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TOPIC: All aboard the "Harvoni" Treatment Train


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RE: All aboard the "Harvoni" Treatment Train
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Love that image, I have seen it before but will never get tired of it. Wait until you see my tunnel! (oh, that came out kinda strange, LoL)

I sympathize with you C, living near the train can wear out the magic. Glad to enjoyed the echo and landscape. it is beautiful there.

Cheddy love the sound of that last stop! TOOOOOOOOOOOOOOOOT

BB, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)

Tig


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I have shared this photo time and again. It’s my vision of us fighting through the smoke and fog, onward to our destination. The last Warrior that used this Locomotive, was RC. I invite you, no, WE invite you to board the train called Success! As Cheddy mentions, use the light and envision the end of the tunnel. This train won’t be stopped!


ALL ABOARD.......

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Ride that Train!  Last stop coming up.  You're gonna have to get another ticket.

Geez, you all are so amazing here: Tig - what a good Daddy (and friend), Canuck, a passionate advocate, and so many others supporting others, just because.  Makes my heart pitter patter.

Hit the tracks, Iris! Full steam ahead (well actually, take lots of naps and embrace feeling lazy for as long as you need).

Visualize the next destination.

 

Love,

Cheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Ya, well .... OK ... I must admit THAT video was a bit of magic alright, really neat echoey particular acoustics (almost a song/melody to that whistle music the man played there!), it does evoke some neat feelings, and made especially enjoyable looking at that really neat windmill and farm wagon in the foreground.

Trouble is, I have a love/hate relationship with train whistles, for decades now, no matter which house I lived in, I ALWAYS seem to live on the wrong side of the tracks! Trains have rumbled past my houses and through my head so many times, I have automated to it, been deafened by it, been driven mad by it, infuriated by it, when (right when you wish and need quiet) the malicious whistle blower decides to try out a new prolonged irritating whistle number right on top/next to your house while you are trying to sleep or in the middle of a phone call - you know - I think I would appreciate train whistles more if I could actually ever get on a train and go somewhere! 

Oh, hey wait a minute - that was a Harvoni train right? Sorry then, those Harvoni train noises SHOULD be (are supposed to be) especially gloriously noisy, strong, loud and heart poundingly beautiful. heehee  wink C. 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Oh! hahahaha, No, my dad was an Navy Airman... close I guess. It was more about the travel, My dad love to go on adventures. Never left place the same way we came, if he could avoid it. More stuff to see ,We might miss something! Couldn't sleep on the road, you might miss something!
So you're going all the way from Florida to California? Are the fires affecting them much? I hear it's been pretty fierce up there. She sounds amazing Tig, have fun with them young-ins! They do grow up so quickly, our oldest is 16 and his little brother is 6. The little one talks consistently endless queries and solutions, it's really hilarious sometimes.


Oh Lookie here comes my Train!! I need to make a transfer here at the halfway point!!!!!! then I catch the free ride HOME

(I just missed this train on our trip to Durango, the 416 fire prevented the train from running)But listen to the whistle blow...brings tears to your eyes!  Just love that echo against the mountains.

 



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)

Tig


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You must’ve been an Army or Air Force Brat! My daughter and her Army hubby are living just outside of Ft Bragg now. He’s currently deployed to the Persian Gulf. I’m leaving tomorrow morning to spend two weeks with her and my grand children. My wife and I try to split up his deployments, just to help her any way we can. She’s an amazing woman, two younguns, a full time small business and is a full time University student. I honestly don’t know how she does it! We’re very proud of them all.

Congrats Iris, you’re well on your way to success! I’m anxious to hear all the lab results.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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HA !!! Love those beans!

A bit more than a third of the way through the journey! 

This was the first train I every rode on (except the one in Disneyland) when I was just a kid, Well this is just the engine but it represents the first part of this trip. The Skunk train from Mendocino to Willits. Got lost looking at the may trains, I think I really like trains. Choo Chooooooo!



-- Edited by Iris Dragonfly on Wednesday 8th of August 2018 07:09:20 PM

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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)



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Image result for climbing a beanstalk



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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iris!!!! yeehaw

5

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.

Tig


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Hey Iris,

DOWN THE HATCH, WARRIOR!! 

You’re going to do great! Say goodbye to all those years of worry. You have finally gotten one of the best treatments available. I’m glad you avoided the Interferon and Riba nightmare. Things happen for a reason, this better and easier opportunity to kill your Dragon is it!

Remember, one gallon of water every day!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hi ,

Just sitting waiting for the 9 o'clock so that I may jump on.

Oh its here! Gotta goooooooooooo!



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)



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Tig wrote:

Welcome aboard! Sit back, grab your bucket of water and enjoy the ride. The EOT station will be the next stop on your way to SVRVille...  ALL ABOARD!!!!!

