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Post Info TOPIC: The "Viekira Pak" Treatment Train


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RE: All Aboard for the "Viekira Pak" Treatment Train: Enjoy the Ride for 12 or 24 weeks!
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Your AST/ALT looks equally wonderful!! Damn 18??!!! 



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GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira

week 4 test - 3/1/16 undetected 

 

Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25 



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FireChic: Just look at them as tasty "depth charges".



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60 yrs. Geno1b 2001. 9mil. VL. ďż˝Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.



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I'm so happy I don't know whether to laugh or cry lol! I expected a drop in the Vl but wow! I never imagined this after just 4 wks. I literally jumped into my dr's lap hugging her to death. Sending all of u big hugs as well for being so caring and supportive! I woulda had a rough start at this if it hadnt been for u guys!

7 weeks to go... Totally motivated now! 



-- Edited by Firechic19 on Thursday 10th of March 2016 05:44:43 PM

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



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One tough Gal!   I admire your determination to just do it. Congrats!!!  It's all routine now.



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60 yrs. Geno1b 2001. 9mil. VL. ďż˝Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.



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Terrific news!! This is better than Christmas  



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GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira

week 4 test - 3/1/16 undetected 

 

Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25 

Tig


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Hey Lori,

WOOHOO!!! Congrats to the 'enth' degree! Absolutely everything on that report is perfect. You couldn't ask for better results than that. You go girl, that Dragon has turned and ran. I'm sending up a Drone to make sure it's never heard from again! Missle away....

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Best news all week! Stoked for you. 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



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YAAAAAAHOOOOOOOOOOOOOOOOOOO!

Wonderful to hear, Congrats Lori ... meds are working great!

What a great feeling that is, very happy for ya.

 

Happy, Happy,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Just left my Dr's office from getting my 4wk lab results......

UNDETECTED!!!!!!!! biggrin That's right baby! Undetected!!!! Ha! 

I am completely over the moon!!!!!!!!!

 



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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



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Hi - good one re the results Lori, always inspiring to see evidence of the meds working.

Regarding thrush in the mouth, I have problems with that in conjunction with Oral Lichen Planus, neither of which are any fun. I put about a teaspoon of cider vinegar in warm water and rinse it around my mouth before drinking it. Helps to reduce the thrush, soothes my mouth plus it aids digestion to drink some vinegar before a meal. My naturopath suggested it years ago and I really recommend trying it out. He actually said a tablespoon of vinegar but I find that too much.

I use a good quality, organic, naturally fermented cider vinegar. It tastes way nicer than the cheap ones and doesn't have a mean bite to it.

All the best with your adventure

Aroha

Ari

PS I got all sorts of skin problems and looked twice my age by the end of treatment - they have all settled down now thank goodness, wasn't great for the moral!



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Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo

Tig


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Hi Lori,

Yes, that sounds like the "Rash"... It usually starts on the body with most people, but the arms, legs and face can be affected too. You have to avoid the sun, hot water, harsh soaps and above all, don't scratch it! I found the best treatments were antihistamines, like Benadryl or Zyrtec, Calamine or Caladryl lotion and an OTC hydrocortisone cream. Check with your octor before taking any oral medications though. Antihistamines are commonly used, but always check first.

DON'T SCRATCH!!!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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I have a rash on my hand that started midway of my thumb and has now made it to my wrist. It kinda looks like poison ivy but not lol It itches like crazzzyyyy!!! Is this riba or have I gotten a weirdly more spread out version of poison ivy without even going outside?

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



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Great news on your rapid response.

These are the best posts to read from the members. Keep going!



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



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Hi Amex,

Congrats on the 4 wk lab results!

That's Excellent News ... the meds are doing thier job ... always wonderful to hear.

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Thanks!! Just refilled my water bottle! 

 

I actually felt the fog lifting about two weeks ago and my focus and concentration is much better...amazing stuff. 



