Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> Sovaldi relapser, started Harvoni
Post Info TOPIC: Sovaldi relapser, started Harvoni
justagirl


Member

Status: Offline
Posts: 41
Date:
RE: Sovaldi relapser, started Harvoni
Permalink  
 

wow.. thats very scary to me that it could come back or the treatment might not work with certain brands.. omg im so discouraged.. congrats on finally being cured 



__________________

Genotype  1 (TN)  VL=411K

Harvoni 8 or 12 weeks TBD

Pre Tx: AST 51 U/L  ALT ^
JLynch30


Senior Member

Status: Offline
Posts: 292
Date:
Permalink  
 

I failed everything under the sun including solvaldi.  I begged for 24 weeks and bamo - svr for almost two years now.  

 

Miracles happen!  



__________________

John   non-responder  

Undetected at week 2 on solvaldi/rib/interferon:  stayed through week 12 but virus came back as soon as I stopped.  on   Harvoni and ribravirin 24 weeks undetected after two. 8/2/15  12 week EOT  UNDETECTED!  SVR

1991-2015 RIP

 
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Hi malekula,

Congrats on your very sustained cure.

Nearing 2 years (I think)?? Wow.

I remember reading some of your prior posts.

It has been a long hard journey for you and yours.

Really glad to hear you are busy with life and living, as it should be.

You got me all mathematically confused (which in my case is never difficult as my standby is to count on my fingers) -  I couldn't add up what SVR 83 was! I was running out of fingers.

Please, if you will, can you let us know a bit more about the varices, it would help others to know how well people can cope with the "extras" HCV can leave us with - how many endo's you have had pre and post treatment, when the varices first arrived, how things are being followed and managed for you (aside from the beta's), what resolutions of your cirrhosis levels have you found since cure. Do you have any current fibroscan Fscores, or labs to share.

We are always interested and can learn so much from the long cured folk around here who have such valuable experience under their belts.

I really like the sounds of what you are up to and doing! Immersions into the positives! smile C.

 



-- Edited by Canuck on Wednesday 19th of April 2017 07:55:01 PM

__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

SVR-83, guys

However, I have varices in my esophagus, so now I'm lifetime on beta-protectors.

Sorry, wasn't visiting the forum since Alex's death... I'm trying to have full-throttle live: travel, sport, friends, pets and more without thinking about HepC and problems it done to me.

Hope, you all are fine

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Hi hangerd! I'm so sorry you did the same tough way. I understand your thoughts and worries.
But now your on Harvoni, man! So you will kill this dragon, no doubts ! Welcome to Harvoni train, my friend, welcome into your new life!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Greeting and welcome!

With this group you are not alone. Lot's of folks who failed some numerous times only to come back and win with the newer DAA's.

Hang in there and Harvoni x 24 is a powerful weapon indeed. That is the train I hope to board soon. Doctor approved one week ago so I will give it one more week and then make some noise.

You are here and here is a great place to be.

 

JimmyK

 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
hangerd


Newbie

Status: Offline
Posts: 3
Date:
Permalink  
 

Thank you a lot dear Mod! I will start a a new post.



__________________
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hi Thom,

Welcome to the forum! I see you figured out the posting procedure about the same time I was sending it to you. There is a lot of information available using the search function located above center of the page. We have a Harvoni Train thread (our group of people on your treatment). I'll provide the link below.

Sorry you had to go through the first round of Peg/Riba/Sov, only to have it fail. Many of us failed a time or two and understand the frustration. You have a very good chance to achieve SVR with the 24 week protocol.

Others will be along to welcome you soon. I recommend starting your own post in the New Members section using that link to info I gave you in the Chatbox. That way you will have your own thread for replies. Let me know if you have any questions. Good luck!

http://hepcfriends.activeboard.com/t58762824/all-aboard-for-the-harvoni-treatment-train-enjoy-the-ride-fo/



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
hangerd


Newbie

Status: Offline
Posts: 3
Date:
Permalink  
 

With genotype 1 Hep C, I took the Sovaldi/Ribavirin/Pegylated Interferon for 12 weeks this past summer. There was 0 viral load after 4 weeks. 0 after 12 weeks, after I had finished taking the drugs for all 12 weeks. After 9 months, the viral load returned at 1,496,000. I engaged in absolutely no behavior that causes Hep C - no needles at all, no sex at all, no drugs at all; I did not drink any alcohol. My doctors' only answer is that the cirrhosis of the liver was so bad (compensated cirrhosis) that not all of the virus was cleansed out of the dead parts of the liver with just 12 weeks of Sovaldi.

I am now on the Harvoni for 24 weeks, hoping that the longer regimen of the two drugs - Sovaldi and Ledipasvir - will totally clean out the virus from the liver.



__________________
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks Groupergetter!

U must be there! U started earlier than me... Or I understand wrong your timeline...

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Groupergetter


Guru

Status: Offline
Posts: 796
Date:
Permalink  
 

Congrats on the SVR 24 MM, look forward to joining you. :)    Be well.



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks, Linux!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Big Congrats MM!

Great news indeed!!

Just think ... you can do that Happy Dance from here on ... nice job MM ...