Harvoni Train 02.gif


this post is so cute! and cool ......... indeed , grabbing my bucket of water ..and dragging lots of water to work with me. went back to work tonite after 10days off to get started on Harvi. So far so good, a few weird feelings but thankful for the easy start.... and praying it keeps feeling ok. I keep imagining the colony getting smaller and new ones not reproducing-it's a beautiful picture when I think of it. My work is being so cool with me too, lots of ppl know and are cheering me on and letting me out early to keep me feeling well. I am blessed.smileaww 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.

Tig


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Welcome aboard! Sit back, grab your bucket of water and enjoy the ride. The EOT station will be the next stop on your way to SVRVille...  ALL ABOARD!!!!!

Harvoni Train 02.gif



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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thank you to all the harvoni pioneers here and everywhere. I was an interferon pioneer and thankfully didn't have to do more than a few weeks of trial before they were good enough to take me off due to bad results.

I was sad and glad.

I started harvoni may 1st , 2018 and I feel so blessed to be on the harvoni train. looking forward to letting the virus go :)

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Hello again Canuck --  Try to make that California trip --its good for one's overall well-being. It really helped mine in subtle ways that added up to letting go of old anxiety about why I felt the way I did physically for so long and the zombie's in my head. I am grateful for SVR! Amazing last year and am thankful for you, Tig, Wendy, everyone here on the board and your wealth of knowledge that kept me on track to SVR. Thank you, thank you!! Always grateful- biggrin

 

ps



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Hey,

Glad you splained about the avatar - I was wondering, I showed the pic to my partner earlier today and but neither of us were sure, figured some sorta hawk or bird of prey - we're not really "up" on our birds (obviously) heehee. Good to know what it is, and what a neat shot for you to possess! Lucky you, to have those kinds of feasts for eyes, experience, and memory!

I am so jealous, I've been pining to drive the West coast all the way down along into Calif or further (or to just about anywhere of a warmer lattitude than here)! But Calif would suit me mighty fine! I went once as a child (from the Prairies no less), I only recall bits and pieces of that family trek. Recall I was astounded, mesmorized hitting Oregon as whole new "amazingly green" world unfolded before me, and then into the warmth Calif. I too remember seeing the Monarchs (but not hoards of them, just some gatherings). I was young, and was quite ill on that trip, so don't remember too many things. Will get there again eventually. I did fly in once as a young adult but it was a very short whirlwind kind of thing and did not get to spend any real quality time there, just a teaser, but knew I would return one day, fer sure

I'm so glad you went! Oh ya, Illinois! Right. Big brr. Well, doubly glad you got to Calif. then. Sounds wonderful. smile

Also very glad you gave us such a good peek into your brain, and how you are feeling. Very reassuring to us who have also struggled through fog and things to see others resolving. Really good, and I'm so glad for you. Gifts, meant to be. biggrin C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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also,,,my avatar is a picture I took of a peregrine falcon not far from seeing clusters of monarch butterflies in Eucalyptus trees...



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Lindz & C --- sorry for the delay here! I have just returned from a month long trip to California of basking in the sun, hiking and feeling terrific!! The trip was something I did for myself since I am feeling so happy and healthy these days! I definitely had the encephal..effect in the brain from the HCV. Since treatment and SVR, the brain fog and fuzziness I felt for YEARS is quelled. My head is so clear and my energy level is much improved. I am in general feeling amazingly better than I have felt in many years,,,so a month in CA out of the cold weather of Illinois was a gift to myself. My partner and I explored Big Sur, Monterey and southern California...fantastic weather, swimming, sun,,all goodness.

Thanks to everyone here who has supported myself and others through this slaying of the dragon. I love being a part of this fabulous Club Zero...I've always been a basically optimistic person, even though I had not felt 'quite right' for a long time. It seemed to be taking a toll on me the last 17-18 years, because it was becoming harder and harder to keep up with day to day living and now I am free of HCV!! Hoorah!! My biggest benefit as a result of SVR is the brain fog and energy level,,,wow. 

Thanks to all!! 

Cheers!

PS



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Yes, Polo - absence does makes the heart grow fonder - but, we know (fondly) you are always around and with us! Lovely, isn't it, that we have been sharing in LM's recent celebrations. ALL us "UND people" (collectively) are getting to be one very large, happy, cured group!

So, during your treatment you never had much oppportunity to let up on your work comittments - is it still the same - work a lot, travel, then a bit of time off and repeat?

I'm wondering "how you feel" now, comparatively (with some retrospect under your belt), being that you are getting well past SVR12 (biggrin!) I recall one of your worst beginnng worries was fog, and that sometime along the way, some of this trouble dissipated a bit for you. How does it seem now, with more time transpiring?  Anymore thoughts about retiring one day?

