|
Sovaldi relapser, started Harvoni
(
1 2 3
)
(Preview)
Hello world! Canada, MTL Age: 38 yo Weight: 100-105kg HCV: G1B, stage 4, compensated cirrhosis Possible cause of the infection: blood transfusion 7 days old Naive detection: November 2013 1st Tx: Sovaldi + Peg 180mcg +Riba 1200mg for 12 wks: 9/Jun/2014 - 31/Aug/2014 Initial ALT: 168 Initial loa...
|
malekula man
|
142
|
14502
|
|
|
|
|
My husband starts Epclusa today
(
1 2 3 4
)
(Preview)
I'll update his progress if anyone is interested. The cost was $75,000. Medicare paid, as well as his secondary policy. The co-pay was $585, but a Foundation here in Ohio paid it. Interestingly, his viral load recently dropped from 4.7 million to 2.2 million, with normal liver enzymes. ALT at on...
|
CandaceV
|
178
|
16849
|
|
|
|
|
TK's Solvaldi/Velpatasvir 12 week Dragon Slaying Adventure!
(
1 2 3
)
(Preview)
So this is it, I was randomized to the 12 week arm of sof/vel and took my first dragon bomb at 12 noon today. I'll update my most recent bloods in my sig later, but my fibrosure test done 2 weeks ago was a .29 or F1, and VL was 509,000. I got caught up in the moment and forgot to ask my lft results, but I go back next...
|
tkflex36
|
138
|
11943
|
|
|
|
|
New Toothbrush?
(Preview)
I've been thinking about this. What about replacing toothbrushes, nail clippers etc. Does this pose risk for reinfection? If so, at what point? Im worried about items that could have been exposed to blood.
|
RainyJ
|
4
|
1299
|
|
|
|
|
Daylight Saving Time and taking Epclusa one hour later. OK?
(Preview)
Hello all, I have about 17 more Epclusa pills to take before my 12 week treatment period is finished. I live in the USA, and tomorrow (3/12/17) Daylight Saving Time begins. If I keep taking E. at the same time it will be an hour later than usual. I would have to get up at 5:30 am to keep it at the same time. Not...
|
JamesP
|
27
|
2098
|
|
|
|
|
Harvoni or Bust! Quitting after 2 weeks?!
(Preview)
Hello, I posted an introduction over in the other part of this group so I will keep the introduction part short and to the point. My name is Fran, I am 40 years old, I just started treatment a little over two weeks ago. Harvoni. Have been diagnosed since I was 22 years old. Type 1A. Have never done any tr...
|
Meow76
|
6
|
1497
|
|
|
|
|
And the count to 84 begins today! (Epclusa)
(
1 2
)
(Preview)
Today is day 1 of 84 for my treatment. I am excited to start it and put this whole thing behind me. After being initially diagnosed over a month ago, I was broken and alone. You folks have provided me with tremendous support and love beyond what I ever expected. Just wanted to say thank you for what you're d...
|
EricChuckFar1
|
59
|
4164
|
|
|
|
|
WHEN DO YOU TAKE YOUR HARVONI?
(Preview)
They say that Harvoni has few side effects and posts from you guys would pretty much support that. Headaches and fatigue being the ones I hear the most. I am getting ready to start Harvoni and I'm looking for any info on if it matters when you take it. You might take something at bedtime to sleep thru most...
|
shadow10cats
|
40
|
13152
|
|
|
|
|
Pneumonia!
(Preview)
Just got a call from the nurse, You have pneumonia and need to start antibiotics immediately. I'm a little bit concerned as my WBC is very low...Leukocyter 1.9 and Neutrofila .4 (new labs tomorrow) Am I over reacting, or is it ok for me to be a little freaked? I thought I was just experiencing allergi...
|
innerview
|
14
|
2464
|
|
|
|
|
Another one bites the dust!
