Hep C Discussion Forum

JimmyK · JimmyK

Greetings, It is my hopes that the following information will encourage folks to seek treatment. Fact is, it works. Yesterday Carol and I had a follow up visit with Dr Sussman. We were both scheduled for tests to be performed. Mine of course have yet to be drawn as doing so is somewhat of an adventure. Th...

bassetgirl · bassetgirl

I treated with Sovaldi Olysio succesfully and have had SVR for about 3 years. Last month I developed Bells Palsy and was given a course of Prednisone tapering from 60mg to 5mg over a period of 10 days. My doctors OK'd this, but now I'm wondering if there's any research on Prednisone and Hep C relapse ...

Lchris1 · Lchris1

Thought I'd update you all. First want to thank everyone for their knowledge, experiences, and support for one another. While I don't post often, I continually glean much from you all. As of last night, finished 24 weeks of "unconventional ?" treatment. UND by 6wks & 14wks. After 1 or 2 wks, I incr...

RAGDOLL · RAGDOLL

A little late in posting, but I did achieve 2 years SVR in January 2017. I am on the Abbvie 5 year follow up plan with Viekira Pak. ALT 42 (range less than 55) and AST 32 (range 5-34) according to their lab. So all good there. However, my Cholesterol is still dancing around like the stock market, in Janua...

humbled · humbled

Hi Everyone, I finished my 12 weeks of Harvoni on December 9th, and just got the news today - UNDETECTED! I have to repeat the test in 3 months, but this is such great news to get before Christmas and the New Year!Thank you to all of you for being my bedrock of support during this terrible year - I couldn't h...

Re-Buy · Re-Buy

It's a done deal. No virus detected. My platelets are 132 . That is a great improvement for me. I am considering putting out an amber alert as we can't seem to find that cancerous tumour of mine.

MzmiffY · MzmiffY

Hello friends, i have been lurking a little over the last few weeks and decided it was time to officially pop my head in. It's been a couple of years since Tx. To be honest I am absolutely rubbish with dates, but I think I am almost 3 yrs post. It took a good year before I started to feel like myself again but in...

Millercollaborative · Millercollaborative

Hi, haven't posted for a while but I still like to read all the success stories! I achieved SVR back in 2013 after a Bristol Myers clinical trial. I'm 72 now, and have a cirrhotic liver. My blood tests have been great and I feel very well, do a lot of exercising and get an ultrasound every six months. So...

Paul B · Paul B

Well not quite.. a couple of months short but close enough. Guess it's all over now.And since i was undetected at week 4 of the 12 month tx... that is nearly 3 years virus free!! Yay me. So got some results and ALT is 28 & AST 37. Does this still indicate cirrhosis with the AST being higher??? Plus my AF...

freesoul · freesoul

I'm very sorry to start my own thread- I am feeling kind of anxious which if you remember me, tends to be an issue with me. Lol. I'll read some relevant threads later when I have some time and energy...for now, if someone could help me with a quick answer? I am now about a little over six months post treatme...

Shadowfax · Shadowfax

Nothing more really but I just wanted to post that today is the anniversary of swallowing my first Harvoni Pill. I do recall that day as if it was yesterday. One year later, a few nervous scares and incidents and still UND as of Dec and I am quite sure now as well. I owe so much to the people on this forum and t...

Tiger · Tiger

ALT 20 ALP 71 T.Bilirubin 9 GGT 31 Albumin 45 AFP 5 hep c UNDETECTED !!!!!!!!!!!!! im a different person now -- Edited by Tiger on Saturday 4th of February 2017 03:06:39 PM

LadyAlaise · LadyAlaise

4 years, 1 month, 30 days since I ENDED my hellish ride and quest to kill the Dragon and thus far it's still down for the count! :D (Nov 17, 2012) Just checking in with you all! I gained a ton of weight lol and now have Fibro (ugh) but! Lindsay and I FINALLY got married; when we picked our wedding date it then oc...

