Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: The "Viekira Pak" Treatment Train


Guru

Status: Offline
Posts: 2530
Date:
RE: All Aboard for the "Viekira Pak" Treatment Train: Enjoy the Ride for 12 or 24 weeks!
Permalink  
 


Glad to hear back from you Mary, and how well you are doing! I remember very well the first night and days you posted here and there on this site. We all have periods of difficulty in coping with this weighty responsibility we have, in ridding ourselves of the c. Often before, at start, during, and even after. You are doing so good!, as are so many of us here, and yes, the support of one another is an extremely important component. I am really super-pleased for you. How are you coping on the home front? How is the asthma now? Keep us posted on how you are doing. Real happy for you. smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


Admin

Status: Offline
Posts: 8109
Date:
Permalink  
 

Good to hear from you, Mary. I remember your concern before starting and how much easier it has turned out to be. Those are the kinds of stories we like to hear and are so valuable for those getting ready to start. It reassures the people that need it the most.

Keep pushing forward and start making those plans after the end of treatment. Polishing your dancing shoes needs to be #1 on your list!

HYDRATE!!! smile



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1516
Date:
Permalink  
 

Nice to hear that you are doing well Mary, keep up the great work and you'll be finished before ya know it.

 

Wishing you Well,

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



Member

Status: Offline
Posts: 20
Date:
All Aboard for the
Permalink  
 


I've been drinking heaps of water that really helps with the side effects and thanks to all you guys you's have really helped me through my treatment just by talking to everyone really makes a difference Thank you and I'll keep you's updated ..

__________________

34 years old hep c GT1 first time on treatment vikera pak for 12 weeks started 17/2/2016 no RBV

 



Member

Status: Offline
Posts: 19
Date:
RE: All Aboard for the "Viekira Pak" Treatment Train: Enjoy the Ride for 12 or 24 weeks!
Permalink  
 


Great to hear Mary!!! I have five days left myself till treatment is over. I actually feel like I'm getting my 20 year old brain back - feel very lucky with no side effects...sometimes I gets a bad rap but Veikira Pack seems good to me. 



__________________

GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira

week 4 test - 3/1/16 undetected 

 

Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25 

Tig


Admin

Status: Offline
Posts: 8109
Date:
Permalink  
 

Good to hear from you Mary! You're getting close to the finish line, yeah! Sounds like you have a good system going for you. Keep it up and you'll be doing a dance around a dead dragon! Stay hydrated... smile



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

So good to hear how minimal your side effects on Viekera have been Mary. It will be great when you can put all this behind you. 

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.



Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks for getting us up to speed Mary that is great to hear. There is another thread where Jimmy and his wife are helping a fellow who has some anxiety about starting and you are proof of walking through that fear.  



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Member

Status: Offline
Posts: 20
Date:
All Aboard for the
Permalink  
 


Yes that's so true when I first got the viekera pak I didn't start taking it until 3 weeks later u hear all kinds of stuff on google about side effects that got me really scared but when I started to take the medicine I realised that it's all good I didn't get much side effects just a bit of headaches nothing major, I'm glad I took viekira and I don't have long to go now , for anyone out there who's about to start treatment don't be scared if I can do it trust me you's can too ..

__________________

34 years old hep c GT1 first time on treatment vikera pak for 12 weeks started 17/2/2016 no RBV

 



Veteran Member

Status: Offline
Posts: 86
Date:
Permalink  
 

That's great news Mary! I remember how scared you were at first and now you're acting like a pro! You didn't really get any sides from it did you? Aside from the headache in the beginning? That's just awesome! I'm glad you checked in with everyone, keep us updated on everything...not much longer to go!!!