Let us know how things seem to be going for you now. I forget your exact locale again, but I do recall you have been having some "winter" too! Hope you're not having to contend with work-driving/flying too much in incliment conditions. 

Keep us posted on your progress! smile C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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PS -Where are you?  I'm missing you!  It's been way too long since you've checked in with us here!



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64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay



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Thanks LZ, Dragon Slayed Tig, Slurp! Canuck!

 

ps biggrinbiggrinbiggrin



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Image result for 12 scoops of icecream

Now, were talkin'! I got you 12 scoops to celebrate. 

So glad you are official now. What weird and wonderful trip you have been on eh.

Time to kick your shoes off a bit, loosen the belt, revel in the saiety value of this day. The rest is cream. biggrin C. 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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That’s OUTSTANDING!! SVR, has a nice ring to it, congrats! smile

1BF06468-0471-412E-9306-F5D759A86461.jpeg



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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YIPPEE PS!!  So very happy for you!!  Congratulations!!



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64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay



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I have SVR, no VL detected at 90 days! Hoorah! Hoorah!



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Hi Tig & Canuck -- yes, I think they simply checked boxes when I told them I had HCV and completed treatment ~90 days ago. I had copies of all the tests that were run previously, but I think checked boxes, not reading the information or listening to me.

LZ - Yes, I panicked for a few minutes when I got the call and they said I was REACTIVE to HCV...I'm sure my face drained and I felt a dizzying moment.

Robert --you make a good point, I don't think they even were testing my LE's! I need to call them in the morning...

Wow, hope for no VL and another Party here!



__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Hi polos, As Tig mentioned, the LFTs -ast-alt tell a lot about virus activit. My numbers averaged 200 to 400 all the time. Todays blood work has me at 7 and 21. 

My EOT was Dec 18 2017, and each week since EOT I have had blood work and the LFTs have always been in the  12 to 27 range. So I would say keep an eye on your LFTs, its a very inexpensive test. My cardiologist has a finger prick test that spits out lipid results and LFTs results. I will wait until 6 week post to check load/count. In the first two treatments I was always relapsed at 4 weeks post treatmen. God I hated getting those phone calls, they knock you off your feet. I am 23 days out post treatment with LFTs of 7 and 21- Dragon Dead I would say!!   RC

 



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 M-61 (3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017) On my way to SVR.    SVR-12. 3-13-18



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Poor ps!!  I'm so sorry you had that unnecessary scare!!  I'm so glad it was nothing but I do get frustrated with some of these medical professionals who just don't seem to know much about HepC.  Hopefully, that will improve in time.  I have no doubt your news will be good but please be sure to let us know when you get your results so we can celebrate with you! 



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay



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Hey Polo,

I was out of town, but back tonight to ponder your new clinic.

That could be one explanation, that the "new clinic" you had to go to (because of a change in your insurance provider) possibly may not know much about HCV testing?, thus why they did the PCR VL (that you were expecting to be done) but that they also did a "seemingly redundant" Hep C antibody test? 

I just can't fathom a guess as to why they did the antibody test, but, perhaps they have their own reasons?, perhaps it is stupidly somehow automatically done, on the same page, tick all the boxes, boxes ticked in error? But, it seems odd, as this is a "new clinic" to you, and I assume a "new doc" to you (that came with this new clinic you now deal with) ... yes? And, so, it is really up to your ordering doc to decide what bloodwork should be done on you. Why would he be wanting the antibody test at this stage? You should all have been on the same page - you were coming in for your EOT+12 week VL, to confirm your EOT+12 week SVR (right?) and general LFT's and anything else he thought important done. It's funny he had the antibody drawn, but as Tig says, maybe it does not cost much.

Gee, hope you get the VL results back fast, i could do with another good party bout now! But no ice cream for me eh, I just about made myself sick pigging out at DQ on the way home - thank goodness for good functioning livers! wink C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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If you've been charged for the antibody test, you tell the doctor's office that it should be on them. They should've known that it wasn't necessary. I don't think the antibody test is all that expensive anyway. They can do them now with a finger stick in some cases. The blood test is going to be higher. So remind them that it was their mistake, not yours. I haven't had a viral load in a couple years if memory serves me. I'm of the school of thought, that if I were to relapse at this late date, my first inkling of trouble would be elevated enzymes. Then I'd request or the doctor should recommend, another viral load. The odds are so low, that it doesn't even cross my mind anymore. Once cured, we typically stay that way, thank God.... Even then, the treatments are far, far easier than they were, so retreatment would be easy peasy. Once approved that is. We still have that hurdle sometimes, but it's getting better, too. 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Thanks Tig for responding. My health insurance provider changed this year, so I had to go to another clinic for my SVR test. They checked me for the HCV virus and for VL. They called today and said I was REACTIVE and for a minute it scared me...then I looked it up again. However, I had given them my information that I had HCV and was treated, etc, so now I wonder how much I'll have to pay for the HCV test. I realize they should not have checked me for that, since we know I had the virus. Obviously, the new clinic doesn't know much about HCV. 



