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FOUR YEARS!
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Hello old and new friends - Happy Friday to you all. So this coming Monday 2/11/18 marks the 4 year anniversary of the day I began my Sovaldi/Riba journey. And 84 days later I was tired, weak, and angry (RibaRage)... but I was UND. I posted a few weeks ago that I hadn't had my annual check up at the liver spec...
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Enavigo3891
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3
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1501
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The waiting, is the hardest part
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...after my final EOT labs, which were collected yesterday. Everything, excepting my weary kidneys look good. My GFR dropped to 45, Creatinine 1.57, so that needs some work. Ive had crummy GFR numbers before and improved them to over 60 again, by being more vigilant about Drinking Water, which I adm...
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LamontCranston
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16
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2122
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Done, done, done, done
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Hopefully I am done with HepC2b for good. Last Epclusa was Monday the 16th. My labs have shown No Virus Detected since 4 weeks. Wow. Sure is nice to be posting in the Post-Treatment section...:) I have 2 more labs scheduled, Nov 20 and Jan 18 in the new year. Fingers crossed that I will be Free Of C.
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LamontCranston
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13
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2580
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EOT Undetected UP YOURS DRAGON!!
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well....I'm here in post treatment....is that right? EOT Undetected again... https://goo.gl/images/1XS8Qt my results today show Alt levels went from 190 (0-50 range) in October 2016 and are now at 17 they said my bloods were all good so now have to wait until October for next draw. I have no liv...
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Jaggles
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42
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4086
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Hey Strangers
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Hey there old friends! I think of you often and figured I would just drop in and tell you all that! It's hard to believe it's been almost 4 years since I treated - crazy how fast time goes. Interestingly my doctor didn't test me this past May like he had the 2 years prior. I was tempted to ask for the test any...
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Enavigo3891
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3
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1521
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5 point drop in Fibroscan following 2 years SVR
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Just thought I'd share my encouraging news that 2 years on from successful treatment I had a fibroscan today... And I am now 9.2 down from 14.2 4 years ago. Not sure what to read into this but its much better than the news of old when every trip to the hospital would end in bad news! -- Edited by Midnight on Mo...
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Midnight
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4
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1622
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Completed treatment of Epclusa and Ribavirin and have SVR at 12 weeks
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Hi everyone, Tig you had asked me awhile back what meds I was on in the clinical trial I was in last year. And I didn't know. Well I found my card that they gave me with the information on it!! The product numbers are MK3682 and MK8408. It also says protocol number MK3682-035. If that means anything. Do you...
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Mary
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4
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1575
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My yearly
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I went for my yearly bloods and ultrasound. The ultra sound came back with a dilated common bile duct. ( think I remember it always being like that) My hepc Doctor wanted a mri. All came back normal. I had all the blood work but before I went back he added another viral load test even though the one I had cam...
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Scruffy
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9
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2297
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just had liver tumor ablated by RF
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I hope that I'm posting this in the proper place and if not, then maybe the mods could move it. Hi all!! Been away for a while dealing with a tumor that they found on my liver. I was seeing another GI doc about a colostomy and other issues and on one of the ultrasounds [that I requested] the radiologist sug...
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VetwithC
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19
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3120
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Alcohol after successful treatment.
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Thinking of a drink or two once you have achieved SVR ? You may find this article interesting !! http://www.hepatitiscentral.com/news/having-a-beer-after-svr/
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Paul B
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40
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5629
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Joint Problems After Treatment
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Hello all, It's been a while since I've posted. I'm 2 years 11 months post treatment and I'm starting to develop joint problems--back, thumb, wrist, and knee, etc. I'm starting to wonder if these problems are related to treatment? I know many will say, well you're getting on up in age, but my dad who is 8...
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skewedButNotBroken
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9
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2501
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Checking in
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Just stopping by to say hello. 18 months zero hep. Just want to tell all to keep up the good fight! G out!
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G Man
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5
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1761
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Just wanted to say Thank you.. ^_^
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Hello everyone, I just wanted to say Thank you to all of you, from the bottom of my heart. It has been 3 days since my last dose of Epclusa, and I have a doctor's appointment to get my results on October 13th. Three months ago, when I first started treatment, I was so scared, and I didn't know what to do or wher...
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legionscube
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5
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1642
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hay y'all. Doc said I'm cured. I didn't want to argue about it...but does SVR = cured?
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Greetings my C friends. I've been out of touch for a while, hope you are all doing well. I'm doing very well. From an email I received from my C specialist: "On June 29, 2017 there was no Hepatitis C virus detected. This is a cure." Wow. Thank you all for the help, information, and guidance given. I know, it...
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JamesP
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4
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1857
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EPCLUSA/RIBA FOR THE WIN!
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So...I just got the call from the liver clinic saying my 12 week post-treatment labs showed HCV RNA "Not Detected" - hallelujah! I still feel (and worse, look) like a human water balloon, and am feeling a bit of disbelief that the virus is really gone (and fearful that it won't stay that way). Now to de...