__________________

34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



Moderator

Status: Offline
Posts: 1496
Date:
All Aboard for the "Viekira Pak" Treatment Train: Enjoy the Ride for 12 or 24 weeks!
Permalink  
 


 Glad your doing well Mary. Keep up the good work.
 Now that you are well into treatment and have discovered that you're fear back in February of starting the medicine and the side effects of it was all for nothing, I'm going to say it; I told you so, I told you so. biggrin

 We have a couple of other new members right now who are scared to start taking their medication because they have Googled all the negative side effects of HCV treatment just like you did before you started. They have read the horrific stories from those who suffered through the old Interferon and Ribavirin protocols, and they think all that negative crap will happen to them, just like you did. You are a good example for them to learn from since you went ahead and jumped on in regardless of your fear and non of that negative crap happened to you.

 I'm happy to see how well this has turned out for you so far and I can't wait for your upcoming EOT party in 2 weeks 5 days. Then it's on to SVR...



__________________

57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum



Member

Status: Offline
Posts: 20
Date:
All Aboard for the
Permalink  
 


Hi ,how's everyone going on treatment ?I've got 2 weeks and 5 days to go on viekera , I've been going for my bloods every 4 weeks and liver looks great can't wait for the end of treatment to see if my hep c is gone .. Hope everyone is doing well on their treatment ..

__________________

34 years old hep c GT1 first time on treatment vikera pak for 12 weeks started 17/2/2016 no RBV

 



Guru

Status: Offline
Posts: 1031
Date:
RE: All Aboard for the "Viekira Pak" Treatment Train: Enjoy the Ride for 12 or 24 weeks!
Permalink  
 


Lori so glad you listened to the bod and swallowed the pride (easier said than done for us all). You have a demanding job as well as raising a child and being Batwoman. That's a lot on anyone's plate let alone a superhero on riba



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 

Tig


Admin

Status: Offline
Posts: 8109
Date:
Permalink  
 

Lori,

I'm happy to hear you're going to be relaxing and taking some time off. You really need to just take it easy and concentrate on yourself and enjoy lots of Kennedy time! 

Congrats on the continued undetected 8 week viral load! Not experiencing any anemia at all is unusual, but how good to hear. Keep yourself fed, hydrated and rested, the stop at EOTville is coming up soon!



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Hi Lori,

i am so relieved to know you are taking time off till the end of May. I stopped RIBA on 4 March and have only really now started to feel like it's me talking and operating and not some over fatigued, drugged up, angry, tearful zombie. 

It will also give your immune system more of a chance to jump in and help kill the virus.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.



Veteran Member

Status: Offline
Posts: 86
Date:
Permalink  
 

LOL Syd! I agree I need a nanny like that! I need a nanny period! lol I took off work when all of the h20 neglect first happened. I knew immediately that I had over did it. i actually knew I was pushing myself to hard before that but pride got in my way and kept me from admitting it. I was physically drained before I even got to dehydration. I'm not going to go back until the end of May, I finish tx April 29th. Hopefully I'll be good to go then. From now on I'll listen to my body more...I promise smile



__________________

34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

So happy for you Dolphin.

Lori - what a good idea it would be to take these last three weeks as sick leave. Doing a physically demanding job, such as yours, while on Riba, sounds really risky. So glad that you managed to successfully avoid the inevitable conclusion  of severe hydration. We need more than drones up there with you - you need a nanny who is prepared to tie you to your chair with a bottle of water, a healthy dinner and a bed time story for the baby.

take care.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.



Member

Status: Offline
Posts: 13
Date:
Permalink  
 

Hi Dolphin, Congrats! I am happy for you. I also used Vpak and Riba. I had no side effects while using it. Enjoy your new beginning~



__________________

GT 1b,UND, Stage F4 cirrhosis,

Ist Tx. 2001, Peg/Riba; 2nd Tx, 2014, Harvoni (12 wks), 2015, 3rd Tx. 2015 Vpak/Riba (12wks) UND.

Tig


Admin

Status: Offline
Posts: 8109
Date:
Permalink  
 

What a close call Lori... I'm so thankful you're feeling better and thought about seeking some advice before you had more severe problems to deal with. You are a very lucky individual, whew... I trust that you won't do that again will you!! Not a question... Don't make me come up there, lol! I'll have a few extra drones once Dave is finished next Tuesday and I send them to keep an eye on you Sister! We want you better, we want you safe and we want you here. Please take it EZ and don't leave that water bottle behind. 



