Hep C Discussion Forum

mallani · mallani

Hi all, Since EOT, I developed some new joint and muscle pains, particularly in the knees, wrists and hands. I dismissed it as being age related and due to my 48 weeks of inactivity. As it didn't improve and I was overseas, I emailed my doc, who gave me a list of blood tests to have when I returned to Austr...

Iris Dragonfly · Iris Dragonfly

Salutations! I thought I'd better jot down my complete list of side effects before I forget exactly what went on. I'm going to list them as the most severe first and then with notations as to duration or how I dealt with it. I suppose I'll also dedicate this thread to the healing effects experienced sinc...

Matt Chris · Matt Chris

Lets figure this out. With many of our members dealing with questions and concerns about how they feel after the end of treatment it would make sense for us to address this issue by means of either poling our members or having a deep examination of the common complaints that all patients/members of th...

greenqueen · greenqueen

The subject of of long term side effects after treatment has recently been raised by many people and really does need to be addressed. According to some recent studies, this is more widespread than we have been led to believe. One of the main issues is that the choice to do treatment should be based on &q...

Bestmomy · Bestmomy

Has anyone had hep b reactivation after hep c treatment. I was treated in 2015 and at that time reactivation wasnt a warning. Its been 4 years. My doctor says when I was treated my hep b was negative but I read the warning differently. Could I have reactivated and not know!

Cheddy · Cheddy

Greetings my friends. It's official. I HAVE REACHED SVR 12!!!!!!!! Whew! It's just not real until you get those labs. I just lost about a hundred emotional pounds. 3 months ago, I told my hepatologist that I was afraid to plan anything because I wasn't sure I could count on anything but fatigue....

polosilver · polosilver

Hello Everyone -- I stopped posting here around first of year and felt great that I was HepC free!!! Unfortunately, now my ctscan this week shows that my liver is enlarged and was given Hepatomegaly diagnosis? The ctscan was for kidney cysts, which were found when I went through testing before Harvo...

5-1-18 · 5-1-18

hi everyone, my doc insists on the qual after using the quant over the past year and half. does anyone have input on this? i can always go to my family doctor since the liver doc is being stubborn. thanks , 5

Scruffy · Scruffy

Just got my yearly blood tests back. Still undetectable five years and counting. i feel pretty good.

Jaded · Jaded

I had my 1st post tx fibroscan yesterday since EOT. My only other fibroscan was done about 2 1/2 years ago when I found out I was cirrhotic F4 with a score of 18.8. Yesterdays score was 8.8 - F2. EOT was Oct 28th 2015. I've been in a daze since I found out...a very happy daze. My Dr said that I will always be cons...

Tig · Tig

I saw this article after our member Lamassu posted a link in the Vosevi thread. It’s always good to share these professional opinions when we find them. Thanks, Lam! Alcohol after the Cure

upstate · upstate

Hey all... One year ago tonight I got the phone call with the hep c diagnosis... Wife and I sat on the couch for a long time waiting for the call, and then a long time after trying to figure it all out.. After my twelve weeks of epclusa, I've pretty much kicked that dust off my shoes, and I don't think about it a...

5-1-18 · 5-1-18

hi everyone. I was wondering if the AFP tumor marker we get every 6 months can find all tumors, or just in the liver? just wondering

movebo · movebo

Hi All, just an update, saw my liverdoc this week: bloodwork is all good, see signature. And the US is also fine, no this and no that, just a little diffuse echogenicity. OK. Doc said, with joy, that Hep C is a dying trade now. Do you get this psycho-flares with reports? I go to a imaging clinic for ultraso...

woodytwoshoes · woodytwoshoes

Hey there, my final blood work cleared me of the virus. Good news i guess. I really don't feel any different than i did before. Seems all the little things i complained about while doing treatment have disappeared. I wouldn't say i have a lot more energy, however i did quit smoking last yr and so its hard t...

news · news

I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...

Karyl · Karyl

I wonder every single time about what they say during the ad. "I had the Normal one" "I didnt'" "I had liver problems" etc. what in the world does this mean? I had hep C for over 40 years and the only "type" they told me I had was 1a.

Millercollaborative · Millercollaborative

Hi everyone, its nice to see the forum still thriving. It certainly was a source of strength for me, and even though a cure for Hep C is now everywhere, I think anyone going through treatment and its aftermath could use the loving support here. I am doing well. I still get a screening every six months,...

news · news

I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...

