Hep C Discussion Forum

dragonfly · dragonfly

Hi, I am posting because I am 16 months off Sobisvor, Daclatisvir and Riba. Now when I am ill I can still make it into work, over the last academic year I have only had 2 days off (I'm a lecturer) instead of the 2 weeks for each illness that I would have had to take off before. My life is so much better now and...

WarriorWolf · WarriorWolf

I'm almost reaching a year since I began Harvoni Tx. I figured out my tummy problems but now I have out of control acne. Does anyone else have this? If so, what helps clear it away?

JLynch30 · JLynch30

I have been hep c free for 6 months now - I have cirrhosis and it seems like my bloating is worse - stomach gets HUGE! Any suggestions for bloating? Any medications I can bug my doctor about?

bubble · bubble

Hi all, Much to my amazement my Doc did not order a HCV Quanitative. My Fibrosure is still showing F3. My AST: 30. My ALT:41. OK. Glucose is up over the limit by 2 points (Nothing new). Platelets have returned back down to 159. It has been 32 weeks since I have been off treatment. Did acheive SVR12. This is...

Gifthealth · Gifthealth

To all of YOU that oversee and participate in this Forum, I want to share my joy with all of you. Today, I heard the word, "CURED" when speaking to my doctor. Yes, I have achieved SVR12 using Sovaldi and Ribavirin for my Genotype 2 HCV. I am still in a state of amazement, the news is still sinking...

skewedButNotBroken · skewedButNotBroken

During my lifetime, I used to get mildly depressed on occasion, BUT since SVR and now I'm well over a year and still clear, I am staying VERY depressed (I have to stay obsessively busy not to notice the depression). Also, I used to sleep like a baby, but now I'm lucky to sleep 4 hours a night! This is no coinc...

wendyo · wendyo

So today was my last day at my job of 20 years, bittersweet. What timing, get an email from my doc.... "Hi Wendy,The Hepatitis C RNA QUANT is not detected indicating a cure! The liver enzymes are normal as well (ALT 18) (AST 20)" Have a wonderful day! (and I did) Very emotional few days: my son...

movebo · movebo

Hi All just back from my hepatologist, 12 weeks post treatment, all looking good: VL undetected < 15, ALT 21, AST 21, GGT 23, platelets 206. Psychology is an interesting field. My draw was on Feb 22nd. I went through 12 weeks of Harvoni & Riba without any sides, just a little more grumpy than usu...

Ari-anna · Ari-anna

Today my Doctor sent me a text: 12 weeks post treatment blood test results - Virus Undetected SVR Also, I had a liver scan yesterday, the Surgeon said he could easily see the lesion that has attracted attention and he believes it will be a simple matter to ablate it. In around a month's time I will not only...

mallani · mallani

Hi all, Had my bloods drawn yesterday. The email results just arrived. I must admit that I'm always a tad anxious, even though the risk of relapse is <1%. As I have my results recorded since 1988, I'm happy to say my ALT (23) and AST(18) are the lowest they have ever been. All is quiet on the liver front....

Tig · Tig

Hi All, I don't say much about myself on the forum anymore, my time has come and gone for highlights. But still wanted to share with you that I had a full abdominal ultrasound today. Liver is perfect, and my previously enlarged spleen is back to normal, pancreas is in good shape too. No masses, no problem...

Tig · Tig

I've got a question to ask those of you that have finished Tx. As some of you know, I finished triple therapy with Victrelis on Dec 4th. I noticed a big increase in my already existent tinnitus when I began the Victrelis. I know many I've spoken to here, mentioned that when they added Victrelis to the mix...

Mikaere · Mikaere

Hi all I have just been tested after 4 weeks EOT and virus still undetected as it was not detected 4 weeks after starting tx I hope it remains undetected at 12 and 24 weeks. The tx was 12 weeks generic sovaldi,peg inter,riba, had some side effects during tx insomnia, brain fog,short temper,ups and down...