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Veteran Member

Status: Offline
Posts: 86
Date:
Permalink  
 

Hi Dolphin, Thats amazing! Its a great feeling getting that kind of news isnt it! Its just as wonderful hearing it from others like you! The same goes for you too, hepcmannyc! So happy for yall! A huge heartfelt CoNgRaTs to you both!!!

I just received my lab results today, 8wks in and still undetected, alt/ast both were 13, not anemic and hemoglobin is great as well. 3wks tx to go!

                                                                                                                         

 

I recently let myself get dehydrated, not paying attention to my water intake and over exerting myself at work. Thankfully I took the advice of a dear friend and went to the Er which saved my life. I had lost 11% of my body water, hit the stage of confusion that was reaching delirium, sunken eyes, chest pain, lost skin elasticity to the point of pinching it and it holding form after I let go, my vision would blur in and out, standing up, I had to hold a wall for a min until my vision would come back because everything would go black. Once u hit moderate into severe dehydration the confusion is tremendous especially combined with the brain fog of Riba..to the point of literally forgetting to take a drink of water even though u are beyond thirsty for it and holding it in your hand. Your brain will tell u to take a drink but it's like your body isn't responding. Chugging water at this point does not help. I tried, and only achieved gaining 4.5lbs of water weight. I drank more than my kidneys could handle, plus further depleted what little electrolytes I had left. I was in bad shape. I assumed that by downing a bottle here and there while working in 1200 degree structure fire/flashover drill as well as other physically demanding trainings, that I was supplying my bodys demand, but I was clearly wrong. I went from mild to severe in 1 day! You don't even have to be physically active to dehydrate and it can reach life threatening status very quickly! Pay attention to the signs and your body. Learn from my mistake! I hope that by posting this, it helps someone else in realizing the importance of staying hydrated.

 

 

 [edited to fit screen width]



-- Edited by wmlj1960 on Friday 8th of April 2016 03:36:04 AM

__________________

34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



Member

Status: Offline
Posts: 19
Date:
Permalink  
 

Thanks! I am doing great - into my 10th week of treatment - and so far no side effects and got an undetected at the week 4 blood test - doctor said he was expecting a significant drop but not that. Seasonal allergies are bad but who knows if that has anything to do with the Viekira.....no more blood tests expected till 12 week EOT. Really happy and feel very fortunate - so anyone starting treatment - please don't be scared - for me its been like taking vitamins....



__________________

GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira

week 4 test - 3/1/16 undetected 

 

Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25 



Guru

Status: Offline
Posts: 5600
Date:
Permalink  
 

How wonderful to hear your good news, Dolphin, congratulations on your SVR!!  biggrin

Vik Pak has been like a miracle treatment for you, and your post is so encouraging for others here.  I`m so glad you came back to let us know how well it turned out for you!

Hep C is history for you now, you`re free to live your life.. and celebrate your success!!! 



__________________

Jill 

(68 yo, lives in UK)

Was Gen 3a, 

24wks Peg/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 

Tig


Admin

Status: Offline
Posts: 8109
Date:
Permalink  
 

Hey Amex in NYC,

How are you coming along with treatment? Any updates? Let us know how you're doing! Good luck...



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Member

Status: Offline
Posts: 19
Date:
Permalink  
 

Thanks and terrific news!! Always great to hear.....



__________________

GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira

week 4 test - 3/1/16 undetected 

 

Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25 



Guru

Status: Offline
Posts: 679
Date:
Permalink  
 

Congratulations Dolphin

 

Great news to end the day. Thank you for sharing

 

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



Member

Status: Offline
Posts: 10
Date:
Permalink  
 

Thanks everyone!

Best of Luck to all who are on the VP Train or about to board!



__________________

59 yo, F, Geno 1b, Dx 2001 (blood transfusion 1969), SOT Sept 2015 - Viekira Pak for 12 wks 

Baseline: VL 1.5 mln, AST 46, ALT 54, Fo-F1.

