Hep C Discussion Forum

JLynch30 · JLynch30

I am hearing conflicting reports about svr and the increase of HCC. Can someone give me some stats/thoughts or news on HCC post svr? I have been SVR for almost 2 years - but i do have cirrhosis. Hope everyone is well!

hrsetrdr · hrsetrdr

Today a nurse called on behalf of the NP that is handling my Hep C case; she reports that the recent ultrasound showed no change, just some suspected "mild cirrhosis". I pressed her to define "mild cirrhosis" in real medical terms,asking her if that was like stage 1 cir...

Esrun13 · Esrun13

Has anyone developed CIU (chronic Idiopathic Uticaria) post Harvoni tx? Finished Harvoni 8weeks tx in May 2016. January 2017 severe hives (daily), itching (daily), angioedema (x2) Currently taking 360mg of Allegra twice a day plus Zantac, (prednisone 40mg -Dr took me off, replaced with Zanta...

C-Kat 1969 · C-Kat 1969

C-Kat 1969 underwent the old Interferon treatment for a year ('03 -'04) and it was apparently successful despite although it having been physically rough. I appreciate Jimmy K's remarks regarding the changes that have improved the quality of treatment in the last few years. My only regret is the s...

JLynch30 · JLynch30

Any treatment for cirrhosis on the horizon after successful treatment? Is anyone getting reversable scarring results?

hepcbybirth · hepcbybirth

Hello there I am a 27 year old female. At 19 I found out I had contracted Hep C from my mom. I did pegasus treatment and since then have tested negative for a viral load. However I still test positive for the antibody. Can I still transmit the disease to others? I am concerned that my 9 month old daughter and m...

Lawmatt · Lawmatt

i have a question for all if i may i am 7 months out of treatment and cured SVR and stoked , These are the thing i struggle with day to day Linering depression i mean like once a week major breakdown and exausted i am on treatment and talking with the relavent people side of quad muscles top of legs always so...

Slavik777 · Slavik777

Hi, I have started Harvoni treatment on 05/2016 finished 08/2016 Had 12 week treatment plan. While I was on treatment I have had severe brain fog, just couldn't think at all. Severe fatigue bedridden. And extreme light sensitivity all the time. I started of with low viral count, all organs wer...

lonewolf · lonewolf

Well its been two years post treatment and the VA ran another test. Still undetected and The ALT And AST are both very low. 20 and 31. I guess I got lucky. I know I had the Hep C 1A about 30 years and no real liver damage and Undetected since the first test. Sure sounds cured to me!. Good stuff Viekira Pak. Good...

julia1065 · julia1065

Hi there it's been a long time since I've been on this board and sorry that I haven't been keeping up :( Anyhow I was one of the "lucky" ones to get Harvoni when the FDA first approved it 10/15. The Dr put me on 6 months of treatment becuz I was a former non responder. Went thru treatment no side affects I was...

singsong · singsong

I finished my 8 weeks of Harvoni on June 13 and tested UND at end of treatment. I take my SVR test after Labor Day. I was telling Gojuman (Mike) that taking Harvoni every day was like a security blanket. I had no side effects, whatsoever, so when my 8 weeks was up - I wished I had 12-just to keep on putting up...

movebo · movebo

Hi All, long time no post, I am rather busy at work again, after a nice cruise down the coast of Norway, which messed up my BMI targets pretty good (it is 28 again). But I still read the forum a lot. Just got my EOT+43 weeks stuff: HCV PCR: TND (<15), ALT 17, AST 19, GGT 22, AFP 4, and the ultrasound reports...

JimmyK · JimmyK

Greetings, It is my hopes that the following information will encourage folks to seek treatment. Fact is, it works. Yesterday Carol and I had a follow up visit with Dr Sussman. We were both scheduled for tests to be performed. Mine of course have yet to be drawn as doing so is somewhat of an adventure. Th...

bassetgirl · bassetgirl

I treated with Sovaldi Olysio succesfully and have had SVR for about 3 years. Last month I developed Bells Palsy and was given a course of Prednisone tapering from 60mg to 5mg over a period of 10 days. My doctors OK'd this, but now I'm wondering if there's any research on Prednisone and Hep C relapse ...