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GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira

week 4 test - 3/1/16 undetected 

 

Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25 

Tig


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WOOHOO! Congratulations on your rapid response to these new drugs. It only gets better from here. Keep hydrating, stay compliant and you'll be completing treatment before you know it.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Just got my four weeks blood test results....

 

Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml

 

AST 18

ALT  25 

 

Needless to say my family and I are thrilled and thankful for the new medications. 

 

GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira

 



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GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira

week 4 test - 3/1/16 undetected 

 

Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25 



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I record how much water I drink on a little app on my Ipad. It is probably a good idea keep a record of it because it can seem so much more than it is... especially after 5 or 10 trips to the little boys/girls room smile

I am on Harvoni, but it's the same rules.

 

 



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



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I have been drinking water heaps of it

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34 years old hep c GT1 first time on treatment vikera pak for 12 weeks started 17/2/2016 no RBV

 

Tig


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Mary,

You should be drinking AT LEAST 3-4 liters of quality filtered water daily. If you aren't, the side effects are far more pronounced. 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Firechic19 wrote:

I get headaches, quiet often. But I use them as a reminder to drink more water. Hydrating really good helps mine.


 What she said. ^^^^^^^^^^^^^^^^^^

Drink more water Mary!

 

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



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I get headaches, quiet often. But I use them as a reminder to drink more water. Hydrating really good helps mine.

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



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Today is my 11 the day on the vikera pak I've starting to get bad headaches I can't stand it . Is anyone else on vikera pak ? How a the side affects ?

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34 years old hep c GT1 first time on treatment vikera pak for 12 weeks started 17/2/2016 no RBV

 

Tig


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Lori,

I guess I should hold off sending this pepperoni and jalepeno pizza to your house huh?? I can hear the screaming from here, lol! Keep the diet bland as possible. Your throat and mouth will be feeling better soon enough, but suffice to say, wait for this pizza til after treatment!

Ribavirin is rage in tablet form. It's a highly effective, necessary evil. Learning(as you are) to control it's hold on your mood is all you can do. Takes a little (lot) of practice and determination, but you'll do it! I got mad at a box of mashed potato flakes on treatment and threw it at the wall in my pantry. That was over 2 years ago. I'm still finding that stuff in the cracks and crevices of the pantry. I was so pissed! Funny today, but the rage is very real and can catch you off guard. Just stay aware of the potential triggers and go the other way!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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I have the same belief Tig! The more ammo the better!!! I feel like I have a new vocabulary that consists of "i forgot, i keep forgetting, and I don't remember" but it's hilarious! I still know my name so it's all good. I laugh at the anger a lot too. I'm starting to notice things that will set it off. My sliding screen door decided to test my patience yesterday it jumped off track and as I started to fight with it I pictured myself ripping it off and throwing it out in the yard so I just walked away and left it lol
I'm at the bottom of Riba bottle 1 now..only 2 more bottles to go. I'm looking forward to my results but i've told myself if there is no change and this treatment doesn't work, it's ok there r other treatments to try. I have came this far and completely adjusted my life to fighting this...No way I'm backing down now. That isn't even an option. This forum has been a major aid in the battle!!! I've said it before and I'll continue to say it even years after I'm cured, you guys are amazing!


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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!

Tig


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Hi Lori,

I'm not sure about the bread thing. Thrush is a fungal nfection and I have to wonder if the yeast in it would be problematic. It did not cause me any personal trouble when I went through it. Your question is interesting nonetheless. Perhaps one of the health food aficionados here could add their opinion. Hmmmm?? I love bread, carbs are an important part of my questionable diet! 

