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Post Info TOPIC: Done, done, done, done


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Done, done, done, done
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Canuck
Funny.....

"I don't think you fit the picture tho, not "fat, fair, female, fertile, forty" etc., etc., .... BUT you do have the prerequisite "flatulence" and undefined abd something complaint. You are definitely are over 40. "

I was sort of a pistol when I was 40, now I am more like a mobile home.
I may still be fertile, but haven't been trying lately.

My GB looked ok on a cat scan a couple of years ago. I am pretty sure it's a latent food allergy, as some times, I just don't have it, at all, but most of the time...I do. I have tried laying off various food types, and so far nothing really seems to be the cause. I kept a diary of everything I ate and the results, for 5 months. Nothing seemed to be the one thing...

I am doing a WeightLossJihad to see if that will balance my BP and maybe , if am lucky the gas, too.

__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT



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On second thought (that I do not have anything to say about "gas"?) ... if you even own a GB, I will feed you some likely useless paranoia.

Of the multitude of far more likely reasons for gas, a lesser culprit can be a back-firing GB.

I don't think you fit the picture tho, not "fat, fair, female, fertile, forty" etc., etc., .... BUT you do have the prerequisite "flatulence" and undefined abd something complaint. You are definitely are over 40.†

Have an ultrasound one day?, bili, AST, alk phos, sed rate if all of those show up weird at the same time, think sludge or stones. GB is not likely tho, especially in the case if you already had yours out!†wink†C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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Well, I am VERY glad (overall) that the VERY good bits are helping to outweigh the bad bits!†

NIGHT GAS! eww, and AM "venting"? jeesh, your wife must be a saint, or, is just awful fond of you, or ... maybe just used to you? heehee

JUST TEASING!

Why is it when you get gas, people most often say, gee, maybe it's sumpin you're eating - uh, ya, duh, that pretty well sums it up, hm something going through my digestive tract, what a novel idea, even if it is just right along with all the air I am swallowing! I can't think of anything useful to say to "gas", ... how about ... you're not still taking anything for regularity are you, as there is now no "need" on that front?, and/OR are you still taking your probiotic stuff? Maybe experiment with more or less of your probiotics? I dunno. Gas is no fun, I am sure it is not as hard on her, as it is you.† †

It IS very nice to be able notice losing some of these otherwise formerly unexplainable things we used to have eh? That was a big honourable mention for me too, having that weird mystery "liver" pain (or whatever it was in me) just up and go! That and no more oedematous ankles! Those alone pleased me no end. Miraculous these drugs, and how we can so (relatively) easily kill that horrid virus off nowadays. I love Gilead, no matter what they may look like.

Being that we are all waiting patiently for your EOT+12 week UND party, that reminds me ... Tig tried to clarify this/ask you, and I also took a stab at it - in various past posts (here and there) when we noticed you updated your sig line ... the day you put your EOT UND in as:†... "Starting EPCLUSA 7/28/17.No Virus Detected on†November 20, 2017 3 months after EOT" ...†

If your SOT was Jul 28 and your EOT date was aprox Oct 20, then the UND you added to your sig line was your EOT UND, and this next†upcoming UND is going to be your EOT+12weeks UND (3 months after EOT), right?†

If we are all coming over to your house for this next big SVR UND party you better be given us the right date. I don't want to show up late, nor too early. What's the address, and what can I bring?†wink†C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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All things considered, if I exclude the eyeball attack, I am feeling pretty dam good. gut issues more or less gone, except some gasiness at night. Kind of odd, but even that isn't all that bad, just annoying to have to vent like a bouncy house when I wake up.

I used to get spasms in my intestines all the time when I first got MS, it would trap gas in my gut and was extremely uncomfortable. This is kind of like that. But the chronic constipation just got 100% better, so I'll take it. No more liver pain is nice, too. I had a dull ache almost all the time prior to treatment, upper right quadrant, that felt like some kind of back ache. It's gone...bybye.
So other than the fact that I shouldn't eat any nuts, seeds or other arginine rich foods. (herpes loves peanut butter)....I feel cured.

