Hep C Discussion Forum

masbirdies · masbirdies

Hello, Glad to be a part of this forum. I'm 56, healthy otherwise, and a moderate alcohol user. In January, I went to my doc thinking I needed some help with sleep apnea. I've felt like crap for years, don't sleep well and when I do, wake up feeling like I didn't sleep well. I mentioned that I felt fogg...

Mid-Century-Mama · Mid-Century-Mama

Hello, I am new here....but not new to Hep C. Was treated in 2004, and relapsed after 10 weeks. Fast forward to 2015, I finished my second treatment with Sovaldi and Ribo in late March, and on the day I took my last pills, I took my blood test. My hope is that I took it too soon, as it came back <12 detected...

Femapples · Femapples

I'm new to the forum and, of course, didn't read the directions so immediately posted to the Viekira area. I've had Hep C for probably over 40 years. I had a treatment about 20 years ago, Interferon only. I had another about 11 years ago, Interferon and Ribaviron which almost killed me. Now I just sta...

VetwithC · VetwithC

I've been lurking on this forum for a while now as I was waiting for approval from the VA for TX [hopefully with Harvoni] and my dream came true yesterday [Friday] when they finally gave me my first 2 weeks worth of the magic [pink] silver bullets and told to start TX on Monday and am doing a crash course on t...

FlaRed · FlaRed

I just happened upon this forum and wonder why I had not found it earlier. I joined the Harvoni Club in January. I am treating for 12 weeks, and I have 3 weeks to go. I had tried the interferon/ribavirin poison in 2009 and, after only 18 days, ended up in the hospital unsure of my future. Fortunatel...

KeepingTheFaith · KeepingTheFaith

Today we found out that my fiancé has Hep C, going for more tests for cirrhosis/cancer. I am trying to learn all I possibly can.... He is 63, was a heavy drinker for many many years, just stopped drinking at New Years, doctor told him today his stopping drinking is what triggered everything. IDK? He look...

vaibhav86 · vaibhav86

Hello All, I am new to this forum. Though I have been following this forum from long time never became a member. But today this possible good news made me to become a member and share this with you all. As you know there have been news about Sofosbuvir being launched in India through generic manufacturer...

Chris · Chris

I've just completed my treatment using Olysio & Sovaldi and am Hep C free. I have a friend who just found out he has it also. I heard of a new drug that does not have as many side effects and after effects. I believe the new drud starts with either an H or an N. Does anyone know what I am talking about?

Jilzyk10 · Jilzyk10

How long does it take before the fatigue , headaches and other symptoms disappear after the Harvoni 12 week treatment plan? -- Edited by Jilzyk10 on Tuesday 17th of March 2015 02:51:28 PM

philbert · philbert

After many hvc treatments and being told I was f1 to f2 I recently had Fiber scan that also said I was Fi- F2.. Had full laproscopic biopsy last week and was told today I am F4.. I nearly fainted.. Went in for biopsy hoping fiberscan had missed something so I could be rated minimum F2 for insurance approv...

Knorman · Knorman

iwas diagnosed nearly 15 years ago and fortunately have never been too affected by the diseas so waiting for the better treatment was not an issue. scheduled to start Harvoni this Friday. Still a bit anctious whether I'll get the prescription or not nice to hear so many related stories and experien...

Miracleinprogress · Miracleinprogress

I don't know where to start actually. My mom started bleeding while she was pregnant with me so bad that they rushed her to the hospital and transfused her. They gave her blood that was tainted with Hepatitis. Back in 1963 there wasn't a known "C." Well she had Hep C. Lived to 86 and passed a few...

Japhet · Japhet

I was diagnosed with HCV 14 yr.s ago..I've been waiting for these new meds,knowing I would never be able to tolerate the Interferon,or Ribaviran. My BCBS ins. has recently denied me twice.,saying "Harvoni's not on their formulary at this time". I'm not so sure they'd approve it anyway...

clhndluke · clhndluke

Hello All: I am new to this and I think my Doctor is too...I am from a small town (20000 pop) I was reading about Harvoni and told my new doctor about, he did not say much so on a return visit I brought it up again at which time he ask if I wanted to try for it, so I had another biopsy and next thing I knew his office...

