|
Even the finish line is complicated
(Preview)
Hi all, i just wanted to let you know that I recieved my golden pass yesterday. POST 12 SVR. it seems like half a life time since I joined this forum last December and it probably would have been half the time I had left on this Earth without treatment. What a journey - I feel like I just stumbled out of a boxin...
|
Sydhanrahan
|
46
|
1704
|
|
|
|
|
After Sovaldi/Harvoni Treatment
(Preview)
I have been reading various discussions, here and on other forums. There seems to be a lot of conversation going on regarding problems with joint and muscle pain developing during and following treatment. That concerns me and I want to provide a single location where our Sovaldi protocol patients c...
|
Tig
|
26
|
2915
|
|
|
|
|
EOT + 14 SVR - Yeah Babyyyyyyyyyyy
(Preview)
Hey All, Jus flew to Bangkok to get my Viral load tested and it came back non-detectable! My understanding is that according to the folks that believe EOT + 12 is the valid time to test, then i do believe I am cured! Its a good day to be alive boys and girls and thanks to TIG and the crew for all of your support d...
|
doodaman
|
12
|
1246
|
|
|
|
|
Update on Wife
(Preview)
Greetings, Results just came in and Carolyn is UND at SVR12. All blood work is within normal range. Highlights: Platelets are climbing were at a low of 147 and now 182. ALT is decreasing nicely from a high of 68 now leveled at 17 AST is also on a nice downward trend. From a high of 69 she is now at 22. Bilirubi...
|
JimmyK
|
17
|
1163
|
|
|
|
|
K8 - 6 weeks EOT - undetectable so far. - question about IRON
(Preview)
Hi Friends, Wonderful news, I saw my doc last week, I am still undetectable and taking it one day & one blood test at a time. Last pill was 7/17 Energy is returning although I find myself limiting a lot of excitement (being with lots of friends). Hit a wall at the end of the day. My ND (Naturopathic D...
|
K8
|
4
|
989
|
|
|
|
|
In Appreciation of this Forum.
(Preview)
Hello to everyone. I have not posted in awhile and thought I would post. I got my 60th birthday present yesterday. Still undetected after 13 months off treatment! I had my Fibro scan and scored a 3.7 I was walking on air after seeing my report. My platelets are 153. AST 28, AST is 34. Absolutely thrille...
|
bubble
|
6
|
742
|
|
|
|
|
Missing in action /Over 2 years after Harvoni/
(Preview)
IM back Never really left At some point I misplaced my password For the Bills Logon A few days ago My brain sparked and said try a new name DUH and Tigs Was able to resurrect my Bills Profile Yes that's how bad brain fog can be. I was still bouncing around in a funk about why the circulation in lower leg...
|
Bills
|
13
|
1159
|
|
|
|
|
Svr for 2 years. Now rna detected below 15ml blah blag
(Preview)
i did the original tx. Then I did boceprevir and it came back. And 2 years ago I finished harvoni wit's interferon and ribivrin. I've been undetected since and last test was undetected in March. I'm not high risk. I don't use drugs or any other high risk activities. Found out I was preg. Got a viral l...
|
Libnic84
|
8
|
1160
|
|
|
|
|
One year post tx anniversary
(Preview)
...was actually yesterday, the 8th of August, but I debated as to whether or not it would be significant to mention, since my "one year" labs won't be done for another 3 weeks or so. However, I thought I'd post the rest of my one year Report Card: The good 1. I''ve been virus free, at least as o...
|
hrsetrdr
|
30
|
5173
|
|
|
|
|
EOT 15 weeks
(Preview)
I only posted on here a few times usually when I was freaked out. I did read the forums to try and get a better understanding of my treatment and the disease. I was on a 24 weeks treatment regimen with Harvoni, my genotype was 1A, and my Fibroscan score was 14 or 16 (have to check) done last September. I di...
|
Steve76
|
10
|
1067
|
|
|
|
|
12 weeks post Eclupsa (sof/vel) and Vox: report
(Preview)
Hi all There seems to be more and more people on the forum starting Eclupsa and I'm am just about coming up to 12 weeks post-treatment so I thought I'd start a thread, as I was very curious before I started as to how others felt post-treatment. One caveat: I was on an 8 week trial of Ecplupsa plus a 3rd drug (V...
|
Pablito
|
6
|
1521
|
|
|
|
|
kinda freaked out
(Preview)
Did the harvoni treatment. Was undetected at end of treatment and at 6 month post treatment. Here it is 1 year later and HCV RNA is detected but is <15. Now what! Does this mean ots a failed treatment? Im really freaked out and waiting to hear back from my doc.
|
nurschic
|
20
|
1250
|
|
|
|
|
EOT + 12 UNDETECTED HVC and HVB
(Preview)
Phone call August 11, 5:59 from my NP - verbal UNDETECTED My wife was the first to know and my friends here are the second @ 6:11 since you got me through this journey. I am at a loss and feeling emotional now but I will post again tomorrow. Thank you for everything. SF -- Edited by Shadowfax on Thur...
|
Shadowfax
|
20
|
1223
|
|
|
|
|
A few hours of panic
(Preview)
Hi guys, It's been a while since I posted. I had my 6 month F/U Ultrasound for HCC last week. I've had the same Sonographer for 10 years so she knows my liver well! Using the latest GE machine and a new 8mHz probe, I was horrified to see 2 lesions in segment 8. One measured 13mm and the other, 8mm. Both were ova...
