Hep C Discussion Forum

Tom · Tom

Took the last of the 84 on Monday... I feel the same. Now I get to wait until September 19 for good news. Although I think I got the good news in late March, when the lady at the pharmacy called and said she had a prescription for me. I hope a lot of other people get that call. On with life. Thanks to a support...

webtomass · webtomass

Hi all,A quick update from the Golden TGV Bullet Train that arrived at its final destination gate on April11. The service in first class has been tremendous. Feeling very good no side effects. I'm done. Undetected (see below). I'm interested 3 months post EOT but something inside tells me not this ti...

doodaman · doodaman

Hey All, I finished my 8 week treatment of Harvoni about 1 month ago. To be honest, the treatment was rather easy and alot of symptoms dissipated during that time. My energy increased greatly and my minor digestive orders like low level pain, bloating etc went away and the brain fog decreased quite a bi...

Midnight · Midnight

Not sure if anyone else has experienced something like this but ever since I ended my Harvoni treatment in March I have been having recurrent and what feels like cold sores inside my nostrils! Really painful and far worse than a cold sore on the lip as at least I can put some zovirax on those. I've read abo...

Midnight · Midnight

Still waiting for the viral load results, takes forever with my hospital but ALT 25, so looking really good Should I count my chickens yet?

Cheddy · Cheddy

I just got back some of my blood work. ONE MONTH POST TREATMENT and UN-FRICKEN-DETECTED!!!!!!!!!! Happy dance, happy dance, happy dance. My general chemistry results from last week have gone missing. I only saw direct bilirubin which came in at a happy 2. Last month, at the end of treatment, my...

Rubye · Rubye

Hi everyone, It has been about a year and a half since I was cured. I treated with Sovaldi and Olysio. I am fairly healthy considering I'll be 70 next month. Except - for wheezing over the past four months or so. Inhalers only make it worse and Cetrizine doesn't help. And, this last month I've lost much of...

Gracie · Gracie

Hi All, Thought I'd start a thread for good news for those starting treatment to see the potential after treatment. I just had my post treatment fibroscan done and it went from 15.5 to 8.8. I watched every ping. All were in the 8's except one 6 and one 12. Amazing really. I know my liver has a way to go yet as f...

Shadowfax · Shadowfax

So, I had two sets of blood work done on Tuesday, my regular ones from my specialist and some Thyroid from my GP. My thyroid tests have come down some but I noticed on the lab report something that seems totally unrelated. Mitochondria Antibody ** I google and read and it just seems and I don't know why h...

Re-Buy · Re-Buy

I have been searching to see if there is any relationship between the two. I was hit with this syndrome 6 years after interferon. It took specialists months to diagnose. I doubt that this was a result of interferon, but I do hope that if someone else did a Google search, they might find this.

Lawmatt · Lawmatt

hi everyone hope all is well and copeing with the addons thus far I would like to say things are improving with myself the awfull thoughts and depression if much less frequent and easier to handle.. supprisingly work is becoming much less of a challenge and just over the last month ive felt almost norma...

Linuxter · Linuxter

Getting back to some sense of normality with life. I would say the fog has dissipated ~98% from when on Tx. I find myself not dreading having to do an errand or chore now. Find myself at least thinking about resuming some major home projects and getting out to do some recreational activities. Seem to get...

liverish · liverish

I started my tx sept 4th last year on harvoni and riba 12weeks EOT November Dec I went for 4/wk post tx and they said it was back...I'm one of the low % that the virus has come back, They did offer me retreatment but it was a trial with many ifs and buts..I have declined tx for now as my body is feeling battere...

Skimily · Skimily

Do you ever stop being afraid of your blood? I have read that once an individual is cured, the antibodies still show, but there is no longer risk of transmission to another individual. Since dx in December, I bought everyone in the house their own set of nail clippers n such. And I tell my son things li...