Swampy · Swampy

I believe I carried hep c geno type 1 for 30 years. I never had any ill effects from the desease. I completed 6 months of Sovaldi and Ribivirin 30 weeks ago. I had a pretty rough time with it especially at the end. I was successful in killing the virus. I had expectations of "bouncing back' to my old sel...

Hello HC Discussion Forum members! · outoftheblue

This site is a great discovery today. I am getting ready to try to beat this HCV for the 3rd time. So glad to have found this site. Looking forward to learning and sharing here. Take Care, OOTB

nefecat · nefecat

Hi all, Im new here, so a quick introduction. I live in the UK and am a single mum. My partner of just 6 month has recently (this week) been diagnosed with Hep C we are unsure of the geno as of yet.When I met my partner, J, and it was pretty much instant attraction from both ends, and since our first date we have...

D

Hi! I'm new to this forum and just completed my first week of Harvoni. I feel now that the slight side effects I had been experiencing my first few days are getting better. As for the fatigue, I am wondering if it is ok to begin taking B12 and Vit C again...as well as D3 as I was prior to treatment?

Jean Ray · Jean Ray

Hi everyone. I am new to the site. I have some questions that I could not find an answer to since I have not had a recent appt. with a gastro doc yet. Many years ago I had some pre-employment testing done and they showed hep c antibodies. The gasteoenterologist I went to for further testing said my test sh...

Stormy · Stormy

At age 19, I was infected with hep, I think it was of the B type. Was hospitalized and released in a few days. Never given any information about the disease. Thought I was over it. Fast forward 45 years. Took a pilates class and couldn't handle it, my body revolted, BP spiked, had panic attacks, went to a d...

3rdTimesACharm · 3rdTimesACharm

Hey everybody how's it going? I was on the forum over year ago when I started my triple therapy of telaprivir/peg interferon/ribavirin. My viral load went down significantly but unfortunately about 12 weeks in it started to climb again. Treatment was discontinued. I just went back to my doctor this...

hepcinohio · hepcinohio

Did the Interferon tx like 4 years back. Made me extremely sick only could take tx for 30 weeks. Unsuccessfull. Been waiting for new tx and now its here. 12 weeks and I start tomorrow. Is this stuff as good as they say?

MechanicMike · MechanicMike

Hello all, I first found out I had Hep C antibodies while giving blood in '92 (Red Cross letter). Went to see my GP physician who verified the results and did further testing. Was told that it was undetectable. Recently had treatment for hyperthyroidism (radioactive iodine), and hypo now and takin...

shorty213 · shorty213

hello just received email from hep c specialist asking if im ready to start new hep c tx... she didn't mention what medication was called.. does anybody happen to know? is there interferon included? did tx for 8 weeks 2011 and dropped due to side fx.was undetected but returned 3 months later.. any info...

LJS911 · LJS911

Hep C X 20+ yrs, did 3 rounds of interferon x 17 yrs ago each for 6 months, one with ribrovirin 600 mg. TID I was transfused and worked in Medical field several needle stixs. Applied for a grant from Gilead Supportpath for Harvoni and it was granted Nov. 5 2014. My Dr. is David Berstein M.D. Director of Hep...

marinescu1 · marinescu1

Hello, my name is Cornelia, I am 62 yrs. old and I was diagnose with HCV on 2000. I spend hours on the forum and I decided to go with new treatment. Because I have genotype 1b I did not agree with conventional treatment. Two days ago I do blood work, next week I will do liver MRI and after that I am ready for the...

SwimmerChic · SwimmerChic

Hi everyone...You guys were a lifeline a couple years ago when I was first diagnosed, but I wasn't a candidate for the treatments available at the time and research indicated there were newer, better options on the horizon. I introduced myself then, lurked for a while, felt like a fifth wheel as I wasn...

