Hep C Discussion Forum

personwithhepc · personwithhepc

Hi, I have had Hep C for 25 years + and am waiting for new treatments like Harvoni just like many others are also waiting for this treatment who alo have Hep C. I have recently come across this petition online that somebody has started recently. The petition will be put to the government so that all peo...

Mamabear · Mamabear

Hello everyone, I just stumbled upon your forum and enjoyed reading your posts with each other. It's so nice to see such support. I am 53 years old and the mom of two young kids. I had them in my 40's and had such fatigue after my daughter that the doc ran an arbitrary liver panel. That's how they found HCV in...

Oil Field Worker · Oil Field Worker

Hello Everyone I started my first day of treatment tonight.

RUDY · RUDY

My blood pressure yesterday on HARVONI was 92 over 52 / Now at 4;40 pm today with no HARVONI pressure is 142 over 83 .......... Yesterday dose was #20 at 6:00am (symptoms that I've been experiencing since I started the HARVONI) Thirst Loss of Appetite Fatigue or Weakness Chills ...

Redbird29 · Redbird29

Hello Everyone, I started treatment with Harvoni today and am excited and scared all at once. This has been a long time coming for me and am so grateful that I am getting treated. I hope to walk this journey with all of you!

lukeone · lukeone

Greetings, I the new guy, and I began the new Harvoni treatment on 03/21/2015 and as of today there is no, ZERO virus detected in my labs. I am so happy, but let me say it was a difficult path to success. The involvement of my Congressman and my Senator were required to get my medical provider and pharmac...

Gypsy Soul · Gypsy Soul

New here and start treatment tomorrow. Kind of nervous...guess it comes from not really knowing what to expect. I am So ready to "Slay the Dragon" as you say. I'm in a positive frame of mind and can do anything I put my mind to....I can do this!!

sirronalot · sirronalot

The Dr. prescribed Harvoni back in October and it took this long to get approved through BBSFL. I was afraid they wouldn't approve it. Once approved I was afraid of the cost. I was thinking it would cost me thousands of dollars and it turned out to be a 5.00 Copay 15.00 for the whole treatment. They first d...

xwindowuser · xwindowuser

Hi Folks, I'll be starting my treatment tomorrow of Viekira Pak and Ribaviron. My doctors says and the rep says also to stop taking my over the counter supplements. Why? I would think this would help.

bwanacat · bwanacat

I have just joined the forum and glad of it. I have found a wealth of information, and large numbers of well informed people. I have had Hep C since 1970, I was badly wounded and required a blood transfusion, couple weeks later my urine looked like coca cola, and my eyes were yellow. Docs called it 'serum...

coolheat · coolheat

Hi, like the idea of the train to health. Understand concept of the Dragon, it slept for years. Would wake up now and then, breath of fire, and fall back to sleep. Serious decline in the last couple of years, maybe 3-4 years. Went from years of stage 2 to toward the end of stage 3. It is refreshing to hear o...

positive · positive

Hi everyone JA few years ago I wrote a book about my personal journey with hepatitis C. The book was quite successful in my country (Bulgaria), as I was the first person with hep C coming out of the closet. Now the book is translated in English and available for Kindle on Amazon:http://www.amazon.c...

dying2live · dying2live

I have written a little about my journey on my bio....I live on the coast of South Carolina, USA.....living one day at a time.....lets talk

kickingit · kickingit

New member here. I'm 35 years old, genotype 1b. Fibrosis F1-2. Treatment naive. No symptoms as far as I know, I feel healthy. Most likely had Hep C since I got a blood transfusion as a newborn. I was diagnosed in 2009 after some routine blood work. Joining the forums as I'm about to start Viekira Pak. (Was...

obsessing · obsessing

Thank you all for the support! I don't feel too alone knowing that others have transmitted Hep C from needles. I've been clean for 6 weeks now! It's quite a change not waking up on the floor or walking into walls. I told my entire family to hide all of their prescriptions. I got lab results back. I'm trying...

WarriorWolf · WarriorWolf

Hello Everyone, I am so new to this forum. I have never used one before, but I do know Facebook very well. I was diagnosed in 2002 with HCV Genotype 1b. I just received my Harvoni prescription yesterday! I am scared to start this Tx, but I am also excited and hopeful. I plan on start the Tx on Monday April 20,...

Shiraz20 · Shiraz20

http://hepcfriends.activeboard.com/t60285112/urgent-cirhosis-elevated-creatinine-and-sovaldiribavirin/

Drug Out · Drug Out

I have had Hep C for who knows how long, diagnosed in 1992. Transplant in 2000, still had Hep C of course which continued to damage the new liver. Tried PegInt/Riba 2x, no luck. Did the Sovaldi/Oylysio, ending dose 12/26/2014. Hep C continues to show "not detected." But in mid-to-late Janu...