Michaele · Michaele

Hi everyone , its been a year since I had to have the pancreatic mass tested before treatment. I had my 1 year follow up CT scan , and the mass is gone, resolved, history ! So a Christmas Miracle for me . The doctor seemed dumbfounded, as it wasn't a pseudo- cyst . He asked me if I had been drinking l...

JakeAms · JakeAms

Hi all, Even folks with genotype 3a, stage 4 cirrhosis, HIV+ and 2 failed attempts with PegInterferon & Ribavarine can achieve succes with these new meds. My latest lab results confirm that 3 months post treatment I am HCV free, my 20 year battle is over and I feel good. Not James Brown-like I fee...

Transient · Transient

Hi friends, sorry for the gloomy question, however, I've not been feeling great of late (chronic fatigue, etc.). I've also developed a suspicious bump on my right hand, which I have had checked out by my GP and ultrasound and it has been Dx as early Dupuytrens contracture - and so I'm wondering about th...

Shadowfax · Shadowfax

I had my EOT blood work done one week ago and repeated yesterday from my yearly Physical. There have been some changed in my LFT's and I am concerned and have a call into my NP for her opinion. I still do not know about VL of B or C Last week This week ALP 68 ...

Firechic19 · Firechic19

Just a week since tx ended and I already feel like a new person. I actually organized my shoe closet today along with a huge box of nail polish and not one shoe got thrown, nor a bottle of polish broken I also haven't walked circles around the house trying to remember what I was doing. I can still tell the ri...

Gifthealth · Gifthealth

Hello Everyone, Well, it has been 4 months since I completed my 3 month treatment for HCV GT2 using Sovaldi and Ribavirin. The Ribavirin did wack me out during treatment and these symptoms of fatigue and episodic rage lasted 2.5 months post EOT. I definitely noted a return to self at 2.5 months - especi...

Enavigo3891 · Enavigo3891

Happy Friday good people! Just got back from my 2 year post treatment visit with my liver specialist and I'm proud to report I am still "HCV Not Detected"! Still going strong and labs are looking good. AST - 12 and ALT - 6. I will see him again this time next year and if my insurance company approves it he wi...

Linuxter · Linuxter

Only been two days since EOT (4/12/16) but the high intensity of the Riba is starting to back off just a little. Quite a relief being done with Tx ... as you all well know. My EOT CBC and CMP looked good ... Hb was only down to 12.9 which is pretty amazing and should bounce right back, ALT was 18 which makes me h...

fourlocos · fourlocos

Hi all since I haven't found much improvement in my hands and feet hurting since treatment I finally went to the Rheumy doctor. I had x rays of both hands and feet and lots of blood work done. Blood work was normal but the xrays are showing what they feel is inflammatory joints in my left foot, which is th...

SickPuppy · SickPuppy

Hi guys, I've had Hep C since I was 1 year old - discovered only at 11 years old due to a decompensated cirrhosis event (burst varices and blood vomit) which repeated a couple more times. Other complications came in time - such as encephalopathy, high ammonia - yet no ascites in the belly, but definitel...

Jaded · Jaded

Just wanted to say hello and let you all know I just got my 24 weeks EOT results and I'm now SVR24. My post treatment fatigue has resolved itself about 8 weeks now and everything is great. I have good energy and strength and I'm back to my heavy weightlifting and 2-3 hour walks with my dog. To those like me wh...

Gracie · Gracie

After so many years, the third time was most definitely the charm. Met with my hepologist today, and she gave me the official SVR 12 (actually 13) weeks still UND! I just am really finding it so hard to believe. I talked to her for a bit about me, and my tests etc., with my platelets rising and AFP normal, an...

Enavigo3891 · Enavigo3891

Hey old friends and people I haven't met before... It's been just about a year since I've logged in here but I think of you folks often! I hope the world has been treating you all well and I'm super excited to see that the signature line on the bottom of some people's posts have three wonderful letters a...

movebo · movebo

Hi All, have a look at the abstract below, just came out. The kind of paper I like to see. When I was told I am F4 I googeled it, as one does, and stopped rather quickly, in a very somber mood. Looks like things are not quite as bad with SVR, hopefully.Cheers, TomSurvival of patients with HCV cirrhosis and s...

movebo · movebo

Hi All, my liver still seems fine, so here comes a story about my right eye... In 2014, when I was blissfully ignorant of my HepC , cirrhosis, and all that, I noticed some reduced field of vision in my right eye. It was checked out, and was diagnosed as a "vascular issue", and to be kept in view. Then came the...