Lawmatt · Lawmatt

well half way 24 weeks and i must say its is nice to know im on the home run.i guess its like struugling up a mtn and the leasurley walkin down the other side. i managed to get a scanned image of my results way back to 2012 if anyone would like to comment i now there are some very switched on people here and would...

saranyaprasanth · saranyaprasanth

My Mother (50 Years old) was found suffering from Hepatitis c in November 2014.She went for anti-HCV, PCR-Quantitative, PCR-Qualitative, and HCV Genotype tests. the toprate of HCV-Quantitative was 1683 IU/ml. Then go for an ANA and it is negative. The Genotype test said that No HCV Genotype coul...

peppercito · peppercito

I have GT 3e. the stats on the current recommended treatment Solvaldi/ Ribavirin for 24 weeks has a sustained SVR from 61-87%, depending on level of cirrhosis. I am 12 years post transplant so fibrosis/cirrhosis is very likely as is fatty liver with this genotype. I cannot take any form of interfe...

Topic		Started By	Replies	Views	Last Post
	Into - masbirdies (Preview) Hello, Glad to be a part of this forum. I'm 56, healthy otherwise, and a moderate alcohol user. In January, I went to my doc thinking I needed some help with sleep apnea. I've felt like crap for years, don't sleep well and when I do, wake up feeling like I didn't sleep well. I mentioned that I felt fogg...	masbirdies	7	1735	Apr 6, 2015 by Cinnamon Girl
	How long does Sovaldi-Ribo work, post treatment? (Preview) Hello, I am new here....but not new to Hep C. Was treated in 2004, and relapsed after 10 weeks. Fast forward to 2015, I finished my second treatment with Sovaldi and Ribo in late March, and on the day I took my last pills, I took my blood test. My hope is that I took it too soon, as it came back <12 detected...	Mid-Century-Mama	5	1297	Apr 4, 2015 by Tig
	Hi There (Preview) I'm new to the forum and, of course, didn't read the directions so immediately posted to the Viekira area. I've had Hep C for probably over 40 years. I had a treatment about 20 years ago, Interferon only. I had another about 11 years ago, Interferon and Ribaviron which almost killed me. Now I just sta...	Femapples	8	1391	Apr 3, 2015 by Gator Man
	new to forum and starting Harvoni in 2 days (Preview) I've been lurking on this forum for a while now as I was waiting for approval from the VA for TX [hopefully with Harvoni] and my dream came true yesterday [Friday] when they finally gave me my first 2 weeks worth of the magic [pink] silver bullets and told to start TX on Monday and am doing a crash course on t...	VetwithC	8	1438	Mar 29, 2015 by Tess
	Newbie on Harvoni (Preview) I just happened upon this forum and wonder why I had not found it earlier. I joined the Harvoni Club in January. I am treating for 12 weeks, and I have 3 weeks to go. I had tried the interferon/ribavirin poison in 2009 and, after only 18 days, ended up in the hospital unsure of my future. Fortunatel...	FlaRed	3	1047	Mar 29, 2015 by MzmiffY
	Hi, Newbie here, scared, worried (Preview) Today we found out that my fiancé has Hep C, going for more tests for cirrhosis/cancer. I am trying to learn all I possibly can.... He is 63, was a heavy drinker for many many years, just stopped drinking at New Years, doctor told him today his stopping drinking is what triggered everything. IDK? He look...	KeepingTheFaith	8	1521	Mar 27, 2015 by Gator Man
	Sofosbuvir 400 mg -available in India from generic manufacturer (Preview) Hello All, I am new to this forum. Though I have been following this forum from long time never became a member. But today this possible good news made me to become a member and share this with you all. As you know there have been news about Sofosbuvir being launched in India through generic manufacturer...	vaibhav86	2	1005	Mar 24, 2015 by Zlikster
	Drugs for Hep. C (Preview) I've just completed my treatment using Olysio & Sovaldi and am Hep C free. I have a friend who just found out he has it also. I heard of a new drug that does not have as many side effects and after effects. I believe the new drud starts with either an H or an N. Does anyone know what I am talking about?	Chris	1	749	Mar 24, 2015 by Matt Chris
