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Keeping it Cool
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Here’s a little tidbit that is big for graft viability. Credit to: LinkSupercooling extends donor liver viability by 27 hoursPublish date: September 12, 2019By Will Pass FROM NATURE BIOTECHNOLOGYA new supercooling process could extend ex vivo liver viability by more than a day, potentia...
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LET'S TALK TRANSPLANT
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Having worked up to a liver transplant, the failed treatments, all those riba pills, all those peg shots, all those Sof pills, and now the vosevi treatment, all those tumor ablations, removing the gallbladder to get at a tumor, all those MRI's, those fun little liver biopsies, a kazillon blood draws...
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robertsamx
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Stopping to say hi!
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Sorry I haven't been here for so long, just want to say thank you a million times over for all the support through my ordeal, meant so much. I have passed two CT scans, numbers good, on 3.5mg. Tacrolimus every 12 hours, went back to work at the hospital, on call position, that is all I wanted and my hair grew...
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2 year post transplant update
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Hi everyone, I just finished my 2 year post transplant scans, labs, and doctor visit. All is well . LABS: My labs are boring and have been unremarkable since they stabilized in the months after the transplant. Everything (EVERYTHING) is in range: Creatinine - 1.1 Bilirubin - 1.2 ...
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sailing shoes
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Donor Organ
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This may be a silly question but if you donate your organ (liver) will they take a donar organ and use it twice?
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Liver Transplant
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Sorry I haven't touched base for awhile but I am sure I have been and am in a depression. Anyway, got my first call today and after hearing the risk factors of the potential donor I said no. I am not sure but pretty sure most of my decision is based on fear. I have to get over the fear and anxiety of being away fr...
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Anniversary
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Well I will have my 5th anniversary tomorrow. All is going well with the exception of I am losing my hair at an alarming rate, got so desperate I started minoxidil (Rogaine) yesterday...scalp treatment. I have lost ~ 1/3 of my hair...ugh! I guess the Tac. can do that. Hopefully this is a temporary thing...
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Labs
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Well having trouble controlling my Tac. levels (12.4) and kidney function going down (GFR 51). They assured me today it was not that serious, just the game you play adjusting meds...tsk tsk (to quote Sailing Shoes). Did request my pathology report and pictures, they have no pics but they printed th...
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Happy 4th
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Just wanted to say hi and happy 4th of July. Hope you all do something fun, we stay home because the dogs don't like fireworks. We live by the lake, so we just watch the show the lake people put on. All is going well, one weird side effect which surprisingly the doc said he had never heard of, my lips are slig...
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Home sweet Home!
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Hi everyone, I apologize for taking so long to return, I am enjoying the sunshine, animals, fresh air and well you get the picture. Still dealing with the wound healing but going well. One fortunate side effect of surgery is my entire abdomen is numb, making dressing changes etc. painless. All my labs...
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3 weeks post op.
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Well I am 3 weeks post op and one glitch so far...my incision opened up somewhat where they took the staples out and now I have to be seen in a wound clinic, not sure what that will be all about yet. Met with RC and Chris today for breakfast, absolutely wonderful people, I am so glad we got to meet and share som...
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Doc visit - 18 months post TP
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I had my 18 month doctor visit this morning - With my hepatologist instead of transplant surgeon. Everything is good with a couple of wrinkles. First, here's my labs: Tacrolimus 5.7 AST 17 ALT 10 Total Bilirubin 0.9 Albumin 4.4 Creatinine 1.1 Platelets 169 Reds...
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sailing shoes
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Toe Fungus
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Well I hope this isn't another "glitch" but I had a pedi today and when they took the polish off, one toe nail had toe fungus. I was shocked....I had her leave the one nail unpolished so I could show them tomorrow at my appt. Fungal infections scare me...gotta quit reading. My wound specialist has not cal...
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Dr. Appointment
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Well, day 17 and they pulled some of the staples but I would have been happy to wait awhile. You do feel like a zipper is in place but I have a history of the skin not healing well due to years of prednisone. I have a small area on my far right side that was weeping quit a bit post surgical and here at the hotel. It...
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Transplant done
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Got my transplant on the 12th...so far so good. I am staying in Seattle until they give me a pass to go back home where I will be followed by my Dr. over there. The whole thing is so surreal, I am still trying to wrap my head around it. Sorry it took so long to get back on here but I was having computer problems. I...
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Got the call!
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Well, got the call at 5:30 this morning to get things in order and they would call me ~ 9am. I have already changed flight reservations once and waiting. This is an emotional roller coaster....I need valium or something similar. Will keep you posted on what happens.
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MRI
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No news is good news. MRI showed no regrowth of old tumor and current tumor went from .6 to .8cm. Labs are almost perfect except for platelets which never are normal. Enjoying the warm weather gardening...God is good!
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Still here..
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Seems I am always doing something or sleeping...tired all the time. Going to Florida on Thanksgiving with grandkids. Trying to accomplish all the stuff I want to do before I go on the call list. Go in next week for a follow up MRI on the ablation and take a look at the two tumors. I think I have all my pre-tra...
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