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TOPIC: All aboard the "Harvoni" Treatment Train


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RE: All aboard the "Harvoni" Treatment Train
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I have read about the Harvoni High and people say it's a speedy high.  Mine is not.   I was wondering if anybody else felt like I do.  Like I said in my previous post. Mornings I'm good. I'm curious how this will play out.  In the meantime, my kitty George is riding this train all the way to the end with me, he follows me around like a dog.



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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

T

Tig


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Hi Carol,

That sounds like it could be both a bother and a blessing. The stoned thing, that is! Be careful in the meantime and if your daughter says no driving, it’s probably a good idea. I hope the strange feeling will subside in the next week or two. It’s not uncommon to have an adjustment period after starting these medications. There are some powerful changes going on right now, so some changes can be expected. We have talked about the “Harvoni High” in other threads, it’s real. Your metabolism is working overtime to slay this Dragon! 



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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I seem better in the morning. By the afternoon I feel stoned! Not speedy stoned but weed stoned. Anybody else get this? My daughter says at least I look happy and the consensus is they think I shouldn't be driving.

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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

T



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Karyl, you are doing the right thing...get the rest you need! You are going to feel better soon,,,drink lots of water and rest as you can. I was on Harvoni treatment this time last year and a year later, I feel so much better than I had felt in years. Hang in there!

 

 

 



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

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aaaweeee ,sweet george on the harvoni train with you at every nap and bedtime



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Sorry I'm a bit late to the welcome party Karyl, but wishing you all the best on your journey also. biggrin.gif

and Yes, George is gorgeous smile Sure he'll give mum lots of love on her journey, especially if it means ooh goodie bed time again LOL



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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He has his moments.  lol.  We lost his littermate and identical twin sister a couple years back due to thyroid issues and kidney failure. He has the same thyroid problem but he's hanging in their, to torment the dog and my daughter's cat.  LOL. He can be a mean boy.  He only has eyes for me!  Everybody else gets boxed by his left hook!



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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

T



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Awwwww George, what a good kitty! 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Thank you . I need hugs. My cat's name is George. He's 17. He sleeps right next to me and was very happy for early bedtime last day. Day 2! For me just 54 more. I am blessed. Now to see if I can work all day...

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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

T



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5,

It's that same warm, very long and tight - all enveloping "Harvoni hug" you are all getting!  Such a comfort Gilead gives to us!  Onward soldiers. SVR 12's are just around the corner!  : )

Image result for hugs

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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i find it warm and exciting also C



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Ah, what a nice thread this is, one Harvey-line passenger finishing/dis-embarking/arriving safely at the station, while another is just embarking/departing on the start of their journey, both in varying states of relief and excitement to be where they are!

Iris, I love the videos you find! - the three tunnels, and the analogy, the first definitely feeling the longest! heehee  Let the soothing healing warmth of that Harvoni high that wrapped itself around your shoulders since day one continue soothing and guarding you right through to SVR12. 

Karyl, I am so glad for you that you got your start - what a whirlwind eh?, just a mere week or so ago you were feeling stuck and mired in unknowns, and look at you now - suddenly in complete positive forward motion - Day One done - yay! I could ask ya millions of questions, about how you are doing, feeling, hx, but instead I'll just ask ... what is your cats name! :)

Later, C.

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Thx! Early dinner and I just gave up and I'm already in bed.

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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

T



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Karyl wrote:

Haha. Never had one in my life. Was just thinking out loud. I'm afraid one of those bad boys would trigger my panic disorder. Just what I don't need.


 me either .hahahaha.

i'd be afraid of panic attacks too.... so glad to hear you were wishing out loud.

i hope you get some good rest and relaxing today



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Haha. Never had one in my life. Was just thinking out loud. I'm afraid one of those bad boys would trigger my panic disorder. Just what I don't need.

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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

T



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Karyl wrote:

Day 1. Drank at least a gallon of water. Peed about every 30 mins. Drank lots of coffee. Ate good food. Got on the sleeper car in the early afternoon tho. Need an energy drink I think....or enid time to just sleep thru 8 weeks


 congrats on starting treatment,.... i know it's such a great feeling

 

energy drinks have stuff in there that might affect the daa... please chk it out first



-- Edited by 5-1-18 on Sunday 23rd of September 2018 08:41:10 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Enuf. Phone typing is fun. Changes your words. Too tired to think before hitting the post button. Lol

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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

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Day 1. Drank at least a gallon of water. Peed about every 30 mins. Drank lots of coffee. Ate good food. Got on the sleeper car in the early afternoon tho. Need an energy drink I think....or enid time to just sleep thru 8 weeks

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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

T



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WOW, IRIS!