	Feeling Normal after Harvoni? (Preview) How long does it take before the fatigue , headaches and other symptoms disappear after the Harvoni 12 week treatment plan? -- Edited by Jilzyk10 on Tuesday 17th of March 2015 02:51:28 PM	Jilzyk10	7	2265	Mar 22, 2015 by rblood
	False Fiber scan reading (Preview) After many hvc treatments and being told I was f1 to f2 I recently had Fiber scan that also said I was Fi- F2.. Had full laproscopic biopsy last week and was told today I am F4.. I nearly fainted.. Went in for biopsy hoping fiberscan had missed something so I could be rated minimum F2 for insurance approv...	philbert	9	2013	Mar 19, 2015 by Tig
	New to group (Preview) iwas diagnosed nearly 15 years ago and fortunately have never been too affected by the diseas so waiting for the better treatment was not an issue. scheduled to start Harvoni this Friday. Still a bit anctious whether I'll get the prescription or not nice to hear so many related stories and experien...	Knorman	10	1989	Mar 18, 2015 by Gator Man
	New Here...Need advice...very scared (Preview) I don't know where to start actually. My mom started bleeding while she was pregnant with me so bad that they rushed her to the hospital and transfused her. They gave her blood that was tainted with Hepatitis. Back in 1963 there wasn't a known "C." Well she had Hep C. Lived to 86 and passed a few...	Miracleinprogress	8	1599	Mar 17, 2015 by Rubye
	My quest for Harvoni (Preview) I was diagnosed with HCV 14 yr.s ago..I've been waiting for these new meds,knowing I would never be able to tolerate the Interferon,or Ribaviran. My BCBS ins. has recently denied me twice.,saying "Harvoni's not on their formulary at this time". I'm not so sure they'd approve it anyway...	Japhet	13	1783	Mar 16, 2015 by mallani
	Starting Harvoni-Not Sure my Doctor is up on it... (Preview) Hello All: I am new to this and I think my Doctor is too...I am from a small town (20000 pop) I was reading about Harvoni and told my new doctor about, he did not say much so on a return visit I brought it up again at which time he ask if I wanted to try for it, so I had another biopsy and next thing I knew his office...	clhndluke	18	2212	Mar 12, 2015 by Tig
	7 1/2 months after Sovaldi / Ribivirin (Preview) I believe I carried hep c geno type 1 for 30 years. I never had any ill effects from the desease. I completed 6 months of Sovaldi and Ribivirin 30 weeks ago. I had a pretty rough time with it especially at the end. I was successful in killing the virus. I had expectations of "bouncing back' to my old sel...	Swampy	9	1747	Mar 4, 2015 by sunrise
	Hello HC Discussion Forum members! (Preview) This site is a great discovery today. I am getting ready to try to beat this HCV for the 3rd time. So glad to have found this site. Looking forward to learning and sharing here. Take Care, OOTB	outoftheblue	7	1073	Mar 4, 2015 by Greg D
	New here, advice/support etc appreciated (Preview) Hi all, Im new here, so a quick introduction. I live in the UK and am a single mum. My partner of just 6 month has recently (this week) been diagnosed with Hep C we are unsure of the geno as of yet.When I met my partner, J, and it was pretty much instant attraction from both ends, and since our first date we have...	nefecat	8	1461	Feb 21, 2015 by nefecat
	One week on Harvoni (Preview) Hi! I'm new to this forum and just completed my first week of Harvoni. I feel now that the slight side effects I had been experiencing my first few days are getting better. As for the fatigue, I am wondering if it is ok to begin taking B12 and Vit C again...as well as D3 as I was prior to treatment?	D	6	1787	Feb 21, 2015 by D
	New to forum (Preview) Hi everyone. I am new to the site. I have some questions that I could not find an answer to since I have not had a recent appt. with a gastro doc yet. Many years ago I had some pre-employment testing done and they showed hep c antibodies. The gasteoenterologist I went to for further testing said my test sh...	Jean Ray	7	1302	Feb 19, 2015 by Tig
