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Hep C Discussion Forum -> On Treatment -> 5th week Epclusa
Post Info TOPIC: 5th week Epclusa
Phoenix17


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RE: 5th week Epclusa
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Congratulations on UND Cuddy! Great news. Good to see you here with us. I know all too well about the fatigue. Week 9 and I still feel like I could sleep all day. I don't of course, just take cat naps when I can and that seems to help. 



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JimmyK


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MaxiePoo3 wrote:

God is with us for sure, as well as our new friends here. We will continue to pray for all. 


 Some do and some don't, but I do as does my house. Without meaning any offense to any here, for that is the furthest thing from my mind and not in any way my intent...

I greatly appreciate your comment quoted. wink

 

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Tig


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That's great Max! Hey Cuddy, nice to meet you. Max has been filling us in on your behalf. You've got a good friend with you. 

We're all thrilled with those excellent results. Now that you are undetected, you will stay that way, the odds are really in your favor now. Can you say 95%+? Woohoo!!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Canuck


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Hey Max and Cuddy,

So nice to see the both of you here!

What a dif a "busy" week can make - GREAT - you have accomplished a lot! Best part, is the water and the lab results! - GUAR-AN-TEED to make a person feel a little bit better!!!

Yup, I agree with ya Max - he is going to be OK.

NONE of this stuff is easy. But the two of you ARE going to get yourselves through this, (of course, honourable mention has to go to your doc and this great drug called vel!).

These new drugs ARE amazing. And I am learning, PEOPLE are really amazing too!

You got 'er made Cuddy, just wait, feeling better WILL come.

Do everything you two are already doing. Good job! biggrin C. 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
MaxiePoo3


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Thank You Very much for your reply. It's good to know you folks are here. smile Been a busy week.

Fantastic news to report. Cuddy is here with me, says "Hi Everyone!" Also we are PLEASED and GRATEFULL beyond words, so here goes it. 

Cuddy had bloodwork on 11/4, 5th week of treatment. We are amazed, ALT 16, AST 17, Bili. 0.4 AFP Marker 2.3, down from 3.2. NO Fibroscan this time around,  Hepatitis C Quantitation HCV NOT DETECTEDsmilesmilesmilesmileawwawwawwaww......

God is with us for sure, as well as our new friends here. We will continue to pray for all. 

The water consumption around here is definatly up, up up. And settling into healthy diet. Mister Mister here is one of those guys who always had a cast iron stomachhmm could eat any hour of the day and be A okay. The denial is fading , lol.  

We will keep posting in, as with any new meds, there are bound to be tough days. However, understanding the gift he's been given, I believe he's gonna be okay. Up and active, Can naps now, instead of all dayers. His sense of humor is returning, thats half the battle. And we know you guys are here. Drs Appoitments next week. Talk with you all soon



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9/29/16 Alt 123, Ast 62, Bili. 0.6, Alpha 2, Fibrosis score F3 many, Necroinflamation 0.76
Razor Blade


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Hi Max. I am week 9 epclusa and had problems too. Water intake DOES make a difference. Cuddys fatigue(sleeping) is probably as much due to with his depression. Sweating, itchy,staying in bed etc. I have been fighting depression for nearly 20 years so i know....sounds like hes got it pretty bad at the mo. I have fatigue from the tx and my depression reared its ugly head about wk 2/3. Take him for a walk, try light exercise, only use the bed for normal sleeping hours. Get him interested in a Tv.series or a book from his favourite author. Does he follow a sports team...go and watch a game together. I know its easier said than done, but keeping the brain busy coupled with exercise will really help. When i have fatigue i take a cat nap or in extreme cases a siesta. I fought off my depression this time by going to the gym and listening to music. You have to get him occupied. Try some natural remedies for Acid. I take 100 mg asprin and had to stop the emprozole for tx. THeres lots of ideas on google. Also bran cereal and prunes...i was badly constipated for a week too...miserable. Good luck.

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Geno 3. TX fail 2010

7/9/16 generic Epclusa. vl 1,730,000. ast 93,alt 81.alp 43.

23/9 ast 37 alt 33. 

29/9 ast 35 alt 31.

10/10 vl undetected,ast 49 alt 48 ggt 72 wbc 3700 

22/10 ast 38 alt 22. VL undetected down to below 12 IU/ml.

15/11 AST 38 ALT 23 GGT 40

24/10 AST 31 ALT 26 GGT 44 

 

 
MaxiePoo3


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Thank You..We will let know how things go. 