Good to hear you're sticking with the full Riba dose. Do your best to stay compliant and ful dose all the way. You do have some wiggle room if you need to reduce it, but I'm of the old school belief that more is better, as long as you can safely tolerate it. You're a trooper Lori and I'm proud of you for sticking to your guns! You'll get through this and we're here to cheer you on!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Tig: the spicy stuff sucks! I grilled a piece of chicken and melted pepper jack cheese on it a few days ago and let's just say it came back out the min it passed my teeth. I'm at the point now to where I don't want to eat anything for fear of it hurting. As of this morning my fridge is loaded with greek yogurt, smoothie fruit and veggies and water. The magic mouth wash tastes weird but the wow factor of relief that followed it was wonderful! I miss grease LOL I went from eating whatever I wanted and cooking good old fashioned country food to reading ingredients and my shopping cart looking like it belongs to some healthy diet nut. It takes some adjusting that's for sure...worth the result though!
Mike: My oldest brother has HIV and I've never known of him to eat sweets or anything that I would have previously referred to as good.. I've always tried to push foods on him because he's so skinny and now that I know why he avoided such I feel bad. I'm sure he is grateful for my new diet as I won't be making any pb fudge to force feed him lol
My throat is more open today than it was yesterday. I woulda swore there was a cotton ball stuck in it! I go back the 4th for blood work and again on the 29th for the results. She offered to lower the dose of Riba to help with the confusion and anger but I said NO! Absolutely not! I want max strength. I can deal with all of this...piece of cake...sugar free cake hahaha!

so are breads something to avoid?

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



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 Thrush is no fun. I've dealt with it several times as a result of advanced HIV and as a result I keep prevention in mind with a diet low in sugar and breads, yogurt on a regular basis, mouthwash twice a day, and don't smoke. You'll get some relief pretty quick after the antibiotics take hold. Your getting there Lori. Keep the big picture in mind. Tell yourself SVR, SVR, SVR...smile



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57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

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Tig


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Hey Lori,

I had a feeling that's what was going on. You described exactly the same symptoms that I suffered with. Don't forget to add some unsweetened plain yogurt to your diet, it helps. You should be feeling better in short order, but might take a couple days to put that fire out. Damn, I remember it like it was yesterday. It'll be one of those favorite memories from treatment, oh joy!! The Magic Mouthwash will be your best friend for the time being! Avoid acidic, sugary and spicy stuff for the time being. I'm sure I didn't have to tell you that, but I had to be sure you knew!! Gotta stick together.... =>

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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It's Thrush. It has spread from my mouth to my esophagus. Got sent from my Dr.'s office to the hospital, they ran a camera down my throat to see if it had reached my stomach and thankfully it hasn't. They gave me a antibiotic through IV in the hospital and I have to take a tablet form of the same antibiotic plus use the magic mouthwash for 2 weeks. Ribavirin just loves me :) hahaha!!!

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!

Tig


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Dave is correct in his statement regarding unsweetened yogurt. I did that prior to getting the Rx for the Magic Mouthwash, but continued to eat it throughout treatment. I had forgotten that excellent piece of advice. I'll blame it on brain fog or early onset dementia (maybe it's not so early?)

Lori, I used Biotene Toothpaste during treatment. It didn't burn and it really helps with the oral dryness. I recommend the Biotene mouthwash too. It works good at night if you wake up with that old nemesis "Cotton Mouth"... biggrin



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Oral Thrush - Mayo Clinic

Unsweetened Yogurt may help restore the natural balance of bacteria (see article above), if indeed it is Thrush.

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Firechic19 wrote:

JimmyK: Haha! I hear ya my mouth has that prob too! Pre-treatment and much worse during lol

Tig: yeah this is really bad, swallowing in general is terrible. It burns and is just really raw feeling. I'm gonna go see my dr first thing in the morning. What kind of toothpaste did u use when u had thrush? My current toothpaste (crest 3d) is like pouring gasoline on the fire

Riba is quiet the little gift giver isn't it!


 Sis you know that "cousin" that visited once and ONLY once and you were kind of told just be nice they won't be here long?

Remember her name?

I believe it was Reba. Close I know and not quite but. really?

 

 



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



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JimmyK: Haha! I hear ya my mouth has that prob too! Pre-treatment and much worse during lol

Tig: yeah this is really bad, swallowing in general is terrible. It burns and is just really raw feeling. I'm gonna go see my dr first thing in the morning. What kind of toothpaste did u use when u had thrush? My current toothpaste (crest 3d) is like pouring gasoline on the fire

Riba is quiet the little gift giver isn't it!