	Intro (Preview) At age 19, I was infected with hep, I think it was of the B type. Was hospitalized and released in a few days. Never given any information about the disease. Thought I was over it. Fast forward 45 years. Took a pilates class and couldn't handle it, my body revolted, BP spiked, had panic attacks, went to a d...	Stormy	22	3116	Feb 18, 2015 by TazKat
	I'm baaaaaack! (Preview) Hey everybody how's it going? I was on the forum over year ago when I started my triple therapy of telaprivir/peg interferon/ribavirin. My viral load went down significantly but unfortunately about 12 weeks in it started to climb again. Treatment was discontinued. I just went back to my doctor this...	3rdTimesACharm	8	1925	Feb 17, 2015 by canythingbutaverage
	Starting TX again this time with Harvoni (Preview) Did the Interferon tx like 4 years back. Made me extremely sick only could take tx for 30 weeks. Unsuccessfull. Been waiting for new tx and now its here. 12 weeks and I start tomorrow. Is this stuff as good as they say?	hepcinohio	12	1409	Feb 15, 2015 by Cinnamon Girl
	Hep C 3a, HCV RNA PCR QNT 10,134,172-Seeing gastroenterologist on 3/3 to start treatment (Preview) Hello all, I first found out I had Hep C antibodies while giving blood in '92 (Red Cross letter). Went to see my GP physician who verified the results and did further testing. Was told that it was undetectable. Recently had treatment for hyperthyroidism (radioactive iodine), and hypo now and takin...	MechanicMike	11	2049	Feb 12, 2015 by perry
	anybody familiar with hep c tx through kaiser? (Preview) hello just received email from hep c specialist asking if im ready to start new hep c tx... she didn't mention what medication was called.. does anybody happen to know? is there interferon included? did tx for 8 weeks 2011 and dropped due to side fx.was undetected but returned 3 months later.. any info...	shorty213	9	1715	Feb 4, 2015 by Rubye
	Just joined and wanted to say Hi (Preview) Hep C X 20+ yrs, did 3 rounds of interferon x 17 yrs ago each for 6 months, one with ribrovirin 600 mg. TID I was transfused and worked in Medical field several needle stixs. Applied for a grant from Gilead Supportpath for Harvoni and it was granted Nov. 5 2014. My Dr. is David Berstein M.D. Director of Hep...	LJS911	16	1401	Feb 3, 2015 by LJS911
	Just say Hello (Preview) Hello, my name is Cornelia, I am 62 yrs. old and I was diagnose with HCV on 2000. I spend hours on the forum and I decided to go with new treatment. Because I have genotype 1b I did not agree with conventional treatment. Two days ago I do blood work, next week I will do liver MRI and after that I am ready for the...	marinescu1	5	931	Feb 1, 2015 by Tig
	Re-intro (Preview) Hi everyone...You guys were a lifeline a couple years ago when I was first diagnosed, but I wasn't a candidate for the treatments available at the time and research indicated there were newer, better options on the horizon. I introduced myself then, lurked for a while, felt like a fifth wheel as I wasn...	SwimmerChic	6	1177	Jan 31, 2015 by SwimmerChic
	Halfway on top of the mtn (Preview) well half way 24 weeks and i must say its is nice to know im on the home run.i guess its like struugling up a mtn and the leasurley walkin down the other side. i managed to get a scanned image of my results way back to 2012 if anyone would like to comment i now there are some very switched on people here and would...	Lawmatt	3	881	Jan 24, 2015 by Lawmatt
	Hepatitis C Information (Preview) My Mother (50 Years old) was found suffering from Hepatitis c in November 2014.She went for anti-HCV, PCR-Quantitative, PCR-Qualitative, and HCV Genotype tests. the toprate of HCV-Quantitative was 1683 IU/ml. Then go for an ANA and it is negative. The Genotype test said that No HCV Genotype coul...	saranyaprasanth	20	3538	Jan 24, 2015 by saranyaprasanth
	GT 3: what is the risk for acquiring tolerance to solvaldi, if treatment fails? (Preview) I have GT 3e. the stats on the current recommended treatment Solvaldi/ Ribavirin for 24 weeks has a sustained SVR from 61-87%, depending on level of cirrhosis. I am 12 years post transplant so fibrosis/cirrhosis is very likely as is fatty liver with this genotype. I cannot take any form of interfe...	peppercito	2	1018	Jan 23, 2015 by peppercito
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