(Preview)
Hi there friends, I'm EOT +2 weeks and just found out that I am UNDETECTED!!!! And all other liver tests are within the normal range. I'm still anemic and my LD and platelet levels are still high, but I'm beginning to feel better. I'm not nearly as tired or as weak as I was a few weeks ago. I still have sig...
|
Sanuk-Sanan
|
5
|
1055
|
|
|
|
|
Herpes outbreaks on Harvoni/ribavirin
(Preview)
I've had 2 herpes outbreaks in my first 3 weeks of treatment. Yikes! Painful and exhausting. Off treatment I get maybe 2 outbreaks a year. If I take lysine with echinacea (Super L-Lysine) it clears up fast. But echinacea is not good to take while on treatment. Anybody got any ideas for me? P.S. Years ago...
|
hiltsj
|
2
|
1446
|
|
|
|
|
Help needed ASAP for leg/foot cramps
(Preview)
Hi I am on my 5th week of Harvoni. I had subtle leg cramps during the past couple weeks but tolerable. I never had one before so I was okay but assumed it was from treatment. Well that has changed. It moved to my left foot. The ball underneath into my toes. It is a drop me off my feet screaming pain. Ove...
|
fourlocos
|
29
|
3177
|
|
|
|
|
Thyroid and post menopausal bleeding
(Preview)
Any ladies out there had any issues with Harvoni and thyroid issues, leading to post menopausal bleeding? I am on week 8. My thyroid is all over the joint. I have had all tests/probs a few months ago with some random small spotting, nothing sinister was found, but today I am having what seems like a perio...
|
Phoenix11
|
3
|
3961
|
|
|
|
|
Doctor's appointment yesterday
(Preview)
I am on day 32 of my Harvoni treatment, gave blood day 22, and on July 1st, I talked with my doctor. My start of treatment VL of 1088513, has been reduced to a VL of 1.18 in three weeks. My doctor was not happy and did not present much hope that my Harvoni treatment was going to work for me. He told me that I...
|
KPB
|
17
|
3042
|
|
|
|
|
Missed a dose.
(Preview)
Bugger I missed a dose last night. I have a spreadsheet with everyday marked on it and I tick it off when I have the pill in my mouth. Just plain forgot last night. That was 14 hours ago. I will not take one to catch up as I've read that two is considered an overdose. I should be ok? I'm on week 16 seeing speciali...
|
Greg
|
7
|
1552
|
|
|
|
|
How long did it take for you to feel better?
(Preview)
Greetings friends! Somedays I have a handle on Epclusa's sides, some days it has a handle on me. Just how it is. But I'm coming down to the last bottle. I'll pop it open next week, so naturally I'm wondering how long it takes for my body to get rid of the stuff? Assuming the sides (fatigue, muscle and joi...
|
Sanuk-Sanan
|
6
|
1800
|
|
|
|
|
tattoo or not tattoo...that is the question
(Preview)
so, new friends, i think i'll call us "hep-c's", (pronounced hep-sees). i thought about "heppers" but that is too close to "heffers" and i don't wanna offend anyone, at least not outright or not until we get to know each other a little bit better. i am thinking that n...
|
2ndTimeAround
|
27
|
2360
|
|
|
|
|
Test Results Appreciate Input
(
1 2 3 4 5 … 7
)
(Preview)
Greeting y'all, I hope each of you are doing well. My test results have been somewhat fumbled in that I will begin week 8 of 12 this Thursday and just now finally got some information to share. The information I have gathered from this web site leaves me a little unsure on how I should view my results. In a n...
|
JimmyK
|
306
|
19129
|
|
|
|
|
Johns Epclusa treatment
(Preview)
OK guys, I'm starting my epclusa treatment page here. I did my second dose today. I'll be glad when the side effects to riba were off. Had insomnia again last night. The nurse from the pharmacy called me earlier. She said I was the 3rd patient they had on epclusa. So there learning still about it also. Th...
