Hep C Discussion Forum

justaguy · justaguy

I am just about to start Harvoni in California, but still haven't been told by Kaiser what it's going to cost (I'm on the silver marketplace plan). Based on my research this morning it seems that, in 2016, my out of pocket cost for Harvoni will be capped at $250 a month, so I would only pay $500 for an 8 week r...

Steve-o · Steve-o

while...............................................................

squeezemylemon · squeezemylemon

Hi Everyone, I am glad I found this forum. I spend most of my time furious, frustrated and angry because of my health insurance provider's denial of my Harvoni prescription. I've almost sworn off all doctors unless I need emergency medical attention, I have a newly formed hatred of insurance compa...

New member - day 3 · wendyo

Hi everyone, I'm Wendy and this is day 3 of my Harvoni tx. Diagnosed in 1994, Genotype 1a, Non responder to interferon (old school interferon and peg with riba), viral load 541800. I already suffer from insomnia and nausea and already see it as a little worse these past 3 days. I take ginger and drink de...

judeahomestead · judeahomestead

On Friday Sept. 11th I will start the Harvoni treatment for 12 weeks. I am 72 years old and am worried about the side effects. I still work 3 days a week and am worried I may be too sick to continue. Was on the 48 week program about 7 years ago with interferon and it kicked my butt. Any good news to tell me?

Jonny2bad67 · Jonny2bad67

Well, I've just returned home from seeing my Consultan, I am at week 8 of treatment and just been told that the virus has been non-detectable since week 5! I can't begin to explain the relief felt, I truly hope all you guys can get the same treatment and results....I have 4 more weeks of treatment and then...

Mountain man · Mountain man

Hi all,first Post should I expect to feel better when 12 weeks are done, no more aches and pains, more energy? Thx Scott

new member · Bob57

learning a lot here from some kind and caring people !

tired · tired

I was diagnosed with Hep C years ago, but have only began to feel very tired most of the time. After many Doctor visit's and blood work, I was approved to start taking the Solvaldi/Ribavirin combination. I am a little concerned about the side effect's, but anything has to be better than I've felt the la...

SpecialK · SpecialK

Hi everyone, My name is Karina, I'm from Toronto(Canada). In Nov.2014 I was tested positive for HCV. It took me so long to see liver specialist, finally in June i saw him, and he told me that OHIP will not cover me, cause I'm only stage 0. What does it mean i had no idea. I did fibroscan on July and got 4.4mar...

CharlieMac · CharlieMac

Hi all, I'm a newbie, genotype 1(b), with a fibrosis range of F2-F4. I was prescribed a 24 week Harvoni regimen, and I've got a question for the forum. I'm hoping someone can help me understand after being summarily dismissed by my hepatologist with the suggestion that I just not pay attention to lab re...

Soookiesue2 · Soookiesue2

Hi there! Well this is going to be fun and I'm really happy about finding this group :) I have genotype 3a and have probably had it since early 70's drug use :( I was diagnosed with Porphyria Cutaneous Tarda (stores iron in your liver and causes skin lessions) in 2003 and the doctor decided to rest for He...

bigmac73 · bigmac73

Hi, My name is mike I am a 42 year old male , I recently did a biometric screening for some life insurance and I was told I got disapproved, so they sent me the copy of the Labs and it show I tested positive to HEP C, I went to my primary care last week he referred me to a Liver specialist , I am waiting to see him, m...

Swamy · Swamy

Hi, I am a Kidney patient on maintenance dialysis. I caught HCV 2 years back. I am taking Sofosbuvir and Ribavirin. This treatment is not recommended for Kidney patients. However my doctor and I decided to take chance. After four weeks of treatment, HCV PCR quantitative shows virus undectable and se...

Manchego · Manchego

Just did a full set of STD tests a week or so ago and learned that I tested positive for Hepatitis C. When I went in to the doctor's office to discuss my lab results this morning, they drew more blood to run some additional tests to verify, and I should be hearing back in about 5 days or so. To say this complet...

Jvand2b · Jvand2b

Hi all, I was hoping some of you could tell me how bad the side effects were/are for you. I did the whole interferon thing 5 years ago (with Ribavirin) & that was awful. I had a migraine the entire time. Im very sensitive to side effects, so please if you all could tell me what to expect I'd appreciate it...

Flower Child · Flower Child

I have browsed here as a guest for about a week now, and if I had not stumbled on this forum my state of mind would surely be gone. No words can convey my gratitude toward each and every single person here. A very dear best friend of mine was diagnosed with Hep C a week or two ago. Everything I read tells me I...

Cinnamon Girl · Cinnamon Girl

Hi and a warm welcome from the Admin Team! We hope you will find this forum helpful, informative and easy to use. This is a very friendly and supportive group so do feel free to start a new topic to introduce yourself and join in with the discussions if you so wish.If you have a look around the forum you`l...

