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Post Info TOPIC: Clean and Free
Tig


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RE: Clean and Free
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Hi Coco,

That’s a great report! SVR combined with a very good Breast Cancerversary, is terrific. Keep up the positive attitude and continued improvements are in your future. Well done! smile



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Canuck


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Hey jojo!

Glad to see ya here and for your update.

Nice report, on all counts. Glad you are doing well. As it should be. Thank god for modern medicine eh? But, as well, what we still go through to get and stay healthy and with the living! 

You have done particularly well I'd say! 

All us commonwealth gals (in the United Nations dept of liver health) have done super well!

I am glad you have been busy and have had a busy year. What life and living is all about! Good on you. biggrin C.

PS - So, they cancelled your SVR24 VL and LFT test on you eh? Well, speak to your regular family doc about that - they may be able to assist you in getting you your VL checked, and, it would be easy-peasy for your family doc to have your LFT's checked at just about any time, budget-wise (no matter how austere any health health budget is!). For someone with your health history ... your LFT's are justified, and they will NOT break any bank by having your LFT's done repeatedly (at least on a fairly frequent basis), as well as your AFP, and (as well) I would ask for another VL from your family doc and just see what happens. Aside from these labs, I would also want an abd. ultrasound in the future and a fibroscan, as part of my post-hepc cure follow-up. wink



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Cheddy


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Cocojojo,

Nice report!  Thanks for stopping by.  We need the updates to keep us going.

Don't be a stranger.  I was, but came back to cheer on keep the power of friendship driving.

Keep up the good work.

Cheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
Cocojojo


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Hi Jen and Canuck! Such a long time since I've been on the forum; I feel bad about not checking in more often but it has been such a busy year. When I finally checked in this evening and saw your post, Jen, I had to log in to say 'Congratulations sister!' So pleased that you are clear and enjoying life. I got the notification of SVR12 on 25 Jan (seems like yesterday, where has the year gone????) and was expecting another blood test and maybe a post treatment fibroscan. But I got a letter in March to say they are no longer testing at 6 months after EOT, that I was deemed to have (and I quote) 'successful clearance of hepatitis C (a cure)' and 'you are now discharged from the clinic and no further appointments will be sent'. Bit of an anticlimax really! So we are both clean and free. My one year 'breast cancerversary' has also passed and all is well so far. So all the stress and anxiety of 2017 seems like a distant dream, hope that's the same for you too. Cocojojo xxxx

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52 yo.Genotype 1a Dx 17/05/17 Infected 25-30 years Viral load at diagnosis 440,000 Fibroscan 6.2 kPa, ALT 29

27/7/17 commenced 12 weeks treatment with Zepatier 10/8/17 VL 110 after 2 weeks of treatment.

24/8/17 VL UND after 4 weeks of treatment.

17/10/17 EOT - UND!!

25/01/18 SVR12 - I am free!!!
Jen


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Hi Guys

Thank you all for the lovely Messages.

Yes, Canuck i Know, Details - I am so sorry - I have contacted the doc for those details (just for you) and will pick them up on early next week as i am visiting the grand kids in Queensland biggrin. 

I have been so busy in the past few months, went to Cambodia to help a local village called Prey Vang - the poorest people are the friendliest and most accommodating. We had an amazing time especially with the children of the village - met 1 boy with ASD his family kept him in a jail like scenario to protect him from himself - As i have a son with ASD i was able to help them understand and explain to them the he needs to be included in life and village activities rather than excluded from life in the village. 

My hubby and i ended up spending every minute with this boy - teaching him how to play  Aussie Rules Football "Go PIES" , Cricket - its OK you guys don't know about that sport to well,  Australia has shamed itself "Big Cheaters" LOL!

We stayed in a Tin shack with bamboo flooring as our mattress - No Electricity - No Running Water and the weather 38 degrees whilst humidity was around 95% Stifling Hot - Bottled water was my best friend i drank it, i showered myself with it and i held onto it like it was Liquid Gold!

Food, Fresh as you could get! Lizards, Cockroaches, Snakes and Dog no its all available - Me I am a Woss, i took 20 kilos of food from Australia to cover myself whilst at the farm we ate a lot of Muesli bars and fruit snack boxes.

We should be all very happy we were born in the great western world!.biggrinbiggrinbiggrin

Mike - 15 little days to go, i am on your countdown 14 left - you are so close to the prize Good Luck.