Undertected at EOT +12 weeks EOT

Tig


Admin

Status: Offline
Posts: 8109
Date:
Permalink  
 

Congratulations Dolphin! The good news just keeps on a comin... Enjoy the Hep free life!

Dead Dragon.png



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Moderator

Status: Offline
Posts: 1496
Date:
Permalink  
 

SVR-12 it is. Way to go Dolphin!!! You are proof that VP is effective and not hard on your mind and body. There's nothing more you could ask for. You are now free to live your life without that dragon draggin' you down. I know you are happy and we are certainly happy for you. Job well done!!!

 

 



__________________

57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum



Guru

Status: Offline
Posts: 1516
Date:
Permalink  
 

Hi Dolphin,

Nice that you posted this, Thank You.

Very encouraging for those on or about to start Tx via Viekira Pak!

Just the kind of news we ALL love to hear smile

Congrats!

And thanks for posting.

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



Member

Status: Offline
Posts: 10
Date:
Permalink  
 

Hi All,

Sorry for not posting earlier. Just wanted to let you know that I finished my treatment on Dec 18 and was Undetected throughout the treatment, at EOT,  and EOT + 12 weeks (just learned the result!)!  I did not have any major side effect of the VP, except during the few first days (stomach problems, nausea). Viekira Pak works! THANK YOU so much everyone for your help, encouragement and support.  

 



__________________

59 yo, F, Geno 1b, Dx 2001 (blood transfusion 1969), SOT Sept 2015 - Viekira Pak for 12 wks 

Baseline: VL 1.5 mln, AST 46, ALT 54, Fo-F1.

Undertected at EOT +12 weeks EOT



Guru

Status: Offline
Posts: 2530
Date:
Permalink  
 

FC,

An interesting question re: "withdrawal".

I know someone, who just not long ago, finished a 6 month course of SOF/DAC. I know, not your drugs, but ... he believed he had been inadvertently accumulating, absorbing/retaining high levels of DAC (perhaps higher than intended) for the majority of his course due to contributing/conducive dietary factors which favoured accumulation (inducer/inhibitor/P450 liver function thingy-me-bobby, if we have to get all scientific about it). He was convinced of this and had to alter his diet, suddenly and appropriately(kinda too late tho) on advice of a well-known Australian hep doc. On the bright side, perhaps he was very well saturated with DAC.

In conversing with him post-treatment, he was trying his best to convey to me how he was feeling generally, his improvements and such, I found it interesting when he he got to the part that was difficult for him to describe (to put into words), he conveyed the closest thing he could come up with which was .... "it is almost like I am feeling I am in withdrawal" - it was a curious ill-defined thing for him (and me!). Of course, I had NEVER heard of anyone try to express this before, so I just took note of it out of interest. I believe he is still doing well, but of course, next time we correspond I will ask him what he now thinks about his "almost unable to describe withdrawal" thing.

I only bring it up because you had been wondering about withdrawal, and, here was one person who kinda expressed he "might" have felt "something like" withdrawal from DAC! But, being that I have not heard of anyone else speak about "withdrawal" from treatment drugs themselves, then I assume it is not a common issue.

 

My best to you, smile C.  



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Veteran Member

Status: Offline
Posts: 86
Date:
All Aboard for the
Permalink  
 


Hahahahahahaha! I've straight up died of laughter Tig! RibaRage fueled special ops on a mission to eliminate isis..genius!
geez I needed that laugh!

Our government needs to seriously consider this lol

__________________

34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!

Tig


Admin

Status: Offline
Posts: 8109
Date:
RE: All Aboard for the "Viekira Pak" Treatment Train: Enjoy the Ride for 12 or 24 weeks!
Permalink  
 


THAT'S IT!!  Send a wire to the White House, we have a solution for ISIS elimination. We can put together a team of Special Ops forces, start them on Ribavirin, piss em off and send them in. Let the rage flow! They'd be finished in a few days, but we'd have to treat them extra nice for 6 months afterwards. Appoint me the Riba Czar, I'll at least try something. Obviously, doing the Tango ain't working, just sayin...  wink



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1516
Date:
Permalink  
 

My plan ... Keep drinking tons of water and eating lots of greens to flush and remove toxins.

