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Hep C Discussion Forum -> On Treatment -> All aboard the "Harvoni" Treatment Train
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TOPIC: All aboard the "Harvoni" Treatment Train
Lindsmatt52


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RE: All aboard the "Harvoni" Treatment Train
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YIPPEE PS!!  So very happy for you!!  Congratulations!!



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
polosilver


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I have SVR, no VL detected at 90 days! Hoorah! Hoorah!



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
polosilver


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Hi Tig & Canuck -- yes, I think they simply checked boxes when I told them I had HCV and completed treatment ~90 days ago. I had copies of all the tests that were run previously, but I think checked boxes, not reading the information or listening to me.

LZ - Yes, I panicked for a few minutes when I got the call and they said I was REACTIVE to HCV...I'm sure my face drained and I felt a dizzying moment.

Robert --you make a good point, I don't think they even were testing my LE's! I need to call them in the morning...

Wow, hope for no VL and another Party here!



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
robertsamx


Guru

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Posts: 915
Date:
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Hi polos, As Tig mentioned, the LFTs -ast-alt tell a lot about virus activit. My numbers averaged 200 to 400 all the time. Todays blood work has me at 7 and 21. 

My EOT was Dec 18 2017, and each week since EOT I have had blood work and the LFTs have always been in the  12 to 27 range. So I would say keep an eye on your LFTs, its a very inexpensive test. My cardiologist has a finger prick test that spits out lipid results and LFTs results. I will wait until 6 week post to check load/count. In the first two treatments I was always relapsed at 4 weeks post treatmen. God I hated getting those phone calls, they knock you off your feet. I am 23 days out post treatment with LFTs of 7 and 21- Dragon Dead I would say!!   RC

 



__________________

 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Lindsmatt52


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Poor ps!!  I'm so sorry you had that unnecessary scare!!  I'm so glad it was nothing but I do get frustrated with some of these medical professionals who just don't seem to know much about HepC.  Hopefully, that will improve in time.  I have no doubt your news will be good but please be sure to let us know when you get your results so we can celebrate with you! 



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
Canuck


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Hey Polo,

I was out of town, but back tonight to ponder your new clinic.

That could be one explanation, that the "new clinic" you had to go to (because of a change in your insurance provider) possibly may not know much about HCV testing?, thus why they did the PCR VL (that you were expecting to be done) but that they also did a "seemingly redundant" Hep C antibody test? 

I just can't fathom a guess as to why they did the antibody test, but, perhaps they have their own reasons?, perhaps it is stupidly somehow automatically done, on the same page, tick all the boxes, boxes ticked in error? But, it seems odd, as this is a "new clinic" to you, and I assume a "new doc" to you (that came with this new clinic you now deal with) ... yes? And, so, it is really up to your ordering doc to decide what bloodwork should be done on you. Why would he be wanting the antibody test at this stage? You should all have been on the same page - you were coming in for your EOT+12 week VL, to confirm your EOT+12 week SVR (right?) and general LFT's and anything else he thought important done. It's funny he had the antibody drawn, but as Tig says, maybe it does not cost much.

Gee, hope you get the VL results back fast, i could do with another good party bout now! But no ice cream for me eh, I just about made myself sick pigging out at DQ on the way home - thank goodness for good functioning livers! wink C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Tig


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If you've been charged for the antibody test, you tell the doctor's office that it should be on them. They should've known that it wasn't necessary. I don't think the antibody test is all that expensive anyway. They can do them now with a finger stick in some cases. The blood test is going to be higher. So remind them that it was their mistake, not yours. I haven't had a viral load in a couple years if memory serves me. I'm of the school of thought, that if I were to relapse at this late date, my first inkling of trouble would be elevated enzymes. Then I'd request or the doctor should recommend, another viral load. The odds are so low, that it doesn't even cross my mind anymore. Once cured, we typically stay that way, thank God.... Even then, the treatments are far, far easier than they were, so retreatment would be easy peasy. Once approved that is. We still have that hurdle sometimes, but it's getting better, too. 