Another new member · MikeH

Hello everyone. Found this forum today. I live on the Big Island of Hawaii. I've been aware of my status for about fifteen years. Genotype 1a carrier. I chose not to pursue the old Pegasys combination therapy which many of you probably know was none too effective for those of us with 1a. After being deni...

cuddie · cuddie

I am genotype 2. My Dr's are looking into another treatment for me since I have relapsed on Pegasys and sol/rib. They talked a little about sometimes the medicine tricks the body thinking that it is gone. I didn't understand that at all. Anyways they have given me a month of and In September they will h...

JakeAms · JakeAms

Hello forum members. I am grateful to be accepted in this community and would like to introduce myself. I am Jake, 57 years old US expat (former-I never returned) living in Amsterdam, Netherlands. I have HCV genotype2, HIV+ and stage 4a cirrhosis. In the 1980's I experimented with int...

freesoul · freesoul

Hello, I was diagnosed about five years ago after a standard STD panel. I was so scared. I was referred to the hospital where they performed a biopsy and said the damage was minimal, a stage 1, as I remember. No one told me the genotype or any other info, except that I was better off not being treated at that...

AlexJ · AlexJ

hello, I hope I am posting to the right place. Am new to any forum. so excuse any stupidity until I get ahold of the basics. I just started Harvoni yesterday. so far, so good. I had a horrendous experience with interferon riboviron 10 years ago. Was on it for 9 month and it didn't work but caused permanent d...

247kath · 247kath

New here. On Clinical trial started 6/9/15 Harvoni and ribavirin for 12 weeks.

Penelope PePod · Penelope PePod

Hubby and I are both starting Viekira Pak and Ribavirin tomorrow. Like others, Express Scripts denied the Harvoni our doc prescribed. But that's ok - any port in a storm, right? I'm genotype 1a, and my viral load is 1.1m. I was diagnosed in 1997, but l always had good labs, so the doc said I could wai...

TerriT · TerriT

Greetings all: I took my first pill Friday night 4/10/15. So far so good. I was unsure whether to take it in the am or pm. I don't know if side effects are cumulative but I guess I'll find out. I felt it come on about 45 minutes after taking the pill. Then I got cold and very sleepy. Sleep is strange. I...

RAGDOLL · RAGDOLL

Hi, I have just completed 7 days of treatment today and am pleasantly surprised that I have had absolutely no side effects. I just feel like I am taking a few more vitamins. It is truly amazing. I thank God for this opportunity to be in this trial. I was very hesitant to start this as when I got the cal...

drummerman · drummerman

Hello all, Just finished my 2nd week of Viekira pak with riba. So far not too bad... although I constantly feel like I am going to jump out of my skin. Very anxious. But waaaayyyy easier (so far) than interferon/riba. Anyway, hope to learn lots here. Vierkira is so different from previous soc. L...

Kristen · Kristen

after 10 yrs of drug use my daughter finally checked herself into drug rehab. It has been hell. She just called from facility crying saying she has been diagnosed with Hep C. I just looked it up to get info On it. I'm thankful she has finally realized only she can help herself but I need advice on what to do a...

biminidave · biminidave

Fun and games guys. I've had a few chronic illnesses throughout my life. Psoriasis, Psoriatic Arthritis, Epilepsy, and newly dx'd with HepC. Can't get much luckier than that I guess. I tested positive for anti-bodies in November 2014, with a Viral load of 6.35 million IU/M1 just a couple days la...