|
mallani
|
14
|
2039
|
|
|
|
|
Question re:Platelets Still Falling
(Preview)
So, I'm SVR, ended treatment July 2014. In March 2014 when I was diagnosed my platelets were 77, stayed in the 60's for the past 2 years, but according to test results yesterday they were at 59. I see my hepatologist next Thursday and will talk to her about this, but I have to admit I'm feeling a little an...
|
bassetgirl
|
8
|
830
|
|
|
|
|
over three years now
(Preview)
hay there hope all are doing good, been a while and yup still single, still have two dogs but they are near their ends getting up there, this is first summer that got almost all stregth back, t
|
2willy
|
6
|
592
|
|
|
|
|
EOT + 12 partial results
(Preview)
Well yesterday I had my lab work done and got some partial results that make me feel positive. It will take at least 2 weeks to know my C and B Status but my general numbers are good. I have referenced my last two draws as well. EOT 5/2/16 ALT 35/ AST/25 ALP 68 EOT +5 6/7/16 ALT 28/AST/21 ALP...
|
Shadowfax
|
18
|
911
|
|
|
|
|
Well all this is my 3 year Undetectable and my Liver doctor has ended our 16 years relationship... How sweet it is
(Preview)
Well all it seems I'm done needing a liver specialist after 16 years of dancing around with 3 different treatments and a host of side affects from the disease and the treatments. I had a FibroScan last month and I'm a 0,1 I was a 3,3 before my last treatment of the dreaded triple combo of 48 months. I I just h...
|
TeddyTrout
|
15
|
843
|
|
|
|
|
The last 2 Riba pills tonite - party time - EOT
(Preview)
Hi friends, I am having a huge celebration tonite (sitting in my pjs with the dog & cat on the couch which has become my all time favorite thing to do). Just took the last 2 Riba pills...I was hoping to somewhat breeze thru the last week, but, a darkness and a sadness has been constant. I live in Dallas a...
|
K8
|
15
|
1105
|
|
|
|
|
One year post Viekira Pak-Not detected
(Preview)
Just got my one year viral load results in. Not detected just as it was at 4 weeks and every other time I was tested. Great stuff that Viekira Pak. And my viral load was 21.8 million at start of treatment. Sounds like a cure to me!
|
lonewolf
|
12
|
1198
|
|
|
|
|
EOT+ 2 years
(Preview)
Just had my blood work come back. Still held my breath while I scrolled down even though its been 2 years. HVC NOT detected!!!!!!! AST 16 ALT 9. Did a little happy dance. wohoooo!!!
|
Scruffy
|
12
|
907
|
|
|
|
|
Headaches in the morning ...
(Preview)
Been waking up with headaches in the morning. Also quite irritable and a little nauseous. This has been happening for the past week, maybe two. 2 ibuprofen and a cup of coffee seems to kill the headache and irritability and a light breakfast helps the nausea. I'm still drinking water, not as much as whi...
|
Linuxter
|
24
|
1300
|
|
|
|
|
SVR ... Unofficially Official!!
(Preview)
Hi All, Just got the news ... (Message below is from my Infectious Disease Doc's Nurse) "Hepatitis C RNA PCR Quant (07/06/2016 10:06 AM) Component Value Ref Range Hepatitis C Quant Not Detected <=15 IU/mL Congratulations! Sally has not seen this yet, but she when she does she will tell you that yo...
|
Linuxter
|
30
|
1145
|
|
|
|
|
SVR12!!! :)
(Preview)
just got my PCR EOT+12w result today, undetected! Now, i will again lay low and won't celebrate yet, since my hepa told me to do EOT+24w PCR too. A big thank you to all the folks on this forum for all the help and support! And of course a BIG thank you to chemist Jeremy L Clark for inventing a wonderful molecu...
|
Zlikster
|
17
|
1225
|
|
|
|
|
Brisket Man = EOT
(Preview)
Let put our hands together in prayer and applause for Brother Jimmy (with a Y) K. He has reached EOTville! Time to disembark and get ready for the final leg of the journey. SVR is beautiful in the Fall.... Pack your bag, your train leaves today!
|
Tig
|
4
|
679
|
|
|
|
|
Arriving in EOT town
(
1 2
)
(Preview)
Hey all, here I am!!!  i wrote such a long post last night asking for help with my wardrobe choices and wondering where my mates all gathered in this one horse town - and then lost internet connection. So I've done a bit of basic freshening up in the Ladies at the station and am now staggering o...
|
Sydhanrahan
|
71
|
2937
|
|
|
|
|
SVR 12 Cured :)
(Preview)
Just got the news and am over the moon. Still have a few aches in liver and spleen area but hopefully its on the mend!
|
Midnight
|
12
|
918
|
|
|
|
|
6 month post treatment, dragon remains dead
(Preview)
Yay Still virus free. Alison
|
Observer
|
5
|
884
|
|
|
|
|
EOT... ...I hope I'm done.
(Preview)
Took the last of the 84 on Monday... I feel the same. Now I get to wait until September 19 for good news. Although I think I got the good news in late March, when the lady at the pharmacy called and said she had a prescription for me. I hope a lot of other people get that call. On with life. Thanks to a support...
|
Tom
|
8
|
833
|
|
|
|
|
SOF/VEL/GS-9857 trial - EOT week 12 - I'm done
(Preview)
Hi all,A quick update from the Golden TGV Bullet Train that arrived at its final destination gate on April11. The service in first class has been tremendous. Feeling very good no side effects. I'm done. Undetected (see below). I'm interested 3 months post EOT but something inside tells me not this ti...
|
webtomass
|
16
|
1427
|
|
|
