inactive (but the clock is ticking) until all the tests are completed. Will have a laproscopic ablation next Thursday. Using that approach due to tumor in an area of liver that sits on top of stomach. I have never been an idle person but would never have thought...
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boxers
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22
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2007
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Jen Needs Your Help
(Preview)
Hi Guys I really need some information to help me care for my brother OK, this is the low down. two years ago he was told he had between 2 - 5 years to live if he stopped drinking. He has Cirrhosis of the liver stage 3 - 4 (still drinking) He has HCV, HBV, HDV - HCV untreated diagnosed 1996 - HBV underwent tre...
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Jen
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9
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1404
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Genotype 3 treatment progress
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Hi all, I have been traveling for the past 6 weeks thus have not been posting or reading. A few things were pretty surprising to me whilst running about. Firstly, I did not enjoy my time away any less being on Solvaldi, Daclynza and ribavarine. If anything, I have felt more energetic, alert and alive s...
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JakeAms
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6
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2650
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My Harvoni journey is coming to an end
(Preview)
I am on the countdown now. I have 9 pills left. SEPTEMBER 25 Once I changed over and am now taking my pill at night I am doing so much better. I had lost some weight but have regained it now that my appetite returned I really feel great and healthy with loads of energy!!! Man, those first few weeks were toug...
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gabbiegal
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13
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1699
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Naproxen (Anti Inflammatory) in conjunction with Epclusa?
(Preview)
Hi. Can anyone confirm or deny please, if Naproxen, an anti inflammatory medicine is not allowed while using Epclusa? I have looked over all of my papers and do not see it listed but seem to remember someone saying I could not use it while on treatment? I might be wrong but have that stuck in my head. Real...
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HepCGtype2
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3
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1294
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All Aboard Harvoni Train- It Worked for ME
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It has been a long time between posts for me. So many trial studies and so many years. I eventually ended up with one of the top doc's in Hep C trials, treatment... At the University of Pennsylvania. But there too, many, many trial studies until... The last two of note, the original single drug in Harvon...
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scotu
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2
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1282
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All is going well @ day 56 on Zepatier !!!
(Preview)
Hello to all , Day 56 on the Zepatier , Went to the Doctor today she said I am @ for my VL AND I am a non-responder !!! 29 more days of med's and then a few more check-up's and I should be ok ! Feeling pretty good !!! ...
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Rick
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9
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1456
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JJust Finished
(Preview)
While it was fresh in my mind, I wanted to pass on the experience of HEP C Treatment with Harvoni. APROVAL : It took a long time to get approval from Express Scripts. Mainly because of incompetence on their part. I had been approved for 8 weeks of treatment (I was at Stage 2/3 Fibrosis, and count was only ab...
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TurkMcK
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6
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1378
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4 weeks, 5.6mill to 0, Epclusa labs
(Preview)
Amazing drug this Epclusa, ...It took me from 56million to Zero in 4 weeks. Kaboom. _______________ From: My HM0 pharm guy Greetings-On August 21, 2017 there was no Hepatitis C virus detected. We will check again for the virus on September 18, 2017. _____________ I am flat-out amazed at the effectiv...
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LamontCranston
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8
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1466
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Epclusa side effects
(Preview)
Been on the epclusa for one week, take my pill at 4 pm. Feel good in the morning till about 1. Lot of stomach term oil, real short like 5 second headaches, crazy body ache,fatigue and then real tired. Is everyone else going thru this ? Am I being a Salley ?
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Dave z
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14
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3622
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Starting Epclusa 7/5/17!
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Hello everyone, I must admit that I am excited and nervous to be starting Epclusa tomorrow! I was diagnosed in 1994. The past 23 years have been a whirlwind raising 4 kids! Still have one left at home, so thought it was a good time to start treatment. I have been waiting for a drug that doesn't have nasty s...