Lchris1 · Lchris1

Thought I'd update you all. First want to thank everyone for their knowledge, experiences, and support for one another. While I don't post often, I continually glean much from you all. As of last night, finished 24 weeks of "unconventional ?" treatment. UND by 6wks & 14wks. After 1 or 2 wks, I incr...

RAGDOLL · RAGDOLL

A little late in posting, but I did achieve 2 years SVR in January 2017. I am on the Abbvie 5 year follow up plan with Viekira Pak. ALT 42 (range less than 55) and AST 32 (range 5-34) according to their lab. So all good there. However, my Cholesterol is still dancing around like the stock market, in Janua...

humbled · humbled

Hi Everyone, I finished my 12 weeks of Harvoni on December 9th, and just got the news today - UNDETECTED! I have to repeat the test in 3 months, but this is such great news to get before Christmas and the New Year!Thank you to all of you for being my bedrock of support during this terrible year - I couldn't h...

Re-Buy · Re-Buy

It's a done deal. No virus detected. My platelets are 132 . That is a great improvement for me. I am considering putting out an amber alert as we can't seem to find that cancerous tumour of mine.

MzmiffY · MzmiffY

Hello friends, i have been lurking a little over the last few weeks and decided it was time to officially pop my head in. It's been a couple of years since Tx. To be honest I am absolutely rubbish with dates, but I think I am almost 3 yrs post. It took a good year before I started to feel like myself again but in...

Millercollaborative · Millercollaborative

Hi, haven't posted for a while but I still like to read all the success stories! I achieved SVR back in 2013 after a Bristol Myers clinical trial. I'm 72 now, and have a cirrhotic liver. My blood tests have been great and I feel very well, do a lot of exercising and get an ultrasound every six months. So...

Paul B · Paul B

Well not quite.. a couple of months short but close enough. Guess it's all over now.And since i was undetected at week 4 of the 12 month tx... that is nearly 3 years virus free!! Yay me. So got some results and ALT is 28 & AST 37. Does this still indicate cirrhosis with the AST being higher??? Plus my AF...

freesoul · freesoul

I'm very sorry to start my own thread- I am feeling kind of anxious which if you remember me, tends to be an issue with me. Lol. I'll read some relevant threads later when I have some time and energy...for now, if someone could help me with a quick answer? I am now about a little over six months post treatme...

Shadowfax · Shadowfax

Nothing more really but I just wanted to post that today is the anniversary of swallowing my first Harvoni Pill. I do recall that day as if it was yesterday. One year later, a few nervous scares and incidents and still UND as of Dec and I am quite sure now as well. I owe so much to the people on this forum and t...

Tiger · Tiger

ALT 20 ALP 71 T.Bilirubin 9 GGT 31 Albumin 45 AFP 5 hep c UNDETECTED !!!!!!!!!!!!! im a different person now -- Edited by Tiger on Saturday 4th of February 2017 03:06:39 PM

LadyAlaise · LadyAlaise

4 years, 1 month, 30 days since I ENDED my hellish ride and quest to kill the Dragon and thus far it's still down for the count! :D (Nov 17, 2012) Just checking in with you all! I gained a ton of weight lol and now have Fibro (ugh) but! Lindsay and I FINALLY got married; when we picked our wedding date it then oc...

MechanicMike · MechanicMike

Hi all, Thought I'd drop in to say hi... Just got my one-year SVR (Woot!) and things are going pretty well. Riba symptoms are gone and, overall, I'm feeling pretty darn good Kind of a bummer that brain fog and aches and pains can't be blamed on it any more though--now it's strictly old age lol. Starte...

Trudylookinglass · Trudylookinglass

Hello all i am approx 20 weeks post treatment. at my 12 week visit, I was RCV negative; the news in itself was miracle-like. unfortunately, I have never felt as unhealthy as I do now. apart from general fatigue, lack of appetite, arthralgia & interrupted sleep, I have developed an autoimmune cond...