I have planned a trip to New Orleans for the Jazz Heritage thing, then off to Idaho-Montana-Wyoming to scare the trout, then early Fall, we are going to Alaska for a month, for more fish scaring and to see ANWAR before they murder it with drilling rigs and mining pits.

__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT



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Glad you got my old PM.

Very glad the repeat whopping 800 mg course (with ointment at same time) seems to have done the job, this time. Much better idea now, of the order of the hell you have had to put up with. She sounds like the gal to be seeing frequently (no pun intended), good you and her were, and are, both on it. Worth trying all of the above, from nuts to A. Ya, I certainly was not thinking about Copazone while you were on Epclusa nor when you were finished epclusa, maybe you had mentioned being on that once before, but that certainly was not on my mind when your herpes simplex thing hit you. I did recall long chats about laxatives, painkillers, etc, but forgot about being on Copazone, if it had come up in the past.†

You and your eye gal sound like you are doing everything possible you can.†

How many times in the past, have you had any troubles with herpes simplex? Just curious. Are you (normally) like most folk, and just have a lip sore from time to time?

My partner gets them on lips, but sometimes inside his oral cavity/gums too. Thankfully not too bad though and quite infrequently. My Dad got a bad case of simplex right on his ass **** (orifice) last year, was reaaaaaaly uncomfortable, they gave him the same course 800mg 5Xper day too. The anti-virals gave him a bit of diarrhea as well for a couple days, just so as to add insult to injury like! He had just finshed too many rounds of antibitoics for persistant recurrent UTI stuff, then, some time later the herpes just decided to attack his butt. If I had to choose a spot to sport an simplex, it wouldn't be my eye, nor my ass, nor anywhere if i could help it.

As a 20ish-something year old, I had a bout of shingles once, side of hip/thigh, felt a liitle off for a day or so, thought maybe fluish, did not sleep well, intensely itchy area on my hip during the night, woke to an inspection of the trouble, blistering developed and developing and half raked open, during my disturbed half-sleep - got to doc for a diagnosis, but no treatment, it just resolved on it own. That was so many moons ago, like early 1800's, so maybe they didn't have good antivirals then, anyway, years later when I understood how herpes zoster works, I have always been a little fretful to have another attack of it, I got off VERY lightly with my one bout of zoster.†

So unfair these things that seriously mess up all good planning to heck.

Steady as ya go bro, keep treating the temple with kid gloves and TLC, how is everything else in the store, regularity-wise and energy-wise?†wink†C.†



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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We started the Pred when she thought it was inactive, about a month in to treatment with Acyclovir.
At about 2.5 weeks, the infection roared back, so 2 day taper, then added Zirgan optical gancyclovir.

With Acyclovir 800 x5 and Zirgan at 5 x day it finally began to abate, but was stubborn as hell. (Simplex)

She suggested laying off all nuts and arginine rich foods, too, and suggested Lysine in AM on empty stomach with 16oz warm water for optimum absorption.

Also said VitA might help, but no data to confirm.

She has advanced training and certs for ocular disease, so I trust her judgement. I think being on another immune modifier on top of Epclusa (Copaxone) could've made it difficult to treat at first. A war of chemicals going on.

Glad it finally stopped, for now.



-- Edited by LamontCranston on Monday 15th of January 2018 06:38:28 PM

__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT



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Poor Lamont and your eye!

I am straddling two threads here, info here and over there, but just wanted to share anything I can about your eye. You have my sympathy and concern alright, you had it from day one when your eye went rogue.

I am sure it will all work out in the end, and they will get it managed, and resolved, treated, but you (no doubt) wish it had resolved already, sooner. Me too. I hope this will not be much of a longer/arduous road for you until it IS resolved.