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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polosilver


Senior Member

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Thanks Tig for responding. My health insurance provider changed this year, so I had to go to another clinic for my SVR test. They checked me for the HCV virus and for VL. They called today and said I was REACTIVE and for a minute it scared me...then I looked it up again. However, I had given them my information that I had HCV and was treated, etc, so now I wonder how much I'll have to pay for the HCV test. I realize they should not have checked me for that, since we know I had the virus. Obviously, the new clinic doesn't know much about HCV. 



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
Tig


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I see you answered your own question, but I can confirm that yes, you will always be HCV antibody positive. It simply indicates that you had it at one time. It’s the same test that most, if not all of us had that alerted our doctors to our little friend. Some found out by having elevated liver enzymes, which in turn brought about the Hep C antibody test. 

Once we have cleared the virus, any elevation in our enzymes again warrants another viral load to confirm or rule out relapse. You should know that once SVR12 is achieved, the chance of relapse is <.5 (1/2) of 1%. It’s very, very rare. Once cured, we tend to stay that way, thankfully!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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polosilver


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Okay - never mind,,I just re-read old notes here and found that yes I will always show REACTIVE even though I have cleared the virus.



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
polosilver


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Posts: 245
Date:
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Hail to the Elite -- Tig - Canuck - other Gurus--

Will I always show REACTIVE for HCV even when the Virus is cleared?



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
wendyo


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Dragon be gone.....

 

glinda.jpg



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__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
robertsamx


Guru

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Congratulations PS on that UND at end of treatment!  Now the wait begins for the first post R/X results. Seems all we do is wait for the next test results. Once you come back UND at your 4 week post blood test you can take a deep breath and relax . The waiting will be over!

                                                               NICE JOB POLOSILVER.      RC



__________________

 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Observer


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Oh Hurray PS!!!!

Knowing you are UND is simply wonderful. (But not surprising with those fantastic LFT numbers biggrin)

Alison



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 
polosilver


Senior Member

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Thanks for the happy wishes C & LZ!

I'm a marching warrior princess that is now doing a ruby slipper-ed happy tap dance! Fun!!

 

ps



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
Lindsmatt52


Senior Member

Status: Offline
Posts: 291
Date:
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HURRAY PS!!!  You are a warrior princess!  Congratulations on an amazing journey to the Land of  ZERO!  SO happy for you!

Well, I had a photo of a warrior princess but can't seem to paste it on here!  It's the thought that counts!biggrin



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
Canuck


Guru

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UND-UND!

UND-UND-UND-UND-UND-UND - geez I like the sound of that - good rythym, catchy beat.

Sounds like somebody walking proudly with their marching papers tucked under their arm!

https://www.youtube.com/watch?v=CrGCsZRUFkg

Hm, I think this occasion calls for more of a ... happy dance! 

https://www.youtube.com/watch?v=smwzk0-Nz0Q

But in your case my dear, I think you deserve to be wearing a lovely set of ruby red slippers, because dreams really do come true. 

You deserve every molecule of your hard won, well earned, rewarding EOT UND! Such a good job you did. biggrin C.

 

Image result for ruby red slippers

 

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
polosilver


Senior Member

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Posts: 245
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Thanks for all the good wishes here for my low liver enzyme numbers, fabulous!!

I got better news today, an email with a link that informed me that my I AM UND at 13 weeks!! My next test for SVR is mid-January.

Dragon Slayed and a Club Zero member.



-- Edited by polosilver on Saturday 4th of November 2017 05:47:46 PM

__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
robertsamx


Guru

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Posts: 915
Date:
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Polo, those are some good/low LFTs. No doubt your load will come back UND. But its always nice and reassuring to see that on official paper!!  Are you having a 1 month post treatment V/L test?  RC



__________________

 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tig


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PERFECT!!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Lindsmatt52


Senior Member

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ps-Woo  Hoo!!  Those are beautiful numbers!!  I have no doubt that your VL will be just as pretty!!  What a great ending to a long journey!biggrin  



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
polosilver


Senior Member

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Thanks Observer!

All -- I don't have the VL/UND info from my blood draw yesterday for EOT 12 weeks. I do have the LE's, here we go:

AST    20 U/L    15 - 37 U/L
ALT    23 U/L    12 - 78 U/L

 



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
Observer


Guru

Status: Offline
Posts: 714
Date:
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I am super happy for you

 

A 



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 
polosilver


Senior Member

Status: Offline
Posts: 245
Date:
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Thanks Saludahiker!

