Hep C Discussion Forum

mallani · mallani

Hi all, Since EOT, I developed some new joint and muscle pains, particularly in the knees, wrists and hands. I dismissed it as being age related and due to my 48 weeks of inactivity. As it didn't improve and I was overseas, I emailed my doc, who gave me a list of blood tests to have when I returned to Austr...

Iris Dragonfly · Iris Dragonfly

Salutations! I thought I'd better jot down my complete list of side effects before I forget exactly what went on. I'm going to list them as the most severe first and then with notations as to duration or how I dealt with it. I suppose I'll also dedicate this thread to the healing effects experienced sinc...

Matt Chris · Matt Chris

Lets figure this out. With many of our members dealing with questions and concerns about how they feel after the end of treatment it would make sense for us to address this issue by means of either poling our members or having a deep examination of the common complaints that all patients/members of th...

greenqueen · greenqueen

The subject of of long term side effects after treatment has recently been raised by many people and really does need to be addressed. According to some recent studies, this is more widespread than we have been led to believe. One of the main issues is that the choice to do treatment should be based on &q...

mallani · mallani

Hi guys, Just checking in. 9 years post SVR. All good. Still have 6 monthly liver ultrasounds to check for HCC. LFT's remain normal and my Fibroscan is 5 which shows considerable regression of my cirrhosis. Good luck to all on treatment. Mlcolm

5-1-18 · 5-1-18

Hi everyone, I have a question for the people in svr for over 3yrs. If you have continued good enzymes and fibrosure tests , do you still get yearly liver ultrasounds? I have a $100.00 copay and I am now on a fixed income so am wondering if this is just one of those things they make us do that may not be needed...

Jaggles · Jaggles

Hi all, I have recently had lots of joint pain and chronic fatigue, various other symptoms and dark circles under my eyes. all bloods came back normal and lupus test was negative. I spoke to a doctor today who wants to rule out Hep c relapse and this has worried me as 3 years post treatment now. I cant See ho...

Sadi47 · Sadi47

Hi guys, I am new here and I hope that this site will be helpful for me. actually, from the last few months, I am facing some head problems like I can't sleep in a good way, A small problem becomes a big problem for me and I can't handle such a bad situation. I think all these show anxiety and depression and I wa...

Jaggles · Jaggles

Hi all, its been a long time and I am Very well. Tig, I hope you are in usual fine fettle. Ive been very busy getting on with life and suddenly Covid 19 scares me. I am 2.5 years post treatment, treated with epclusa. I now work in social care and they want me to start doing home visits again even though we were t...

Iris Dragonfly · Iris Dragonfly

Yesterday when I was driving back from Sac. I started getting a dull ache in the area under my right rib cage. When I got to moms (about half way home) It was real sore and I was so tired. I put on a heating pad thinking it was muscle related. But it didn't help much. When I sit real still it's fine. If I try to mov...

Karyl · Karyl

My bad arthritis didn't bother me at all during treatment, but for the past week I'm hurting all over. How long does it take to it to go away after the virus is gone? Or is this something else?

LamontCranston · LamontCranston

Happy everything to all here. I hope the season finds you well, or on your way to being so. Sorry to have been absent so long, but there is never a shortage of people with HCV. I'm at year 2 of Cured By Epclusa, but found out the hard way that there are even more hepatitises than the standard "Alphabet Heps"...

RAGDOLL · RAGDOLL

Been busy the past couple years with RCs continued post TP recovery and added into the mix our aging parents. But I did complete my commitment to the M14-222 Abbvie -5 year clinical trial follow which was January 2020! My last labs were good ALT 32 AST 31 and my ultrasound Elastography test was 2.58...

lamassu · lamassu

My cardiologist had wanted me on Crestor but it was contraindicated during treatment with Epclusa. After completing treatment and enough time had passed for the sofosbuvir and velpatasvir to be metabolized completely I asked my hepatologist if taking Crestor was OK to which he said yes. Within a f...

Tig · Tig

MERRY CHRISTMAS!! Hello and Happy Holidays to all of you. I’m amazed that another year has gone by already. I’m also amazed and happy to report that this past year has brought continued success for so many HCV Warriors, here and around the globe. SVR is a real and very achievable with these excellent tr...

Midnight · Midnight

Hi all, I wonder if anyone can comment on this. I received a fibroscan score of 14.2 back in 2015 prior to SVR. I then had a further scan with a score of 9.2 in 2017 post SVR Today I had another scan with a score of 11.2. What gives is this normal? I haven't had any further bloods since 18mth SVR Tony

Bestmomy · Bestmomy

Has anyone had hep b reactivation after hep c treatment. I was treated in 2015 and at that time reactivation wasnt a warning. Its been 4 years. My doctor says when I was treated my hep b was negative but I read the warning differently. Could I have reactivated and not know!