Riba is a toxin in my book ...

Good to hear from ya Lori.

 

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


Admin

Status: Offline
Posts: 8109
Date:
Permalink  
 

Hi Lori,

You should notice a quick clearance of the VPak drugs, but the Riba will take all of 6 months to clear your system. It's a fact, but you will notice improvements as you approach that. It took me a full year to feel I was free of it. I had anger and sun sensitivity problems for months. That's why men and women have to be cautious with birth control for 6 full months EOT. Evil drug, but it works, so it was worth the battle. 

So, you shouldn't suffer withdrawal symptoms, just some short term lingering effects that improve fairly quickly. Don't worry about it, you'll be fine. Just avoid the melting environments, I think you have more to worry about with that! Of course you should avoid the chunky green rust colored water though, that could be full of nasty stuff, ick!



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Veteran Member

Status: Offline
Posts: 86
Date:
All Aboard for the
Permalink  
 


Canuck, Hahaha! You're exactly right on the water! Described it perfectly! My helmet got melted and my gear was so hot it was stinging my skin..that hydrant became my best friend lol! That was a bad experience all the way around.
I have a question: did any of u guys experience any kind of after effect from not having the riba or Viekira after treatment was finished? Withdraw symptoms I guess? Other than the lingering se's?

__________________

34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



Guru

Status: Offline
Posts: 2530
Date:
RE: All Aboard for the "Viekira Pak" Treatment Train: Enjoy the Ride for 12 or 24 weeks!
Permalink  
 


Oh FC,

You are a riot and and brave trooper! You are so good at painting these mental pictures for me (I say mental in only the kindest way!), leaping in to your doc's lap, holding that gushing hydrant to your face with both hands guzzling. A girls gotta do what a girls gotta do. It was a different kind of "call" that had to be attended to alright!

I know what you mean about the poor hydrant variety quality of water, with all it's surprisingly horrid fluctuations of assorted contaminates  - I seem to be offered it with great regularity! Our old town in their infinitely brilliant old time infrastructure planning, built some sort of water system for us, about a century or so ago and have just kept on adding more good chaos planning it to it ever since. In my 3rd world berg, the ancient rusty hydrants (still all differing types and sizes, and ports - the poor guys have to carry about 3 or 4 dif kinds of tools to get into them!) are part and parcel of our drinking water supply lines, everytime anyone (emerg or city services) crack a hydrant, we downstream soon know about it, we eat the disturbed curiously murky multi-colored crunchy swill and sediments for at least of day until our hot watertanks and appliances filter it out.  

We buy water to drink.

Tig is right (whatever that stuff is he suggested you carry) - pack that!

He is also right about trying not to do tooo much, it will come.

Jeez, yer doing great (considering riba and all). I'm impressed. Brave girl. Csmile



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


Admin

Status: Offline
Posts: 8109
Date:
Permalink  
 

Hi Lori,

Thanks for checking in! I've been wondering how work has been, especially combined with the fatigue and Ribavirin. Sounds about right, muscular jello, lol! I trust you know your limitations, don't overdo it. We need our First Responders in one piece, not a green jello puddle! 

Keep up the good fight and great attitude. I do suggest the purchase of a CamelBak for the next time you get thirsty and leave the hydrants for fighting fires, lol! 



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 236
Date:
Permalink  
 

Hey Firechic: As a former 1a  I say.....Take it in stride now. Your are most likely going to see Mr.Riba dancing around you for some time as he slowly departs down the tracks with his suitcase. I never had the rash thing. That Dragon has been with you for years. You will slowly see your body improving with time. You have great numbers. I am glad you can recognize it and laugh. Great goings!

Im still looking for some of my formers when I bought my ticket to ride. Are you there??????



__________________

60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.



Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks for the update Lori and we understand being tired. We are here for ya no matter what. We just want you to feel better and do what you need to in order to take care of you and the munchkin



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Guru

Status: Offline
Posts: 1516
Date:
Permalink  
 

Great to hear from ya Lori, so glad you're holding up so well!

I know what you mean though, I think we've just reached a point of we know pretty much what to expect and it's like " Bring it On, is that all you've got!"

Drangons are dead and gone ... we're both just in the mop up stage now ... You go girl!

Thanks for stopping in, it's all nice to hear.

Hope the Munchkin is doing well, hugs! smile

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



Veteran Member

Status: Offline
Posts: 86
Date:
All Aboard for the
Permalink  
 


Thanks guys! I've been on cloud 9 since that day. I even started back to work and have been going to fire schools and trainings. I feel like all of my muscle is jello. I can't physically do stuff like I used to. I tend to struggle when it requires muscle and I tire really easy. Hopefully the more I push myself the more my body will gradually catch back up to normal. I drink double the water now too..I guess where I'm getting so hot on scene in my gear. The other night at a structure fire I resorted to drinking water straight from the hydrant...surprisingly I'm still alive LOL! Horrible, horrible experience, i felt like I had been stranded in a desert for a month eating sand so at the time the hydrant was pretty irresistible. If u guys haven't seen some of the water from hydrants - it's not always pretty white/clear like on movies lol It can be orange, brown, yellow, just picture a mud hole..that's what I drank!

Only sides I have are the brain fog, riba rage, and occasionally a rash appears in random spots but as long as I don't scratch them they slowly go away. I'm so used to it all now it just feels normal. I don't really pay any of it much attention.
Myself along with everyone around me finds humor in the riba rage. I get so mad I crack myself up lol

Just wanted to check in with you guys since I haven't been on here in a while do to being busy and drained from training. I've logged in and read around but haven't interacted and I apologize. I'm still here though! Not going anywhere :)
Thanks for all the kind words and support from all of y'all! I love how encouraging and supportive u guys are!!! I've read all of the comments from my lab post a dozen times lol
Warm wishes to you all!

__________________

34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



Guru

Status: Offline
Posts: 2530
Date:
RE: All Aboard for the "Viekira Pak" Treatment Train: Enjoy the Ride for 12 or 24 weeks!
Permalink  
 


My heart lept for you (just as you did, leaping into you doc's lap!). I could just see you! What a wonderful thing this is. Dreams DO come true - the big brave reward badge for you my dear. Canuck smile



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Senior Member

Status: Offline
Posts: 122
Date:
Permalink  
 

Awesome news Lori ... Enjoy your week-end.   At times it is hard to wrap your mind around the fact it's gone. Best wishes and continued success! ENJOY!



__________________

F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104!



Guru

Status: Offline
Posts: 679
Date:
Permalink  
 

Excellent news Lori,

These are the best posts next to starting treatment after a long wait or SVR that one can see here.

Have a great weekend ... You made a lot of people smile.

 

Cheers



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



Veteran Member

Status: Offline
Posts: 78
Date:
Permalink  
 

Great news Lori - it's all go for you now!



__________________

Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo



Moderator

Status: Offline
Posts: 1496
Date:
Permalink  
 

Good girl! You're obviously doing what you need to so 'keep it up'. That dragon doesn't have a chance.

 



__________________

57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum



Moderator

Status: Offline
Posts: 879
Date:
Permalink  
 

Great looking numbers.  Your on the way to a hep c free life.   RC



__________________

 M-61 (3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017) On my way to SVR.    SVR-12. 3-13-18



Guru

Status: Offline
Posts: 1841
Date:
Permalink  
 

Firechic19 wrote:

I literally jumped into my dr's lap hugging her to death.


 Pictures or it never happened.

no Ok Ok I am just a clown I know. But we are all thrilled for you sis!

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

That's fantastic news, and what a set if blood results to with your new status. Your dragons leaving with its tail between its legs'!!

You're going to be in perfect health for your little girl.

So happy for you, Firechic.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.

«First  <  1 2 3 410  >  Last»  | Page of 10  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.