Ari-anna · Ari-anna

Hi Everyone, I have not logged in for a bit - I got overwhelmed by life in general compounded by continuing struggles with recovering from treatment. I was tired a lot and feeling unwell - lucky I am starting to improve now. It's 10 weeks post tx. I got down for a bit until about a week or so ago it occurred to...

Ari-anna · Ari-anna

I would really appreciate some help/advice with these two questions: 1) Post treatment has anyone had any relief from the chronic ache in the upper right quadrant that Hep C sometimes causes? Or know of any research into this? 2) Does the post treatment ache in muscles and joints go away with time? Th...

JakeAms · JakeAms

My 24 week treatment with Daclynza/Ribavarine/Sobusvir ended on 29 January and today I met with my doctor to go over the latest lab results. HCV is undetectible and liver values all fall witin the normal range! I am overwhelmed with joy and so thankful that I got to be patient #1 in the Netherlands wi...

Ari-anna · Ari-anna

Cinnamon Girl wrote:I think that the topic of dealing with the changes in our lives that an improvement in health, energy and independence can would bring is well worth discussing, maybe on a separate thread. It`s certainly something I experienced after getting so much better after I cleared the v...

dustbear · dustbear

Its long overdue for an update. Its been just over 2 yrs since my EOT. The 48wk interferon/riba treatment was cut short 3 weeks early due to 2 overlapping problems: myositis (inflammation of the muscles but real words: I lost every muscle in my body) and interstitial lung disease. FYI, I was put on Boc...

biminidave · biminidave

Good News

obsessing · obsessing

I'm almost 4 months post treatment (3 months Harvoni) and happy to be virus free. When I stopped treatment, I felt a wave of energy but quickly developed cognitive problems. My short-term memory is very bad and I'm disoriented at times. I can't remember entire conversations, appointments, eating...

Rufus1 · Rufus1

I received a nine month post tx viral load yesterday UNDETECTABLE. I say we because I cleared it but all of you got me thru it. I may not be as vocal as a lot of you but I have read all posts and comments all thru tx and post. For me it was what I needed as my wife and Dr's were the only ones that knew what was going on...

Jaded · Jaded

I actually had to make the receptionist look for my results because the nurse hadn't called back and it's been a couple of days...but I'm too happy to be angry at the anxiety she caused me making me wait longer than I needed to. It seems my battle with the post tx fatigue is finally ending...I feel much bet...

hepCFREEwanab · hepCFREEwanab

Hello everyone, We went to Mt. Sinai on friday for a follow up MRI and blood work. The MRI showed NO HCC, and that everything was pretty stable. The blood results are however very puzzling to me. NO HCC, NO HepC, Comparing BLood work from 11/11/2015 to 1/22/16 AFP went down from 8 to 6.3 Platelets went...

Jaded · Jaded

I don't want to get too excited but if I'm not mistaking this suggests I have gone from F4 to F2? How accurate and reliable is this test? My meld score is now .651...it was 1.083 in 2014. -- Edited by Jaded on Friday 29th of January 2016 03:19:55 AM

Ari-anna · Ari-anna

Hi Team, I saw my Naturopath today - first time since before starting treatment. She said I looked the healthiest she has ever seen me! She also suggested I stay on the same supplement routine for another 6 weeks or so (which will be after my post tx final blood test) when, if virus undetected, we can revi...

Penelope PePod · Penelope PePod

Just got our results: Me at EOT +12: Undetected (12 weeks VP & Riba) Paul at EOT: Undetected (24 weeks VP & Riba) This is truly an undeserved blessing. I pray everyone here makes it to SVR, if not now then when the time is right. These meds are great when they work, but I know who the true hea...

nurschic · nurschic

Could it be, Hep c free for me! Dr office called this morning with my 6 month post harvoni test results. Undetected! I swear i have to be dreaming...... Please dont wake me if i am!