|
Ivery
|
33
|
5080
|
|
|
|
|
Harvoni denied by BCBS
(Preview)
Just received word that Blue Cross Blue Shield denied my doctors request for Harvoni. What a bummer. I believe they did approve Viekira. What research I was able to do is that 8 weeks of Harvoni was less than the 12 weeks of Viekira. My doctor felt and in his experience that 8 weeks of treatment zapped the...
|
Cheech
|
28
|
3200
|
|
|
|
|
My virus is not detected
(Preview)
Hi everybody! The doctor prescribe treatment for 24 weeks,Today passed 16 weeks of treatment and my analysis is normal Should I continue the treatment? I need your advice. Thank you all for what supported me,when I had a difficult time.
|
Katya
|
13
|
1663
|
|
|
|
Ledihep/Harvoni
(closed)
(Preview)
Two fulls jars of Ledihep, known in this country as HARVONI plus another jar minus the ten I took before I realized I was having an allergic reaction. $800. Costs $64,000 in this country. My gastro calls this the closest thing to magic medicine has ever come up with.
|
postrof
|
6
|
1203
|
|
|
|
|
sudden side effects at night
(Preview)
I,ve been on savadi and Daklinza for 2almost 3 wks at first it was really bad got on the forum and some great people recommended I drink more water which Im doing seems like it has helped but I,m starting to wake up in the middle of the night with the most horrible nerve pain in my legs thank god it only last...
|
gator1959
|
9
|
990
|
|
|
|
|
Finished first week on Harvoni
(Preview)
Hello all, its been a while since I have posted here. Did Tx in 2012 with Victrelis, interferon and riba. Yikes! We called that the "Mind Scrub". To say I was nervous of starting a new treatment is an understatement and wasn't sure I was even going through with it until I popped the first pill in my mouth. I...
|
sungoddess
|
19
|
1507
|
|
|
|
|
5th week Epclusa
(Preview)
Hello Folks, New to this site, however, been reading info You Guys and Gals are full of great ideas and inspiration. Nice to know this is available. Epclusa approval a God send for sure for Cuddy1, I am his Lady. We are in it together. A few questions tho, if you please. He has been experiencin...
|
MaxiePoo3
|
13
|
2053
|
|
|
|
|
Re-Match has begun
(Preview)
Hi Everyone, Well the day has finally arrived and I have just taken my first tablet of Harvoni washed down with a tub of Yoplait. This Dragon is in for a shock. Will keep you all posted. To all who are fighting this Dragon stay strong and well, and smash this beastie. To all who have been successful congrat...
|
Greg
|
26
|
2685
|
|
|
|
|
Having a bad day
(Preview)
Hi everyone, can I just whine for a bit?
Most days are good, some not so good. Maybe not all my woes are due to tx, but they are especially burdensome now. I feel just awful and cab barely get off the sofa. I lost a fingernail last night, the whole thing ripped off its bed and it really hurts. Other nails are p...
|
Juliet17
|
10
|
1381
|
|
|
|
|
Day 10 of Sov/dak: Nice to see you again, brain!
(Preview)
Hi everyone! Treatment is going really well. I was scared for a bit around day 3; I started getting joint and muscle aches, particularly my back, knees, and thighs. One day 4, I got out of bed and my legs practically collapsed. My back was hurting like a mother, and the pain was traveling up my neck and spa...
|
Juliet17
|
10
|
1154
|
|
|
|
|
Newbie waiting for Epclusa approval
(Preview)
Hi, I need someone to talk to, waiting on Epclusa And I need someone to talk to.
|
Sophia
|
27
|
1738
|
|
|
|
|
With sword drawn, I march forth into battle
(Preview)
My doc said yesterday that my cryoglobulinemia is not severe enough to require independent treatment, so there is no reason for me not to start my 12 weeks of Sovaldi/Daklinza. So starting at 9am PST, I am on the road to recovery! Here's my current, trivial, stupid concern. I HATE drinking water unles...
|
Juliet17
|
8
|
1135
|
|
|