Cheers!

 



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
saludahiker


Member

Status: Offline
Posts: 37
Date:
Permalink  
 

Congrats Polo! It was a good ride!



__________________

57 yo M, GT 1A, Dx 2006 HCV, SOT 8/1/2017 Harvoni 8 weeks

ALT 63, AST 34, VL 710,000, 4 weeks ALT 18, AST 16, VL undetected, 8 weeks ALT 14, AST 14, VL undetected 
polosilver


Senior Member

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Posts: 245
Date:
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Hi everyone! Yes, I am smiling!biggrinbiggrinsmilesmilebiggrin Kicking up a few heels too!

Thanks for all the congrats and smiles! Woohoo, I made it and thanks to everyone here for getting me to the SOT station!!



__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

It's funny how we love to see you get on the train and then get crazy excited when you disembark. Congrats Polo!

Trains kinda empty with all these new DAA's.  And that's a good thing.



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Canuck


Guru

Status: Offline
Posts: 3249
Date:
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Polo, 

The lovely thing that cured you.

imagefly.cgi?cid=72734365&width=300&heig

methyl N-[(2S)-1-[(6S)-6-[5-[9,9-difluoro-7-[2-[(1S,2S,4R)-3-[(2S)-2-(methoxycarbonylamino)-3-methylbutanoyl]-3-azabicyclo[2.2.1]heptan-2-yl]-3H-benzimidazol-5-yl]fluoren-2-yl]-1H-imidazol-2-yl]-5-azaspiro[2.4]heptan-5-yl]-3-methyl-1-oxobutan-2-yl]carbamate;propan-2-yl (2S)-2-[[(2R,3R,4R,5R)-5-(2,4-dioxopyrimidin-1-yl)-4-fluoro-3-hydroxy-4-methyloxolan-2-yl]methoxy-phenoxyphosphoryl]amino]propanoate

InChI=1S/C49H54F2N8O6.C22H29FN3O9P/c1-24(2)39(56-46(62)64-5)44(60)58-23-48(15-16-48)21-38(58)42-52-22-37(55-42)28-9-13-32-31-12-8-26(18-33(31)49(50,51)34(32)19-28)27-10-14-35-36(20-27)54-43(53-35)41-29-7-11-30(17-29)59(41)45(61)40(25(3)4)57-47(63)65-6;1-13(2)33-19(29)14(3)25-36(31,35-15-8-6-5-7-9-15)32-12-16-18(28)22(4,23)20(34-16)26-11-10-17(27)24-21(26)30/h8-10,12-14,18-20,22,24-25,29-30,38-41H,7,11,15-17,21,23H2,1-6H3,(H,52,55)(H,53,54)(H,56,62)(H,57,63);5-11,13-14,16,18,20,28H,12H2,1-4H3,(H,25,31)(H,24,27,30)/t29-,30+,38-,39-,40-,41-;14-,16+,18+,20+,22+,36+/m00/s1

YWRYBUCQWKGONV-CABNZSRHSA-N

Canonical SMILES:

CC(C)C(C(=O)N1CC2(CC2)CC1C3=NC=C(N3)C4=CC5=C(C=C4)C6=C(C5(F)F)C=C(C=C6)C7=CC8=C(C=C7)N=C(N8)C9C1CCC(C1)N9C(=O)C(C(C)C)NC(=O)OC)NC(=O)OC.CC(C)OC(=O)C(C)NP(=O)(OCC1C(C(C(O1)N2C=CC(=O)NC2=O)(C)F)O)OC3=CC=CC=C3

Isomeric SMILES:

C[C@@H](C(=O)OC(C)C)N[P@@](=O)(OC[C@@H]1[C@H]([C@@]([C@@H](O1)N2C=CC(=O)NC2=O)(C)F)O)OC3=CC=CC=C3.CC(C)[C@@H](C(=O)N1CC2(CC2)C[C@H]1C3=NC=C(N3)C4=CC5=C(C=C4)C6=C(C5(F)F)C=C(C=C6)C7=CC8=C(C=C7)N=C(N8)[C@@H]9[C@H]1CC[C@H](C1)N9C(=O)[C@H](C(C)C)NC(=O)OC)NC(=O)OC
 
What a nice picture . I hope you are smiling too.  biggrin C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Lindsmatt52


Senior Member

Status: Offline
Posts: 291
Date:
Permalink  
 

PS-  You did it!!!  

