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Hep C Discussion Forum -> Living With Hep C -> Maybe it's happening?
Post Info TOPIC: Maybe it's happening?
wendyo


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RE: Maybe it's happening?
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Wishing you all the best for your appointment. We r cheering you on and look forward hearing the course of action for dragon slaying

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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Bonnice53


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Hi Iris, It is wonderful to hear you are going to see a hepatologist. There are so many people here, who can assist you and answer any questions that you may have. There are many foundations that will help you with your co-pays on the treatment,too. They also help with your co-pays (doctor) and transportation. Best of luck~



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GT 1b,UND, Stage F4 cirrhosis,

Ist Tx. 2001, Peg/Riba; 2nd Tx, 2014, Harvoni (12 wks), 2015, 3rd Tx. 2015 Vpak/Riba (12wks) UND.
wmlj1960


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 It's great to hear that you're about to get the show on the road and kill that dragon after all. I'm very happy to hear this good news. Keep us up to date Iris. smile



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Cinnamon Girl


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Hello again Iris!  smile

This sounds like great news and a very positive step forwards.  Please don`t apologise for complaining... you`re not...  you`re just very anxious to get the Dragon off your back, just like everyone else here!  Treatment options have improved by leaps and bounds while you`ve been waiting, and I wish you the best of luck!

Looking forward to hearing how you get on!! 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
robertsamx


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Hi IRIS.  What good news. You have been waiting a very long time. I'm glad your getting in front of a Doctor!  Will you be in a clinical trial? Like Tig said, treatment options today are so good and all have good SVR results.  If you get into a trial, please post the trial number, I enjoy looking at the trials our members are on.   I wish you all the luck in the world!!  RC



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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tig


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Hi Iris,

I'm keeping my fingers crossed for you! You've waited a very long time to get this done, and I want to believe the reason is timing. The time is right and it's meant to be! I know you'll be prepared and we'll all be waiting to hear the news once you get it. Everything available now and in trials has been so effective. This is a much better time to treat than even a couple years ago. Good luck is yours...



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Linuxter


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Hi Iris,

We stand with you and an appointment with your Hep doctor is a very positive step forward.

As Jimmy has mentioned, there are options, pursue your current course until/ unless you need to alter it to get to where you are going.

You WILL get there smile

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
JimmyK


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Hello Iris.

I have a good friend in the area currently on one of the many local trials. Keep that in mind as well.

It will happen. No Maybe.

 

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Iris Dragonfly


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Hi folks, 

Welp I offically have an appt. With a hepatologist (spell?)

I had all but given up, my primary care person referred me to this place but I called and left messages 5 different times in about 3 or 4 different weeks at different times of the day ...always the answer machine.  So I had complained to my primary, who also tried to contact them, with no luck. The next nearest place is "over the hill" (a knarly drive at any time of the day or night, and since my premium and co- pay went nearly double this year, now driving extended miles and paying to park are not really in the budget)

I was attempting to organize the puonds of paperwork from the insurance and referrals when this letter sending me to the Hep Dr. sifted to the top.  I decided to call again, all the while wondering what kind of a Dr. doesn't return their calls. I about fell over when a live person answered. So...long story short, I see this guy at the end of the month. Considering all my appts. at USC and UCLA I'm not going to hold my breath or get excited or anxious just yet.

Please wish me luck!  I know I complain a lot,  just trying to do the best I can with what I got. Thanksbiggrin Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
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