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Hep C Discussion Forum -> Post Treatment -> Undetected - SVR12 - Sovaldi and Olysio
Post Info TOPIC: Undetected - SVR12 - Sovaldi and Olysio
sunrise


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RE: Undetected - SVR12 - Sovaldi and Olysio
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CONGRADULATIONS Rubye!!!!

  So great to hear, biggrin I hope you can heal now and start feeling better. I am still plagued with Achilles tendon inflammation and pain. This did not start until about halfway thru treatment, and still alas has not gotten better. Thankful though for.my SVR, hopefully with time this goes away. It is very painful to work as I am a Barber and must stand.. Best wishes Rubye....Sunrise



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Bills


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mallani wrote:

Remember that the virus attacks and damages nerve sheaths, ligaments , joint capsules and tendons. This may be permanent and not resolved by clearing the virus. Many of us have a degree of peripheral neuropathy e.g. the soles of my feet are numb. The virus tends to attack the sensory nerves, The mental and physical heath of post SVR patients deserves a lot more research. Cheers.

 Hi Malcom

Very interesting I've been asking doctors to admit that for years. It's these symptoms being very severer that drove me to treatment 7 years ago and I still have a-lot of it. i'm sure I picked up some more with side affects of the Meds. Time will tell. We have improvement in liver function on our side and ease of mind that the dragon is dead. I'm hoping my body will follow my mind and turn it all around.

and Thanks for the Pics I think we're all traveling with you 

you ain't nothing but a hound dog rock'in all the time

have fun

BS    



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Stormy


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Congratulations! 

Stormy



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TazKat


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So Happy for you!!  I have been free since july. still in sort of depression but there are a lot of things causing that..:)  keep healthy!!!!!  Yay!!!!!!!!

Peace out

Taz



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
mallani


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Hi Duane and Rubye,

Remember that the virus attacks and damages nerve sheaths, ligaments , joint capsules and tendons. This may be permanent and not resolved by clearing the virus. Many of us have a degree of peripheral neuropathy e.g. the soles of my feet are numb. The virus tends to attack the sensory nerves, rather than motor. Duane, I'm sure this is your problem. In time, it does settle down, but sometimes we just have to live with it. Diabetes is a similar problem- it's common and usually not severe. Diet is enough but some need hypoglycaemics.

Sometimes, depression is hard to diagnose. Lethargy and loss of interest are common symptoms. After all the stress that goes along with treatment, some backlash is to be expected. I'm not keen on antidepressants, but it doesn't hurt to give them a try, if your doctor agrees.

The mental and physical heath of post SVR patients deserves a lot more research. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Dzdayscomin


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Not so sure about depression, yes I could see it happening with all the negative effects of hep c ,  but I believe there is something more going on, I really hope it's  just the damaged liver that thru self repair over time, or in my case replacement it will correct a lot of these issues.

All we can do is stay positive and hope for the best! 

Best to you Rubye!

Duane



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53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
Rubye


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Hemoglobin is 13.

You know, it may very well be depression cause I really don't go out much and it's become something of a vicious circle. Ah well... Thanks  Malcolm.



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
mallani


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Rubye,

I'm a bit older and was on a different treatment. I took a year to get back to pre-treatment ' normal' .

Olysio is a protease inhibitor so may take a while to exit the body.

You said your LFT's are normal . What is your Hb?

It's worth checking your Rheumatoid Factor . I did a post about tests to exclude significant arthritis some time ago.

The stress of treatment and waiting for results can cause depression.  Talk to your doctor.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Dzdayscomin


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That is exactly how I feel very tired all the time.......sleep is difficult, and it is never a satisfying sleep. I also developed diabetes and have neuropathic pain in my legs and feet all the time,  along with a loss of feeling in the tips of my toes and what feels like a frost bite burning in my feet mostly the big toes on the inside edges.

The feeling of disengagement or not feeling strong enough to do anything is profound and very disappointing. 

I went to Las Vegas for AAOS (American Academy of Orthopedic Surgeons) for work last week and it was brutal, the flights from Mpls. there and back was just terrible in my condition, but I had to try.....I got home and slept ( sort of ) for 18 hrs straight and could hardly walk when I got up. 

Not sure..... and I am really praying that when I get this transplant in the next 12 months that things really change for the better if not it's gonna be a really miserable existence. ......

Thanks for your reply.



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53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
Rubye


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Hi Duane,

Yes, I'm the same. However, I'm only at 3 months since my end of treatment. My peripheral neuropathy is worse then before and so is the arthritis. I also have developed pain in areas, like my hip, where I did not have arthritis before treatment.