Observer · Observer

i feel great. I have energy. I can eat. I can go for long walks again. I went to my integrative Dr.( that I credit with keeping me alive through my horrendous 32 year battle with the dragon and all the ever changing immune disfunctions that accompanied) and got some drops to detox the riba out of my system...

Topic		Started By	Replies	Views	Last Post
	EOT... ...I hope I'm done. (Preview) Took the last of the 84 on Monday... I feel the same. Now I get to wait until September 19 for good news. Although I think I got the good news in late March, when the lady at the pharmacy called and said she had a prescription for me. I hope a lot of other people get that call. On with life. Thanks to a support...	Tom	8	961	Jun 29, 2016 by Canuck
	SOF/VEL/GS-9857 trial - EOT week 12 - I'm done (Preview) Hi all,A quick update from the Golden TGV Bullet Train that arrived at its final destination gate on April11. The service in first class has been tremendous. Feeling very good no side effects. I'm done. Undetected (see below). I'm interested 3 months post EOT but something inside tells me not this ti...	webtomass	16	1858	Jun 29, 2016 by Sydhanrahan
	EOT + 4 Weeks (Preview) Hey All, I finished my 8 week treatment of Harvoni about 1 month ago. To be honest, the treatment was rather easy and alot of symptoms dissipated during that time. My energy increased greatly and my minor digestive orders like low level pain, bloating etc went away and the brain fog decreased quite a bi...	doodaman	4	966	Jun 27, 2016 by Linuxter
	Painful post Harvoni skin issue! (Preview) Not sure if anyone else has experienced something like this but ever since I ended my Harvoni treatment in March I have been having recurrent and what feels like cold sores inside my nostrils! Really painful and far worse than a cold sore on the lip as at least I can put some zovirax on those. I've read abo...	Midnight	13	1278	Jun 24, 2016 by Canuck
	Harvoni/Riba EOT + 12 week ALT (Preview) Still waiting for the viral load results, takes forever with my hospital but ALT 25, so looking really good Should I count my chickens yet?	Midnight	4	946	Jun 21, 2016 by Shadowfax
	Happy Feet - EOT + 1 Month!!!!! (Preview) I just got back some of my blood work. ONE MONTH POST TREATMENT and UN-FRICKEN-DETECTED!!!!!!!!!! Happy dance, happy dance, happy dance. My general chemistry results from last week have gone missing. I only saw direct bilirubin which came in at a happy 2. Last month, at the end of treatment, my...	Cheddy	13	1095	Jun 20, 2016 by Ruby Red
	Wheezing and Loss of Voice (Preview) Hi everyone, It has been about a year and a half since I was cured. I treated with Sovaldi and Olysio. I am fairly healthy considering I'll be 70 next month. Except - for wheezing over the past four months or so. Inhalers only make it worse and Cetrizine doesn't help. And, this last month I've lost much of...	Rubye	4	983	Jun 17, 2016 by Tig
	Improvement After Treatment ( 1 2 ) (Preview) Hi All, Thought I'd start a thread for good news for those starting treatment to see the potential after treatment. I just had my post treatment fibroscan done and it went from 15.5 to 8.8. I watched every ping. All were in the 8's except one 6 and one 12. Amazing really. I know my liver has a way to go yet as f...	Gracie	88	3778	Jun 16, 2016 by Tig
	Mitochondria Antibody! (Preview) So, I had two sets of blood work done on Tuesday, my regular ones from my specialist and some Thyroid from my GP. My thyroid tests have come down some but I noticed on the lab report something that seems totally unrelated. Mitochondria Antibody ** I google and read and it just seems and I don't know why h...	Shadowfax	16	1518	Jun 15, 2016 by Tig
	Interferon/Parsonage Turner Syndrome (Preview) I have been searching to see if there is any relationship between the two. I was hit with this syndrome 6 years after interferon. It took specialists months to diagnose. I doubt that this was a result of interferon, but I do hope that if someone else did a Google search, they might find this.	Re-Buy	4	1472	Jun 15, 2016 by Loopy Lisa