                               Max



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9/29/16 Alt 123, Ast 62, Bili. 0.6, Alpha 2, Fibrosis score F3 many, Necroinflamation 0.76
Phoenix17


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Welcome Max and Cuddy - I think participating in this forum would help him a lot! Knowing that he is not the only one is a big deal and i think it would help him in the recovery process. I hope he joins us soon. biggrin

Let us know how his Dr's appt went. I hope he gets some relief soon!



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Canuck


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Max and Cuddy,

Welcome to the both of you. This is a good and safe place to land.

I echo Tig  - MUST drink water (VERY important). I am sorry about feeling so dreadful, it is awful to feel that way, even scary, for both of you, but it IS VERY important to drink the water - it is part of the SOLUTION to feeling dreadful!

Adequate water is very IMPORTANT!

Hope to hear back from you two soon. I'm very happy you lucked out and got epclusa! Well done.

Know that there are nice and knowledgeable people here who will help in anyway they can. smile C. 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Pablito


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"We are recovery people". 

- - - - - - - - - - - 

I like this sentiment.  It works on many levels.



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44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
Tig


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Push him to join in the conversation. We all know and understand the shock and resentment that occurs when diagnosed with this disease. You both have the best chance to beat this virus that has ever been offered.

As far as feeling inferior, tell him that these new drugs remove inferiority from the equation. You WILL be cured and the only thing inferior is the virus ability to fight it. It is futile! With the success of treatment and ultimately SVR, attitudes will improve, health improves, life improves. I guarantee it!!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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MaxiePoo3


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   Hello Tig, 

       Thank You so much for your reply. I am hoping Cuddy will see this. Yes,  as to how he is taking Zantac. And for sure on the hydration. I am hoping HE will take advantage of this site. We are recovery people, I think with this diagnosis, some resentment and sadness comes into play with our consequences. I'm pushing the that was then, and this is now attitude. He is an amazing man, very private tho. That can be a problem when dealing with this.  At this time he is getting his blood work done. There is fear, we spoke right before he left, and he left upbeat, best I've seen in days. So, onward Christian soldiers. 

     I believe he will find true comradery here. This diagnosis I think has made him feel inferior in some way. So NOT true.  I'm looking forward to chats and advice. 

 And yes, Drs. Appointment to be made. He wanted to get blood work done, so it could be reviewed. Will keep you posted. Hopefully Cuddy will pop in and say Hello himself. 

                                           Max



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9/29/16 Alt 123, Ast 62, Bili. 0.6, Alpha 2, Fibrosis score F3 many, Necroinflamation 0.76
Tig


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Hi Max,

Welcome to the forum! I'm happy you're here and on treatment with one of the best. Sorry to hear Cuddy is feeling so badly. There are times we experience some adverse reactions to treatment but they are generally short lived on these new DAA's. Because of his state of affairs, I would suggest you contact his doctor and find out what's going on. Is this something he has just started experiencing? 

You simply have to get him to hydrate properly. 3-4 liters of water per day for each of you is the minimum! These drugs require water intake. Dehydration can cause some of the negative symptoms he is dealing with. 

Is he taking the Zantac with his Epclusa? The H2 antagonists have to be taken at the same time or 12 hours later, very important for the effectiveness/absorption of Epclusa.

Don't be scared, we'll help get you both through this. Good luck and stay in touch. Start by getting some advice from his doctor and get him hydrated, NOW!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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MaxiePoo3


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Hello Folks, 

        New to this site, however,  been reading infowink You Guys and Gals are full of great ideas and inspiration. Nice to know this is available. 

Epclusa approval a God send for sure for Cuddy1, I am his Lady. We are in it together. 

A few questions tho,  if you please. He has been experiencing SEVER fatigue. Sleeping 18-20 hours a day! Nausea, uggh, almost all day. On rantinidine(Zantac) for acid reflux, also has been severe.  Alternating constipation, diarrhea, sweating, itching.,depressed. 

Has anyone else had this happen early in treatment? does it resolve? Each day I am on the fence whether to take an Emergency room trip. Fluid intake is a problem due to fatigue. Cant keep him up, no motiivation to move. I admit I am scarred for him right now. 

Sorry to start chatting negatively. We are grateful, for sure. Just scarred. We have heard and read such great things regarding this medication..Trying to stay positive.. 

                                                  MaxiePoo2



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9/29/16 Alt 123, Ast 62, Bili. 0.6, Alpha 2, Fibrosis score F3 many, Necroinflamation 0.76
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