However, my biggest concern is how tired I am. I don't work and feel like doing nothing but sleeping and watching tv all day. I suppose it could be depression but the thing is my mind has gained clarity and overall my thinking is much better. The brain fog I had during treatment is gone and I don't really think it's depression because I find myself wanting to do more, making goals, and looking to the future with hope. 

Hopefully more people will weigh in on this.



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Dzdayscomin


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Rubye,

I too am nearly at the 1 yr mark of being free of HEP C  and I feel very lucky.

I have a question for you on how you feel in other ways.

I have incredible issues with all over joint stiffness and pain in all my joints such as low back, neck, hips, shoulders, elbows, ankles, knees, hands etc.... you name it. Are you having any of these problems ? I know age can play a part, and in women  bone density issues are common, but how i feel today in comparison to 2 yrs ago is staggering to me that this condition continues to worsen.

I see that you have compensated cirhosiss so I would think that you may experience some similar issues if the S/O tx was the culprit? who knows.

Anyway very happy for your achievement. ....and as others said don't feel guilty about feeling better....you are supposed to feel good, that is what is natural.

Duane



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53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
pl1952


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Congrats on being UND Rubye!!! Way to go!



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Me: 62 yr. old female, GT 1b, fibroscan 4.5; VL 650,975 as of 2/4/14;started Harvoni 3/6/15; SVR


Hubby: 59 yrs.; GT1b; fibroscan 25-cirrhotic; S/O for 12 weeks started tx 3/20/14; SVR56; fibroscan done 7-7-15 = 8.5
mallani


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Hi Rubye,

Congratulations on a great result!  Enjoy life. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tig


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Hey Rubye,

Congratulations!! BIG WOOT!!!   You finally did it! I'm very happy to hear your great news and excited that we get to share in your triumph and joy. The day you are blessed by this event is one you'll never forget. As the others have mentioned, you have nothing to feet guilty about. After 45 years you needed to get this done and were fortunate to get it. Please have no regrets. The day is coming soon that the barriers will come down and everyone wanting and needing treatment will get it. In the end, the successes obtained are a direct result of the battle we have all fought. Sharing our experiences benefit all that follow. Whatever it takes to defeat the Dragon is the right approach!

I hope you're feeling better by now. Some sfx linger for awhile, but they do diminish. I wish you the very best in you new Hep C free future!! Good luck...

Tig



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67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Cinnamon Girl


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Fantastic news, Rubye, congrats on SVR12...so pleased for you!!!    

You can put all the worry behind you now and enjoy being free from Hep C, at last!!

And please don`t feel guilty, no-one here needs to feel like that, we`re all just so thrilled when any of our members are able to be treated and reach SVR!

Very best of luck to you in your new life!! 

 

 

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Groupergetter


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Congratulations Rubye, truly happy for you.  Hope you have a happy hep-c free life.  How great it is!!!! 



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
bassetgirl


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Congratulations!!!!!!!!! I'm so happy for you!

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 Female. When treated: age 63, gt 1a, compensated cirrhosis, platelets 67,S/O 12 week treatment,EOT July 30 2014

Oct. 23 2014 EOT + 12 SVR !!!!!! Thank you God and Medical Science.

Jan 19 2015  EOT + 24 results: still SVR
Rubye


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I also feel a bit guilty Mike - like why did I get it when all these other people can't get help. I don't know but I do know I'm happy in spite of the guilt. 

You've got it Mike - the odds are so much in our favor. I'm hoping for you anyway.



-- Edited by Rubye on Saturday 28th of March 2015 06:26:44 AM

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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
wmlj1960


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 Congrats Rubye.   I have Medicare/Medicaid as my only coverage but was approved for treatment before many others that had been waiting longer. So I felt a little guilty but also lucky and very thankful. I also hope all people who need treatment will get it! I hope to join you with being "blank blank jazzed" when I get tested for SVR 15 on April 21. Enjoy your HepC free life! smile



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Fireman Rob


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Rubye,

That's fantastic news! I'm so glad to see so many successes on that combo. What a relief and just in time!

-Rob

 



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Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
Matt Chris


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Hey Rubye

Yes it is UND, love to hear those words, congrats indeed its a very special day and many more to come. Smiling

matt  



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Rubye


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All I can say is I am the luckiest girl, okay woman, in the whole wide world!!! Given my history I should be dead a few times over but here I am at 67 years with fairly good health and NO Hepatitis C. I'm really having a hard time believing it. It has been with me since I was around 22 years old. Unbelievable! 

Now, I hope everyone else who has yet to have a chance to treat will get to. It's hard for those of us with Medicaid, even when it is a secondary insurance and it only by the grace of god, and a bit of a fight from me, that I was able to treat. I only wish there was something I could do to help others get it but I feel helpless against the system. Perhaps time will reveal something. 

I am so blank blank jazzed! 



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
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