MechanicMike · MechanicMike

Hi all, Thought I'd drop in to say hi... Just got my one-year SVR (Woot!) and things are going pretty well. Riba symptoms are gone and, overall, I'm feeling pretty darn good Kind of a bummer that brain fog and aches and pains can't be blamed on it any more though--now it's strictly old age lol. Starte...

Trudylookinglass · Trudylookinglass

Hello all i am approx 20 weeks post treatment. at my 12 week visit, I was RCV negative; the news in itself was miracle-like. unfortunately, I have never felt as unhealthy as I do now. apart from general fatigue, lack of appetite, arthralgia & interrupted sleep, I have developed an autoimmune cond...

Sydhanrahan · Sydhanrahan

Hi Everyone, Hi All, firstly just want to say that i am so grateful for all the support, guidance, knowledge and comfort you so generously showered me with during this journey. i feel guilty that I havent continued to return all you have given me to others. I guess, its just part of my emotional recovery...

Loopy Lisa · Loopy Lisa

Hello people, I had a bit of a palava with bloods and results, first my results weren't in by my appointment, then they lost them in transit, took them again and had to get them by voicemail as I was away on my holiday. Anyway, a long story long, I'm cured...... I really thought I'd failed as I had some pains...

Bywater Babe · Bywater Babe

Merry Christmas To Everyone! This is my first time actually posting on this forum, although I have been checking it out sometimes. I am a 41 year old woman who was first diagnosed approximately 8 years ago but I had no symptoms and no idea. Had surgery to fix a broken nose and woke up to "Hello ther...

JLynch30 · JLynch30

Hello my old friends - I am still negative after Harvoni. My alt and ast have been rising a little, but at still within range (alt 51 ast 35) . Bilirubin normal. What is the most telling test for the liver? I forget...... been a while. I hope everyone is fine

2willy · 2willy

Well another year gone by and still going strong.... damn it took this long to get back after that 48 week ride , my girls are13 know and former spouce is still former spouce... still living on the farm and enjoying life.... hope all are doing good and living a good life Hep C free... on a sadder note a form...

Bebsy · Bebsy

Hi all, i just recieved an email with my eot+4 results which came back UNDETECTED must admit i was scared to open it and wallowed in aphrehension for a wee while... great result although i got my liver panel back in the week which gave me a good indication on todays news as alt and ast had dropped a few more n...

Pablito · Pablito

There are so many people getting SVR these days I thought I'd start a thread on fibrosis improvement. It's a shame there is so little research on recovery post SVR compared to the number treatment studies in existence. I suspect more research will be done around this in the coming years. The 2 studie...

Mica · Mica

Hello All, I used to be on a forum with a lot of you 9 years ago. You all answered so many questions and were so reassuring... LaurieBluesGuy, Minerva, Miss Poppy, JasonPaulTomie, MadameYuSee, John_boy, Chrissy .... And many others! I was so excited to see a lot of you were here. Thank you for those wor...

Winfrey50 · Winfrey50

Hey Friends, Way back in the winter of early 2016, thousand years ago, my sweet girlfriend talked me into stopping my nonsense, putting down the booze, going to the doctor, and looking into treatment for the hep C I'd been ignoring for years. Somehow I ended up with the best Hepatologist in Chicago....

LC · LC

I hope everyone is doing well and has a great Christmas, and HVC free New Year! I have been feeling pretty good since completing the Abbvie trial. Hating this cold snap though, brrrr! I think I go in for my labs for one year post treatment soon. That trial and this forum were both a such a blessing in a very d...

Observer · Observer

well, 1 year post treatment, blood showed a couple of abnormalities so had a cat scan and unfortunately I have a tumour on my liver, the Drs want to do ablation therapy next week and microwave the little bugger. but....... My PTT is also slightly elevated and I now have a bruise the length and thickness...

Katya · Katya

Hello to all guys! All my American friends with thanksgiving )) All forum users wish a recovery with minimal side effects. My family doctor said that in all of medical history duringa year It will mark hepatitis C But I was no longer obliged to inform other doctors that I had hepatitis C It is only in...