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!

Tig


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Lori,

I had a terrible time with oral "Thrush". Don't know what was responsible specifically, but was on Ribavirin too. I thought initially that I had developed strep throat. It looked just like it. One of our members at the time had suffered from it during treatment too. It was more common during the Interferon days. I can't say if that's your problem, but it should be considered. These drugs, regardless of what they are can cause all kinds of strange things. I was prescribed an oral swish, better known as "Magic Mouthwash". It's a compounded solution of Benadryl, lidocaine and Nystatin. It relieves the fungal infection, pain and worked quite fast. It's worth investigating.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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I had extreme dry mouth in particular at night. Sometimes felt like my lips were rocks. I would wake up in the morning and look to the floor to make sure they had not dried up and fell off.

Than and the usual problems unrelated to treatment that my mouth has from time to time.  LOL

 

JimmyK

 



-- Edited by JimmyK on Wednesday 24th of February 2016 11:05:50 PM

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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

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Any of u guys had any mouth probs? My mouth is on fire! Has been for a little while now off and on but for the last 2 days it has went to a whole new level. It feels like I've taken sandpaper to the roof of my mouth and tongue. Near my throat everything is extremely red, and kinda white in some areas. I took a pic with my iPhone so I could see my throat with the flash and wow! Either the dragon has tried to claw his way out through my throat or the virus has left my liver and relocated to my mouth haha!

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!

Tig


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Glad to hear you're doing well smile I understand the feeling of not wanting to leave the house and medication behind. Considering how much it weighs and it's value, I believe it's more valuable by weight than gold! Don't know for sure but I think it's safe to say, it's close! I'm glad your family is noticing your improvements, that makes it even better. Good luck and keep pushing those fluids!!!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Welcome Hep Manny,

 

So is it Manny. Are you on V-Pk no RBV? Tell us a bit more about yourself. Do an intro in the new Member area which is in fact New Family Member area and welcome to The Family!

 

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



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Just wanted to update folks - have been on Veikira for two weeks now - I am happy say that I have had no Sx - I am almost thinking the pills are fake  

Family and friends notice my skin coloring seems to be "pinker" meaning less yellow so it must be working.  

Only concern I have is leaving house for extended period of time - might sound weird but I am afraid that someone could steal the medication.  

 

 

GT 1b

VL 1,237,287

Diagnosed November 2015

alt 74 ast 45

F2/f3 fibrosure

2/3/16 Started 12 weeks Viekira



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GT 1b
VL 1,237,287
Diagnosed November 2015
alt 66 ast 35
F2 fibrosure
2/3/16 Started 12 weeks Viekira

week 4 test - 3/1/16 undetected 

 

Week 4: Hep C virus by PCR   <1.18 NOT detected, <15 not detected IU/Ml AST 18, ALT  25 

Tig


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Hi Lori,

The Riba rash is the pits! You have received some good advice thus far and I would ask the doctor about an anti histamine like Benadryl or Zyrtec. They both helped me a lot. I used an OTC lotion called Caladryl (Benadryl and Calamine). Spacing out your showers, mild soap and cooler water will help keep it down to a mild roar.

Use our search function and use the word "rash" or a combination of keywords and you'll get some additional help from days past. Don't scratch!!!!!!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Thanks Ari-anna! I will definitely try the peppermint lotion, I'm willing to try anything at this point! I completely understand your Dad's passion for the fire service. I still get excited when I hear the siren, it's a heart warming sound :) I love that so many of your family members got involved as well.

Dave, I quickly learned last night not to scratch the rash when it went from a small area at my wrist to starting up my arm within mins. This morning it looks better, not as red, but the itch is head to toe. It's almost like having poison ivy. Gonna try the oatmeal now and wait for my dr's office to open so I can confirm the Benadryl. Trying peppermint lotion today as well. This itch is gonna kick it back down the tracks! Thanks for all of the info and the links!!!

you guys are awesome!!! This forum has been a blessing!!!