Topic		Started By	Replies	Views	Last Post
	Hi! Prescription question in California (Preview) I am just about to start Harvoni in California, but still haven't been told by Kaiser what it's going to cost (I'm on the silver marketplace plan). Based on my research this morning it seems that, in 2016, my out of pocket cost for Harvoni will be capped at $250 a month, so I would only pay $500 for an 8 week r...	justaguy	5	1101	Oct 16, 2015 by Cinnamon Girl
	Greetings (Preview) while...............................................................	Steve-o	10	1393	Sep 27, 2015 by mallani
	So angry (Preview) Hi Everyone, I am glad I found this forum. I spend most of my time furious, frustrated and angry because of my health insurance provider's denial of my Harvoni prescription. I've almost sworn off all doctors unless I need emergency medical attention, I have a newly formed hatred of insurance compa...	squeezemylemon	6	1332	Sep 24, 2015 by Jaded
	New member - day 3 (Preview) Hi everyone, I'm Wendy and this is day 3 of my Harvoni tx. Diagnosed in 1994, Genotype 1a, Non responder to interferon (old school interferon and peg with riba), viral load 541800. I already suffer from insomnia and nausea and already see it as a little worse these past 3 days. I take ginger and drink de...	wendyo	8	1787	Sep 21, 2015 by bubble
	worried (Preview) On Friday Sept. 11th I will start the Harvoni treatment for 12 weeks. I am 72 years old and am worried about the side effects. I still work 3 days a week and am worried I may be too sick to continue. Was on the 48 week program about 7 years ago with interferon and it kicked my butt. Any good news to tell me?	judeahomestead	36	7116	Sep 18, 2015 by Tig
	Ribavirin,Olysio and interferon peg (Preview) Well, I've just returned home from seeing my Consultan, I am at week 8 of treatment and just been told that the virus has been non-detectable since week 5! I can't begin to explain the relief felt, I truly hope all you guys can get the same treatment and results....I have 4 more weeks of treatment and then...	Jonny2bad67	8	1256	Sep 9, 2015 by Penelope PePod
	First week (Preview) Hi all,first Post should I expect to feel better when 12 weeks are done, no more aches and pains, more energy? Thx Scott	Mountain man	13	2440	Sep 2, 2015 by MikeH
	new member (closed) (Preview) learning a lot here from some kind and caring people !	Bob57	1	895	Aug 31, 2015 by wmlj1960
	Hello Everybody (Preview) I was diagnosed with Hep C years ago, but have only began to feel very tired most of the time. After many Doctor visit's and blood work, I was approved to start taking the Solvaldi/Ribavirin combination. I am a little concerned about the side effect's, but anything has to be better than I've felt the la...	tired	10	1397	Aug 30, 2015 by basser
	Hello to All (Preview) Hi everyone, My name is Karina, I'm from Toronto(Canada). In Nov.2014 I was tested positive for HCV. It took me so long to see liver specialist, finally in June i saw him, and he told me that OHIP will not cover me, cause I'm only stage 0. What does it mean i had no idea. I did fibroscan on July and got 4.4mar...	SpecialK	6	1271	Aug 29, 2015 by Groupergetter
	Rising ANA on 24 Week Harvoni Treatment of Concern - Doctor not responsive (Preview) Hi all, I'm a newbie, genotype 1(b), with a fibrosis range of F2-F4. I was prescribed a 24 week Harvoni regimen, and I've got a question for the forum. I'm hoping someone can help me understand after being summarily dismissed by my hepatologist with the suggestion that I just not pay attention to lab re...	CharlieMac	10	1504	Aug 25, 2015 by Jaded
	Newbie Gt 3a Sovaldi/ Ribavarin 24 weeks - Porphyria (Preview) Hi there! Well this is going to be fun and I'm really happy about finding this group :) I have genotype 3a and have probably had it since early 70's drug use :( I was diagnosed with Porphyria Cutaneous Tarda (stores iron in your liver and causes skin lessions) in 2003 and the doctor decided to rest for He...	Soookiesue2	22	2953	Aug 22, 2015 by beingsassy
	hello just got told i was + (Preview) Hi, My name is mike I am a 42 year old male , I recently did a biometric screening for some life insurance and I was told I got disapproved, so they sent me the copy of the Labs and it show I tested positive to HEP C, I went to my primary care last week he referred me to a Liver specialist , I am waiting to see him, m...	bigmac73	11	1347	Aug 21, 2015 by Matt Chris
	HCV UND - VL < 0.0003IU/ml (Preview) Hi, I am a Kidney patient on maintenance dialysis. I caught HCV 2 years back. I am taking Sofosbuvir and Ribavirin. This treatment is not recommended for Kidney patients. However my doctor and I decided to take chance. After four weeks of treatment, HCV PCR quantitative shows virus undectable and se...	Swamy	3	1107	Aug 19, 2015 by Matt Chris
	Just tested positive for Hep C....scared and confused. (Preview) Just did a full set of STD tests a week or so ago and learned that I tested positive for Hepatitis C. When I went in to the doctor's office to discuss my lab results this morning, they drew more blood to run some additional tests to verify, and I should be hearing back in about 5 days or so. To say this complet...	Manchego	19	1577	Aug 14, 2015 by Jaded