Image result for celebrate emoticon



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
Tig


Admin

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Posts: 9270
Date:
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Here’s the Station sign, time to de-Train!

                       



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
polosilver


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Hello LM - Woohoo!!! Yes, Freedom is right!!! A Woodstock Freedom is the best!! Thank you! Thank you! 9PM tonight is the last of the Harvoni Magic.  Thanks for the toast and rememberance! You are coming up in less than 30 days yrself...biggrin

Hi Tig -- Amazing at how thrilled I was to get that Club Car seat 3 months ago and now I'm happy to let it go as I roll down the hill to SVR. Thanks!

 

 



-- Edited by polosilver on Thursday 26th of October 2017 06:10:43 PM

__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
Tig


Admin

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Posts: 9270
Date:
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Time to pick up your belongings, Polo! The Harvoni Train is pulling into EOTville. Proceed to track 1 for the smooth ride to SVR Station....



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Lindsmatt52


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Hey Polosilver-  WOOHOO!!  Your last day, girlfriend!  I am thrilled for you and will toast you with a huge glass of water!biggrin  Here's a little inspirational song to celebrate your release!

 

https://www.youtube.com/watch?v=UcRWWC8wD-A



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
Tig


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Oh ya! We’ve got a lot of exciting results coming soon. I’m really pleased to have so many members (family) here that are so close to the end of treatment. Time to pack your bags and prepare to de-train. EOTville, next stop!

HYDRATE!!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Canuck


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Hail all Harvonians and may you fare well,

Welcome SaltLyfe. Please do let us know a bit more about yourself, how you got diagnosed, your labs or anything you wish to share, and fire away if you have any questions.

Polo,

I still think it a "little" odd they don't do your EOT labs (exactly) on time, yes, better, that they bumped your lab day up to be a bit earleir, but still most of them try to do the EOT labs (all the labs really) on time. Oh well, it's not critical - your doc's office is (like all of us) probably sooooo confident of your result it matters not to know the result exactly on EOT day - but WE always want to know the result and hear that lovely und word again asap! So, that headache you got, after being on the "dry" side, was it a silent headache like you have had before or was it the full monty kind? How exciting, you're on your final countdown now girl.

How goes everything Saluda, GB site still feeling OK? Still working like a 2 headed octopus? You and Polo sound like you might dabble in workalholicism sometimes. As long as you are both feeling good and good enough to keep pullin'. We can only do what we can do, or, we only do what we need to do! Don't forget to keep watering your ponies.

Yup, these DAA's are truly lifesavers. biggrin C. 

Related image



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
saludahiker


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Hi SaltLyfe, Welcome and congratulations on starting your treatment.  I recently finished my 8 week Harvoni treatment.  The HCV virus is undetected and my liver functions AST and ALT are now both 14.  Harvoni is a remarkable drug!  Good luck!



__________________

57 yo M, GT 1A, Dx 2006 HCV, SOT 8/1/2017 Harvoni 8 weeks

ALT 63, AST 34, VL 710,000, 4 weeks ALT 18, AST 16, VL undetected, 8 weeks ALT 14, AST 14, VL undetected 
Jenny1


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Hi Saltlyfe,

Congratulations on starting. I'm almost done with 8 weeks (Harvoni prescribed for 12 weeks). I was concerned about possible side effects before I began but have felt really fine. Drink the water everyone is suggesting you consume.  Good luck smile

 



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68 y/o; geno 1a; contracted from transfusion in 1972; Dx 1999; biopsies showed mild scarring and inflammation;  Harvoni - 12 weeks SOT 8/23/17; no prior treatment
Tig


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Hey Polo,

Glad you’ll be getting that important testing and information earlier than originally planned. I’m confident the results will be excellent. Almost time to call for the forum wide “Happy Dance”! 