Gifthealth · Gifthealth

Hello Everyone. I wanted to share with you my very exciting news that I just received. One month ago, I finished 3 months of treatment using Sovaldi and Ribo. My treatment was for HVC Genotype 2. It was like a dream to hear the word, "undetected" as I called in for my test results. From my readi...

Ari-anna · Ari-anna

Just seen my doctor - very happy to say that my liver stats for the first time in many a year are within normal range, and, viral load at 4 weeks post treatment is undetected! Viral load start of treatment HCV RNA 191810 IU/ml 4 weeks into treatment - undetected end of 24 weeks Viekira Pak plus Ribavirin - u...

HepCSurvivor15 · HepCSurvivor15

Just wanted to share the story of my hep c journey so that others may find encouragement & enough to keep trudging along through this journey: I contracted Hep C sometime in my younger, wilder years through either a piercing or tattoo. Like most people, I did not find out I had it until March 2014. H...

Topic		Started By	Replies	Views	Last Post
	New life (Preview) Hi, I am posting because I am 16 months off Sobisvor, Daclatisvir and Riba. Now when I am ill I can still make it into work, over the last academic year I have only had 2 days off (I'm a lecturer) instead of the 2 weeks for each illness that I would have had to take off before. My life is so much better now and...	dragonfly	6	1146	Mar 22, 2016 by Iris Dragonfly
	Face breakouts (Preview) I'm almost reaching a year since I began Harvoni Tx. I figured out my tummy problems but now I have out of control acne. Does anyone else have this? If so, what helps clear it away?	WarriorWolf	4	1322	Mar 20, 2016 by WarriorWolf
	Bloating (Preview) I have been hep c free for 6 months now - I have cirrhosis and it seems like my bloating is worse - stomach gets HUGE! Any suggestions for bloating? Any medications I can bug my doctor about?	JLynch30	2	1020	Mar 17, 2016 by wmlj1960
	No SVR 24 test. (Preview) Hi all, Much to my amazement my Doc did not order a HCV Quanitative. My Fibrosure is still showing F3. My AST: 30. My ALT:41. OK. Glucose is up over the limit by 2 points (Nothing new). Platelets have returned back down to 159. It has been 32 weeks since I have been off treatment. Did acheive SVR12. This is...	bubble	8	1307	Mar 15, 2016 by bubble
	I want to share this day with all of YOU... (Preview) To all of YOU that oversee and participate in this Forum, I want to share my joy with all of you. Today, I heard the word, "CURED" when speaking to my doctor. Yes, I have achieved SVR12 using Sovaldi and Ribavirin for my Genotype 2 HCV. I am still in a state of amazement, the news is still sinking...	Gifthealth	17	2311	Mar 14, 2016 by JIme
	Depression after SVR, how many of you have it? (Preview) During my lifetime, I used to get mildly depressed on occasion, BUT since SVR and now I'm well over a year and still clear, I am staying VERY depressed (I have to stay obsessively busy not to notice the depression). Also, I used to sleep like a baby, but now I'm lucky to sleep 4 hours a night! This is no coinc...	skewedButNotBroken	10	1942	Mar 13, 2016 by JIme
	another dead dragon (Preview) So today was my last day at my job of 20 years, bittersweet. What timing, get an email from my doc.... "Hi Wendy,The Hepatitis C RNA QUANT is not detected indicating a cure! The liver enzymes are normal as well (ALT 18) (AST 20)" Have a wonderful day! (and I did) Very emotional few days: my son...	wendyo	22	1437	Mar 10, 2016 by dustbear
	Movebo update (Preview) Hi All just back from my hepatologist, 12 weeks post treatment, all looking good: VL undetected < 15, ALT 21, AST 21, GGT 23, platelets 206. Psychology is an interesting field. My draw was on Feb 22nd. I went through 12 weeks of Harvoni & Riba without any sides, just a little more grumpy than usu...	movebo	10	1304	Mar 8, 2016 by Matt Chris