	2b Sovaldi & Ribavirin this month (Preview) Hi all, I was hoping some of you could tell me how bad the side effects were/are for you. I did the whole interferon thing 5 years ago (with Ribavirin) & that was awful. I had a migraine the entire time. Im very sensitive to side effects, so please if you all could tell me what to expect I'd appreciate it...	Jvand2b	4	1140	Aug 11, 2015 by Jvand2b
	New to everything Hep C (Preview) I have browsed here as a guest for about a week now, and if I had not stumbled on this forum my state of mind would surely be gone. No words can convey my gratitude toward each and every single person here. A very dear best friend of mine was diagnosed with Hep C a week or two ago. Everything I read tells me I...	Flower Child	8	1405	Aug 10, 2015 by Cinnamon Girl
	Welcome! (closed) (Preview) Hi and a warm welcome from the Admin Team! We hope you will find this forum helpful, informative and easy to use. This is a very friendly and supportive group so do feel free to start a new topic to introduce yourself and join in with the discussions if you so wish.If you have a look around the forum you`l...	Cinnamon Girl	6	2947	Aug 7, 2015 by Cinnamon Girl
	Another new member (Preview) Hello everyone. Found this forum today. I live on the Big Island of Hawaii. I've been aware of my status for about fifteen years. Genotype 1a carrier. I chose not to pursue the old Pegasys combination therapy which many of you probably know was none too effective for those of us with 1a. After being deni...	MikeH	7	1427	Aug 7, 2015 by MikeH
	Relapser (Preview) I am genotype 2. My Dr's are looking into another treatment for me since I have relapsed on Pegasys and sol/rib. They talked a little about sometimes the medicine tricks the body thinking that it is gone. I didn't understand that at all. Anyways they have given me a month of and In September they will h...	cuddie	2	845	Aug 6, 2015 by Tig
	New meds adventure (Preview) Hello forum members. I am grateful to be accepted in this community and would like to introduce myself. I am Jake, 57 years old US expat (former-I never returned) living in Amsterdam, Netherlands. I have HCV genotype2, HIV+ and stage 4a cirrhosis. In the 1980's I experimented with int...	JakeAms	10	1607	Aug 6, 2015 by JakeAms
	New...in BC, Canada...being evaluated for treatment...support? (Preview) Hello, I was diagnosed about five years ago after a standard STD panel. I was so scared. I was referred to the hospital where they performed a biopsy and said the damage was minimal, a stage 1, as I remember. No one told me the genotype or any other info, except that I was better off not being treated at that...	freesoul	16	1683	Aug 1, 2015 by freesoul
	hi everyone, (Preview) hello, I hope I am posting to the right place. Am new to any forum. so excuse any stupidity until I get ahold of the basics. I just started Harvoni yesterday. so far, so good. I had a horrendous experience with interferon riboviron 10 years ago. Was on it for 9 month and it didn't work but caused permanent d...	AlexJ	17	2482	Jul 30, 2015 by mallani
	New here and on clinical trial (Preview) New here. On Clinical trial started 6/9/15 Harvoni and ribavirin for 12 weeks.	247kath	14	1582	Jul 28, 2015 by robertsamx
	Newbie Here! (Preview) Hubby and I are both starting Viekira Pak and Ribavirin tomorrow. Like others, Express Scripts denied the Harvoni our doc prescribed. But that's ok - any port in a storm, right? I'm genotype 1a, and my viral load is 1.1m. I was diagnosed in 1997, but l always had good labs, so the doc said I could wai...	Penelope PePod	11	1397	Jul 24, 2015 by Gypsy Soul
	Harvoni Day 2 (Preview) Greetings all: I took my first pill Friday night 4/10/15. So far so good. I was unsure whether to take it in the am or pm. I don't know if side effects are cumulative but I guess I'll find out. I felt it come on about 45 minutes after taking the pill. Then I got cold and very sleepy. Sleep is strange. I...	TerriT	16	2056	Jul 24, 2015 by Penelope PePod
	ABBVIE Topaz II (Preview) Hi, I have just completed 7 days of treatment today and am pleasantly surprised that I have had absolutely no side effects. I just feel like I am taking a few more vitamins. It is truly amazing. I thank God for this opportunity to be in this trial. I was very hesitant to start this as when I got the cal...	RAGDOLL	32	3451	Jul 21, 2015 by Cinnamon Girl
	Pleased to introduce myself (Preview) Hello all, Just finished my 2nd week of Viekira pak with riba. So far not too bad... although I constantly feel like I am going to jump out of my skin. Very anxious. But waaaayyyy easier (so far) than interferon/riba. Anyway, hope to learn lots here. Vierkira is so different from previous soc. L...	drummerman	5	1341	Jul 20, 2015 by coolheat
	Help for my daughter (Preview) after 10 yrs of drug use my daughter finally checked herself into drug rehab. It has been hell. She just called from facility crying saying she has been diagnosed with Hep C. I just looked it up to get info On it. I'm thankful she has finally realized only she can help herself but I need advice on what to do a...	Kristen	28	1905	Jul 19, 2015 by KPB
	New Here (Preview) Fun and games guys. I've had a few chronic illnesses throughout my life. Psoriasis, Psoriatic Arthritis, Epilepsy, and newly dx'd with HepC. Can't get much luckier than that I guess. I tested positive for anti-bodies in November 2014, with a Viral load of 6.35 million IU/M1 just a couple days la...	biminidave	12	1582	Jul 7, 2015 by Tig
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