KPB · KPB

I have not started my Harvoni prescription yet (it's in the mail), So I have been reading some post and trying to learn some tips on how to make the next 3 months of my life a little easier on myself as well as on my loved ones. I must tell everyone here that I am impressed with how much everyone seems to...

kdh · kdh

Hi all, I was just diagnosed as end stage cirrhosis, and have not had any symptoms. I went to a gastro specialist who had my blood drawn, and advised me I was in the last stage, told me the pills would cost $80,000, then left. I had no chance to ask him any questions. He was cold, distant and impersona...

HillCountryer · HillCountryer

Hi y'all, I was diagnosis late last year and started Harvoni on 2-18-15. Not sure I got this but I was wondering why I was feeling bad. When my doctor said he wanted me on Harvoni I was concerned about the cost but he got it for me for through my insurance company for next to nothing ($5). When started my vira...

Dickey · Dickey

Hi everyone. My name is Dickey. I am 61 years old and had Hep C over 30 years. I have never been treated for it because my Dr told me I had no scaring from biopsy and it was very low detected so he felt I should wait until better treatment than inteferon. Well I finally got prescribed Harvoni after being persi...

Bestmomy · Bestmomy

Hello everyone. I am new to this forum. Has anyone still tested negative after 12 weeks post Harvoni treatment? I cannot find much info since the published trials. Thanks so much.

obsessing · obsessing

It's been about 6 weeks since I was diagnosed with genotype 1a. Transmission through IV drug use probably 2-3 months ago - so dumb. Ahhh. Since then I've detoxed off heroin 3 times cold turkey on my own. My body is ravaged from withdrawal. Dr says everything is elevated and I could have some symptoms. So...

Dolphin · Dolphin

Just tried to upload an avatar. It succesfully uploaded one I accidentally clicked on--not the one I wanted. So I said remove it. Then I clicked on the one I wanted (from my computer) and it did its little "loading" thing, and then said it had successfully uploaded, but was not visible (t...

elevenism · elevenism

I am glad that i found you guys. I was hoping that a forum such as this existed. I do not have hep c, but my wife does and it worries me sick. She was diagnosed with it, type 1a, in 2006. In 2007 she participated in a drug study with interferon and ribavirin. Although she does not currently show symptoms, we d...

Butterflies · Butterflies

I just got approved for Harvoni and will get first shipment of the medication on Friday. I have been reading the posts and appreciate the information, especially about the side effects. I got diagnosed about 2 years ago but could have had it much longer. I will be checking in and posting my progress...

kimmie · kimmie

Hi everyone, I'm new to the forum and glad to share and take advice, I started Harvoni on 4/11/15 after getting over a bad cold, well today I feel like my cold has returned. I don't know if it's related to taking Harvoni or am I just getting a cold again. Has anyone had any cold symptoms?

Rufus1 · Rufus1

Hi, All I've been reading this forum for about six months and would like to thank all of you for your unknowing support and wisdom. I found out I had hep c in 2012 while looking for a treatment for psoriasis blood draws showed high liver enzymes and you know the rest. I was diagnosed with gt 1a, f1-f2 and ...

Just-me · Just-me

Hi there! I just found this forum and I must say I'm really imressed with all of the knowledge on here. I was diagnosed 5 years ago and it has seemed like a downhill spiral so to speak. I do not feel like I have been educated nearly enough. I read and try to research online and it seems as though every website s...

