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STICKY:
Post Tx aches and pains
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1 2 3
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(Preview)
Hi all, Since EOT, I developed some new joint and muscle pains, particularly in the knees, wrists and hands. I dismissed it as being age related and due to my 48 weeks of inactivity. As it didn't improve and I was overseas, I emailed my doc, who gave me a list of blood tests to have when I returned to Austr...
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mallani
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108
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25542
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STICKY:
Harvoni sides and beyond
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1 2
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(Preview)
Salutations! I thought I'd better jot down my complete list of side effects before I forget exactly what went on. I'm going to list them as the most severe first and then with notations as to duration or how I dealt with it. I suppose I'll also dedicate this thread to the healing effects experienced sinc...
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Iris Dragonfly
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53
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2511
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STICKY:
Recovery from "Harvoni" Q & A's Lets figure it out !
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Lets figure this out. With many of our members dealing with questions and concerns about how they feel after the end of treatment it would make sense for us to address this issue by means of either poling our members or having a deep examination of the common complaints that all patients/members of th...
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Matt Chris
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146
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33367
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STICKY:
Post Treatment Issues
(Preview)
The subject of of long term side effects after treatment has recently been raised by many people and really does need to be addressed. According to some recent studies, this is more widespread than we have been led to believe. One of the main issues is that the choice to do treatment should be based on &q...
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greenqueen
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14
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18181
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Who knew? (and Christmas check in)
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Happy everything to all here. I hope the season finds you well, or on your way to being so. Sorry to have been absent so long, but there is never a shortage of people with HCV. I'm at year 2 of Cured By Epclusa, but found out the hard way that there are even more hepatitises than the standard "Alphabet Heps"...
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LamontCranston
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12
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276
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Clinical Trial Graduate! 2020
(Preview)
Been busy the past couple years with RCs continued post TP recovery and added into the mix our aging parents. But I did complete my commitment to the M14-222 Abbvie -5 year clinical trial follow which was January 2020! My last labs were good ALT 32 AST 31 and my ultrasound Elastography test was 2.58...
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RAGDOLL
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3
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89
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Be careful using Crestor post DAA treatment
(Preview)
My cardiologist had wanted me on Crestor but it was contraindicated during treatment with Epclusa. After completing treatment and enough time had passed for the sofosbuvir and velpatasvir to be metabolized completely I asked my hepatologist if taking Crestor was OK to which he said yes. Within a f...
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lamassu
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16
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2302
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Merry Christmas 2019
(Preview)
MERRY CHRISTMAS!! Hello and Happy Holidays to all of you. I’m amazed that another year has gone by already. I’m also amazed and happy to report that this past year has brought continued success for so many HCV Warriors, here and around the globe. SVR is a real and very achievable with these excellent tr...
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Tig
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4
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92
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Variable Fibroscan results?
(Preview)
Hi all, I wonder if anyone can comment on this. I received a fibroscan score of 14.2 back in 2015 prior to SVR. I then had a further scan with a score of 9.2 in 2017 post SVR Today I had another scan with a score of 11.2. What gives is this normal? I haven't had any further bloods since 18mth SVR Tony
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Midnight
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8
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843
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Hep b reactivation
(Preview)
Has anyone had hep b reactivation after hep c treatment. I was treated in 2015 and at that time reactivation wasnt a warning. Its been 4 years. My doctor says when I was treated my hep b was negative but I read the warning differently. Could I have reactivated and not know!
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Bestmomy
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3
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200
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CHEDDY BEAT THE DRAGON!!!!!!!!!!!
(Preview)
Greetings my friends. It's official. I HAVE REACHED SVR 12!!!!!!!! Whew! It's just not real until you get those labs. I just lost about a hundred emotional pounds. 3 months ago, I told my hepatologist that I was afraid to plan anything because I wasn't sure I could count on anything but fatigue....
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Cheddy
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43
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1580
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Hepatomegaly - drat, what's up with this???
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1 2
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(Preview)
Hello Everyone -- I stopped posting here around first of year and felt great that I was HepC free!!! Unfortunately, now my ctscan this week shows that my liver is enlarged and was given Hepatomegaly diagnosis? The ctscan was for kidney cysts, which were found when I went through testing before Harvo...
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polosilver
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65
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1038
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Qualitative vs Quantitative
(Preview)
hi everyone, my doc insists on the qual after using the quant over the past year and half. does anyone have input on this? i can always go to my family doctor since the liver doc is being stubborn. thanks , 5
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5-1-18
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36
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548
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Five Years
(Preview)
Just got my yearly blood tests back. Still undetectable five years and counting. i feel pretty good.
