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STICKY:
Harvoni sides and beyond
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1 2
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(Preview)
Salutations! I thought I'd better jot down my complete list of side effects before I forget exactly what went on. I'm going to list them as the most severe first and then with notations as to duration or how I dealt with it. I suppose I'll also dedicate this thread to the healing effects experienced sinc...
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Iris Dragonfly
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53
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1941
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STICKY:
Recovery from "Harvoni" Q & A's Lets figure it out !
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(Preview)
Lets figure this out. With many of our members dealing with questions and concerns about how they feel after the end of treatment it would make sense for us to address this issue by means of either poling our members or having a deep examination of the common complaints that all patients/members of th...
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Matt Chris
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146
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28234
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STICKY:
Post Tx aches and pains
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1 2
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(Preview)
Hi all, Since EOT, I developed some new joint and muscle pains, particularly in the knees, wrists and hands. I dismissed it as being age related and due to my 48 weeks of inactivity. As it didn't improve and I was overseas, I emailed my doc, who gave me a list of blood tests to have when I returned to Austr...
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mallani
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85
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22524
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STICKY:
Post Treatment Issues
(Preview)
The subject of of long term side effects after treatment has recently been raised by many people and really does need to be addressed. According to some recent studies, this is more widespread than we have been led to believe. One of the main issues is that the choice to do treatment should be based on &q...
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greenqueen
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14
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17482
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Anniversary
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Hey all... One year ago tonight I got the phone call with the hep c diagnosis... Wife and I sat on the couch for a long time waiting for the call, and then a long time after trying to figure it all out.. After my twelve weeks of epclusa, I've pretty much kicked that dust off my shoes, and I don't think about it a...
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upstate
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12
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1865
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AFP MARKER question
(Preview)
hi everyone. I was wondering if the AFP tumor marker we get every 6 months can find all tumors, or just in the liver? just wondering 
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5-1-18
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15
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187
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Update, 44 month post
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Hi All, just an update, saw my liverdoc this week: bloodwork is all good, see signature. And the US is also fine, no this and no that, just a little diffuse echogenicity. OK. Doc said, with joy, that Hep C is a dying trade now. Do you get this psycho-flares with reports? I go to a imaging clinic for ultraso...
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movebo
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11
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128
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svr
(Preview)
Hey there, my final blood work cleared me of the virus. Good news i guess. I really don't feel any different than i did before. Seems all the little things i complained about while doing treatment have disappeared. I wouldn't say i have a lot more energy, however i did quit smoking last yr and so its hard t...
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woodytwoshoes
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10
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249
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New Cures, Incredible!!
(Preview)
I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...
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news
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6
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517
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Epclusa ad
(Preview)
I wonder every single time about what they say during the ad. "I had the Normal one" "I didnt'" "I had liver problems" etc. what in the world does this mean? I had hep C for over 40 years and the only "type" they told me I had was 1a.
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Karyl
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2
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197
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Update - five plus years UND and going strong.
(Preview)
Hi everyone, its nice to see the forum still thriving. It certainly was a source of strength for me, and even though a cure for Hep C is now everywhere, I think anyone going through treatment and its aftermath could use the loving support here. I am doing well. I still get a screening every six months,...
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Millercollaborative
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5
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278
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New Cures, Incredible!!
(Preview)
I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...
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news
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0
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321
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pain under ribs on the right
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1 2
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(Preview)
Yesterday when I was driving back from Sac. I started getting a dull ache in the area under my right rib cage. When I got to moms (about half way home) It was real sore and I was so tired. I put on a heating pad thinking it was muscle related. But it didn't help much. When I sit real still it's fine. If I try to mov...
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Iris Dragonfly
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67
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1625
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My dr released me!
(Preview)
My most recent labs were again perfect in every aspect. My dr said "you are CURED!" and told me no need to go back. She said no need for most tests for SVR proof and I was good to go on anything. Except tattoos and piecrings. She said don't put yourself at risk for getting it again. From what others say,...
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Karyl
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7
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425
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Resuming supplements after EOT
(Preview)
My EOT date was October 18, my 12 week SVR blood draw will be January 2. I would really love to resume taking supplements, especially ALA-ALCAR (acetyl l-carnitine plus alpha lipoic acid acid) for chronic fatigue, and S-adenosyl-L-methionine (SAMe) for joint pain and depression. What did your d...
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Hoodietree
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14
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470
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VIRAL ARTHRITIS
(Preview)
My bad arthritis didn't bother me at all during treatment, but for the past week I'm hurting all over. How long does it take to it to go away after the virus is gone? Or is this something else?
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Karyl
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1
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371
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Variable Fibroscan results?