Cheddy · Cheddy

Greetings my friends. It's official. I HAVE REACHED SVR 12!!!!!!!! Whew! It's just not real until you get those labs. I just lost about a hundred emotional pounds. 3 months ago, I told my hepatologist that I was afraid to plan anything because I wasn't sure I could count on anything but fatigue....

polosilver · polosilver

Hello Everyone -- I stopped posting here around first of year and felt great that I was HepC free!!! Unfortunately, now my ctscan this week shows that my liver is enlarged and was given Hepatomegaly diagnosis? The ctscan was for kidney cysts, which were found when I went through testing before Harvo...

5-1-18 · 5-1-18

hi everyone, my doc insists on the qual after using the quant over the past year and half. does anyone have input on this? i can always go to my family doctor since the liver doc is being stubborn. thanks , 5

Scruffy · Scruffy

Just got my yearly blood tests back. Still undetectable five years and counting. i feel pretty good.

Jaded · Jaded

I had my 1st post tx fibroscan yesterday since EOT. My only other fibroscan was done about 2 1/2 years ago when I found out I was cirrhotic F4 with a score of 18.8. Yesterdays score was 8.8 - F2. EOT was Oct 28th 2015. I've been in a daze since I found out...a very happy daze. My Dr said that I will always be cons...

Tig · Tig

I saw this article after our member Lamassu posted a link in the Vosevi thread. It’s always good to share these professional opinions when we find them. Thanks, Lam! Alcohol after the Cure

upstate · upstate

Hey all... One year ago tonight I got the phone call with the hep c diagnosis... Wife and I sat on the couch for a long time waiting for the call, and then a long time after trying to figure it all out.. After my twelve weeks of epclusa, I've pretty much kicked that dust off my shoes, and I don't think about it a...

5-1-18 · 5-1-18

hi everyone. I was wondering if the AFP tumor marker we get every 6 months can find all tumors, or just in the liver? just wondering

movebo · movebo

Hi All, just an update, saw my liverdoc this week: bloodwork is all good, see signature. And the US is also fine, no this and no that, just a little diffuse echogenicity. OK. Doc said, with joy, that Hep C is a dying trade now. Do you get this psycho-flares with reports? I go to a imaging clinic for ultraso...

woodytwoshoes · woodytwoshoes

Hey there, my final blood work cleared me of the virus. Good news i guess. I really don't feel any different than i did before. Seems all the little things i complained about while doing treatment have disappeared. I wouldn't say i have a lot more energy, however i did quit smoking last yr and so its hard t...

news · news

I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...

Karyl · Karyl

I wonder every single time about what they say during the ad. "I had the Normal one" "I didnt'" "I had liver problems" etc. what in the world does this mean? I had hep C for over 40 years and the only "type" they told me I had was 1a.

Millercollaborative · Millercollaborative

Hi everyone, its nice to see the forum still thriving. It certainly was a source of strength for me, and even though a cure for Hep C is now everywhere, I think anyone going through treatment and its aftermath could use the loving support here. I am doing well. I still get a screening every six months,...