	Nearing normality (Preview) hi everyone hope all is well and copeing with the addons thus far I would like to say things are improving with myself the awfull thoughts and depression if much less frequent and easier to handle.. supprisingly work is becoming much less of a challenge and just over the last month ive felt almost norma...	Lawmatt	5	1026	Jun 14, 2016 by Loopy Lisa
	8 days Post Tx (Sovaldi/ Ribavirin) (Preview) Getting back to some sense of normality with life. I would say the fog has dissipated ~98% from when on Tx. I find myself not dreading having to do an errand or chore now. Find myself at least thinking about resuming some major home projects and getting out to do some recreational activities. Seem to get...	Linuxter	19	1360	Jun 9, 2016 by Linuxter
	It's back! (Preview) I started my tx sept 4th last year on harvoni and riba 12weeks EOT November Dec I went for 4/wk post tx and they said it was back...I'm one of the low % that the virus has come back, They did offer me retreatment but it was a trial with many ifs and buts..I have declined tx for now as my body is feeling battere...	liverish	23	1618	Jun 9, 2016 by liverish
	For those of you who are cured.. (Preview) Do you ever stop being afraid of your blood? I have read that once an individual is cured, the antibodies still show, but there is no longer risk of transmission to another individual. Since dx in December, I bought everyone in the house their own set of nail clippers n such. And I tell my son things li...	Skimily	6	1185	May 30, 2016 by robertsamx
	1yr post start of Tx with Harvoni (Preview) Hi everyone , its been a year since I had to have the pancreatic mass tested before treatment. I had my 1 year follow up CT scan , and the mass is gone, resolved, history ! So a Christmas Miracle for me . The doctor seemed dumbfounded, as it wasn't a pseudo- cyst . He asked me if I had been drinking l...	Michaele	28	2245	May 29, 2016 by Bestmomy
	Mission accomplished (Preview) Hi all, Even folks with genotype 3a, stage 4 cirrhosis, HIV+ and 2 failed attempts with PegInterferon & Ribavarine can achieve succes with these new meds. My latest lab results confirm that 3 months post treatment I am HCV free, my 20 year battle is over and I feel good. Not James Brown-like I fee...	JakeAms	19	1247	May 26, 2016 by Loopy Lisa
	After SVR can liver disease worsen? (Preview) Hi friends, sorry for the gloomy question, however, I've not been feeling great of late (chronic fatigue, etc.). I've also developed a suspicious bump on my right hand, which I have had checked out by my GP and ultrasound and it has been Dx as early Dupuytrens contracture - and so I'm wondering about th...	Transient	7	1244	May 13, 2016 by Pablito
	A little concerned. (Preview) I had my EOT blood work done one week ago and repeated yesterday from my yearly Physical. There have been some changed in my LFT's and I am concerned and have a call into my NP for her opinion. I still do not know about VL of B or C Last week This week ALP 68 ...	Shadowfax	14	1095	May 12, 2016 by Shadowfax
	The fog has lifted (Preview) Just a week since tx ended and I already feel like a new person. I actually organized my shoe closet today along with a huge box of nail polish and not one shoe got thrown, nor a bottle of polish broken I also haven't walked circles around the house trying to remember what I was doing. I can still tell the ri...	Firechic19	21	1453	May 11, 2016 by Sydhanrahan
	4 months after stopping Ribavirin and Sovaldi (Preview) Hello Everyone, Well, it has been 4 months since I completed my 3 month treatment for HCV GT2 using Sovaldi and Ribavirin. The Ribavirin did wack me out during treatment and these symptoms of fatigue and episodic rage lasted 2.5 months post EOT. I definitely noted a return to self at 2.5 months - especi...	Gifthealth	13	2207	May 9, 2016 by Bright_Lamb