Sydhanrahan · Sydhanrahan

Hi Everyone, Hi All, firstly just want to say that i am so grateful for all the support, guidance, knowledge and comfort you so generously showered me with during this journey. i feel guilty that I havent continued to return all you have given me to others. I guess, its just part of my emotional recovery...

Loopy Lisa · Loopy Lisa

Hello people, I had a bit of a palava with bloods and results, first my results weren't in by my appointment, then they lost them in transit, took them again and had to get them by voicemail as I was away on my holiday. Anyway, a long story long, I'm cured...... I really thought I'd failed as I had some pains...

Bywater Babe · Bywater Babe

Merry Christmas To Everyone! This is my first time actually posting on this forum, although I have been checking it out sometimes. I am a 41 year old woman who was first diagnosed approximately 8 years ago but I had no symptoms and no idea. Had surgery to fix a broken nose and woke up to "Hello ther...

Topic		Started By	Replies	Views	Last Post
	Post Treatment SVR HCC rates? (Preview) I am hearing conflicting reports about svr and the increase of HCC. Can someone give me some stats/thoughts or news on HCC post svr? I have been SVR for almost 2 years - but i do have cirrhosis. Hope everyone is well!	JLynch30	16	4695	Jul 15, 2017 by Tig
	"Mild cirrhosis"...? (Preview) Today a nurse called on behalf of the NP that is handling my Hep C case; she reports that the recent ultrasound showed no change, just some suspected "mild cirrhosis". I pressed her to define "mild cirrhosis" in real medical terms,asking her if that was like stage 1 cir...	hrsetrdr	30	7077	Jul 10, 2017 by LamontCranston
	CIU (chronic idiopathic utacaria)-Post Harvoni treatment (Preview) Has anyone developed CIU (chronic Idiopathic Uticaria) post Harvoni tx? Finished Harvoni 8weeks tx in May 2016. January 2017 severe hives (daily), itching (daily), angioedema (x2) Currently taking 360mg of Allegra twice a day plus Zantac, (prednisone 40mg -Dr took me off, replaced with Zanta...	Esrun13	2	2002	Jun 28, 2017 by Tig
	Autoimmune Disorder secondary to Interferon Treatment (Preview) C-Kat 1969 underwent the old Interferon treatment for a year ('03 -'04) and it was apparently successful despite although it having been physically rough. I appreciate Jimmy K's remarks regarding the changes that have improved the quality of treatment in the last few years. My only regret is the s...	C-Kat 1969	2	1620	Jun 22, 2017 by Tig
	Cirrhosis (Preview) Any treatment for cirrhosis on the horizon after successful treatment? Is anyone getting reversable scarring results?	JLynch30	3	1750	Jun 14, 2017 by mallani
	Transmission (Preview) Hello there I am a 27 year old female. At 19 I found out I had contracted Hep C from my mom. I did pegasus treatment and since then have tested negative for a viral load. However I still test positive for the antibody. Can I still transmit the disease to others? I am concerned that my 9 month old daughter and m...	hepcbybirth	2	1827	Jun 13, 2017 by JimmyK
	Lingering Depression ( 1 2 ) (Preview) i have a question for all if i may i am 7 months out of treatment and cured SVR and stoked , These are the thing i struggle with day to day Linering depression i mean like once a week major breakdown and exausted i am on treatment and talking with the relavent people side of quad muscles top of legs always so...	Lawmatt	66	11034	May 24, 2017 by Canuck
	7 Months post Harvoni treatment problems, please Help. (Preview) Hi, I have started Harvoni treatment on 05/2016 finished 08/2016 Had 12 week treatment plan. While I was on treatment I have had severe brain fog, just couldn't think at all. Severe fatigue bedridden. And extreme light sensitivity all the time. I started of with low viral count, all organs wer...	Slavik777	23	4959	May 16, 2017 by Slavik777
	Two years after Viekira Pak-Undectected (Preview) Well its been two years post treatment and the VA ran another test. Still undetected and The ALT And AST are both very low. 20 and 31. I guess I got lucky. I know I had the Hep C 1A about 30 years and no real liver damage and Undetected since the first test. Sure sounds cured to me!. Good stuff Viekira Pak. Good...	lonewolf	9	2288	May 14, 2017 by Tig