All I know is, that in your initial visit with your eye doc, she was right, these things are important to get on right away. And, all I know is that it is important,†(key) actually, to initially know the type of herpes it is (whether it is simplex OR zoster). I was just guessing it was zoster when you first mentioned it way back when, but this was never clarified.†

Back when this thing first started I had wondered why she would not have given you the Zirgan eye gel, at the same time you were on your initial course of oral Acyclovir 5 times a day, hard to say.

I found a link that I will PM to you, all about treatment thinking, based on whether it is simplex or zoster.

The only other things I have gleaned, are: the importance of†length of course†(or courses) of the anti-viral, situ's of doing†both ocular and systemic, and, that the use of ocular†steroids has to be well-timed.

Clarify if you will, whether she said right from the start (was that about mid-Sept?) that she thought it WAS zoster? And, how long (how many day of 5 tabs a day dosing) was your first course of oral acyclovir back then?

You saw her on Oct 19., but then what did you two do next and when?

When did you start the steroid eye drops, and for how long was it supposed to go on, and how many days did you actually get competed, before she stopped it?

How soon after stopping the steroids did you start taking the five tabs a day acyclovir again, in tandem with the Zirgan ocular gel, and how long does she say she wants you to be on both of these?††

I'm glad you are back on the oral treatment AND WITH the eye gel.

I can only imagine how uncomfortable it has been for you. Sorry for that, but very good you have many other things to be glad about tho! C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)

Tig


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Hey Lamont,

That eye virus has to be miserable. The obscured vision must be difficult to deal with, especially after so many months of it. I read in your other post that they tried steroids and you had problems with it. I had read that herpes could be exacerbated by steroids. Apparently thatís true? Sounded like you were just trying to reduce the corneal inflammation and the prednisone caused it to blow up again. That must be beyond disappointing. I hope you get some relief and improvements soon, youíre due!

The good news is your increased strength and well being following your successful Dragon slaying! Itís nice to hear the good news. I hope you make the same progress with that eye. I like your positive attitude and know youíll do it†smile



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



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Ok...My November Post Treatment Labs were NVD
But the dam eye herpes is still driving me bat****. Doc has me on Acyclovir and Gancyclovir (Zirgan eye goop) but it's still very annoying/sort of inflamed. Scarring on cornea has permanently clouded vision in my RT eye, so that boat has sailed in to a wall.

Ironically I feel better than I have in 5 years, if you don't count the dam eye infection. I am staying away from Arginine foods, like the Pistachios I love so much, chocolate, and other nuts, and am taking L-Lysine and D3 to prevent virus replication. Going on 5 months with this thing, hope it will just bugger off already!

But like I said, other than that, all is good, especially the gut, it is functioning quite well.

__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT



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Yay

Its a bit surreal knowing this horrid virus that has affected your life is now gone from your system, isnt it? Occasionally I still have to remind myself that I *had*not have... hep C.

Hope your eye is better.

Alison



-- Edited by Observer on Sunday 5th of November 2017 03:12:30 AM

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60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer†



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Lamont was wearing this (when he was last seen).

(He had to) we made him, it was a gift.

It was his (then) fav bio-hazard epclusa killer-time-bomb t-shirt.

Image result for picture of bio-weapon symbol

†His other fav t-shirt is below.†

Image result for t shirts with zero on it

How ya doing dude, we like yer duds, how's the eye thing. How's every other little thing going.†wink†C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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it is....very very sweet!

__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT

Tig


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CONGRATULATIONS, EOT, HOW SWEET IT IS!!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



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Hopefully I am done with HepC2b for good.

Last Epclusa was Monday the 16th.

My labs have shown No Virus Detected since 4 weeks. Wow. Sure is nice to be posting in the Post-Treatment section...:)

I have 2 more labs scheduled, Nov 20 and Jan 18 in the new year. Fingers crossed that I will be Free Of C.



__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT

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