	still UND at 2 year mark! (Preview) Happy Friday good people! Just got back from my 2 year post treatment visit with my liver specialist and I'm proud to report I am still "HCV Not Detected"! Still going strong and labs are looking good. AST - 12 and ALT - 6. I will see him again this time next year and if my insurance company approves it he wi...	Enavigo3891	4	971	May 6, 2016 by Enavigo3891
	Sov/ Riba EOT --- Just Sayin' Hi (Preview) Only been two days since EOT (4/12/16) but the high intensity of the Riba is starting to back off just a little. Quite a relief being done with Tx ... as you all well know. My EOT CBC and CMP looked good ... Hb was only down to 12.9 which is pretty amazing and should bounce right back, ALT was 18 which makes me h...	Linuxter	35	1956	May 2, 2016 by wendyo
	One year post treatment and now possible RA? (Preview) Hi all since I haven't found much improvement in my hands and feet hurting since treatment I finally went to the Rheumy doctor. I had x rays of both hands and feet and lots of blood work done. Blood work was normal but the xrays are showing what they feel is inflammatory joints in my left foot, which is th...	fourlocos	19	2177	May 1, 2016 by Observer
	Cirrhosis is gone! (Preview) Hi guys, I've had Hep C since I was 1 year old - discovered only at 11 years old due to a decompensated cirrhosis event (burst varices and blood vomit) which repeated a couple more times. Other complications came in time - such as encephalopathy, high ammonia - yet no ascites in the belly, but definitel...	SickPuppy	11	1547	Apr 26, 2016 by dustbear
	Hi everyone... (Preview) Just wanted to say hello and let you all know I just got my 24 weeks EOT results and I'm now SVR24. My post treatment fatigue has resolved itself about 8 weeks now and everything is great. I have good energy and strength and I'm back to my heavy weightlifting and 2-3 hour walks with my dog. To those like me wh...	Jaded	6	1178	Apr 23, 2016 by Cinnamon Girl
	ANOTHER DRAGON SLAYED! (Preview) After so many years, the third time was most definitely the charm. Met with my hepologist today, and she gave me the official SVR 12 (actually 13) weeks still UND! I just am really finding it so hard to believe. I talked to her for a bit about me, and my tests etc., with my platelets rising and AFP normal, an...	Gracie	27	1301	Apr 21, 2016 by Jaded
	Hey old friends and people I haven't met... (Preview) Hey old friends and people I haven't met before... It's been just about a year since I've logged in here but I think of you folks often! I hope the world has been treating you all well and I'm super excited to see that the signature line on the bottom of some people's posts have three wonderful letters a...	Enavigo3891	4	1103	Apr 10, 2016 by wmlj1960
	Cool paper (Preview) Hi All, have a look at the abstract below, just came out. The kind of paper I like to see. When I was told I am F4 I googeled it, as one does, and stopped rather quickly, in a very somber mood. Looks like things are not quite as bad with SVR, hopefully.Cheers, TomSurvival of patients with HCV cirrhosis and s...	movebo	2	1003	Apr 7, 2016 by movebo
	Eyes on Harvoni (Preview) Hi All, my liver still seems fine, so here comes a story about my right eye... In 2014, when I was blissfully ignorant of my HepC , cirrhosis, and all that, I noticed some reduced field of vision in my right eye. It was checked out, and was diagnosed as a "vascular issue", and to be kept in view. Then came the...	movebo	2	1512	Apr 2, 2016 by Canuck
	EOT +3 month VL still UnDetected. Hurray (Preview) i feel great. I have energy. I can eat. I can go for long walks again. I went to my integrative Dr.( that I credit with keeping me alive through my horrendous 32 year battle with the dragon and all the ever changing immune disfunctions that accompanied) and got some drops to detox the riba out of my system...	Observer	10	1487	Mar 27, 2016 by Observer
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