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Hep C Discussion Forum -> On Treatment -> Sovaldi relapser, started Harvoni
Post Info TOPIC: Sovaldi relapser, started Harvoni
Brian1412


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RE: Sovaldi relapser, started Harvoni
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Whats going on ? You ok ?

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Brian1412


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Love the Boston fans. One of the best shows ever gor this circus was elavation right around 911 and of course the awesome superbowl halftime show. Was a church service for 300 million americans. So a couple of sbows here wr come Madison. Square garden for 10days. Then off to Turin Italy Peace

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malekula man


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thanks Gracie...

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

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Gracie


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Don't freak out yet, it could be benign.

its great that they are wasting no time and getting you in for an MRI so they can find out what it is exactly while they can do something about it!

Sending some prayers and good vibes your way for a positive result! 

 



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
malekula man


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My "bad news" ultrasound...

 

 



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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


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My nurse called me this morning... They received the ultrasound results, my doc wants me for MRI-scan ASAP because he found a small lesion in one place... They to check if it's the lesion or ultrasound error...

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


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So, the last tests are arrived. Now the table is completed.

 

 



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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
coolheat


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Happy for U Matt, thanks for the Great flash back. Sorry we all lost so many beams of light and creativity. Thinking now of filmore west and winterland and monteray jazz festival. Todd Rundgren will be here in 3 weeks. I remember when he did Healing, hope he does it in the show. Doc John was just in Mill Valley. Happy for World and beyond that so many are SVR and reversals are happening to liver's. Gone to mtns for a while, good to be back. BP went down at 6,800 ft. and walked and hiked alittle and went up to 8,800 ft. on tram and no problems. Marsha aka coolheat

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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
malekula man


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Thanks, Brian! NYC is cool and especially Brooklyn... Last fall visited with my wife to do some photos of the graffiti in Bushwick. That was cool. And Roberta's pizza )))) Stayed in Red Hook ))))

Yeah, the drug is amazing whatever it does it kills the virus.


Thanks, Grouper! I follow you to SVR )))

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Groupergetter


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Congrats MM on the EOT.  :)    Many awaiting the 12 week labs, hoping all reach the elusive SVR.    Be well.



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Brian1412


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I feel pretty good. I am working on gaining weight...we have a tranier massage. Etc and we do. Group walks runs bikes etc:.i need to talk to my dr about some sort of weight gainer. We do have smoothie. Dietician etc. But want check with dr first



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Brian1412


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Hang in there whitt.. a whole bunch of us should be hitting the svr about around the same time. From just reading posts of others we sre going to see a whole wave of svr in the next few weeks... thank you evil big pharma..the hep c virus is taking a beating.. fantastic !



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Brian1412


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I do online simulation. Racing with red Sox owner for about 15 years. I went to his wedding which they had in fenway but i hsve never seen a game there. I am this time.  I love all the ball parks so we.  There not msny of the original ones left. Huge part of america



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Brian1412


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Cool. Ounds like fun:.. i do love tronto but. I am looking for a red sox game then Nyc.   I like the city alot...

Have fun 

Doing good heslthwise from where i am from summer is very. Labs are aprox mid august. But we all have colds y



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malekula man


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Nice! How are you after 5 weeks EOT?

No, I don't think I will visit Toronto soon. I prefer Boston! Union Oyster House, Mike's Pastry... But it's impossible. Preparing to work hard this month and planning a trip MTL-Gaspe-NB-PEI-NS-Main-MTL. Coast, parks, lobster catch, Cabot trail - I love driving, so at least 3K miles are waiting for me !





-- Edited by malekula man on Monday 29th of June 2015 12:45:03 AM

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Brian1412


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Mine  is about 5 weeks:.heading to Toronto. Wed i think. Be there for 10days aprox. I love Toronto. If you want to come up let me know..nyc and Boston after..then we go across the pond.  Europe completely sold out



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malekula man


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Thanks Brian, CG!

Now is the waiting time for my SVR, I hope...

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Cinnamon Girl


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That`s great, MM, well done!

Wow, love your Harvoni train ... that is brilliant, very clever! 

I think that deserves a round of applause!  



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Brian1412


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WTG. Mm!!!!!!!



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malekula man


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Thanks Tig, Matt!

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Matt Chris


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Hey MM

Congrats on completing the long 24 weeks, good job and future well wishes.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Tig


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Hey MM,

WOOT!!!!     Congratulations for reaching the end of the track Brother!