	SVR Today (Preview) Today my Doctor sent me a text: 12 weeks post treatment blood test results - Virus Undetected SVR Also, I had a liver scan yesterday, the Surgeon said he could easily see the lesion that has attracted attention and he believes it will be a simple matter to ablate it. In around a month's time I will not only...	Ari-anna	26	1828	Mar 8, 2016 by Matt Chris
	EOT + 3 years bloods (Preview) Hi all, Had my bloods drawn yesterday. The email results just arrived. I must admit that I'm always a tad anxious, even though the risk of relapse is <1%. As I have my results recorded since 1988, I'm happy to say my ALT (23) and AST(18) are the lowest they have ever been. All is quiet on the liver front....	mallani	13	1509	Mar 7, 2016 by maddie
	SVR continues to bring improvements! (Preview) Hi All, I don't say much about myself on the forum anymore, my time has come and gone for highlights. But still wanted to share with you that I had a full abdominal ultrasound today. Liver is perfect, and my previously enlarged spleen is back to normal, pancreas is in good shape too. No masses, no problem...	Tig	23	1456	Mar 6, 2016 by coolheat
	Severe Tinnitus (Preview) I've got a question to ask those of you that have finished Tx. As some of you know, I finished triple therapy with Victrelis on Dec 4th. I noticed a big increase in my already existent tinnitus when I began the Victrelis. I know many I've spoken to here, mentioned that when they added Victrelis to the mix...	Tig	34	2901	Mar 2, 2016 by Canuck
	Post EOT (Preview) Hi all I have just been tested after 4 weeks EOT and virus still undetected as it was not detected 4 weeks after starting tx I hope it remains undetected at 12 and 24 weeks. The tx was 12 weeks generic sovaldi,peg inter,riba, had some side effects during tx insomnia, brain fog,short temper,ups and down...	Mikaere	2	949	Mar 1, 2016 by Mikaere
	Back on track (Preview) Hi Everyone, I have not logged in for a bit - I got overwhelmed by life in general compounded by continuing struggles with recovering from treatment. I was tired a lot and feeling unwell - lucky I am starting to improve now. It's 10 weeks post tx. I got down for a bit until about a week or so ago it occurred to...	Ari-anna	7	1200	Feb 22, 2016 by wmlj1960
	Two Questions (Preview) I would really appreciate some help/advice with these two questions: 1) Post treatment has anyone had any relief from the chronic ache in the upper right quadrant that Hep C sometimes causes? Or know of any research into this? 2) Does the post treatment ache in muscles and joints go away with time? Th...	Ari-anna	4	1180	Feb 18, 2016 by Mike
	EOT/SVR (Preview) My 24 week treatment with Daclynza/Ribavarine/Sobusvir ended on 29 January and today I met with my doctor to go over the latest lab results. HCV is undetectible and liver values all fall witin the normal range! I am overwhelmed with joy and so thankful that I got to be patient #1 in the Netherlands wi...	JakeAms	2	971	Feb 16, 2016 by Zlikster
	Adjusting to improved health post treatment (Preview) Cinnamon Girl wrote:I think that the topic of dealing with the changes in our lives that an improvement in health, energy and independence can would bring is well worth discussing, maybe on a separate thread. It`s certainly something I experienced after getting so much better after I cleared the v...	Ari-anna	6	1485	Feb 16, 2016 by wendyo
	26 months post EOT update (Preview) Its long overdue for an update. Its been just over 2 yrs since my EOT. The 48wk interferon/riba treatment was cut short 3 weeks early due to 2 overlapping problems: myositis (inflammation of the muscles but real words: I lost every muscle in my body) and interstitial lung disease. FYI, I was put on Boc...	dustbear	11	1366	Feb 9, 2016 by dustbear
	PARTY (Preview) Good News	biminidave	13	1255	Feb 5, 2016 by dustbear
	Memory and Disorientation Post Harvoni tx (Preview) I'm almost 4 months post treatment (3 months Harvoni) and happy to be virus free. When I stopped treatment, I felt a wave of energy but quickly developed cognitive problems. My short-term memory is very bad and I'm disoriented at times. I can't remember entire conversations, appointments, eating...	obsessing	9	1772	Feb 2, 2016 by biminidave