Iris Dragonfly · Iris Dragonfly

Yesterday when I was driving back from Sac. I started getting a dull ache in the area under my right rib cage. When I got to moms (about half way home) It was real sore and I was so tired. I put on a heating pad thinking it was muscle related. But it didn't help much. When I sit real still it's fine. If I try to mov...

Karyl · Karyl

My most recent labs were again perfect in every aspect. My dr said "you are CURED!" and told me no need to go back. She said no need for most tests for SVR proof and I was good to go on anything. Except tattoos and piecrings. She said don't put yourself at risk for getting it again. From what others say,...

Hoodietree · Hoodietree

My EOT date was October 18, my 12 week SVR blood draw will be January 2. I would really love to resume taking supplements, especially ALA-ALCAR (acetyl l-carnitine plus alpha lipoic acid acid) for chronic fatigue, and S-adenosyl-L-methionine (SAMe) for joint pain and depression. What did your d...

Karyl · Karyl

My bad arthritis didn't bother me at all during treatment, but for the past week I'm hurting all over. How long does it take to it to go away after the virus is gone? Or is this something else?

Midnight · Midnight

Hi all, I wonder if anyone can comment on this. I received a fibroscan score of 14.2 back in 2015 prior to SVR. I then had a further scan with a score of 9.2 in 2017 post SVR Today I had another scan with a score of 11.2. What gives is this normal? I haven't had any further bloods since 18mth SVR Tony

woodytwoshoes · woodytwoshoes

Hi all, i have been off Epclusa for 6 weeks and am experiencing some not so nice problems. I have developed bursitis in both shoulders, my arthritis is worse, achy muscles, tiredness and lack of energy and now have alergies i never had before. I have never been bothered with allergies before taking tre...

lamassu · lamassu

My cardiologist had wanted me on Crestor but it was contraindicated during treatment with Epclusa. After completing treatment and enough time had passed for the sofosbuvir and velpatasvir to be metabolized completely I asked my hepatologist if taking Crestor was OK to which he said yes. Within a f...

mallani · mallani

Hi guys. Long time since I posted. Now 5 years post SVR and virus free. LFT's are normal. Still have followup Ultrasounds every 9 months. All good- no HCC, and my cirrhosis is becoming hard to see. Apart from a major heart attack just over a year ago, no complaints. I've recovered well, stopped smoking a...

Iris Dragonfly · Iris Dragonfly

Hey guys, I'm freaking myself out right now. I was real careful about changing out my razor and toothbrush a couple times during treatment, but tonight without thinking I used my water pic with the bristle attachment. It's the only attachment I use on it. But i haven't used it for the whole time of Tx. S...

JLynch30 · JLynch30

after 23 years i am living the hep c free life. Just got a clear scan, but I now have gallstones.... any experience anyone?

james_mc85 · james_mc85

Hi everyone I have just recently joined up as I needed some support and decided I should speak to people who share my burden. Im from Scotland and I reckon I have had hep c since I was 21, I am now 32, I am genotype 3. I finished 8 weeks of treatment with mavyret 5 weeks ago today. My Fiboscan score before t...