__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver

Tig


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I see you answered your own question, but I can confirm that yes, you will always be HCV antibody positive. It simply indicates that you had it at one time. It’s the same test that most, if not all of us had that alerted our doctors to our little friend. Some found out by having elevated liver enzymes, which in turn brought about the Hep C antibody test. 

Once we have cleared the virus, any elevation in our enzymes again warrants another viral load to confirm or rule out relapse. You should know that once SVR12 is achieved, the chance of relapse is <.5 (1/2) of 1%. It’s very, very rare. Once cured, we tend to stay that way, thankfully!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Okay - never mind,,I just re-read old notes here and found that yes I will always show REACTIVE even though I have cleared the virus.



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Hail to the Elite -- Tig - Canuck - other Gurus--

Will I always show REACTIVE for HCV even when the Virus is cleared?



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Dragon be gone.....

 

glinda.jpg



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



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Congratulations PS on that UND at end of treatment!  Now the wait begins for the first post R/X results. Seems all we do is wait for the next test results. Once you come back UND at your 4 week post blood test you can take a deep breath and relax . The waiting will be over!

                                                               NICE JOB POLOSILVER.      RC



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 M-61 (3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017) On my way to SVR.    SVR-12. 3-13-18



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Oh Hurray PS!!!!

Knowing you are UND is simply wonderful. (But not surprising with those fantastic LFT numbers biggrin)

Alison



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60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer 



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Thanks for the happy wishes C & LZ!

I'm a marching warrior princess that is now doing a ruby slipper-ed happy tap dance! Fun!!

 

ps



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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HURRAY PS!!!  You are a warrior princess!  Congratulations on an amazing journey to the Land of  ZERO!  SO happy for you!

Well, I had a photo of a warrior princess but can't seem to paste it on here!  It's the thought that counts!biggrin



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay



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UND-UND!

UND-UND-UND-UND-UND-UND - geez I like the sound of that - good rythym, catchy beat.

Sounds like somebody walking proudly with their marching papers tucked under their arm!

https://www.youtube.com/watch?v=CrGCsZRUFkg

Hm, I think this occasion calls for more of a ... happy dance! 

https://www.youtube.com/watch?v=smwzk0-Nz0Q

But in your case my dear, I think you deserve to be wearing a lovely set of ruby red slippers, because dreams really do come true. 

You deserve every molecule of your hard won, well earned, rewarding EOT UND! Such a good job you did. biggrin C.

 

Image result for ruby red slippers

 

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Thanks for all the good wishes here for my low liver enzyme numbers, fabulous!!

I got better news today, an email with a link that informed me that my I AM UND at 13 weeks!! My next test for SVR is mid-January.

Dragon Slayed and a Club Zero member.



-- Edited by polosilver on Saturday 4th of November 2017 05:47:46 PM

__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Polo, those are some good/low LFTs. No doubt your load will come back UND. But its always nice and reassuring to see that on official paper!!  Are you having a 1 month post treatment V/L test?  RC



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 M-61 (3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017) On my way to SVR.    SVR-12. 3-13-18

Tig


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PERFECT!!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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ps-Woo  Hoo!!  Those are beautiful numbers!!  I have no doubt that your VL will be just as pretty!!  What a great ending to a long journey!biggrin  



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay



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Thanks Observer!

All -- I don't have the VL/UND info from my blood draw yesterday for EOT 12 weeks. I do have the LE's, here we go:

AST    20 U/L    15 - 37 U/L
ALT    23 U/L    12 - 78 U/L

 



__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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I am super happy for you

 



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60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer 



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Thanks Saludahiker!

Cheers!

 



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Congrats Polo! It was a good ride!



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57 yo M, GT 1A, Dx 2006 HCV, SOT 8/1/2017 Harvoni 8 weeks

ALT 63, AST 34, VL 710,000, 4 weeks ALT 18, AST 16, VL undetected, 8 weeks ALT 14, AST 14, VL undetected 



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Hi everyone! Yes, I am smiling!biggrinbiggrinsmilesmilebiggrin Kicking up a few heels too!

Thanks for all the congrats and smiles! Woohoo, I made it and thanks to everyone here for getting me to the SOT station!!



__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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It's funny how we love to see you get on the train and then get crazy excited when you disembark. Congrats Polo!

Trains kinda empty with all these new DAA's.  And that's a good thing.



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 

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