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



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Hi Lori,

Sounds like "Riba Rash", quite common, do not scratch, use very little if any soap during showers (a little baby shampoo works instead

Oatmeal in something like cheesecloth and tie at top and put in luke warm to cool bath water, it will help the itch a lot.

Ice packs sometimes help.

I don't know if you can take Benydril with Viekira Pak, someone who's taken it will chime in.

I've read where people get the Riba Rash then it can go away, just try not to put anything at all harsh on your skin, nothing with fragrance ... preferably only mild natural ingredients.

 

Sorry to hear about the rash, wishing you the best.

 

Dave

Edit: This is all I could find about taking Benadryl with Viekira Pak, looks like it's Ok but you should ask your Doctor to be sure.

They need to know if you are taking it anyway. Link Here  (Site is a Gastroenterology site so the information should be valid.

I looked at Viekira Pak website, you might be able to find it there, I couldn't.



-- Edited by Linuxter on Tuesday 16th of February 2016 08:33:58 AM

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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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I itched all over while on Viekira - not fun at all. I used a lotion with peppermint in it which was cooling, helped a lot.

All the best with your employment issues - my Dad was a fireman, both voluntary and permanent force. It was his passion and I grew up on station.

Eventually my son was a volunteer firefighter for 5 years - I greatly admire all firefighters, not an easy job.



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Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo



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New SE...OMG! Itching all over! Woke up to completely dry itchy face, then it spread to my neck. As the day went on my arms got it, now my legs. Also have what appears to be a rash showing on my left arm. Took a shower and applied lotion generously which felt like liquid fire to my face and neck which is weird because I use this lotion often and never had a prob before. Normal SE? Would Benadryl help or is it even safe to take with the vpak and Riba?

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



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and before I realized what I was doing I had already worked from week 2 all the way through week 5's work

LOL, ya it'll wire ya out too, hopefully not just before bedtime.

Water, and LOTS of it, actually helps to temper all the sides from what I can tell, including the ones you've mentioned here.

... hey, you're rolling with the punches well, keep up the great work!

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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I had no idea that such a thing existed that protected those in this situation with employers. Very interesting! I'm sure I'm worrying for nothing so I will stay positive like you said and just roll with whatever happens tomorrow.
On a positive note: this crazy brain fog SE that I'm having works exceptionally well with my online class that I'm taking to finish my degree. Not sure if it was a moment of clarity or what but I logged in last night and before I realized what I was doing I had already worked from week 2 all the way through week 5's work. So now I'm experiencing a love/hate relationship with the Riba haha!

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!



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As Tig said, "You are protected from any sort of disciplinary action" period, regarding this. (No exceptions, and they know that).

Ya, what he said ... 

Dave

 

 



-- Edited by Linuxter on Monday 15th of February 2016 06:30:18 AM



-- Edited by Linuxter on Monday 15th of February 2016 06:32:04 AM

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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


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You can't be terminated for that. You need to inform your employer and once notified, you're protected under the ADA (Americans with Disabilities Act). I think it won't be as difficult as you might believe. We had a member recently that is also with the Fire Department and was treated very well by his department. 

I understand the concern regarding what people will think, but I've seen a lot of improvement where the stigma is concerned. The treatment is providing a better outlook in my opinion for those with the illness, as well as those concerned about working with them. Your health and welfare are the most important thing right now. Do what you need to do and get this over with. You're young, still seem very healthy overall and have a great future ahead of you. This will be over before you know it and all will be good with the Universe! Stay positive and good things happen....  smile



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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I've tried to keep from telling them about the hcv. They know I'm drinking and eating more healthy but didn't ask why, instead they all decided to join me. I guess I'm gonna have to sit down with my Chief and come clean about it. I just hate telling ppl I have it I guess u could say. Fear of what ppl will think of me, or how they'll treat me, or if I'll be told to turn my gear in and not come back. You guys are right though, have to look out for my health.

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!

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