Hi SaltLyfe,

Interesting screen name! Welcome to the forum. Are you a coastal dweller, fisherman or beach bum? All of the above, lol? Congratulations on securing Harvoni treatment and getting started tonight. It will go by fast and successful. Stay positive and concentrate on yourself. Getting through this will be far easier if you heed the recommendations of proper hydration. One gallon of water everyday, without fail. Stay in touch!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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polosilver


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Welcome SaltLyfe, you are at the station ready to get on board, awesome--

I've got 14 days left of a 12 week treatment of Harvoni. As you see from the posts, drink lots of water to cleanse and prevent headaches. When I started I asked the pharmacist about drinking water and they said, no more than usual was required, and that was not the right answer. Need to drink plenty of water and fluids everyday or one is at risk for the headache side effect. There are several folks here with years of knowledge and experience with HCV who will answer questions.



-- Edited by polosilver on Thursday 12th of October 2017 10:50:49 AM

__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
polosilver


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Hi Tig,

Thanks for the encouragement about checking on my testing cycle. I heard back from my gastroenterologist nurse and she said I should go the following Mon/Tues, Oct 30/31 for my blood work after EOT on Oct 26th.  That at least gives me answers a week or so earlier, whew!

 



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New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
SaltLyfe


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RE: All aboard the
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I'm about to start Harvoni tonight. 8 week treatment for HCV

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Need advertising hit me up!
Tig


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Hey Polo,

I'm liking the new avatar! To the rest of you reading this post and have had the opportunity to be hounded by us regarding hydration:

THIS IS WHAT WE'RE TALKING ABOUT!!! OORAH!

I have to save a copy of that pic for use here on the forum. I love it!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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polosilver


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Hey Tig,

I'm not sure why they are having me wait until the second week of November? My SVR testing is to be done week of Jan. 15th, 2018. I will ask why they want me to wait until second week of November. I think the ad I saw was from the CDC and not Gilead.

All --- I had a big reminder to drink water. We were in the car driving on Sunday to a State Park to 'get outside' for turning trees, a lake, nature time. I didn't drink as much water since we were in the car and country driving...yesterday I had a migraine! I know it was from lack of water on Sunday, so I've been tanking up again. Everyone, please remember to DRINK LOTS OF WATER EVERYDAY!

Image result for drink lots of water



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New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
Tig


Admin

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Hey Polo,

They have been advertising Harvoni for quite awhile and now Epclusa and Vosevi here. I have yet to see any mention of Zepatier or Maviret. Gilead is buying up the airtime! Just a matter of time though, because of their excellent success rates. Even those drug ads provide some good advice on testing, but we need to do more to get everyone educated. We have had a few HCV public service announcements as well. Of course I live in a predominantly Baby Boomer location. That’s code for, I’m getting old... no

You‘re coming into the Station, I know how exciting that is! Enjoy this accomplishment, you earned it. If you’re ending treatment on the 26th, why are they waiting til the 2nd week of November to do the tests? Usually they draw them at the actual end of treatment (EOT) and again 12 weeks later to determine the SVR status. Some docs even wait until the EOT +12 date. We have had several have to deal with the anxiety of waiting for confirmation of SVR.

What remains true is once you are undetected during treatment and the enzymes have returned to normal, you stay that way. This is good stuff!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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polosilver


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I was downtown Chicago this week and there was an ad on the TV in a restaurant that all baby boomers should be tested for HCV. Wow! First time I had seen this type of promo on HCV.

I'm also on my countdown, I complete the magic pills on Oct 26th! Next labs 2nd week of Nov.



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New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
Jenny1


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WOW!!! How wonderful you all are to send these good wishes.  It's really appreciated smile



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68 y/o; geno 1a; contracted from transfusion in 1972; Dx 1999; biopsies showed mild scarring and inflammation;  Harvoni - 12 weeks SOT 8/23/17; no prior treatment
Tig


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Hey Jenny,

Thats simply, OUTSTANDING!  Big congrats your way! We’re all thrilled to hear such good news. This information is the first best piece of news you’ll get and It’s only going to get better! Big cyber >>>HUG<<< for your first of many successes!

 



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Lindsmatt52


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UNDETECTED!!  Sweet, Jenny!!  Keep up the good work!



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
polosilver


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Love those stats Jenny!! WTG! 

I'm smiling with you and for you!biggrin



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New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 
robertsamx


Guru

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Great news Linda. Gongrats on the UND !  Bet it feels good?  Now that your UND the rest of the treatment you spend killing the virus stragglers . My motto is Kill,Kill,Kill.  RC



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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
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