Topic		Started By	Replies	Views	Last Post
	STICKY: Post Tx aches and pains ( 1 2 3 ) (Preview) Hi all, Since EOT, I developed some new joint and muscle pains, particularly in the knees, wrists and hands. I dismissed it as being age related and due to my 48 weeks of inactivity. As it didn't improve and I was overseas, I emailed my doc, who gave me a list of blood tests to have when I returned to Austr...	mallani	108	28571	Nov 2, 2019 by Harry
	STICKY: Harvoni sides and beyond ( 1 2 ) (Preview) Salutations! I thought I'd better jot down my complete list of side effects before I forget exactly what went on. I'm going to list them as the most severe first and then with notations as to duration or how I dealt with it. I suppose I'll also dedicate this thread to the healing effects experienced sinc...	Iris Dragonfly	53	4296	Jan 14, 2019 by Cheddy
	STICKY: Recovery from "Harvoni" Q & A's Lets figure it out ! ( 1 2 3 ) (Preview) Lets figure this out. With many of our members dealing with questions and concerns about how they feel after the end of treatment it would make sense for us to address this issue by means of either poling our members or having a deep examination of the common complaints that all patients/members of th...	Matt Chris	146	40161	Jul 7, 2018 by 5-1-18
	STICKY: Post Treatment Issues (Preview) The subject of of long term side effects after treatment has recently been raised by many people and really does need to be addressed. According to some recent studies, this is more widespread than we have been led to believe. One of the main issues is that the choice to do treatment should be based on &q...	greenqueen	14	19201	Mar 5, 2015 by Groupergetter
	Hi all (Preview) Hi guys, Just checking in. 9 years post SVR. All good. Still have 6 monthly liver ultrasounds to check for HCC. LFT's remain normal and my Fibroscan is 5 which shows considerable regression of my cirrhosis. Good luck to all on treatment. Mlcolm	mallani	1	238	June 22nd by Tig
	Liver ultrasounds (Preview) Hi everyone, I have a question for the people in svr for over 3yrs. If you have continued good enzymes and fibrosure tests , do you still get yearly liver ultrasounds? I have a $100.00 copay and I am now on a fixed income so am wondering if this is just one of those things they make us do that may not be needed...	5-1-18	2	599	Sep 10, 2021 by 5-1-18
	Is it possible for Hep c geno 3 to relapse after Epclusa.? I am having tests done again and 3 years post treatment . Ver (Preview) Hi all, I have recently had lots of joint pain and chronic fatigue, various other symptoms and dark circles under my eyes. all bloods came back normal and lupus test was negative. I spoke to a doctor today who wants to rule out Hep c relapse and this has worried me as 3 years post treatment now. I cant See ho...	Jaggles	3	954	Oct 24, 2020 by 5-1-18
	Headaches and anxiety (Preview) Hi guys, I am new here and I hope that this site will be helpful for me. actually, from the last few months, I am facing some head problems like I can't sleep in a good way, A small problem becomes a big problem for me and I can't handle such a bad situation. I think all these show anxiety and depression and I wa...	Sadi47	8	1098	Jun 4, 2020 by Observer
	Post treatment risks to Covid 19 (Preview) Hi all, its been a long time and I am Very well. Tig, I hope you are in usual fine fettle. Ive been very busy getting on with life and suddenly Covid 19 scares me. I am 2.5 years post treatment, treated with epclusa. I now work in social care and they want me to start doing home visits again even though we were t...	Jaggles	19	1176	Apr 19, 2020 by Observer
	pain under ribs on the right ( 1 2 ) (Preview) Yesterday when I was driving back from Sac. I started getting a dull ache in the area under my right rib cage. When I got to moms (about half way home) It was real sore and I was so tired. I put on a heating pad thinking it was muscle related. But it didn't help much. When I sit real still it's fine. If I try to mov...	Iris Dragonfly	68	4706	Apr 7, 2020 by LamontCranston
	VIRAL ARTHRITIS (Preview) My bad arthritis didn't bother me at all during treatment, but for the past week I'm hurting all over. How long does it take to it to go away after the virus is gone? Or is this something else?	Karyl	5	2166	Feb 24, 2020 by Tig
	Who knew? (and Christmas check in) (Preview) Happy everything to all here. I hope the season finds you well, or on your way to being so. Sorry to have been absent so long, but there is never a shortage of people with HCV. I'm at year 2 of Cured By Epclusa, but found out the hard way that there are even more hepatitises than the standard "Alphabet Heps"...	LamontCranston	12	1831	Jan 26, 2020 by LamontCranston
	Clinical Trial Graduate! 2020 (Preview) Been busy the past couple years with RCs continued post TP recovery and added into the mix our aging parents. But I did complete my commitment to the M14-222 Abbvie -5 year clinical trial follow which was January 2020! My last labs were good ALT 32 AST 31 and my ultrasound Elastography test was 2.58...	RAGDOLL	3	1141	Jan 25, 2020 by Tig
	Be careful using Crestor post DAA treatment (Preview) My cardiologist had wanted me on Crestor but it was contraindicated during treatment with Epclusa. After completing treatment and enough time had passed for the sofosbuvir and velpatasvir to be metabolized completely I asked my hepatologist if taking Crestor was OK to which he said yes. Within a f...	lamassu	16	3402	Dec 30, 2019 by Tig
