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Hep C Discussion Forum -> Post Treatment -> Slowly improving post tx
Post Info TOPIC: Slowly improving post tx
Ari-anna


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RE: Slowly improving post tx
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Thanks for all the encouragement, it means a lot when it comes from peers who understand from personal experience.

I wasn't really a fan of organised walks before I took on this challenge, but decided to give it a go as it seemed like a way to get me off my butt and out there doing exercise. Here there is a programme called Green Prescription where your doctor can refer you to a Gov funded programme to support people who need to exercise more. In some was I don't fit criteria as it is mainly aimed at people whose main exercise is going to the letterbox each day. However, because at the time it looked like I may need a liver transplant I got on the programme to get as fit as possible pre op.

Green Prescription has made a big difference to me as it got me out of bed and the house and actually putting the effort in. I did a 10k "Fun Walk" during treatment which gave me a real boost. Health deteriorated since and it has been an effort to get going again.

The next planned walk is 12ks and on the hills - a real challenge as I live on the flat. It is an important walk for me as it is organised in remembrance of the people killed in the earthquakes here 5 years ago.

All of you in the Northern Hemisphere envious of our summer tempts - you will be warm when we are suffering grey, cold wet days. Though snow here is a novelty and an opportunity for the 4 wheel drive club to be heroes.



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Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
Mike


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You are doing really good! And you will do fine at the half marathon in June. It will be warmer definitely in June



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1-18-16 referred to gastroenterologist;  AST 191 ALT 246, Viral Load 1,976,000, Alpha Feto Protein/Negative for Cirrhosis. Genotype 1 a. Tx began 3/9/16 Harvoni, 8-12 weeks

 
Gracie


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It's minus 17 here with a foot of snow... Just sayin'. I can handle it. We Canadians are tough like that. Built to last... Now where's my snuggie ...



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
wmlj1960


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Wow Ari! That's some pretty impressive recovery you have going there. Sounds like a good plan to help "change/challenge negative thinking". I'm jealous of your energy and determination and also a little jealous of your weather at the moment, 26 F (-3.3 C) here tonight at my house in SE USA. Keep up the good work but don't over do it. smile



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Shadowfax


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Nice,

A 6.5 K walk clearly indicates someone is feeling pretty good. Keep on trucking! smile



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Tig


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Congratulations Ari! I think we'll put you up on our Wall of Champions ahead of schedule! Sure sounds to me like you're excelling at this recovery thing. WOOT!!



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Linuxter


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Great to hear Ari, wow ... you must be feeling better.

I enjoy walking but that would be one of my longest walks (at least in the last 10 years).

I hope to one day feel well enough to do some trail day hikes again. We live within a few miles of National Forest with many, many miles of very nice trails. Congrats on doing so well, you should feel very good about it!

Nice to hear, keep up the great work.

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Cinnamon Girl


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H Ari, this all sounds like excellent progress, how wonderful for you to have managed the walk so easily, and especially in all that heat!   And very encouraging for you to hear how much healthier you`re looking, what a boost!  

I`m very pleased to hear how well your post tx recovery is going, keep up the good work!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

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Ari-anna


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Hi Team, I saw my Naturopath today - first time since before starting treatment. She said I looked the healthiest she has ever seen me! She also suggested I stay on the same supplement routine for another 6 weeks or so (which will be after my post tx final blood test) when, if virus undetected, we can revise and reduce. Be a good side effect of recovery to be paying less for supplements!

Also, I walked to the appointment (6.75ks or just over 4 miles). Despite not really sleeping and a 30 degrees centigrade max temperature forecast, I managed the walk at my pre treatment pace. I was wrapt when I checked the walk statistics - when starting out I was convinced it would be a slow walk and I would be lucky to make the appointment in time.

All appears to be on track for my recovering from tx plus for doing a 12k organised walk next month as part of my long term training plan to walk a half marathon in June.

We don't usually reach 30 degrees here, normal summer temp is in the mid 20s )



__________________

Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
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