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Post Info TOPIC: The waiting, is the hardest part


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RE: The waiting, is the hardest part
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Story of my life, investing too late. (NOW ya tell me about nano,! after you got in, I'll only drive your profit up).†wink†You shoulda invested more, as it is thought we underestimate how many humans walk the face of the earth who sport zoster and simplex, whether they know it or not. Don't underestimate that 70%.

So, what did you doc say/think about your ad-ventures with nettle tea, water and 1 gm of atrologos root every day? uh ... "astragalus" (sp)??? Ain't that loco-weed?

Are you still on your eye regimen of diet and sups?

Hows the bouncey house syndrome?

C.†



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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Oh...

I had this premontion about the stock market....so I started looking for stocks that do well in a bear market, like medical supply and research companies that have really promising drugs/treatments in pipeline.
I had the Gilead for a long time, before I even knew I has Hepc... haha.
Nanoviricides working on a vaccine/cure for Herpes 1 and Herpes 2 and even Zoster (Chickenbpox/Shingles) so I am just rooting for them, since 70 % of people on the North American Continent carry one , two or all three viruses. Sure is a lot of potential.

__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT



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It's not my doc who's a pessimist, it's the Natl Kidney Foundation, and a few other places online...

They are SO negative, and they say not to drink coffee, so obviously they are religious fanatics or something, a cult maybe!

My doc, only said " wow, well that's a surprise." Sure is a lot better than "Oh jeez, you do have an advanced healthcare directive, don't you?"

__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT



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Well, well, well Lamont! - that's great GFR news! Good to follow them for a while but I am guessing you are over any hump.

Have to wonder at your doc comments tho ... her "surprize" and that they "usually" go down, down, down - hm, she's a pessimist then. GFR's can†just waver, can just decrease with age, sometimes what with our vascular systems and all of our systems not being quite what they used to be, and a miliion other very good reasons for why our GFR's can take a dip or dive, including just the wear and tear and extra work of dealing with taking a plethora of assorted drugs (of all kinds), short term and long term. As remarkable as the liver is, what with it's astounding regenerative capabilites and being able to withstand so much harm, so too is the "work horse" kidney amazing, in it's ability to be overworked, how much insult it can impressively withstand, and how it can regain function even when pushed/insulted into harmed territory. Ever wonder why your little work horses are shaped like a horse "shoe" - for good reason - they take a kicking and keep on ticking.

So is it you, or is it memorex?? With long bouts (the insults) of HCV and extra drugs on the table (and now, after, with less drug work to do and given some recoup time) maybe your kidneys are just not so busy nowadays, oooor, was it all that nettle tea?††

For whatever reason I'm glad your 59!†biggrin

Now, you're kinda starting to sound like a gambling man to me! You mentioned investing in Gilead once (I have no idea if you were serious or jesting), now you're onto nanoviricides!

Wanna wager on your next GFR being in good form, I will! Tell your pessimist doc I'm on, for a 10 to one with her.

The nano stuff (as a promo announcement is interesting) but I'd love to read the beef (studies), so will now have to look those up.

Do you happen to hold stock in natural health products, you have been exploring dif ones a fair bit lately. Well, whatever pays a healthy dividend I say, if ya know what I mean!†wink

Yer doing good alright, real glad the GFR was good. C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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Ok....my crappy GFR/Creatinine numbers bounced from the meager 45GFR to a (drum roll) after 3 weeks of water, nettle tea, 1 gram of atrologas root (chinese kidney herb)... to 59 GFR...

I should be back up over 60 but even my doctor was fairly surprised, since it isn't really what kidneys usually do.They usually go down, down down..

So I asked her to do another GFR screen in a month to see if I can improve it a little more.

The traj is lookin good!

bought 500 shares of this, too...†https://www.prnewswire.com/news-releases/nanoviricides-to-present-results-on-successful-treatment-of-herpes-induced-acute-retinal-necrosis-at-the-annual-meeting-of-the-ocular-microbiology-and-immunology-group-omig-of-the-american-academy-of-ophthalmology-300537756.html



-- Edited by LamontCranston on Wednesday 14th of February 2018 12:27:04 AM

__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT



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Tig,

Well, you started it bro! er, oh .... well ... maybe I should re-state that a bit ... what i meant was .... that you and Lamont were investigating a zoster vaccine (over on one of Lamonts other threads today), but he has simplex! - just saying. But NONE of us are talkin viruses anyway, so I'm jes flappin my gums!†biggrin†C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)

Tig


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HSV1 is generally associated with oral herpes and HSV2 is genital. I believe you can get either, anywhere. Ifín ya know what I mean... Whatís with all this virus stuff anyway? I hate it!



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

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Congrats Lamont!† I hope to get the same good news on my SVR12 any day now.

To address Canuck's question, I have gotten fever blisters†most of my adult life (although not recently) and have been prescribed Zovirax ointment as a treatment.† I believe that is Herpes Simplex 1.



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ;†Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;††Ast-28

4 week:† VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

†Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay



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Hey Lamont,

I see you and Tig were discussing Zostervax today or whatever its called - that vaccine for herpes "zoster".