Topic		Started By	Replies	Views	Last Post
	online petition for new treatments (Preview) Hi, I have had Hep C for 25 years + and am waiting for new treatments like Harvoni just like many others are also waiting for this treatment who alo have Hep C. I have recently come across this petition online that somebody has started recently. The petition will be put to the government so that all peo...	personwithhepc	1	914	Jul 4, 2015 by Cinnamon Girl
	Just started Harvoni yesterday (Preview) Hello everyone, I just stumbled upon your forum and enjoyed reading your posts with each other. It's so nice to see such support. I am 53 years old and the mom of two young kids. I had them in my 40's and had such fatigue after my daughter that the doc ran an arbitrary liver panel. That's how they found HCV in...	Mamabear	8	1682	Jul 2, 2015 by Mamabear
	Day 1 (Preview) Hello Everyone I started my first day of treatment tonight.	Oil Field Worker	5	1064	Jun 28, 2015 by Redbird29
	My HARVONI side effects (Preview) My blood pressure yesterday on HARVONI was 92 over 52 / Now at 4;40 pm today with no HARVONI pressure is 142 over 83 .......... Yesterday dose was #20 at 6:00am (symptoms that I've been experiencing since I started the HARVONI) Thirst Loss of Appetite Fatigue or Weakness Chills ...	RUDY	48	3782	Jun 26, 2015 by Brian1412
	Day 1 of the rest of my life...... (Preview) Hello Everyone, I started treatment with Harvoni today and am excited and scared all at once. This has been a long time coming for me and am so grateful that I am getting treated. I hope to walk this journey with all of you!	Redbird29	4	1073	Jun 26, 2015 by Redbird29
	Success but curious (Preview) Greetings, I the new guy, and I began the new Harvoni treatment on 03/21/2015 and as of today there is no, ZERO virus detected in my labs. I am so happy, but let me say it was a difficult path to success. The involvement of my Congressman and my Senator were required to get my medical provider and pharmac...	lukeone	14	1801	Jun 24, 2015 by Brian1412
	Let's do this..... (Preview) New here and start treatment tomorrow. Kind of nervous...guess it comes from not really knowing what to expect. I am So ready to "Slay the Dragon" as you say. I'm in a positive frame of mind and can do anything I put my mind to....I can do this!!	Gypsy Soul	12	1416	Jun 22, 2015 by wmlj1960
	Started Harvoni Yesterday (Preview) The Dr. prescribed Harvoni back in October and it took this long to get approved through BBSFL. I was afraid they wouldn't approve it. Once approved I was afraid of the cost. I was thinking it would cost me thousands of dollars and it turned out to be a 5.00 Copay 15.00 for the whole treatment. They first d...	sirronalot	21	4694	Jun 19, 2015 by Brian1412
	Dr says not to take my vitmains while doing treatment. Really? (Preview) Hi Folks, I'll be starting my treatment tomorrow of Viekira Pak and Ribaviron. My doctors says and the rep says also to stop taking my over the counter supplements. Why? I would think this would help.	xwindowuser	10	1800	Jun 11, 2015 by Cinnamon Girl
	new to forum (Preview) I have just joined the forum and glad of it. I have found a wealth of information, and large numbers of well informed people. I have had Hep C since 1970, I was badly wounded and required a blood transfusion, couple weeks later my urine looked like coca cola, and my eyes were yellow. Docs called it 'serum...	bwanacat	5	1172	Jun 9, 2015 by Groupergetter
	Intro. Glad you are all here. Thank you for that. 65 yo F Geno 1a liver levels under 50 pre-cirrhosis dx 1984 non a or b tx 12 wks narvoni sot 6-1015 vl 175 000 no proir treatment (Preview) Hi, like the idea of the train to health. Understand concept of the Dragon, it slept for years. Would wake up now and then, breath of fire, and fall back to sleep. Serious decline in the last couple of years, maybe 3-4 years. Went from years of stage 2 to toward the end of stage 3. It is refreshing to hear o...	coolheat	9	1740	Jun 4, 2015 by Cinnamon Girl
	hello from far far away :) (Preview) Hi everyone JA few years ago I wrote a book about my personal journey with hepatitis C. The book was quite successful in my country (Bulgaria), as I was the first person with hep C coming out of the closet. Now the book is translated in English and available for Kindle on Amazon:http://www.amazon.c...	positive	1	798	Jun 4, 2015 by Cinnamon Girl
	hello, 8yrs. post transplant (Preview) I have written a little about my journey on my bio....I live on the coast of South Carolina, USA.....living one day at a time.....lets talk	dying2live	5	1592	Jun 1, 2015 by Cinnamon Girl
	Hi Everyone (Preview) New member here. I'm 35 years old, genotype 1b. Fibrosis F1-2. Treatment naive. No symptoms as far as I know, I feel healthy. Most likely had Hep C since I got a blood transfusion as a newborn. I was diagnosed in 2009 after some routine blood work. Joining the forums as I'm about to start Viekira Pak. (Was...	kickingit	6	1538	May 30, 2015 by kickingit
	Lab work—what to look at? Treatment and insurance... (Preview) Thank you all for the support! I don't feel too alone knowing that others have transmitted Hep C from needles. I've been clean for 6 weeks now! It's quite a change not waking up on the floor or walking into walls. I told my entire family to hide all of their prescriptions. I got lab results back. I'm trying...	obsessing	6	2722	May 29, 2015 by Tig