	Did Harvoni cause my medical conditions (Preview) Hi there it's been a long time since I've been on this board and sorry that I haven't been keeping up :( Anyhow I was one of the "lucky" ones to get Harvoni when the FDA first approved it 10/15. The Dr put me on 6 months of treatment becuz I was a former non responder. Went thru treatment no side affects I was...	julia1065	13	2572	May 12, 2017 by Canuck
	Harvoni-My Security Blanket (Preview) I finished my 8 weeks of Harvoni on June 13 and tested UND at end of treatment. I take my SVR test after Labor Day. I was telling Gojuman (Mike) that taking Harvoni every day was like a security blanket. I had no side effects, whatsoever, so when my 8 weeks was up - I wished I had 12-just to keep on putting up...	singsong	47	4650	May 11, 2017 by singsong
	Things are looking pretty good (Preview) Hi All, long time no post, I am rather busy at work again, after a nice cruise down the coast of Norway, which messed up my BMI targets pretty good (it is 28 again). But I still read the forum a lot. Just got my EOT+43 weeks stuff: HCV PCR: TND (<15), ALT 17, AST 19, GGT 22, AFP 4, and the ultrasound reports...	movebo	8	1819	May 10, 2017 by Tig
	Update On Carolyn (Preview) Greetings, It is my hopes that the following information will encourage folks to seek treatment. Fact is, it works. Yesterday Carol and I had a follow up visit with Dr Sussman. We were both scheduled for tests to be performed. Mine of course have yet to be drawn as doing so is somewhat of an adventure. Th...	JimmyK	10	1509	May 2, 2017 by Scruffy
	Is Prednisone Safe after SVR? (Preview) I treated with Sovaldi Olysio succesfully and have had SVR for about 3 years. Last month I developed Bells Palsy and was given a course of Prednisone tapering from 60mg to 5mg over a period of 10 days. My doctors OK'd this, but now I'm wondering if there's any research on Prednisone and Hep C relapse ...	bassetgirl	4	1107	Apr 19, 2017 by Canuck
	Wait and see.. (Preview) Thought I'd update you all. First want to thank everyone for their knowledge, experiences, and support for one another. While I don't post often, I continually glean much from you all. As of last night, finished 24 weeks of "unconventional ?" treatment. UND by 6wks & 14wks. After 1 or 2 wks, I incr...	Lchris1	9	2093	Apr 17, 2017 by Canuck
	SVR 2 Years (Preview) A little late in posting, but I did achieve 2 years SVR in January 2017. I am on the Abbvie 5 year follow up plan with Viekira Pak. ALT 42 (range less than 55) and AST 32 (range 5-34) according to their lab. So all good there. However, my Cholesterol is still dancing around like the stock market, in Janua...	RAGDOLL	3	1200	Apr 13, 2017 by Canuck
	UNDETECTED! (Preview) Hi Everyone, I finished my 12 weeks of Harvoni on December 9th, and just got the news today - UNDETECTED! I have to repeat the test in 3 months, but this is such great news to get before Christmas and the New Year!Thank you to all of you for being my bedrock of support during this terrible year - I couldn't h...	humbled	15	2265	Apr 8, 2017 by humbled
	EOT + 12 weeks (Preview) It's a done deal. No virus detected. My platelets are 132 . That is a great improvement for me. I am considering putting out an amber alert as we can't seem to find that cancerous tumour of mine.	Re-Buy	7	1712	Apr 5, 2017 by Canuck
	It's been a while! (Preview) Hello friends, i have been lurking a little over the last few weeks and decided it was time to officially pop my head in. It's been a couple of years since Tx. To be honest I am absolutely rubbish with dates, but I think I am almost 3 yrs post. It took a good year before I started to feel like myself again but in...	MzmiffY	3	945	Mar 14, 2017 by MzmiffY