Take care all

Jenz

 

 



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Jen

54 yo 

Lives in Australia

HCV 1a  AST 42, ALT 44, GGT 61, FS 2.6

16 week Zepatier Treatment started 26/7/2017

8 week results AST 37, ALT 22, GGT 23

12 week results AST 25, ALT 14, GGT 21
mikenan


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So happy for you Jen. I have 15 days to go on epclusa then I wait for the end of October for my RNA test. God bless.

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66 yr male stage 1 GT 2 contracted early 70s diagnosed 2002 SOT Apr 18/18 Epclusa start bil 20 ast 28 alt 25 after 8 wks bil 8 alt 17 ast 23
Iris Dragonfly


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Wow!

Such good news biggrin CONGRATULATIONS!

Thank you so much for the update, it's really good to hear the outcomes.

Blessed life!, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
JB


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Such great news! Congratulations!

JB

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39/M, Dx Apr 2018. GT3. Possible HCV since birth. Pre-treatment VL 653,000; ALT 201, AST 116, Fibroscan w/ Fscore of 3 w/ some fatty liver, Tx 12 weeks Epclusa ended Aug 18. MRI June showed no cirrhosis, but something on liver - possibly artifact 1.4x0.6cm. EOT VL undetected w/ ALT/AST normal. 
Tig


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WOOHOO!! Thanks for sharing your great news. Another success story makes my day! Enjoy your Hep C free life!

3ECE2D64-3868-4096-B731-47B80A7CF7E1.jpeg



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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robertsamx


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Happy Happy for you Jen. You made it, your in the club now!! Its a great feeling that clean and free.     RC



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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
5-1-18


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congrats jen!!

i feel so lucky to have found this forum for my journey as well

i had EOT monday 6.25 and had und at 1month. they will do that lab again at 3months. , so i will know my score around the same time as seethelight.

then they do a 6month + ultrasound

i think i found this forum thru the avilla web site biggrin

 

i agree ob; those old tx's were awful, i knew a cpl guys who had to do those long harsh txs. wow. the short time i was on just interferon were so bad..... harvoni was easy with some bumps along the way that never really took me down like the intron-A



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
Canuck


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Jen!!!!!!!!

Hey, so glad to see a post from ya again, and with your good UND SVR news!

We need details, details!

Update your signature line will ya, we have been in a blind (since you were on treatment) as to your VL's!

(If you ever did get VL's done!), they were not posted in your sig line.

So, if you had any VL's during your 16 weeks of Zep, could you add them to your sig. line?

Also, I am not sure you ever wrote down your  EOT+12 week VL (your SVR12), and, I assume your post today reflects your EOT+24 week VL (your SVR24)? biggrin

If I have any dates for you correct, (your EOT should have been around Nov 15, 2017) then your SVR12 date should have been about the first week of Feb, 2018, and the date for your SVR24 should have been about the first week of May, 2018??

Details, details! my girl. So nice to see you here again. I hope life and family matters are under control, under your trusty hand. I know your hands were very full. Let us know how you and your family and extended family have all been doing. 

Just grand you are free, as you should be. ; )



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Observer


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Congratulations and hurray and also yippee, Jen!

it is a miraculous time we dragon fighters are living in. I worked on an hcv forum many years ago, when most everyone was suffering through the 18 month or so, interferon/ riba treatments (or experiments) and I saw so much suffering and disappointment, it brings me such joy to know that we can get rid of this virus with relatively easy treatments and avoid the comparatively mild side effects with just drinking lottsa water.. 

 

Enjoy your good health.  

{and thanks for sharing your wonderful news with us}

 

Alison



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 
SeeTheLight


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What fantastic news Jen, from a fellow Aussie. We didn't meet while you were on treatment, I have found these wonderful people since. I started Epclusa 8 weeks ago and hope to hear I am free of this plague in October. I have 4 weeks to EOT, then I have to wait for October to learn if it has been successful.  I am thrilled so for you. Congratulations. What an amazing feeling it must be. clap.gifThe sun.gifshines for you.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND
Jen


Member

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Hi Guys

It's been a while since i last posted. I hope everyone is drinking plenty of water and doing their best to be mindful and taking things easy whilst on treatment.

I finally received my final blood test and Guess what I am Now Hep C FREE!

I could not of achieved this without the help and support of every member who assisted along the way. 

I say it out loud to myself I'm Hep C FREE, It's Gone, the silent killer has been evicted.



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Jen

54 yo 

Lives in Australia

HCV 1a  AST 42, ALT 44, GGT 61, FS 2.6

16 week Zepatier Treatment started 26/7/2017

8 week results AST 37, ALT 22, GGT 23

12 week results AST 25, ALT 14, GGT 21
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