That's simply wonderful!  Your train ride has been so much longer than mine.  You have really persevered, and I think it's great.

I agree, it's time to get back to the business of life.  I hope you will find a way to celebrate, to give yourself something you couldn't have or do during treatment or before, or to repeat a favorite thing, maybe tap dance on the train tracks.  Whatever it is, I wish you fun.

I can't wait to hear how you are feeling and coming along outside of the tunnel.

With all best regards,

Cheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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great vids iris.... enjoy the new ride



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Thank you, that last sleep was pretty good, the sound of the whistle blowing didn't even wake me once.

And here I come out of the long tunnels ...3 tunnels ...three bottles of pills, the first was the hardest. (I intend to return with a complete  list of side effects and other strangeness, when I get a moment)

This clip ends in Chatsworth California and is actually from the town I had lived in when I got sick. I loved this area lived next to the hills and hiked around on the rocks ALL the time. Went through all of these tunnels while hiking. The long tunnel one starts in Simi Valley @ what used to be Corriganville. The middle one is where we spent many summers escaping the heat and it was an excellent place to play music! Many trains passed by whiling away the summers and lemme tell ya, what a rush! That was exciting! They have since paved the inside of the tunnel so you cannot sit in there anymore. The long tunnel has cubbies you can slip into when the train comes, you will see those in the clip, you cannot see a thing in there and the first time I went we didn't have a flashlight. The last tunnel goes under Topanga Canyon Blvd and come out next to the famous Stony Point in Chatsworth, a San Fernando Valley landmark for many years. I don't know how I had the guts to hike through those tunnels then, Probably chalk it up to young and dumb, but in the 1970's it was a very happening spot. It would scare me to try that now. I'm speaking of all this because It would be nice to start again in a sense, I still live very near Chatsworth, love the place, and I have learned a lot in these many years. I recently went up to the Park where the tunnel is, It is all monitored now they do not want anyone in the tunnels. Well... I'm OUT OF THE TUNNEL NOW! EXCELSIOR!!!! let's get on with the business of life :)

EOT< I see the station coming up!! Woo Wooooooooooo I'm going to be getting off now, bu-buy Harvoni train! Have a good journey Karyl !

The area was known for many movies, westerns mostly so here is a  fun clip from the same middle tunnel, (had a hard time choosing which one to use)

MANY BLESSINGS TO ALL!

Iris

 



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)



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Iris Dragonfly wrote:

...How exciting!  biggrin

Welp, I better go...one more down the hatch for me and it's EOT Station coming up! Holy heck! Did that wizzzzzz by, well, for the most part...sort of feel like I missed summer, but I don't really beach it like I used to.

I'll be back with that long last tunnel ride, bye for now!!


Iris Im so excited for you! What an amazing journey! Im glad that I have shared some of it with you

   

Happy EOT tomorrow! 



-- Edited by Hoodietree on Saturday 22nd of September 2018 11:54:58 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Well Iris,

It's one more sleep eh?!

Well, here ... we'll turn down the bed for you tonight and tuck you safely in.

Sleep well, it's this part of the journey's end tomorrow.  

It's been quite a trip you have been on so far - is it true?, that it is never quite the same way twice! I think so, except ... for in the cases of the trips that are only once in a lifetime. This one qualifies as wonderful, and, once in a lifetime, and will never be duplicated again! Happy arrival to your welcoming destination stop tomorrow - Autumn! smile C. 

Related image

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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That's interesting, I was sure PPI was an antacid..
Well, welcome to the train Karyl ! ! !
Geeze, just as you jump on, I gotta get off. It's nice to know there is another Harvoni user on board, lately there are many other options, my dr attempted to get me approved first for Harvoni, then Zepatier, then Mavyret and finally gave an appeal for Harvoni  (again) and was at last approved! It's kind of a pisser really to have to be "approved", I mean what the heck? Why do these insurance companies have to mess with people's lives? It feels like well, you're not worthy, so you are denied, crikey.