(Preview)
Hi all, I wonder if anyone can comment on this. I received a fibroscan score of 14.2 back in 2015 prior to SVR. I then had a further scan with a score of 9.2 in 2017 post SVR Today I had another scan with a score of 11.2. What gives is this normal? I haven't had any further bloods since 18mth SVR Tony
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Midnight
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2
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410
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Post Epclusa problems
(Preview)
Hi all, i have been off Epclusa for 6 weeks and am experiencing some not so nice problems. I have developed bursitis in both shoulders, my arthritis is worse, achy muscles, tiredness and lack of energy and now have alergies i never had before. I have never been bothered with allergies before taking tre...
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woodytwoshoes
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10
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669
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Be careful using Crestor post DAA treatment
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My cardiologist had wanted me on Crestor but it was contraindicated during treatment with Epclusa. After completing treatment and enough time had passed for the sofosbuvir and velpatasvir to be metabolized completely I asked my hepatologist if taking Crestor was OK to which he said yes. Within a f...
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lamassu
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14
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1643
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Checking in
(Preview)
Hi guys. Long time since I posted. Now 5 years post SVR and virus free. LFT's are normal. Still have followup Ultrasounds every 9 months. All good- no HCC, and my cirrhosis is becoming hard to see. Apart from a major heart attack just over a year ago, no complaints. I've recovered well, stopped smoking a...
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mallani
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12
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715
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Re infection
(Preview)
Hey guys, I'm freaking myself out right now. I was real careful about changing out my razor and toothbrush a couple times during treatment, but tonight without thinking I used my water pic with the bristle attachment. It's the only attachment I use on it. But i haven't used it for the whole time of Tx. S...
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Iris Dragonfly
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17
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1137
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gallstones
(Preview)
after 23 years i am living the hep c free life. Just got a clear scan, but I now have gallstones.... any experience anyone?
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JLynch30
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11
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784
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Finished mavyret 5 weeks ago, having issues
(Preview)
Hi everyone I have just recently joined up as I needed some support and decided I should speak to people who share my burden.
Im from Scotland and I reckon I have had hep c since I was 21, I am now 32, I am genotype 3.
I finished 8 weeks of treatment with mavyret 5 weeks ago today. My Fiboscan score before t...
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james_mc85
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46
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1996
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Fibroscan results
(Preview)
I had my 1st post tx fibroscan yesterday since EOT. My only other fibroscan was done about 2 1/2 years ago when I found out I was cirrhotic F4 with a score of 18.8. Yesterdays score was 8.8 - F2. EOT was Oct 28th 2015. I've been in a daze since I found out...a very happy daze. My Dr said that I will always be cons...
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Jaded
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35
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4003
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Baseline Fibroscan 2 years later.
(Preview)
Hello all it's been awhile. I never had a fibroscan before I did the Harvoni and now it's been 2 years SVR and my doctor decides he wants to do one I think they just got the machine in their office and need to pay for it. I have had ultra sounds and they have come back with normal results. All else is normal as fa...
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Sieb
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10
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1379
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SVR 128
(Preview)
Hi Tig and All, I have been terribly busy with life & work, and have not posted much. But I still read, and I am happy , so many people are cured and doing great. well, another 6 month US and bloods, my doc actually did a viral load, unsurprisingly undetected... My 12.3 cm spleen was again tagged as "sli...
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movebo
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8
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1153
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5 years post tx
(Preview)
Hi all, I met with my gastroenterlogist last Monday. I figured that he would be telling me that after 5 years he would be concluding the traking of my case. Instead, he ordered another round of labs, including the PCR test for the Hep C virus. Results don't look bad: Of course, the bast news of all, i...
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hrsetrdr
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15
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2474
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Cirrhosis and low platelet count
(Preview)
I have not been on this forum for a while now, but my husband is still Hep C free after completing treatment just over a year ago. His cirrhosis caused portal hypertension and he did have esophageal banding for varices about 2 years ago (just before starting treatment). His platelets are about 50 and re...
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Susie1
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2
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1208
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I was not expecting this.
(Preview)
Greetings, Carol had her six month follow up to monitor for liver Cancer. This due to the fact that she was considered an F-4 prior to SOT. The Liver Stiffness test came back F<0.  They are saying the contour "suggests" cirrhosis, but that is it. This is insanely good news! I am a bit ....
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JimmyK
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11
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2993
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12 Months Post but not over yet
(Preview)
Hi all hope you good people are well especially those who helped me nail this dragon . i have had my 12 month obbs and all is good appart from weight gain not over the top but from normal 75 kg to 80 kg and reminded that my liver is still damaged .i have a lot of work to doo it seems i am wondering if anyone had some...
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Lawmatt
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18
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2522
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