But is it good for herpes simplex too?? Thought they only had vaccine for herpes zoster and not for herpes simplex(s)? I will have to read up now!

You were doing battle with "herpes simplex" right?

There is herpes simplex 1 and herpes simplex 2, and then there is this whole dif kettle of fish called "herpes zoster".†

Brother, you guys force me to study up. Good thing really I guess.†smile†C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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Congratulations Lamont.

I hope you enjoy great health now.



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57 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2 year post tx- dragon slayer†

RLS


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WTG Lamont! I hope to join the SVR club in a few months.

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Male 54, DX 1992, GT 1B

2005 - Rib/Peg Relapse

2016 - 12 Week Harvoni Relapse

Mavyret (16 weeks), BOT 10/16/17, EOT 2/2/18. SVR 12 5/3/18



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The Waits now in my rear view mirror, so it's onward and upweird.

Found this little nugget about GastroIntestinal Gas....

https://www.upi.com/Science_News/2014/07/11/Scientists-say-sniffing-farts-could-prevent-cancer/3851405102633/

So I might live forever.

Thanks, Tig, for the celebratory "Woohoo".... It is almost a miracle. Even my GP commented that she didn't think they would cure HepC in her lifetime, and she's only in her 50s....

So Yes! woooooof-inghoooo!



-- Edited by LamontCranston on Thursday 25th of January 2018 09:10:53 PM

__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT

Tig


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Congrats, Lamont!†smile†It was never in doubt, but itís always nice to see it in writing. Another day this side of the real Rest Area and look, itís better than it was yesterday. Canít beat that with a stick, woohoo! I know youíll take advantage of every day, or almost. Iíll let you take a day or two off from all the celebrating, occasionally... donít take too much time off! Thereís a trout with your name on it...

Youíve earned this success, enjoy it



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

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Hey!

Lovely news bro!†biggrin

What an "informative note" your doc adds to his "UND" notifications.

That EOT+12 week UND sure feels good doesn't it, despite everything.

So, in retro, some of the "waits" surely must have felt loooong, and, some bits may feel short by now? Have you decided which are which?

Anywhichway, it has been a long haul for you, overall. I am ecstatic (indeed), without a doubt, that you a now free of that particularly nasty vile hep c virus! Good riddance to it.

What did the hep doc say to you at your last appointment with him about ALL of these most recent labs? Did you actually see him for a physical eyeball to eyeball, sit in the chair, and lay-on-the-crinkle-paper-type EOT+12 week consult/follow-up appointment, or, did you just get your SVR and the other labs by email?

Another huge milestone Lamont - EOT+12 SVR - just great! You're official now!†biggrin†C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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And the verdict is in...
_________________
re: Lab result
Greetings-
On January 22, 2018 there was no Hepatitis C virus detected. This is a cure.

Congratulations on your successful treatment for the eradication of Hepatitis C. The following are a couple of basic points you need to understand for the future:

Although the treatment was successful, you are not immune to Hepatitis C. If you become exposed again to the virus in the future, you could get Hepatitis C again.
When you were exposed to Hepatitis C, your body formed antibodies to fight the infection, but the antibodies did not work. There will always be antibodies to Hepatitis C found in your blood, even though the virus was eradicated.
If you have any questions regarding Hepatitis C, please feel free to contact me.
_________________

This side of the dirt has it's pitfalls and clods, but is way better than cremation, burial or ...

Now we need a vaccine!
Never take our foot off the pedal of scientific progress!

Now, all I need is to clean up my filtration system.....lose 30 lbs and of course, go fishing!





__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT

Tig


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Hey Lamont,

Well, here I am, enjoying another morning on this side of the dirt with you! Thats a good thing, right? Of course!

Medication can negatively impact the kidney function quite easily. Our use of various chemicals was never part of the plan when kidneys and livers were originally designed! I could use a little less sugar, more water and more money, too. I guess two out of three ainít bad!

Let us know when the results come in. Good luck!



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations† †Payment Assistance



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...after my final EOT labs, which were collected yesterday.

Everything, excepting my weary kidneys look good. My GFR dropped to 45, Creatinine 1.57, so that needs some work. Ive had crummy GFR numbers before and improved them to over 60 again, by being more vigilant about Drinking Water, which I admittedly have slacked off on. I'm sure being on Epclusa for 3 months and Acyclovir/Gancyclovir on top of it hasn't been fun for my kidneys, either. I know, Water!

I'm going to ease up on my favorite protein bombs and of course, sugar, and make a point to lose weight. Having been oin lisinopril and hct for 15 years probably has taken it's toll, too. Theoretically if I lost weight and got a little more exercise, my BP might not need to be treated. We'll see.

I thought I'd hear about my virus results, too, but those have taken a few days before, and my NP/Pharm is slow with the emails.

The eye booger (herpes in the eyeball!) has finally stopped eating my cornea, so that's nice. I hate it when they eat your vision.†

Getting old kind of sucks, by the way. But it beats the alternative.



__________________

Lamont Cranston "Only the Shadow knows."

65 years old, retired IT Network support 29 continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Starting EPCLUSA 7/28/17

No Virus Detected on†November 20, 2017 3 months after EOT

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