Topic		Started By	Replies	Views	Last Post
	STICKY: Post Tx aches and pains ( 1 2 3 ) (Preview) Hi all, Since EOT, I developed some new joint and muscle pains, particularly in the knees, wrists and hands. I dismissed it as being age related and due to my 48 weeks of inactivity. As it didn't improve and I was overseas, I emailed my doc, who gave me a list of blood tests to have when I returned to Austr...	mallani	106	24960	August 20th by Tig
	STICKY: Harvoni sides and beyond ( 1 2 ) (Preview) Salutations! I thought I'd better jot down my complete list of side effects before I forget exactly what went on. I'm going to list them as the most severe first and then with notations as to duration or how I dealt with it. I suppose I'll also dedicate this thread to the healing effects experienced sinc...	Iris Dragonfly	53	2267	Jan 14, 2019 by Cheddy
	STICKY: Recovery from "Harvoni" Q & A's Lets figure it out ! ( 1 2 3 ) (Preview) Lets figure this out. With many of our members dealing with questions and concerns about how they feel after the end of treatment it would make sense for us to address this issue by means of either poling our members or having a deep examination of the common complaints that all patients/members of th...	Matt Chris	146	32506	Jul 7, 2018 by 5-1-18
	STICKY: Post Treatment Issues (Preview) The subject of of long term side effects after treatment has recently been raised by many people and really does need to be addressed. According to some recent studies, this is more widespread than we have been led to believe. One of the main issues is that the choice to do treatment should be based on &q...	greenqueen	14	18034	Mar 5, 2015 by Groupergetter
	Hep b reactivation (Preview) Has anyone had hep b reactivation after hep c treatment. I was treated in 2015 and at that time reactivation wasnt a warning. Its been 4 years. My doctor says when I was treated my hep b was negative but I read the warning differently. Could I have reactivated and not know!	Bestmomy	3	71	September 18th by Canuck
	CHEDDY BEAT THE DRAGON!!!!!!!!!!! (Preview) Greetings my friends. It's official. I HAVE REACHED SVR 12!!!!!!!! Whew! It's just not real until you get those labs. I just lost about a hundred emotional pounds. 3 months ago, I told my hepatologist that I was afraid to plan anything because I wasn't sure I could count on anything but fatigue....	Cheddy	43	1419	September 2nd by Cheddy
	Hepatomegaly - drat, what's up with this??? ( 1 2 ) (Preview) Hello Everyone -- I stopped posting here around first of year and felt great that I was HepC free!!! Unfortunately, now my ctscan this week shows that my liver is enlarged and was given Hepatomegaly diagnosis? The ctscan was for kidney cysts, which were found when I went through testing before Harvo...	polosilver	65	777	August 29th by Canuck
	Qualitative vs Quantitative (Preview) hi everyone, my doc insists on the qual after using the quant over the past year and half. does anyone have input on this? i can always go to my family doctor since the liver doc is being stubborn. thanks , 5	5-1-18	36	405	August 25th by 5-1-18
	Five Years (Preview) Just got my yearly blood tests back. Still undetectable five years and counting. i feel pretty good.	Scruffy	23	296	August 19th by 5-1-18
	Fibroscan results (Preview) I had my 1st post tx fibroscan yesterday since EOT. My only other fibroscan was done about 2 1/2 years ago when I found out I was cirrhotic F4 with a score of 18.8. Yesterdays score was 8.8 - F2. EOT was Oct 28th 2015. I've been in a daze since I found out...a very happy daze. My Dr said that I will always be cons...	Jaded	44	4887	July 5th by Iris Dragonfly
	Alcohol Use After SVR (Preview) I saw this article after our member Lamassu posted a link in the Vosevi thread. It’s always good to share these professional opinions when we find them. Thanks, Lam! Alcohol after the Cure	Tig	4	191	July 1st by Observer
	Anniversary (Preview) Hey all... One year ago tonight I got the phone call with the hep c diagnosis... Wife and I sat on the couch for a long time waiting for the call, and then a long time after trying to figure it all out.. After my twelve weeks of epclusa, I've pretty much kicked that dust off my shoes, and I don't think about it a...	upstate	15	2331	May 30th by upstate
	AFP MARKER question (Preview) hi everyone. I was wondering if the AFP tumor marker we get every 6 months can find all tumors, or just in the liver? just wondering	5-1-18	15	372	May 24th by Canuck
	Update, 44 month post (Preview) Hi All, just an update, saw my liverdoc this week: bloodwork is all good, see signature. And the US is also fine, no this and no that, just a little diffuse echogenicity. OK. Doc said, with joy, that Hep C is a dying trade now. Do you get this psycho-flares with reports? I go to a imaging clinic for ultraso...	movebo	11	290	May 21st by Cheddy
	svr (Preview) Hey there, my final blood work cleared me of the virus. Good news i guess. I really don't feel any different than i did before. Seems all the little things i complained about while doing treatment have disappeared. I wouldn't say i have a lot more energy, however i did quit smoking last yr and so its hard t...	woodytwoshoes	10	442	Mar 13, 2019 by Iris Dragonfly
