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Hep C Discussion Forum -> Post Treatment -> ANOTHER DRAGON SLAYED!
Post Info TOPIC: ANOTHER DRAGON SLAYED!
Jaded


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ANOTHER DRAGON SLAYED!
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Excellent news Gracie...congratulations!

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64 year old EOT 10-28-15,SVR24 April 21 2016  ALT-12/AST-23 June '19 - fibroscan 6.9 F-0 July '19
dustbear


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Gracie oh Gracie!  I am so happy for you.
Just read your stats that say you were at 6 million, omg!

It's been 2 years for me and the ultrasound & fibroscan show my liver has healed halfway (from almost F3 to F1/0-borderline) so it will take another couple of years for me.

Like Malcolm said, there will be patchiness so have no fear, you have won this battle. 

Time will heal your wounds and memories.

 



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Observer


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Fantastic news! Hurrah and congrats.

Bless,

Alison



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 
mallani


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Gracie,

A normal sized spleen is great. However there is quite a range of 'normal'. In my experience, a longitudinal axis length of <13 cms is normal .The best thing to do is to compare the size with that of previous Ultrasounds or CTs etc. In my case, the splenic length has reduced from 12.5 cms to 11 cm. The first sign of portal hypertension is mild splenic enlargement.

'Smooth surface' doesn't mean a lot. I have always had a smooth surface. By the time the surface becomes nodular or irregular (on ultrasound), there is advanced liver scarring. CT or MRI are better at seeing early nodularity.

A normal liver has a homogeneous echo pattern on ultrasound.i.e. it has a regular grey appearance. Just a bit of fat or fibrosis will show as a bright spot, and then the echo pattern is called heterogeneous. This is very common in normal adults.

So relax. Get a followup in 6-12 months, but keep the present images and report for comparison. Enjoy life.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JimmyK


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Another sister cured!

What fantastic news!

All the best!aww

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Cinnamon Girl


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Huge congratulations to you, Gracie, your SVR is so well deserved!!!  w00t.gif  biggrin

You`ve been through some very difficult times on your journey to this point, and you kept on fighting and never gave up!

We all really appreciate all the support you`ve given to our members, and I hope you`ll be staying in touch.

I wish you a very happy Hep C free life...  you`ve certainly earned it!!   sun.gif



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Mike


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Gracie you do fight like a girl.  You go!!!!!, since I can't give you a hug, you will have to accept my congrats. Prayers get answered and this is one of them.  Thank God we have this medical technology. I am so happy for you, I am beside myself. Great news Gracie!!  



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1-18-16 referred to gastroenterologist;  AST 191 ALT 246, Viral Load 1,976,000, Alpha Feto Protein/Negative for Cirrhosis. Genotype 1 a. Tx began 3/9/16 Harvoni, 8-12 weeks

 
Tig


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It has been an honor to have you with us Gracie. You have provided so much help and support along the way yourself, it has really come full circle. You earned your SVR wings, that's for darn sure and we're thrilled to have been able to support you too! Enjoy the thrill of success, I can relate to the excitement of knowing you did it! smile



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Gracie


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Thanks everybody! You guys are amazing friends and the only people I've really talked to about all this.

It has been one long road Scruffy, and at one time I thought I would never reach SVR. I'm relieved, so happy... Still can't believe it. Every time I remember a big smile comes on my face. 



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Scruffy


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Great news Gracie!!!

Its great to see some ppl who started on the "wagon train" with me finally reach there destination. SVR 

Congratz.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Rufus1


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Great news Gracie Welcome to the other side.    A



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start treatment harvoni 12/8/2014 undetectable 01/07/2015  EOT undetectable  14 weeks svr  9 month eot Undetectable
Sydhanrahan


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Hi Gracie,

I'm sure Malcolm will come by to give you the added reassurance re no focal lesions. 

Your test results sound great. Maybe when we have been so worried for so long we're fearful of just accepting good news at face value, because if we do, and something bad happens, we'll have to armour up again. it doesn't make any sense logically but I think it's just our way of coping with stress generally. Once we think we've seen a bear's eyes at the entrance to our cave, it's hard just to turn over and go back to sleep even when we know it was just a couple of stones glistening in the moonlight.

So looks like you'd better just take a deep breath, and start living your virus free life.

So happy for you.

Syd



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Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
wendyo


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Awesome news and then Malcom's update make this a WINNER.   Good for you lady. I know it's been a long bumpy ride. 

 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Gracie


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Thanks Malcolm,

So the patchiness is most likely fibrosis?

And I'm thinking a normal sized spleen is good evidence of no advanced cirrhosis too? 

And it being smooth, would a badly damaged liver not be smooth? They certainly don't look smooth in those pictures they show right? Would that show on an ultrasound?

Just reaching for some news that this is a somewhat good result for my own piece of mind.

 



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Canuck


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Wonderful Gracie!

"So stoked" you say ... boy,  I GUESS SO! Feeling better, F decreases to look forward to, not too bad U/S - yup ", I'd take that too!

So nice for you. What a delightful degree of relieve it must be. So well deserved, after all your long hard work. So true " it's a whole new world". I hope you feel enveloped with new comforts.

Really happy for you.  smile C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
mallani


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Congrats Gracie.