	Merry Christmas 2019 (Preview) MERRY CHRISTMAS!! Hello and Happy Holidays to all of you. I’m amazed that another year has gone by already. I’m also amazed and happy to report that this past year has brought continued success for so many HCV Warriors, here and around the globe. SVR is a real and very achievable with these excellent tr...	Tig	4	1141	Dec 25, 2019 by Observer
	Variable Fibroscan results? (Preview) Hi all, I wonder if anyone can comment on this. I received a fibroscan score of 14.2 back in 2015 prior to SVR. I then had a further scan with a score of 9.2 in 2017 post SVR Today I had another scan with a score of 11.2. What gives is this normal? I haven't had any further bloods since 18mth SVR Tony	Midnight	8	1972	Dec 17, 2019 by 5-1-18
	Hep b reactivation (Preview) Has anyone had hep b reactivation after hep c treatment. I was treated in 2015 and at that time reactivation wasnt a warning. Its been 4 years. My doctor says when I was treated my hep b was negative but I read the warning differently. Could I have reactivated and not know!	Bestmomy	3	1174	Sep 18, 2019 by Canuck
	CHEDDY BEAT THE DRAGON!!!!!!!!!!! (Preview) Greetings my friends. It's official. I HAVE REACHED SVR 12!!!!!!!! Whew! It's just not real until you get those labs. I just lost about a hundred emotional pounds. 3 months ago, I told my hepatologist that I was afraid to plan anything because I wasn't sure I could count on anything but fatigue....	Cheddy	43	2647	Sep 2, 2019 by Cheddy
	Hepatomegaly - drat, what's up with this??? ( 1 2 ) (Preview) Hello Everyone -- I stopped posting here around first of year and felt great that I was HepC free!!! Unfortunately, now my ctscan this week shows that my liver is enlarged and was given Hepatomegaly diagnosis? The ctscan was for kidney cysts, which were found when I went through testing before Harvo...	polosilver	65	3384	Aug 29, 2019 by Canuck
	Qualitative vs Quantitative (Preview) hi everyone, my doc insists on the qual after using the quant over the past year and half. does anyone have input on this? i can always go to my family doctor since the liver doc is being stubborn. thanks , 5	5-1-18	36	1634	Aug 25, 2019 by 5-1-18
	Five Years (Preview) Just got my yearly blood tests back. Still undetectable five years and counting. i feel pretty good.	Scruffy	23	1370	Aug 19, 2019 by 5-1-18
	Fibroscan results (Preview) I had my 1st post tx fibroscan yesterday since EOT. My only other fibroscan was done about 2 1/2 years ago when I found out I was cirrhotic F4 with a score of 18.8. Yesterdays score was 8.8 - F2. EOT was Oct 28th 2015. I've been in a daze since I found out...a very happy daze. My Dr said that I will always be cons...	Jaded	44	6747	Jul 5, 2019 by Iris Dragonfly
	Alcohol Use After SVR (Preview) I saw this article after our member Lamassu posted a link in the Vosevi thread. It’s always good to share these professional opinions when we find them. Thanks, Lam! Alcohol after the Cure	Tig	4	1365	Jul 1, 2019 by Observer
	Anniversary (Preview) Hey all... One year ago tonight I got the phone call with the hep c diagnosis... Wife and I sat on the couch for a long time waiting for the call, and then a long time after trying to figure it all out.. After my twelve weeks of epclusa, I've pretty much kicked that dust off my shoes, and I don't think about it a...	upstate	15	3657	May 30, 2019 by upstate
	AFP MARKER question (Preview) hi everyone. I was wondering if the AFP tumor marker we get every 6 months can find all tumors, or just in the liver? just wondering	5-1-18	15	1575	May 24, 2019 by Canuck
	Update, 44 month post (Preview) Hi All, just an update, saw my liverdoc this week: bloodwork is all good, see signature. And the US is also fine, no this and no that, just a little diffuse echogenicity. OK. Doc said, with joy, that Hep C is a dying trade now. Do you get this psycho-flares with reports? I go to a imaging clinic for ultraso...	movebo	11	1615	May 21, 2019 by Cheddy
	svr (Preview) Hey there, my final blood work cleared me of the virus. Good news i guess. I really don't feel any different than i did before. Seems all the little things i complained about while doing treatment have disappeared. I wouldn't say i have a lot more energy, however i did quit smoking last yr and so its hard t...	woodytwoshoes	10	1793	Mar 13, 2019 by Iris Dragonfly
	New Cures, Incredible!! (Preview) I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...	news	6	1878	Feb 10, 2019 by mallani
	Epclusa ad (Preview) I wonder every single time about what they say during the ad. "I had the Normal one" "I didnt'" "I had liver problems" etc. what in the world does this mean? I had hep C for over 40 years and the only "type" they told me I had was 1a.	Karyl	2	1566	Feb 6, 2019 by Tig
	Update - five plus years UND and going strong. (Preview) Hi everyone, its nice to see the forum still thriving. It certainly was a source of strength for me, and even though a cure for Hep C is now everywhere, I think anyone going through treatment and its aftermath could use the loving support here. I am doing well. I still get a screening every six months,...	Millercollaborative	5	1620	Jan 16, 2019 by sailing shoes
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