	WE DID IT (Preview) I received a nine month post tx viral load yesterday UNDETECTABLE. I say we because I cleared it but all of you got me thru it. I may not be as vocal as a lot of you but I have read all posts and comments all thru tx and post. For me it was what I needed as my wife and Dr's were the only ones that knew what was going on...	Rufus1	9	1181	Feb 1, 2016 by Rufus1
	SVR12 Just found out! (Preview) I actually had to make the receptionist look for my results because the nurse hadn't called back and it's been a couple of days...but I'm too happy to be angry at the anxiety she caused me making me wait longer than I needed to. It seems my battle with the post tx fatigue is finally ending...I feel much bet...	Jaded	13	1200	Jan 30, 2016 by Penelope PePod
	HELP to figure out Blood Test results! (Preview) Hello everyone, We went to Mt. Sinai on friday for a follow up MRI and blood work. The MRI showed NO HCC, and that everything was pretty stable. The blood results are however very puzzling to me. NO HCC, NO HepC, Comparing BLood work from 11/11/2015 to 1/22/16 AFP went down from 8 to 6.3 Platelets went...	hepCFREEwanab	6	1088	Jan 29, 2016 by wmlj1960
	My Fib-4 online calculator 2 year pre & post Harvoni comparison (Preview) I don't want to get too excited but if I'm not mistaking this suggests I have gone from F4 to F2? How accurate and reliable is this test? My meld score is now .651...it was 1.083 in 2014. -- Edited by Jaded on Friday 29th of January 2016 03:19:55 AM	Jaded	5	2072	Jan 29, 2016 by Jaded
	Slowly improving post tx (Preview) Hi Team, I saw my Naturopath today - first time since before starting treatment. She said I looked the healthiest she has ever seen me! She also suggested I stay on the same supplement routine for another 6 weeks or so (which will be after my post tx final blood test) when, if virus undetected, we can revi...	Ari-anna	8	1447	Jan 23, 2016 by Ari-anna
	SVR 12 (aka Another one bites the dust) (Preview) Just got our results: Me at EOT +12: Undetected (12 weeks VP & Riba) Paul at EOT: Undetected (24 weeks VP & Riba) This is truly an undeserved blessing. I pray everyone here makes it to SVR, if not now then when the time is right. These meds are great when they work, but I know who the true hea...	Penelope PePod	13	1458	Jan 17, 2016 by Cinnamon Girl
	could it be (Preview) Could it be, Hep c free for me! Dr office called this morning with my 6 month post harvoni test results. Undetected! I swear i have to be dreaming...... Please dont wake me if i am!	nurschic	10	1870	Jan 15, 2016 by Linuxter
	One month test results post EOT... (Preview) Hello Everyone. I wanted to share with you my very exciting news that I just received. One month ago, I finished 3 months of treatment using Sovaldi and Ribo. My treatment was for HVC Genotype 2. It was like a dream to hear the word, "undetected" as I called in for my test results. From my readi...	Gifthealth	4	1020	Jan 13, 2016 by wmlj1960
	Looking good for me! (Preview) Just seen my doctor - very happy to say that my liver stats for the first time in many a year are within normal range, and, viral load at 4 weeks post treatment is undetected! Viral load start of treatment HCV RNA 191810 IU/ml 4 weeks into treatment - undetected end of 24 weeks Viekira Pak plus Ribavirin - u...	Ari-anna	8	1239	Jan 13, 2016 by Ari-anna
	Extraordinary Symptoms - Don't feel Crazy!!! (Preview) Just wanted to share the story of my hep c journey so that others may find encouragement & enough to keep trudging along through this journey: I contracted Hep C sometime in my younger, wilder years through either a piercing or tattoo. Like most people, I did not find out I had it until March 2014. H...	HepCSurvivor15	1	786	Jan 12, 2016 by Tig
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