No need to worry about the Ultrasound. I too have 'heterogenous' liver parenchyma. It just means some patchiness in the echo-pattern. Whether it's due to a bit of fat or fibrosis is not important.

The big thing is ' No focal lesion'. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Shadowfax


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Congratulations Gracie!

What wonderful news. The part of your liver regenerating is even more music to the ears.

I am so happy for you. It was a long run and it paid off.

Just awesome.

 

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Gracie


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Yea, that cyst has been there a couple years. She said no issues with that so that's good. Actually glad to be getting regular screening as it will pick up other things too. Good for the worry part of my brain.



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
wmlj1960


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 Hopefully Malcolm will drop by and clear up the parenchyma comment for you but other than that it looks good to me. That's obviously a benign cortical cyst since no further comment was made so don't worry about it. I have one too in the upper pole of my left kidney. They'll check it again for comparison in 6 months. No focal lesion is good news. You've got me beat with normal gallbladder, no cholelithiasis, unremarkable spleen and no free fluid. I'll be interested to see what Malcolm says too.

 

 

EDIT - You beat me to it Tig

- Edited by wmlj1960 on Friday 15th of April 2016 10:00:34 PM



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Tig


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Sounds like you've got a bit of a fatty liver issue going on there. No lesions noted and everything else is unremarkable. There's a small cyst in the right kidney, but it doesn't appear to be a concern. Malcolm can elaborate on this and I'm sure he'll provide some input when he checks in. 



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Gracie


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Must be the excitement... Lol. Here is the ultrasound test. Maybe somebody can explain it to me.



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
movebo


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Excellent, Gracie, congratulations! Three runs alltogether, but now it is over, done and dusted. Great!
Cheers, Tom

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M, 57 (@Dx, 2014)

7/14: VL 4E6, F0-2 MRI TE

8/15: biopsy, A2F4 (no good)

SOT 8/15 - Harv./RIBA 12 wks

12 wks post: UND, ALT 21, AST 21, GGT 23, platelets 206

5/19 (44 month post): UND, ALT 34(?), AST 24,  GGT 22, platelets 240 
Linuxter


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YaaaHooo !!!

CONGRATS, Gracie ... Wonderful News ... long road but you got there ... nice goin' !!

Great prognosis on the Liver too ... great stuff.

I too just love these posts, Thanks for sharing the Wonderful news!!

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
wmlj1960


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Gracie wrote:
 I've attached my awesome VL test, as well as my ultrasound results which is a bit greek to me, but she explained it wasn't too bad so I'll go with that.

 I see your VL result attached twice. I imagine you are so excited that you missed posting the ultrasound result. If not, and you need help posting it then let me know. You go SVR girl!!!



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Firechic19


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Congrats Gracie! That's awesome news! I absolutely love seeing posts like this, it's very uplifting and inspiring! I could literally feel your joy in your words.. The conclusion you added is the best! All the best to you sister!

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34yo, Dx 07/15 HCV GT 1a, Vl:178660, F0/A3, ALT:213, Viekira Pak/Riba-12wk Tx started 2/6/16. *3/10/16-UNDETECTED@4wks! ALT/AST18,..4/7/16 -ALT/AST13 Still UND@8wks! 12/15/2017 Still UND!!!
Tig


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Congratulations Gracie! That is so cool  I've been waiting for your good news and here it is! I'm so happy that you can check this off your list. I know how excited and stunned you probably feel. Revel in the joy and excitement! Well done... 

 



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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wmlj1960


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That's awesome news Gracie!!! I was wondering when you were going to post this news because we knew you had slayed that dragon. It's been a real pleasure riding with you on this 24 week ride. We are free to live our life and I have no doubt that we can regress to F2 in time. Thanks for all the support you have given to everyone here while having a tough time keeping yourself on the rails at times. Congrats!!! PARTY TIME!!!  SVR!!!



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Gracie


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After so many years, the third time was most definitely the charm. Met with my hepologist today, and she gave me the official SVR 12 (actually 13) weeks still UND! I just am really finding it so hard to believe.

I talked to her for a bit about me, and my tests etc., with my platelets rising and AFP normal, and she said she absolutely expects me to come back to minimum F3 maybe even F2. And she told me that unless I got another liver condition or started drinking heavily, that my liver should be fine from now on. Everything is working as it should, and will continue to. Still a slightly higher than somebody who never had hepatitis of getting HCC, but only slightly. Bloodwork is now every 6 months with an ultrasound, and she may even change that if my fibroscan shows improvement in the next 2-3 years. I've attached my awesome VL test, as well as my ultrasound results which is a bit greek to me, but she explained it wasn't too bad so I'll go with that.

So stoked! And I have been feeling better for sure. Pains in hands and feet only occasionally. More energy. Sleeping better. It's a whole new world!

Conclusion: all the pokes, pills, scratching, bitching, pill paranoia, ice cream binges and phantom aches have been totally absolutely 100% worth it! Power on dragon slayers... We've got this dragons kryptonite! 



-- Edited by Gracie on Friday 15th of April 2016 08:30:34 PM



-- Edited by Gracie on Friday 15th of April 2016 08:31:02 PM

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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
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