Cheddy · Cheddy

Greetings my friends. It's official. I HAVE REACHED SVR 12!!!!!!!! Whew! It's just not real until you get those labs. I just lost about a hundred emotional pounds. 3 months ago, I told my hepatologist that I was afraid to plan anything because I wasn't sure I could count on anything but fatigue....

JimmyK · JimmyK

... I got a call. I thanked them very much and went on about my business. I got to thinking it had been some time since I bought her something new to wear. (That of course does not count the endless $$$ spent on cruise attire.) That would have to be another post entirely. No, in this case something special th...

GodsGrl · GodsGrl

Hi! It's been about 4 years since I checked in! I'm still doing good. Considered cured. I have cirrhosis from my he can my thyroid is thrashed from interferon but I'm glad I cleared virus. I get a ultrasound every 6 months, last month they found lesions on my left kidney. I have a cat Svan scheduled. Has an...

Topic		Started By	Replies	Views	Last Post
	Update On Carolyn (Preview) Greetings, It is my hopes that the following information will encourage folks to seek treatment. Fact is, it works. Yesterday Carol and I had a follow up visit with Dr Sussman. We were both scheduled for tests to be performed. Mine of course have yet to be drawn as doing so is somewhat of an adventure. Th...	JimmyK	10	1156	May 2, 2017 by Scruffy
	Is Prednisone Safe after SVR? (Preview) I treated with Sovaldi Olysio succesfully and have had SVR for about 3 years. Last month I developed Bells Palsy and was given a course of Prednisone tapering from 60mg to 5mg over a period of 10 days. My doctors OK'd this, but now I'm wondering if there's any research on Prednisone and Hep C relapse ...	bassetgirl	4	875	Apr 19, 2017 by Canuck
	Wait and see.. (Preview) Thought I'd update you all. First want to thank everyone for their knowledge, experiences, and support for one another. While I don't post often, I continually glean much from you all. As of last night, finished 24 weeks of "unconventional ?" treatment. UND by 6wks & 14wks. After 1 or 2 wks, I incr...	Lchris1	9	1614	Apr 17, 2017 by Canuck
	SVR 2 Years (Preview) A little late in posting, but I did achieve 2 years SVR in January 2017. I am on the Abbvie 5 year follow up plan with Viekira Pak. ALT 42 (range less than 55) and AST 32 (range 5-34) according to their lab. So all good there. However, my Cholesterol is still dancing around like the stock market, in Janua...	RAGDOLL	3	874	Apr 13, 2017 by Canuck
	UNDETECTED! (Preview) Hi Everyone, I finished my 12 weeks of Harvoni on December 9th, and just got the news today - UNDETECTED! I have to repeat the test in 3 months, but this is such great news to get before Christmas and the New Year!Thank you to all of you for being my bedrock of support during this terrible year - I couldn't h...	humbled	15	1806	Apr 8, 2017 by humbled
	EOT + 12 weeks (Preview) It's a done deal. No virus detected. My platelets are 132 . That is a great improvement for me. I am considering putting out an amber alert as we can't seem to find that cancerous tumour of mine.	Re-Buy	7	1356	Apr 5, 2017 by Canuck
	It's been a while! (Preview) Hello friends, i have been lurking a little over the last few weeks and decided it was time to officially pop my head in. It's been a couple of years since Tx. To be honest I am absolutely rubbish with dates, but I think I am almost 3 yrs post. It took a good year before I started to feel like myself again but in...	MzmiffY	3	671	Mar 14, 2017 by MzmiffY
	What are folks' long term plans post-treatment? (Preview) Hi, haven't posted for a while but I still like to read all the success stories! I achieved SVR back in 2013 after a Bristol Myers clinical trial. I'm 72 now, and have a cirrhotic liver. My blood tests have been great and I feel very well, do a lot of exercising and get an ultrasound every six months. So...	Millercollaborative	8	1306	Mar 12, 2017 by Canuck
	2 year SVR (Preview) Well not quite.. a couple of months short but close enough. Guess it's all over now.And since i was undetected at week 4 of the 12 month tx... that is nearly 3 years virus free!! Yay me. So got some results and ALT is 28 & AST 37. Does this still indicate cirrhosis with the AST being higher??? Plus my AF...	Paul B	1	722	Feb 15, 2017 by Tig