	New Cures, Incredible!! (Preview) I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...	news	6	690	Feb 10, 2019 by mallani
	Epclusa ad (Preview) I wonder every single time about what they say during the ad. "I had the Normal one" "I didnt'" "I had liver problems" etc. what in the world does this mean? I had hep C for over 40 years and the only "type" they told me I had was 1a.	Karyl	2	371	Feb 6, 2019 by Tig
	Update - five plus years UND and going strong. (Preview) Hi everyone, its nice to see the forum still thriving. It certainly was a source of strength for me, and even though a cure for Hep C is now everywhere, I think anyone going through treatment and its aftermath could use the loving support here. I am doing well. I still get a screening every six months,...	Millercollaborative	5	431	Jan 16, 2019 by sailing shoes
	New Cures, Incredible!! (Preview) I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...	news	0	485	Dec 23, 2018 by news
	pain under ribs on the right ( 1 2 ) (Preview) Yesterday when I was driving back from Sac. I started getting a dull ache in the area under my right rib cage. When I got to moms (about half way home) It was real sore and I was so tired. I put on a heating pad thinking it was muscle related. But it didn't help much. When I sit real still it's fine. If I try to mov...	Iris Dragonfly	67	1940	Dec 23, 2018 by Canuck
	My dr released me! (Preview) My most recent labs were again perfect in every aspect. My dr said "you are CURED!" and told me no need to go back. She said no need for most tests for SVR proof and I was good to go on anything. Except tattoos and piecrings. She said don't put yourself at risk for getting it again. From what others say,...	Karyl	7	593	Dec 22, 2018 by Cheddy
	Resuming supplements after EOT (Preview) My EOT date was October 18, my 12 week SVR blood draw will be January 2. I would really love to resume taking supplements, especially ALA-ALCAR (acetyl l-carnitine plus alpha lipoic acid acid) for chronic fatigue, and S-adenosyl-L-methionine (SAMe) for joint pain and depression. What did your d...	Hoodietree	14	629	Dec 19, 2018 by Hoodietree
	VIRAL ARTHRITIS (Preview) My bad arthritis didn't bother me at all during treatment, but for the past week I'm hurting all over. How long does it take to it to go away after the virus is gone? Or is this something else?	Karyl	1	541	Nov 30, 2018 by Tig
	Variable Fibroscan results? (Preview) Hi all, I wonder if anyone can comment on this. I received a fibroscan score of 14.2 back in 2015 prior to SVR. I then had a further scan with a score of 9.2 in 2017 post SVR Today I had another scan with a score of 11.2. What gives is this normal? I haven't had any further bloods since 18mth SVR Tony	Midnight	2	581	Nov 30, 2018 by Canuck
	Post Epclusa problems (Preview) Hi all, i have been off Epclusa for 6 weeks and am experiencing some not so nice problems. I have developed bursitis in both shoulders, my arthritis is worse, achy muscles, tiredness and lack of energy and now have alergies i never had before. I have never been bothered with allergies before taking tre...	woodytwoshoes	10	999	Nov 24, 2018 by Harry
	Be careful using Crestor post DAA treatment (Preview) My cardiologist had wanted me on Crestor but it was contraindicated during treatment with Epclusa. After completing treatment and enough time had passed for the sofosbuvir and velpatasvir to be metabolized completely I asked my hepatologist if taking Crestor was OK to which he said yes. Within a f...	lamassu	14	2103	Oct 25, 2018 by lamassu
	Checking in (Preview) Hi guys. Long time since I posted. Now 5 years post SVR and virus free. LFT's are normal. Still have followup Ultrasounds every 9 months. All good- no HCC, and my cirrhosis is becoming hard to see. Apart from a major heart attack just over a year ago, no complaints. I've recovered well, stopped smoking a...	mallani	12	903	Oct 3, 2018 by Cinnamon Girl
	Re infection (Preview) Hey guys, I'm freaking myself out right now. I was real careful about changing out my razor and toothbrush a couple times during treatment, but tonight without thinking I used my water pic with the bristle attachment. It's the only attachment I use on it. But i haven't used it for the whole time of Tx. S...	Iris Dragonfly	17	1541	Sep 29, 2018 by 5-1-18
	gallstones (Preview) after 23 years i am living the hep c free life. Just got a clear scan, but I now have gallstones.... any experience anyone?	JLynch30	11	968	Sep 27, 2018 by Canuck
	Finished mavyret 5 weeks ago, having issues (Preview) Hi everyone I have just recently joined up as I needed some support and decided I should speak to people who share my burden. Im from Scotland and I reckon I have had hep c since I was 21, I am now 32, I am genotype 3. I finished 8 weeks of treatment with mavyret 5 weeks ago today. My Fiboscan score before t...	james_mc85	46	2344	Sep 23, 2018 by nathanW
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