The train ride is pretty smooth, I would say the side effects are very bearable, oh ...and it looks like you have an 8 week ride, cool, it will sail along like, wheeeeeeee! There is lots of friendly supportive folks here, so feel free to speak, vent, share, your journey is just beginning! 

...How exciting!  biggrin

Welp, I better go...one more down the hatch for me and it's EOT Station coming up! Holy heck! Did that wizzzzzz by, well, for the most part...sort of feel like I missed summer, but I don't really beach it like I used to.

I'll be back with that long last tunnel ride, bye for now!!

Iris



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)



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Thanks Tig!  You are so helpful. I spoke to the pharmacist yesterday and asked her if I can drink coffee before or right after and she said yes because coffee is very acidic.  I will take the PPI and Harvoni immediately upon wakening with a lot of water then wander down to the kitchen for my coffee. I truly appreciate all the advice you have given me.



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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

T

Tig


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Hi Carol,

WOOOOOO-HOOOOOO is right! All aboard the Harvoni Train. This is good stuff and you’re going to do great.

Good for you for paying close attention to the precautions you need to follow. These various acid reducing agents can reduce the absorption of Harvoni, if taken at the incorrect time. If you are on a PPI, you need to take it simultaneously with the Harvoni, on an empty stomach. Wait 30 minutes before eating. If you need to take something like Tums, etc., you must take it at least 4 hours before or after Harvoni administration.

I’m including a photo of the section in the Harvoni Monograph (manufacturers insert) of the information pertaining to this. 

Harvoni

 



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Yesterday a nice man from the pharmacy delivered to my door my first bottle of Harvoni!!!!!  I am going to take the first pill tomorrow, Sunday.  I have a couple questions first.  I have been reading that if you are on PPI's that you need to be sure to take the Harvoni at the same time as your PPI. And on an empty stomach.  The instructions from the pharmacy say 4 hrs before or after can you take antacids. Do they consider the PPI an antacid or is that like Pepsid and Tums?  I'm a little confused and don't want to start off on the wrong foot.

 

Wooo Woooo,  I'm getting on the train!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

 

PS.  I will add my stats to the signature line as soon as someone will tell me what they are! ?Waiting on the lab to send them and my dr.s office to tell me more than "minimal liver damage"



-- Edited by Karyl on Saturday 22nd of September 2018 09:20:00 AM

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65 yo  40+ yrs geno 1a  VL 5,930,000  AST 29 ALT 29

Fibroscore .40 Stage F1-2

Treatment naive, starting Harvoni 9/23/18 8 weeks

T



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Love that image, I have seen it before but will never get tired of it. Wait until you see my tunnel! (oh, that came out kinda strange, LoL)

I sympathize with you C, living near the train can wear out the magic. Glad to enjoyed the echo and landscape. it is beautiful there.

Cheddy love the sound of that last stop! TOOOOOOOOOOOOOOOOT

BB, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)

Tig


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I have shared this photo time and again. It’s my vision of us fighting through the smoke and fog, onward to our destination. The last Warrior that used this Locomotive, was RC. I invite you, no, WE invite you to board the train called Success! As Cheddy mentions, use the light and envision the end of the tunnel. This train won’t be stopped!


ALL ABOARD.......

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Ride that Train!  Last stop coming up.  You're gonna have to get another ticket.

Geez, you all are so amazing here: Tig - what a good Daddy (and friend), Canuck, a passionate advocate, and so many others supporting others, just because.  Makes my heart pitter patter.

Hit the tracks, Iris! Full steam ahead (well actually, take lots of naps and embrace feeling lazy for as long as you need).

Visualize the next destination.

 

Love,

Cheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Ya, well .... OK ... I must admit THAT video was a bit of magic alright, really neat echoey particular acoustics (almost a song/melody to that whistle music the man played there!), it does evoke some neat feelings, and made especially enjoyable looking at that really neat windmill and farm wagon in the foreground.

Trouble is, I have a love/hate relationship with train whistles, for decades now, no matter which house I lived in, I ALWAYS seem to live on the wrong side of the tracks! Trains have rumbled past my houses and through my head so many times, I have automated to it, been deafened by it, been driven mad by it, infuriated by it, when (right when you wish and need quiet) the malicious whistle blower decides to try out a new prolonged irritating whistle number right on top/next to your house while you are trying to sleep or in the middle of a phone call - you know - I think I would appreciate train whistles more if I could actually ever get on a train and go somewhere! 