	After treatment issues? (Preview) I'm very sorry to start my own thread- I am feeling kind of anxious which if you remember me, tends to be an issue with me. Lol. I'll read some relevant threads later when I have some time and energy...for now, if someone could help me with a quick answer? I am now about a little over six months post treatme...	freesoul	9	1030	Feb 12, 2017 by Tig
	SOT + 1 Year (Preview) Nothing more really but I just wanted to post that today is the anniversary of swallowing my first Harvoni Pill. I do recall that day as if it was yesterday. One year later, a few nervous scares and incidents and still UND as of Dec and I am quite sure now as well. I owe so much to the people on this forum and t...	Shadowfax	9	955	Feb 11, 2017 by Tig
	Hello post three month treatment results feeling very lucky (Preview) ALT 20 ALP 71 T.Bilirubin 9 GGT 31 Albumin 45 AFP 5 hep c UNDETECTED !!!!!!!!!!!!! im a different person now -- Edited by Tiger on Saturday 4th of February 2017 03:06:39 PM	Tiger	4	770	Feb 5, 2017 by Tiger
	SVR (UND) 1521 days!!! Check in (Preview) 4 years, 1 month, 30 days since I ENDED my hellish ride and quest to kill the Dragon and thus far it's still down for the count! :D (Nov 17, 2012) Just checking in with you all! I gained a ton of weight lol and now have Fibro (ugh) but! Lindsay and I FINALLY got married; when we picked our wedding date it then oc...	LadyAlaise	4	893	Jan 18, 2017 by JIme
	Still kickin' one year later (Preview) Hi all, Thought I'd drop in to say hi... Just got my one-year SVR (Woot!) and things are going pretty well. Riba symptoms are gone and, overall, I'm feeling pretty darn good Kind of a bummer that brain fog and aches and pains can't be blamed on it any more though--now it's strictly old age lol. Starte...	MechanicMike	8	848	Jan 17, 2017 by Tig
	Oral Lichen planus (Preview) Hello all i am approx 20 weeks post treatment. at my 12 week visit, I was RCV negative; the news in itself was miracle-like. unfortunately, I have never felt as unhealthy as I do now. apart from general fatigue, lack of appetite, arthralgia & interrupted sleep, I have developed an autoimmune cond...	Trudylookinglass	14	1548	Jan 14, 2017 by Trudylookinglass
	one year on (Preview) Hi Everyone, Hi All, firstly just want to say that i am so grateful for all the support, guidance, knowledge and comfort you so generously showered me with during this journey. i feel guilty that I havent continued to return all you have given me to others. I guess, its just part of my emotional recovery...	Sydhanrahan	12	1122	Jan 14, 2017 by Loopy Lisa
	Another dragon bites the dust (Preview) Hello people, I had a bit of a palava with bloods and results, first my results weren't in by my appointment, then they lost them in transit, took them again and had to get them by voicemail as I was away on my holiday. Anyway, a long story long, I'm cured...... I really thought I'd failed as I had some pains...	Loopy Lisa	17	1057	Jan 14, 2017 by Loopy Lisa
	6 MONTHS POST-HARVONI TREATMENT (MAJOR FATIGUE, MUSCLE SORENESS, BRAIN FOG, etc.) (Preview) Merry Christmas To Everyone! This is my first time actually posting on this forum, although I have been checking it out sometimes. I am a 41 year old woman who was first diagnosed approximately 8 years ago but I had no symptoms and no idea. Had surgery to fix a broken nose and woke up to "Hello ther...	Bywater Babe	8	1863	Jan 10, 2017 by Tig
	post treatment blood test (Preview) Hello my old friends - I am still negative after Harvoni. My alt and ast have been rising a little, but at still within range (alt 51 ast 35) . Bilirubin normal. What is the most telling test for the liver? I forget...... been a while. I hope everyone is fine	JLynch30	8	949	Jan 10, 2017 by JLynch30
	3years post treatment Sudbury Ontario Canada update (Preview) Well another year gone by and still going strong.... damn it took this long to get back after that 48 week ride , my girls are13 know and former spouce is still former spouce... still living on the farm and enjoying life.... hope all are doing good and living a good life Hep C free... on a sadder note a form...	2willy	5	859	Jan 10, 2017 by Scruffy
