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Post Info TOPIC: Donor Organ


Guru

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Donor Organ
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Glad to hear things are improving...Onward right! very good. Your post concerned me for a moment, but things are good, so relieved. Please do get back with us if you get that question answered though.
Many blessings, Iris

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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naÔve....UNTIL 7-01-18† !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=? (pending)

Tig


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I merged both Donor Organ threads. This way weíre not bouncing back and forth between the two and missing posts.†

I noticed a message Canuck left in the Healio updates thread and thought I would share a little bit more information I found on the topic. The UT Southwestern Medical Center is at the forefront of transplantation and this is another example of their commitment.

Warming Up Technology



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

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Guru

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Hey, sorry boxers, for some reason i never really read this post you made, i had read the prior one of the same/similar title (maybe that's why i overlooked this one thinking it was the same one?) ... regardless, i was glad for your new news here.

So, some good news, some not so good and some stuff middling. In the not so good categories are the fighting with the wound stuff, which is very slow to completely resolve for you (but I am sure it will eventually!), and the hernias thing (you have had unfortunate prior experience with that haven't you) maybe the prior acities and hernia hx, prior pressures/procedures, still can have an influence and affect on the strengths of your abdominal walls now? Perhaps had some pre-built-in weaknesses of some sorts? Even with out prior abd. wall stuff, these are radical wall/sheath (and everything) incisions they make to open you up to get access to everything for the transplant eh?

And of course, in the not so good to middling news, there is that ongoing balancing act of having to take all these imm. sup meds you have to be on, anti-fungals/anti-virals and such - then having to battle other opportunistic infections or overgrowth from time to time. I am glad you get the benefit of seeing both kinds of docs (your family doc AND the liver doc) one should help see what the other may not. I hope your girly flora culture comes back into line, quick.

Hey, (way back) you had a lung thing that you put yourself on antibiotics for (antibiotics that you already had at home) - just curious, how long did you keep take those antibiotics and how long did it take for the lung thing to resolve?? Did any doc help to keep you on the antibiotics, or, did they make you stop taking the antibiotics?? Just wondering how that one all turned out and what they thought about you being on those antibiotics?

Great news about your LFT's, and that lovely low stable tac level! What have your ALT's and AST's, etc been running at? How much weight have you managed to gain?

I am glad you asked and found out about your donor, I can imagine it must be/feel huge to take in. You explained it well, going from "physical" to personal, shocking enough thus far just the physical!, no doubt you will do some serious wondering and pondering about him, his life, his family and their lives, only natural. Just as you have such wishes for comfort and condolence for his family, you can trust that they are wishing ONLY the greatest comfort and good life for you. You will be their comfort. C.† †



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



Senior Member

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Thank you so much for the update, boxers. I didnt realize you had had a transplant! Yowza that is huge! Congrats! Sending healing vibes your way along with prayers and well wishes.†



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



Veteran Member

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Dang, I was at the doc. yesterday and forgot to ask about reusing the donor organ, will have to write it down no. I did find out yesterday, after asking if I was allowed to know the age and sex of my donor, that it was†a 17 year old male, I don't know why but I was stunned. Very emotional, at first you have this physical attachment and now it is much more personal with an emotional attachment. Sadly most 17 yr. olds die from trauma (car, diving, gunshot etc.), suicide or drug OD. I don't think they would give you a liver from a diseased person unless maybe congenital†heart disease. Regardless, I am sure there is a grieving family out there. I will wait a year to make sure they have some grieving time and I am OK before I write them a letter. Not so sure that I should send it around his anniversary date. On the bright side my labs were fabulous, Liver enzymes almost normal and Tac. level is 5.2 which they want to keep around 5. Unfortunately, (thanks to my sweet primary doctor listening to me)†I found out I have two hernias, one left lower abd. and one (large) right side at the end of the incision...guess I will have to find me a truss or corset and suck it up. No more surgery unless I have to. Liver docs did UA 2 weeks ago but came back clear, told primary about it and she did a girly exam with a culture...it was obvious I had an infection. Told liver doc. so they stopped my antiviral and antifungal, flora apparently messed up. I do eat a fruit smoothie with yogurt everyday but.....My wounds are about 80% closed, actually two will probably be closed by next week and two more to go. Well that's my story, thanks for listening. I sincerely hope everyone's treatments are going well and you will be free of that creature soon.



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65 yo female

dx. 1996

TX with interferon/riba 2001..failed

Uncompromised 2015

TX with Harvoni† 2015..virus undet.

Meld 14 7/2017† TIPS 1/2017

TP 5/12/18†

Tig


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RE: Donar Organ
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Hey, it works for me, too! †



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

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It's anecdotal, Tig. I have never tried to verify it, because I want to believe it.


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70 YO M, Dx 1999, 1a, cirrhosis; Pegasys/Riba Neupogen Aranesp in 2001, partial responder; PegIntron Riba 2002, partial; Phase 2 Clinical Trial Pegasys/Valopocitabine 2004, relapse at EOT; Sovaldi/Olysio 2014, SVR; HCC 2015, TACE 2016, Transplant 2016

Tig


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Thatís an amazing story! Itís the first time I have heard of a retransplanted organ. Now thatís getting some real mileage†wink



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



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My son knows an anesthesiologist at a transplant center who told him of a case where a ~60 year old man received a liver. When he died 14 years later from unrelated causes, the liver was re-transplanted in a 45 year old man. Anecdotal, but I sure like the story. Like the book, "Sisterhood of the Traveling Pants" or something like that.

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70 YO M, Dx 1999, 1a, cirrhosis; Pegasys/Riba Neupogen Aranesp in 2001, partial responder; PegIntron Riba 2002, partial; Phase 2 Clinical Trial Pegasys/Valopocitabine 2004, relapse at EOT; Sovaldi/Olysio 2014, SVR; HCC 2015, TACE 2016, Transplant 2016

Tig


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That is a good question! I kind of doubt they would transplant it again, but hey, if it was functioning perfectly and God forbid you had an accident and someone needed it, then I suppose anything is possible. Iím thinking that the useful life of our organs is probably 60ish years for transplantation, maybe more depending on the health of the donor.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



Senior Member

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Doubtful. Intriguing question though. Very thought provoking. What is the useful life of a liver? 100 years? Depending on circumstances, 200 years?



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



Veteran Member

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Donor Organ
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This may be a silly question but if you donate your organ (liver)†will they take a donar organ and use it twice?



__________________

65 yo female

dx. 1996

TX with interferon/riba 2001..failed

Uncompromised 2015

TX with Harvoni† 2015..virus undet.

Meld 14 7/2017† TIPS 1/2017

TP 5/12/18†

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