I'm loving the train dude! A real Harvoni train, well done and very creative smile

 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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malekula man


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Now it's official : Harvoni train arrived on time. EOT

 



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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


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That's right!

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Gracie


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My hepologist said the same thing, no pcr until 12 weeks post. Everybody clears during, some quicker than others, but the only test that matters is the 12 week post. What a time that will be - the wait!!!



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
malekula man


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I'm agree!

P.S.: Doctor said they will not do the PCR at EOT - it is useless with UND de facto. Only in September at 12 weeks after EOT

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Cinnamon Girl


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Yes I noticed that, MM, let`s hope they continue to rise!  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
malekula man


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Thanks CG!

Even my PLTs has gone up a little bit!

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Cinnamon Girl


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Nice looking lab results there, MM, you should be feeling very happy with those! 

Not long now, keep going!  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
malekula man


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Thank you Tig!
I really appreciate it!

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Tig


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Hi MM,

Everything continues to look good. You're getting close!! I know you're ready to celebrate EOT and SVR. Trust me, I'm ready to celebrate with you! Keep it up!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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malekula man


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My last blood work, week 20 on Harvoni

 

 



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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


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Recently ( Tuesday) done CBC test. The PLTs are at 33

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


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Thanks Ladies and Gentlemen !

Tig, I'm aware about knives but I'm a "not so bad" cook



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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Tig


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Hey MM,

Excellent report buddy! Just let someone else use the knives in the kitchen and you should be safe! Looks like you've got this, keep it up!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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mallani


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Looking good!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Groupergetter


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Good luck MM, hoping SVR is in your future. 



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Cinnamon Girl


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Hi there MM, those numbers all look great and your ALT is dropping nicely.

Apart from your platelets of course, which are still dropping.  Let`s hope the problem resolves itself once you`ve finished tx.  

Not too much longer to go now, keep us updated and take care!  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
malekula man


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Nurse just called me for my missing ALT result. 

So, here I am:

 

 



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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


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Visited my hematologist this morning. My PLTs are at 36. He did the check, said my spleen isn't so big now but my immune system is very strong and attacks the plts. Diagnosis - Immune Thrombocytopenia. He is wondering it's just acute ITP, not chronic. Will check in 6 months what will happen after Harvoni.
Tomorrow I have my 4wks  follow-up with nurse

 



-- Edited by malekula man on Wednesday 6th of May 2015 12:43:13 AM

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


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Hi William,

You will do better. Certainly! Don't give up - HCV isn't your friend but we all are. You are not alone.

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Matt Chris


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Hello William

Welcome to the forum, you have found a good place with friends who can lend support and provide important insights into all things HCV.

Please introduce your yourself in the section (New Members Area) here is a hyperlink  http://hepcfriends.activeboard.com/f389516/new-members-area/

Many here can relate to your exact feelings about other not understanding about the HCV and all that come with it. We are here for you please ask and read the many topics that can help.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
4William


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So good to hear somebody getting well . I gave up and just waiting to die . Family has put me thru hell . Treat me like a leper for years . Seeing you getting well put tears in my eyes . I hope i can also get well.Change my life back.Anyway just started harvoni april 5 . Good luck!



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Witt
malekula man


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Thanks my friends! Love you all!

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G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Gator Man


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Way to go MM. SVR is in your future!

john



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Geno 1b, compensated cirrhotic, 54 yo, prior null responder. Pre tx VL approx 595,000, tx with Sovaldi/Olysio (no Riba) started 1/8/14. VL 40 @ 2 weeks, UND @ 4 weeks. Still UND @ EOT + 1 year.

Gator Man SVR12, Dragon 0, Final Score.
Zlikster


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stay UND 4 EVER :)

congrats!



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Cinnamon Girl


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That`s wonderful, MM, you can have a family celebration! 

Your parents must be so proud of you for doing this and so happy for you! 

Keep us posted and enjoy the rest of your visit.  You`ll be smiling all the way to SVR now!!!  biggrin



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
FeelingGood


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Congrats Malekula!



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malekula man


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Hi CG,

I'm still in Europe. visiting my parents. Called to my nurse for this news. My people here is so glad to hear this news too... Thank you!


Hey Tig!

10 weeks to go... Will try to be a champion )))

Thanks!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Tig


Admin

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Hey MM,

OUTSTANDING!!  

Now on to victory, good luck buddy! You got this....



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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