Oh, hey wait a minute - that was a Harvoni train right? Sorry then, those Harvoni train noises SHOULD be (are supposed to be) especially gloriously noisy, strong, loud and heart poundingly beautiful. heehee  wink C. 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Oh! hahahaha, No, my dad was an Navy Airman... close I guess. It was more about the travel, My dad love to go on adventures. Never left place the same way we came, if he could avoid it. More stuff to see ,We might miss something! Couldn't sleep on the road, you might miss something!
So you're going all the way from Florida to California? Are the fires affecting them much? I hear it's been pretty fierce up there. She sounds amazing Tig, have fun with them young-ins! They do grow up so quickly, our oldest is 16 and his little brother is 6. The little one talks consistently endless queries and solutions, it's really hilarious sometimes.


Oh Lookie here comes my Train!! I need to make a transfer here at the halfway point!!!!!! then I catch the free ride HOME

(I just missed this train on our trip to Durango, the 416 fire prevented the train from running)But listen to the whistle blow...brings tears to your eyes!  Just love that echo against the mountains.

 



__________________

in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)

Tig


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You must’ve been an Army or Air Force Brat! My daughter and her Army hubby are living just outside of Ft Bragg now. He’s currently deployed to the Persian Gulf. I’m leaving tomorrow morning to spend two weeks with her and my grand children. My wife and I try to split up his deployments, just to help her any way we can. She’s an amazing woman, two younguns, a full time small business and is a full time University student. I honestly don’t know how she does it! We’re very proud of them all.

Congrats Iris, you’re well on your way to success! I’m anxious to hear all the lab results.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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HA !!! Love those beans!

A bit more than a third of the way through the journey! 

This was the first train I every rode on (except the one in Disneyland) when I was just a kid, Well this is just the engine but it represents the first part of this trip. The Skunk train from Mendocino to Willits. Got lost looking at the may trains, I think I really like trains. Choo Chooooooo!



-- Edited by Iris Dragonfly on Wednesday 8th of August 2018 07:09:20 PM

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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)



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Image result for climbing a beanstalk



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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iris!!!! yeehaw

5

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.

Tig


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Hey Iris,

DOWN THE HATCH, WARRIOR!! 

You’re going to do great! Say goodbye to all those years of worry. You have finally gotten one of the best treatments available. I’m glad you avoided the Interferon and Riba nightmare. Things happen for a reason, this better and easier opportunity to kill your Dragon is it!

Remember, one gallon of water every day!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hi ,

Just sitting waiting for the 9 o'clock so that I may jump on.

Oh its here! Gotta goooooooooooo!



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)



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Tig wrote:

Welcome aboard! Sit back, grab your bucket of water and enjoy the ride. The EOT station will be the next stop on your way to SVRVille...  ALL ABOARD!!!!!

Harvoni Train 02.gif


this post is so cute! and cool ......... indeed , grabbing my bucket of water ..and dragging lots of water to work with me. went back to work tonite after 10days off to get started on Harvi. So far so good, a few weird feelings but thankful for the easy start.... and praying it keeps feeling ok. I keep imagining the colony getting smaller and new ones not reproducing-it's a beautiful picture when I think of it. My work is being so cool with me too, lots of ppl know and are cheering me on and letting me out early to keep me feeling well. I am blessed.smileaww 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.

Tig


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Welcome aboard! Sit back, grab your bucket of water and enjoy the ride. The EOT station will be the next stop on your way to SVRVille...  ALL ABOARD!!!!!

Harvoni Train 02.gif



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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thank you to all the harvoni pioneers here and everywhere. I was an interferon pioneer and thankfully didn't have to do more than a few weeks of trial before they were good enough to take me off due to bad results.

I was sad and glad.