This is just the kind of news us pre-treatment peeps need to hear.

 

Be Well,

Linux



-- Edited by Linuxter on Thursday 14th of January 2016 01:22:07 AM

__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Hey Tig!

Yes! The happy dance!



__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hey Dude!! Congratulations buddy, woohoo!! I'm punching your ticket, from now on the ride is free.....  You earned it!

You're all done with everything but the dance!  WOOT!

IMG_1467.PNG



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thank you Jill! Yes, it is - the new year starts good... like a dream!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Wow, big congratulations to you, MM  you`re finally arrived safely at your destination ---- >> SVR24 it is!!!

Just doing some catching up here and saw your post, I`m very happy for you!  Iit`s been great to have you with us during your Harvoni trip, and I hope you keep in touch!

A new year and a new healthy start, 2016 is looking very good for you and for many others here!!!  biggrin



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

My Harvoni train finally arrived to the Musem

SVR24!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Hello everybody!

Just did the PCR and blood test before Christmas, so now I'm waiting the news Nervous....

Would like to wish you all a Happy New Year with no dragon inside, never again!

MM

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Mike, will definitely do it with SVR-24 results !

Grouper, thank you! The relapse pissed me off for some time...

Hi, Matt! Thanks! I will not pay the royalties for your phrase when using it! Hahahaha!!!



-- Edited by malekula man on Friday 9th of October 2015 12:50:36 PM

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Matt Chris


Guru

Status: Offline
Posts: 1782
Date:
Permalink  
 

Hey MM

All Right ! way to go MM SVR-12 is a beautiful thing, peace of mind and joyful thought are yours. Now you can say my favorite phrase  "When I used to have Hep-C"

matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Groupergetter


Guru

Status: Offline
Posts: 796
Date:
Permalink  
 

Congrats MM :)   A great feeling to find SVR! especially after previous relapse.  Enjoy the HepC free life.  YEEEEEEEEEEEEEE HAAAAAAAAAAAAAAAW



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

 MM, you should call and have them mail those blood work results to you, frame them in a 24k gold frame, proudly hang them on your wall and wipe the glass clean every day with a warm, soft towel. That's my plan anyway... biggrin



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

During appointment this morning we were all excited (me, my nurse and my doctor)... So excited that I forgot to take a picture of my blood work. Next time, in January 2016 after 24wks EOT test.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thank you, CG! I hope it will be as you say!


Thanks, Tig!

Merci Greg!



__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Greg D


Senior Member

Status: Offline
Posts: 159
Date:
Permalink  
 

C'est tres tres bon!!! Congratulations MM!!



__________________

60 yo (2013), genotype 2b, started 28 week tx Sept.14, 2013. Triple Therapy (ribavirin, victrelis, peginterferon), VL 235k prior to tx, UND right through. EOT March 29, 2014. EOT24 Sept. 15, 2014 and EOT + ONE YEAR April 1, 2015 UND.... SVR!

 
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

OUTSTANDING NEWS!!  

Congratulations MM! SVR it is, yowzaa! I know how special a day this is for you and we're all so glad you shared it with us. Let the party begin, woohoo!

One more time:

262.jpg



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Wow, fantastic!!  This is such great news, big congratulations to you, MM!!!! 

You must be so relieved and happy knowing you`ve finally reached SVR12... it`s the magic number, no matter what your doctor says!!  smile

Very happy for you!



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks, Penny!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Penelope PePod


Senior Member

Status: Offline
Posts: 199
Date:
Permalink  
 

MM,

That's great news!  I just read this topic from the beginning.  What a white knuckle ride.   First up to the Happy Undetected Place, then way down to the Scary Ultrasound Stop, then back up to No tumor/No HCC Station.  One heck of a trip.

You're made it and I'm so happy for you!   Be well, and enjoy your hep-free life!  

Penny 



__________________

65;  Dx 1997 1a; VL 1.1m; TX naïve; SOT 7/20/15; 12 wks viek/riba 1200mg

09/14/15 draw: Undetected 8 wks into tx

10/12/15 draw: Undetected at EOT

01/05/16 draw: Undetected at E0T+12
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks, Mike!

However my doctor is conservative - the new achievement we need it's SVR24

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

That's EXCELLENT NEWS MM!!! You have arrived. A bonified member of the 'cured club'. I'm real happy for you and right behind you. SVR 12... sounds soooooo sweet!



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

It's happening!

My nurse just called me with this great news - SVR12 achieved!!!

The dragon can be beaten!!!

This Thursday a have my appointment so will provide my blood work later. But she said my ALT is the better then at EOT!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks CG! Yes, I was so glad to find this message ))))

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

JLynch30 wrote:

I had a lesion a year go 1.8 and still have it 0 it is fatty liver deposits they think.  It has stabilized.  are you overweight?  

 I think yes, at least +15kg for my height. Ultrasound report says "doesn't look like liver fat". So it was "GO" for MRI to be sure.



-- Edited by malekula man on Wednesday 12th of August 2015 12:08:55 AM

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

What great news, MM!!  I`m so pleased for you, I`ve been wondering if you`d had your MRI results. 