	Introducing WarriorWolf (Preview) Hello Everyone, I am so new to this forum. I have never used one before, but I do know Facebook very well. I was diagnosed in 2002 with HCV Genotype 1b. I just received my Harvoni prescription yesterday! I am scared to start this Tx, but I am also excited and hopeful. I plan on start the Tx on Monday April 20,...	WarriorWolf	14	1712	May 29, 2015 by Mona
	Hello Guys!! (Preview) http://hepcfriends.activeboard.com/t60285112/urgent-cirhosis-elevated-creatinine-and-sovaldiribavirin/	Shiraz20	2	781	May 29, 2015 by Shiraz20
	Life after Sovaldi/Oylysio Sovaldi Oylysio after effects (Preview) I have had Hep C for who knows how long, diagnosed in 1992. Transplant in 2000, still had Hep C of course which continued to damage the new liver. Tried PegInt/Riba 2x, no luck. Did the Sovaldi/Oylysio, ending dose 12/26/2014. Hep C continues to show "not detected." But in mid-to-late Janu...	Drug Out	23	3982	May 25, 2015 by Fireman Rob
	Sooo...many Acronyms The good news is that I seem to have a good doctor and my medical insurance is covering all the cost. (Preview) I have not started my Harvoni prescription yet (it's in the mail), So I have been reading some post and trying to learn some tips on how to make the next 3 months of my life a little easier on myself as well as on my loved ones. I must tell everyone here that I am impressed with how much everyone seems to...	KPB	3	1197	May 10, 2015 by Cinnamon Girl
	diagnosed as end stage cirrosis (Preview) Hi all, I was just diagnosed as end stage cirrhosis, and have not had any symptoms. I went to a gastro specialist who had my blood drawn, and advised me I was in the last stage, told me the pills would cost $80,000, then left. I had no chance to ask him any questions. He was cold, distant and impersona...	kdh	19	3940	May 9, 2015 by kdh
	Been on the Train (Preview) Hi y'all, I was diagnosis late last year and started Harvoni on 2-18-15. Not sure I got this but I was wondering why I was feeling bad. When my doctor said he wanted me on Harvoni I was concerned about the cost but he got it for me for through my insurance company for next to nothing ($5). When started my vira...	HillCountryer	2	888	May 7, 2015 by Tig
	Newbie (Preview) Hi everyone. My name is Dickey. I am 61 years old and had Hep C over 30 years. I have never been treated for it because my Dr told me I had no scaring from biopsy and it was very low detected so he felt I should wait until better treatment than inteferon. Well I finally got prescribed Harvoni after being persi...	Dickey	3	960	May 7, 2015 by HillCountryer
	Harvoni Cure? (Preview) Hello everyone. I am new to this forum. Has anyone still tested negative after 12 weeks post Harvoni treatment? I cannot find much info since the published trials. Thanks so much.	Bestmomy	5	1222	May 5, 2015 by Tig
	Just diagnosed. Feeling so stupid. (Preview) It's been about 6 weeks since I was diagnosed with genotype 1a. Transmission through IV drug use probably 2-3 months ago - so dumb. Ahhh. Since then I've detoxed off heroin 3 times cold turkey on my own. My body is ravaged from withdrawal. Dr says everything is elevated and I could have some symptoms. So...	obsessing	11	1797	May 3, 2015 by Tig
	Just trying to figure out how to do some stuff on the forum, brand new. (Preview) Just tried to upload an avatar. It succesfully uploaded one I accidentally clicked on--not the one I wanted. So I said remove it. Then I clicked on the one I wanted (from my computer) and it did its little "loading" thing, and then said it had successfully uploaded, but was not visible (t...	Dolphin	2	902	Apr 26, 2015 by Cinnamon Girl
	hello everyone (Preview) I am glad that i found you guys. I was hoping that a forum such as this existed. I do not have hep c, but my wife does and it worries me sick. She was diagnosed with it, type 1a, in 2006. In 2007 she participated in a drug study with interferon and ribavirin. Although she does not currently show symptoms, we d...	elevenism	1	1049	Apr 17, 2015 by Tig
	Hi Everyone I am new to the forum (Preview) I just got approved for Harvoni and will get first shipment of the medication on Friday. I have been reading the posts and appreciate the information, especially about the side effects. I got diagnosed about 2 years ago but could have had it much longer. I will be checking in and posting my progress...	Butterflies	6	1304	Apr 17, 2015 by wmlj1960
	Harvoni (Preview) Hi everyone, I'm new to the forum and glad to share and take advice, I started Harvoni on 4/11/15 after getting over a bad cold, well today I feel like my cold has returned. I don't know if it's related to taking Harvoni or am I just getting a cold again. Has anyone had any cold symptoms?	kimmie	5	1609	Apr 15, 2015 by Cinnamon Girl
	First Post (Preview) Hi, All I've been reading this forum for about six months and would like to thank all of you for your unknowing support and wisdom. I found out I had hep c in 2012 while looking for a treatment for psoriasis blood draws showed high liver enzymes and you know the rest. I was diagnosed with gt 1a, f1-f2 and ...	Rufus1	4	1077	Apr 9, 2015 by Rufus1
	So very uneducated (Preview) Hi there! I just found this forum and I must say I'm really imressed with all of the knowledge on here. I was diagnosed 5 years ago and it has seemed like a downhill spiral so to speak. I do not feel like I have been educated nearly enough. I read and try to research online and it seems as though every website s...	Just-me	40	4423	Apr 9, 2015 by Cinnamon Girl
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