I started harvoni may 1st , 2018 and I feel so blessed to be on the harvoni train. looking forward to letting the virus go :)

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Hello again Canuck --  Try to make that California trip --its good for one's overall well-being. It really helped mine in subtle ways that added up to letting go of old anxiety about why I felt the way I did physically for so long and the zombie's in my head. I am grateful for SVR! Amazing last year and am thankful for you, Tig, Wendy, everyone here on the board and your wealth of knowledge that kept me on track to SVR. Thank you, thank you!! Always grateful- biggrin

 

ps



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Hey,

Glad you splained about the avatar - I was wondering, I showed the pic to my partner earlier today and but neither of us were sure, figured some sorta hawk or bird of prey - we're not really "up" on our birds (obviously) heehee. Good to know what it is, and what a neat shot for you to possess! Lucky you, to have those kinds of feasts for eyes, experience, and memory!

I am so jealous, I've been pining to drive the West coast all the way down along into Calif or further (or to just about anywhere of a warmer lattitude than here)! But Calif would suit me mighty fine! I went once as a child (from the Prairies no less), I only recall bits and pieces of that family trek. Recall I was astounded, mesmorized hitting Oregon as whole new "amazingly green" world unfolded before me, and then into the warmth Calif. I too remember seeing the Monarchs (but not hoards of them, just some gatherings). I was young, and was quite ill on that trip, so don't remember too many things. Will get there again eventually. I did fly in once as a young adult but it was a very short whirlwind kind of thing and did not get to spend any real quality time there, just a teaser, but knew I would return one day, fer sure

I'm so glad you went! Oh ya, Illinois! Right. Big brr. Well, doubly glad you got to Calif. then. Sounds wonderful. smile

Also very glad you gave us such a good peek into your brain, and how you are feeling. Very reassuring to us who have also struggled through fog and things to see others resolving. Really good, and I'm so glad for you. Gifts, meant to be. biggrin C.

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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also,,,my avatar is a picture I took of a peregrine falcon not far from seeing clusters of monarch butterflies in Eucalyptus trees...



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Lindz & C --- sorry for the delay here! I have just returned from a month long trip to California of basking in the sun, hiking and feeling terrific!! The trip was something I did for myself since I am feeling so happy and healthy these days! I definitely had the encephal..effect in the brain from the HCV. Since treatment and SVR, the brain fog and fuzziness I felt for YEARS is quelled. My head is so clear and my energy level is much improved. I am in general feeling amazingly better than I have felt in many years,,,so a month in CA out of the cold weather of Illinois was a gift to myself. My partner and I explored Big Sur, Monterey and southern California...fantastic weather, swimming, sun,,all goodness.

Thanks to everyone here who has supported myself and others through this slaying of the dragon. I love being a part of this fabulous Club Zero...I've always been a basically optimistic person, even though I had not felt 'quite right' for a long time. It seemed to be taking a toll on me the last 17-18 years, because it was becoming harder and harder to keep up with day to day living and now I am free of HCV!! Hoorah!! My biggest benefit as a result of SVR is the brain fog and energy level,,,wow. 

Thanks to all!! 

Cheers!

PS



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Yes, Polo - absence does makes the heart grow fonder - but, we know (fondly) you are always around and with us! Lovely, isn't it, that we have been sharing in LM's recent celebrations. ALL us "UND people" (collectively) are getting to be one very large, happy, cured group!

So, during your treatment you never had much oppportunity to let up on your work comittments - is it still the same - work a lot, travel, then a bit of time off and repeat?

I'm wondering "how you feel" now, comparatively (with some retrospect under your belt), being that you are getting well past SVR12 (biggrin!) I recall one of your worst beginnng worries was fog, and that sometime along the way, some of this trouble dissipated a bit for you. How does it seem now, with more time transpiring?  Anymore thoughts about retiring one day?

Let us know how things seem to be going for you now. I forget your exact locale again, but I do recall you have been having some "winter" too! Hope you're not having to contend with work-driving/flying too much in incliment conditions. 

Keep us posted on your progress! smile C.

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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PS -Where are you?  I'm missing you!  It's been way too long since you've checked in with us here!



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64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay



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Thanks LZ, Dragon Slayed Tig, Slurp! Canuck!

 

ps biggrinbiggrinbiggrin



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Image result for 12 scoops of icecream

Now, were talkin'! I got you 12 scoops to celebrate. 

So glad you are official now. What weird and wonderful trip you have been on eh.

Time to kick your shoes off a bit, loosen the belt, revel in the saiety value of this day. The rest is cream. biggrin C. 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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That’s OUTSTANDING!! SVR, has a nice ring to it, congrats! smile

1BF06468-0471-412E-9306-F5D759A86461.jpeg



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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