You must have been so relieved to hear that message, wow!!!  Thanks for letting us know! 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
JLynch30


Senior Member

Status: Offline
Posts: 292
Date:
Permalink  
 

I had a lesion a year go 1.8 and still have it 0 it is fatty liver deposits they think.  It has stabilized.  are you overweight?  



__________________

John   non-responder  

Undetected at week 2 on solvaldi/rib/interferon:  stayed through week 12 but virus came back as soon as I stopped.  on   Harvoni and ribravirin 24 weeks undetected after two. 8/2/15  12 week EOT  UNDETECTED!  SVR

1991-2015 RIP

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks guys!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hey MM,

That is outstanding news! Thank you for letting us know. I was certainly keeping my fingers crossed. I'm sure you're breathing easier tonight! smile



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Gracie


Guru

Status: Offline
Posts: 618
Date:
Permalink  
 

Yeaaaaaaaaa.... Now that's some good news to sleep on tonight!  Thrilled for you! Sending a virtual HIGH FIVE!!!



__________________
  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
coolheat


Senior Member

Status: Offline
Posts: 209
Date:
Permalink  
 

That's GREAT !!!!!!! Sleep WELL !!!   Leon Russell is here Fri. night, come and Celebrate.....it'll be a Great Show.



__________________

65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

I'm back from my vacation trip and found a voice message my nurse left this morning. MRI doesn't show any tumor or HCC!!! Great! What a relief!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks,
Will ask my doctor.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi MM,

For cirrhotics, a degree of portal hypertension is assumed. In your case, it's a certainty.

Yearly gastroscopies to check for varices /portal hypertensive gastropathy are standard protocols. I'd be wanting one. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

I had an ulcer too. Same image. 6 years ago. The major cause was helicobacter... I lost 50oz of blood and had a transfusion. But my liver was ok, a little bit fatty... Have no idea why they didn't check me for hepatitis. In this case I shouldn't have a cirrhosis and find myself in hcc zone - even old therapies could help me to slow the dragon.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Brian1412


Guru

Status: Offline
Posts: 530
Date:
Permalink  
 

Yes i understand. A year and a half ago this all started. I thought i had the flu or a cold. Very lethargic. Someone walked up to me and asked if i was ready to go.go where i asked. He said the hospital. Why i asked and he said i was pale white. Went to sleep woke up feeling tired. Went to bm and happed to look at stool (as dr oz always preaches religiously) and my stool was jet black. O tried to dissmiss it but was epic in size and color. Was near hospital and my instict was to go to er. I did and it dint taketake 2 minutes for them to call the troops.. the bag of blood was like air. Took me on did endoscopy and had several bleeding ulcers and the first words out after o woke up that you have hep c we can give you a transplant" which was obviously not in the program. They sealed the bleeds: i get endo often take protonics and strictly whatch what i eat.  I still left the hospitail after the seal against medical advice and made the plane back on tour. But this is something we watch rekigiously. Was no vein issue involved for me. Was all about the ulcers 

Stay on top of this as it is in the danger zone. But everying is good and stable 



__________________
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks Malcolm!

No, I didn't have gastroscopy, I don't have any internal bleeding, low hemoglobin or any of these problems that can flag some issues with my gullet's veins.
I was asking about.

Even my spleen is so big and platelets are low I don't have any nose or gum bleeding for 2 last months. Even the small cuts after shaving do not bleed much.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi MM,

Sorry to read the Ultrasound report, but the contrast MRI will determine whether it's bad news. It shows how important the 6 monthly imaging is for cirrhotics. Ideally these should be done at the same site, so comparisons can be made.

With a spleen that big, I understand why your platelets are so low. SVR will hopefully start to reverse the portal hypertension. I don't see any gastroscopy reports. Have you had one recently?

Best of luck for the MRI. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Hi Brian,

physically I'm OK, but I'm stressed with this news...

Tig,
The last in hospital was 17/11/2013 (the date on scan is wrong - it's November) and another one I did in January 2015 (one year later) in private lab. This one I did 8/7/2015.
The doc in hospital compares two images for Nov 2013 and July 2015. It's enough time to develop something. However they forgot (or didn't check right) for my U/S in January 2015. I don't know why... probably the image from private lab wasn't sent to hospital only the report. The private lab has nothing to compare with...

Just had set up my appointment for MRI in private lab for next Monday, the line-up in hospital (free) is for one year forward. My doc goes for the vacation this Monday so will have my results the week of 10 August.

I need some time for chill out a little bit... Going on vacation in two weeks, I hope this will help me. This situation piss me off.. I was thinking it will be the end after SVR for hard fights but seems it goes in the wrong way

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hey MM,

When was your last U/S? Seems like this presented quickly, which is odd. As Gracie mentioned, it's good they've been on top of your care all along and found this quickly. It's early on, so stay positive and take care of business, you know how to do that. Get the MRI and that will determine your next course of action. Keep your chin up and deal with it as its presented to you. Keep us informed when you get some information from the MRI. 



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
1 2 3  >  Last»  | Page of 3  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> Sovaldi relapser, started Harvoni
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.