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BeHappy44
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15
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1708
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dual hospital register
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Do most of those that need a transplant try to get on the list at more than one hospital? My transplant Dr. is more or less a recruiter for Swedish (we are on the east side of the state). Had MRI on Mon. the 7th and never heard from him so I called on Friday, was told I have HCC...WOW! can't believe they never ca...
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boxers
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7
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1035
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epclusa -fever?
(Preview)
I am on day 45 of epclusa with no real side effects. However I have developed a low grade fever - this is Day 3 of it. don't have any side effects of a virus... Just fever ranging from 99 to 100. I have not seen this as a side effect anywhere but wondering if anyone else has experienced something similar? If it...
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BeHappy44
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1
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798
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Just started treatment
(Preview)
Hello everyone.
I just started treatment on Epclusa and took my first dose a few minutes ago. I have lots of water ready and I'm pretty excited and nervous. Those pills are huge and I've always been horrible at swallowing pills but it went down surprisingly easy. The shape probably helps with that alo...
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CodeNinja
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25
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1806
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Be careful what you wish for...(Epclusa bonus sides)
(Preview)
So last week I was in here musing over how I was disappointed that I was still fairly constipated despite the "promise" of a liberating side effect. As my second week of Epclusa got underway, I was almost back to my old self. One glass of water, 2 cups of java and baboom. Well, today, I felt so happy that I h...
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LamontCranston
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6
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1054
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my Doctor at the the liver Institute emailed me-on a Sunday!!!
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just checked my emails for Sunday and my doctor had emailed me the following: "Hi, just saw your most recent labs and wanted to let you know that your viral load is not detected!This is exactly what we want!! Let me know if you need anything or have any questions. Continue taking your meds!!! Have a gr...
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gabbiegal
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9
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687
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My doctor's visit today
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ok, I'm going to do my best to post in a way that makes sense. I indeed did ask for a got my Baseline report and the results of blood test done at 3 weeks (Monday of this week) here we go: Quantative VL 3 weeks ago 6811894 ALT 36 AST 45 Quantative VL today 41 ALT 7 AST 13. I am Soooooooo...
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gabbiegal
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9
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798
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DENIAL OF HARVONI - THE DUMMIES GUIDE TO APPEALS!
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1 2 3
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(Preview)
I am in the process of appealing the denial of Harvoni from CDPHP (CHP) here in NYS. I initially thought my Dr did that but unfortunately it's all up to me. I will need supporting doc from my Drs but I do all the legwork. I can guarantee, I won't just be limited to the form there will be several attachment...
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shadow10cats
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117
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11954
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MY HARVONI TREATMENT
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well i have 7 more pills to go and ill be finished with the first 4 weeks of treatment, then ill get my next 4 weeks of medication... so far i have had :0 side effects .. i go see the disease specialist doc on the 30th of this month (fri) i am taking 325 MG of iron pills 3 times a day due to the fact that im seve...
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justagirl
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31
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1161
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Riba Rage - A Personal Story
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Since we have the displeasure of the occasional inclusion of Ribavirin in our treatment regimen, I wanted to share a story I found. This comes from a woman that was dealing with personal hardships as a result of the all too real side effects of the drug. To those that are on this life changing drug, your s...
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Tig
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0
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439
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Happy Harvoni Birthday to me!
(Preview)
Howdy folks! Wednesday, 14th June was my celebrated half century mark!! Woohoo!!, I even won a prize at work that day. But the best prize came a day late when I got a call and was told I have been approved for HARVONI treatment at the whopping cost of a 5$ copay (due to coupon). Shipment should be here on Mon...
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Tigerlily
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17
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814
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First Timer
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Hi all. First time on the forums. I have been on Epclusa for 5 days. I wanted to know if anyone has experienced sever changes in taste. Things that I am accustomed to eating and drinking taste dramatically different and unappetizing. I am also experiencing some gnarly diahrrea and wondered if an...
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texaslady
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9
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682
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