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BetterLate
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6
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2095
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catch up
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Hi all. Thought I would drop in now and get in an early best wishes to all for the season coming up. Life is still pretty good for me, even though its been a rough year with a lot of general life stuff that happened - 1 after the other - but got through it all with my motto of 1 foot in front of the other. Its been ov...
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perry
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5
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2528
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Hyper-pigmentation cured??
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Hi everyone,
I have recently finished epclusa and came out undetected!
Now that summer has approached, I have noticed that the skin pigmentation I once suffered from when my skin begins to tan has completely gone? I have had it since I can remember, it appeared as many freckle-like dots down my stom...
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GoldenCurls
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3
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1562
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Blood Test
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Hello Everyone! I have not logged in for over a year. I just want to say thanks for the support during the meds. Quick update, I am still undetectable, YAY. I still have a lot of nausea in the morning and pain in my right upper quadrant which sucks. I was only F3 with some scarring. So, I have to d...
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Scott18927
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2
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1429
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Post Treatment SVR HCC rates?
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I am hearing conflicting reports about svr and the increase of HCC. Can someone give me some stats/thoughts or news on HCC post svr? I have been SVR for almost 2 years - but i do have cirrhosis. Hope everyone is well!
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JLynch30
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16
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3454
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"Mild cirrhosis"...?
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Today a nurse called on behalf of the NP that is handling my Hep C case; she reports that the recent ultrasound showed no change, just some suspected "mild cirrhosis". I pressed her to define "mild cirrhosis" in real medical terms,asking her if that was like stage 1 cir...
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hrsetrdr
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30
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5852
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CIU (chronic idiopathic utacaria)-Post Harvoni treatment
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Has anyone developed CIU (chronic Idiopathic Uticaria) post Harvoni tx? Finished Harvoni 8weeks tx in May 2016. January 2017 severe hives (daily), itching (daily), angioedema (x2) Currently taking 360mg of Allegra twice a day plus Zantac, (prednisone 40mg -Dr took me off, replaced with Zanta...
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Esrun13
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2
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1651
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Autoimmune Disorder secondary to Interferon Treatment
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C-Kat 1969 underwent the old Interferon treatment for a year ('03 -'04) and it was apparently successful despite although it having been physically rough. I appreciate Jimmy K's remarks regarding the changes that have improved the quality of treatment in the last few years. My only regret is the s...
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C-Kat 1969
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2
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1319
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Cirrhosis
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Any treatment for cirrhosis on the horizon after successful treatment? Is anyone getting reversable scarring results?
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JLynch30
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3
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1355
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Transmission
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Hello there I am a 27 year old female. At 19 I found out I had contracted Hep C from my mom. I did pegasus treatment and since then have tested negative for a viral load. However I still test positive for the antibody. Can I still transmit the disease to others? I am concerned that my 9 month old daughter and m...
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hepcbybirth
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2
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1189
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Lingering Depression
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1 2
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i have a question for all if i may i am 7 months out of treatment and cured SVR and stoked , These are the thing i struggle with day to day Linering depression i mean like once a week major breakdown and exausted i am on treatment and talking with the relavent people side of quad muscles top of legs always so...
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Lawmatt
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66
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8683
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7 Months post Harvoni treatment problems, please Help.
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Hi, I have started Harvoni treatment on 05/2016 finished 08/2016 Had 12 week treatment plan. While I was on treatment I have had severe brain fog, just couldn't think at all. Severe fatigue bedridden. And extreme light sensitivity all the time. I started of with low viral count, all organs wer...
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Slavik777
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23
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3667
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Two years after Viekira Pak-Undectected
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Well its been two years post treatment and the VA ran another test. Still undetected and The ALT And AST are both very low. 20 and 31. I guess I got lucky. I know I had the Hep C 1A about 30 years and no real liver damage and Undetected since the first test. Sure sounds cured to me!. Good stuff Viekira Pak. Good...
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lonewolf
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9
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1789
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Did Harvoni cause my medical conditions
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Hi there it's been a long time since I've been on this board and sorry that I haven't been keeping up :(
Anyhow I was one of the "lucky" ones to get Harvoni when the FDA first approved it 10/15. The Dr put me on 6 months of treatment becuz I was a former non responder.
Went thru treatment no side affects I was...
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julia1065
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13
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1920
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Harvoni-My Security Blanket
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I finished my 8 weeks of Harvoni on June 13 and tested UND at end of treatment. I take my SVR test after Labor Day. I was telling Gojuman (Mike) that taking Harvoni every day was like a security blanket. I had no side effects, whatsoever, so when my 8 weeks was up - I wished I had 12-just to keep on putting up...
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singsong
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47
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3872
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Things are looking pretty good
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Hi All, long time no post, I am rather busy at work again, after a nice cruise down the coast of Norway, which messed up my BMI targets pretty good (it is 28 again). But I still read the forum a lot. Just got my EOT+43 weeks stuff: HCV PCR: TND (<15), ALT 17, AST 19, GGT 22, AFP 4, and the ultrasound reports...
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movebo
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1462
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