	What are folks' long term plans post-treatment? (Preview) Hi, haven't posted for a while but I still like to read all the success stories! I achieved SVR back in 2013 after a Bristol Myers clinical trial. I'm 72 now, and have a cirrhotic liver. My blood tests have been great and I feel very well, do a lot of exercising and get an ultrasound every six months. So...	Millercollaborative	8	1686	Mar 12, 2017 by Canuck
	2 year SVR (Preview) Well not quite.. a couple of months short but close enough. Guess it's all over now.And since i was undetected at week 4 of the 12 month tx... that is nearly 3 years virus free!! Yay me. So got some results and ALT is 28 & AST 37. Does this still indicate cirrhosis with the AST being higher??? Plus my AF...	Paul B	1	922	Feb 15, 2017 by Tig
	After treatment issues? (Preview) I'm very sorry to start my own thread- I am feeling kind of anxious which if you remember me, tends to be an issue with me. Lol. I'll read some relevant threads later when I have some time and energy...for now, if someone could help me with a quick answer? I am now about a little over six months post treatme...	freesoul	9	1241	Feb 12, 2017 by Tig
	SOT + 1 Year (Preview) Nothing more really but I just wanted to post that today is the anniversary of swallowing my first Harvoni Pill. I do recall that day as if it was yesterday. One year later, a few nervous scares and incidents and still UND as of Dec and I am quite sure now as well. I owe so much to the people on this forum and t...	Shadowfax	9	1223	Feb 11, 2017 by Tig
	Hello post three month treatment results feeling very lucky (Preview) ALT 20 ALP 71 T.Bilirubin 9 GGT 31 Albumin 45 AFP 5 hep c UNDETECTED !!!!!!!!!!!!! im a different person now -- Edited by Tiger on Saturday 4th of February 2017 03:06:39 PM	Tiger	4	974	Feb 5, 2017 by Tiger
	SVR (UND) 1521 days!!! Check in (Preview) 4 years, 1 month, 30 days since I ENDED my hellish ride and quest to kill the Dragon and thus far it's still down for the count! :D (Nov 17, 2012) Just checking in with you all! I gained a ton of weight lol and now have Fibro (ugh) but! Lindsay and I FINALLY got married; when we picked our wedding date it then oc...	LadyAlaise	4	1097	Jan 18, 2017 by JIme
	Still kickin' one year later (Preview) Hi all, Thought I'd drop in to say hi... Just got my one-year SVR (Woot!) and things are going pretty well. Riba symptoms are gone and, overall, I'm feeling pretty darn good Kind of a bummer that brain fog and aches and pains can't be blamed on it any more though--now it's strictly old age lol. Starte...	MechanicMike	8	1054	Jan 17, 2017 by Tig
	Oral Lichen planus (Preview) Hello all i am approx 20 weeks post treatment. at my 12 week visit, I was RCV negative; the news in itself was miracle-like. unfortunately, I have never felt as unhealthy as I do now. apart from general fatigue, lack of appetite, arthralgia & interrupted sleep, I have developed an autoimmune cond...	Trudylookinglass	14	2093	Jan 14, 2017 by Trudylookinglass
	one year on (Preview) Hi Everyone, Hi All, firstly just want to say that i am so grateful for all the support, guidance, knowledge and comfort you so generously showered me with during this journey. i feel guilty that I havent continued to return all you have given me to others. I guess, its just part of my emotional recovery...	Sydhanrahan	12	1332	Jan 14, 2017 by Loopy Lisa
	Another dragon bites the dust (Preview) Hello people, I had a bit of a palava with bloods and results, first my results weren't in by my appointment, then they lost them in transit, took them again and had to get them by voicemail as I was away on my holiday. Anyway, a long story long, I'm cured...... I really thought I'd failed as I had some pains...	Loopy Lisa	17	1275	Jan 14, 2017 by Loopy Lisa
	6 MONTHS POST-HARVONI TREATMENT (MAJOR FATIGUE, MUSCLE SORENESS, BRAIN FOG, etc.) (Preview) Merry Christmas To Everyone! This is my first time actually posting on this forum, although I have been checking it out sometimes. I am a 41 year old woman who was first diagnosed approximately 8 years ago but I had no symptoms and no idea. Had surgery to fix a broken nose and woke up to "Hello ther...	Bywater Babe	8	2252	Jan 10, 2017 by Tig
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