	The harvoni dream goes on (Preview) Hi all, i just recieved an email with my eot+4 results which came back UNDETECTED must admit i was scared to open it and wallowed in aphrehension for a wee while... great result although i got my liver panel back in the week which gave me a good indication on todays news as alt and ast had dropped a few more n...	Bebsy	10	1000	Jan 6, 2017 by Phoenix17
	Fibrosis improvement after SVR (Preview) There are so many people getting SVR these days I thought I'd start a thread on fibrosis improvement. It's a shame there is so little research on recovery post SVR compared to the number treatment studies in existence. I suspect more research will be done around this in the coming years. The 2 studie...	Pablito	6	889	Jan 1, 2017 by Shadowfax
	Nines years really flew by! (Preview) Hello All, I used to be on a forum with a lot of you 9 years ago. You all answered so many questions and were so reassuring... LaurieBluesGuy, Minerva, Miss Poppy, JasonPaulTomie, MadameYuSee, John_boy, Chrissy .... And many others! I was so excited to see a lot of you were here. Thank you for those wor...	Mica	2	698	Dec 30, 2016 by Cinnamon Girl
	Hang In There: It Works! (Preview) Hey Friends, Way back in the winter of early 2016, thousand years ago, my sweet girlfriend talked me into stopping my nonsense, putting down the booze, going to the doctor, and looking into treatment for the hep C I'd been ignoring for years. Somehow I ended up with the best Hepatologist in Chicago....	Winfrey50	5	769	Dec 30, 2016 by Canuck
	Just popping in to say Merry Christmas! (Preview) I hope everyone is doing well and has a great Christmas, and HVC free New Year! I have been feeling pretty good since completing the Abbvie trial. Hating this cold snap though, brrrr! I think I go in for my labs for one year post treatment soon. That trial and this forum were both a such a blessing in a very d...	LC	2	552	Dec 21, 2016 by Cinnamon Girl
	Ablation therapy (Preview) well, 1 year post treatment, blood showed a couple of abnormalities so had a cat scan and unfortunately I have a tumour on my liver, the Drs want to do ablation therapy next week and microwave the little bugger. but....... My PTT is also slightly elevated and I now have a bruise the length and thickness...	Observer	21	1321	Dec 17, 2016 by Shadowfax
	After recovering mark to my medical history ((( (Preview) Hello to all guys! All my American friends with thanksgiving )) All forum users wish a recovery with minimal side effects. My family doctor said that in all of medical history duringa year It will mark hepatitis C But I was no longer obliged to inform other doctors that I had hepatitis C It is only in...	Katya	1	520	Nov 27, 2016 by Canuck
	CHEDDY BEAT THE DRAGON!!!!!!!!!!! (Preview) Greetings my friends. It's official. I HAVE REACHED SVR 12!!!!!!!! Whew! It's just not real until you get those labs. I just lost about a hundred emotional pounds. 3 months ago, I told my hepatologist that I was afraid to plan anything because I wasn't sure I could count on anything but fatigue....	Cheddy	34	1195	Nov 24, 2016 by Cheddy
	While Carolyn is at Work... (Preview) ... I got a call. I thanked them very much and went on about my business. I got to thinking it had been some time since I bought her something new to wear. (That of course does not count the endless $$$ spent on cruise attire.) That would have to be another post entirely. No, in this case something special th...	JimmyK	10	741	Nov 22, 2016 by Cinnamon Girl
	5 years post treatment (Preview) Hi! It's been about 4 years since I checked in! I'm still doing good. Considered cured. I have cirrhosis from my he can my thyroid is thrashed from interferon but I'm glad I cleared virus. I get a ultrasound every 6 months, last month they found lesions on my left kidney. I have a cat Svan scheduled. Has an...	GodsGrl	8	1005	Nov 22, 2016 by Cinnamon Girl
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