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Scruffy
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23
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447
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Fibroscan results
(Preview)
I had my 1st post tx fibroscan yesterday since EOT. My only other fibroscan was done about 2 1/2 years ago when I found out I was cirrhotic F4 with a score of 18.8. Yesterdays score was 8.8 - F2. EOT was Oct 28th 2015. I've been in a daze since I found out...a very happy daze. My Dr said that I will always be cons...
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Jaded
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44
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5131
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Alcohol Use After SVR
(Preview)
I saw this article after our member Lamassu posted a link in the Vosevi thread. It’s always good to share these professional opinions when we find them. Thanks, Lam! Alcohol after the Cure
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Tig
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4
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347
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Anniversary
(Preview)
Hey all... One year ago tonight I got the phone call with the hep c diagnosis... Wife and I sat on the couch for a long time waiting for the call, and then a long time after trying to figure it all out.. After my twelve weeks of epclusa, I've pretty much kicked that dust off my shoes, and I don't think about it a...
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upstate
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15
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2535
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AFP MARKER question
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hi everyone. I was wondering if the AFP tumor marker we get every 6 months can find all tumors, or just in the liver? just wondering 
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5-1-18
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15
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515
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Update, 44 month post
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Hi All, just an update, saw my liverdoc this week: bloodwork is all good, see signature. And the US is also fine, no this and no that, just a little diffuse echogenicity. OK. Doc said, with joy, that Hep C is a dying trade now. Do you get this psycho-flares with reports? I go to a imaging clinic for ultraso...
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movebo
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11
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428
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svr
(Preview)
Hey there, my final blood work cleared me of the virus. Good news i guess. I really don't feel any different than i did before. Seems all the little things i complained about while doing treatment have disappeared. I wouldn't say i have a lot more energy, however i did quit smoking last yr and so its hard t...
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woodytwoshoes
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10
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615
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New Cures, Incredible!!
(Preview)
I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...
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news
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6
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836
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Epclusa ad
(Preview)
I wonder every single time about what they say during the ad. "I had the Normal one" "I didnt'" "I had liver problems" etc. what in the world does this mean? I had hep C for over 40 years and the only "type" they told me I had was 1a.
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Karyl
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2
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532
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Update - five plus years UND and going strong.
(Preview)
Hi everyone, its nice to see the forum still thriving. It certainly was a source of strength for me, and even though a cure for Hep C is now everywhere, I think anyone going through treatment and its aftermath could use the loving support here. I am doing well. I still get a screening every six months,...
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Millercollaborative
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5
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564
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New Cures, Incredible!!
(Preview)
I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...
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news
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0
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620
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pain under ribs on the right
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1 2
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(Preview)
Yesterday when I was driving back from Sac. I started getting a dull ache in the area under my right rib cage. When I got to moms (about half way home) It was real sore and I was so tired. I put on a heating pad thinking it was muscle related. But it didn't help much. When I sit real still it's fine. If I try to mov...
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Iris Dragonfly
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67
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2239
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My dr released me!
(Preview)
My most recent labs were again perfect in every aspect. My dr said "you are CURED!" and told me no need to go back. She said no need for most tests for SVR proof and I was good to go on anything. Except tattoos and piecrings. She said don't put yourself at risk for getting it again. From what others say,...
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Karyl
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7
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730
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Resuming supplements after EOT
(Preview)
My EOT date was October 18, my 12 week SVR blood draw will be January 2. I would really love to resume taking supplements, especially ALA-ALCAR (acetyl l-carnitine plus alpha lipoic acid acid) for chronic fatigue, and S-adenosyl-L-methionine (SAMe) for joint pain and depression. What did your d...
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Hoodietree
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14
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775
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VIRAL ARTHRITIS
(Preview)
My bad arthritis didn't bother me at all during treatment, but for the past week I'm hurting all over. How long does it take to it to go away after the virus is gone? Or is this something else?
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Karyl
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1
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701
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Post Epclusa problems
(Preview)
Hi all, i have been off Epclusa for 6 weeks and am experiencing some not so nice problems. I have developed bursitis in both shoulders, my arthritis is worse, achy muscles, tiredness and lack of energy and now have alergies i never had before. I have never been bothered with allergies before taking tre...
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woodytwoshoes
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10
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1262
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Checking in
(Preview)
Hi guys. Long time since I posted. Now 5 years post SVR and virus free. LFT's are normal. Still have followup Ultrasounds every 9 months. All good- no HCC, and my cirrhosis is becoming hard to see. Apart from a major heart attack just over a year ago, no complaints. I've recovered well, stopped smoking a...
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mallani
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12
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1050
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