Hep C Discussion Forum

Dawnh · Dawnh

Hi, I am new and waiting on treatment. I have genotype 2 and hope something in the near future comes out that isn't as harsh as the current treatment (ribavirin). Nice to meet everyone and I'm also here to learn as much as I can on how to take the best possible care of my health. I have learned a lot in the...

maxadam · maxadam

Hello everyone. This is Max Adam from New York. I am a health expert and a MD from New York.

rblood · rblood

Hello. My first day on the forum and taking my first Harvoni tablet tonight at 8 PM Pacific time. From Wa. State. I have medicare with Kaiser Permanente. I'm looking forward to being "cured" from hep C. I'm in stage 3. I have been waiting for this day for a long time. I'm glad it is finally here....

dharmabum · dharmabum

I got the fedex and took one immediately...pretty peach-colored quadrangle. I arranged them in a pill organizer by day and now I wait. It all seems a bit anitclimactic and silly, but that first pill was a very emotional experience. I am happy to be in the club! All I feel today is a headache. I'll take...

NJ_Mel - New Member :) · NJ_Mel

Hi All, New member here, introduced to the forum by a friend Rubye! Here's my story... On a beautiful spring day in 2014, I worked all day, jumped on a train, and headed for a conference. When I got to the city, I walked to the hotel, which was about a mile from the station. It was a beautiful evening, so a...

New member · Marktq1

Hi new to this forum I am hcv pos for an assumed 40 years cirrhotic fibroscan 23 am on astral 1 trial sof andgs5816

Rose 57 · Rose 57

Hello, I have my first visit with my new Gastro Dr tomorrow morning. The physician's assistant who ordered all my tests and blood work has informed me that she does not believe that I will be afforded treatment because my tests show no liver damage and it is not enlarged as she thought when she exam...

mikeinco · mikeinco

New to the forum and have had HCV for at least 14 years that I know of, probably came from a dirty needle stick that occured in 1977 when working in an ICU. I spent 37 years working as a Critical Care RN and in the early years we never used any precautions like gloves in dealing with patients, so the number of t...

Brian1412 · Brian1412

It seems that is spite of Dr. Silence, I have been getting a bunch of stuff regarding Harvoni to send in. They most recently requested Pharmacy Information . I hope that is good ... I see Dr on Friday . No word on Fibroscan, but my cancer Dr with whom I do follow ups with ( He actually talks to me ), ...

bokeygirl · bokeygirl

Hi Everyone =) My names Maria and Im really glad to gave found a forum where there seems to be so many educated and experienced users. I just wanted to share a little background and recieve some advice. I just moved to Puerto Rico from Florida. In March I started using drugs IV for the first time. My ex int...

fourlocos · fourlocos

Hi all. I feel like I know you already because I have been reading up on Hep C here nightly. Although I decided to come out of the shadows now because I just got the call that my Harvoni is ready to be picked up tomorrow at the pharmacy. It was a blessing/shocked/surprise since I only just saw the GI Liver...

Bob54 · Bob54

Hi all, I was diagnosed with Hep-C in Dec of 2008 but am pretty sure i contracted it back in the 80's while in the Air Force. I am Genotype 1b, although I have no idea how that is determined. My viral load is 11,000,000 ml, Biopsy results indicate Stage F0, no fibrosis, however Fibrospect II results score...

New member · inthewind

Hello all I'm new. GT3 believe I've had HCV since late 1970s from tattoo. Was diagnosed 2003 was told it was mild not to get treated. My Dr. was to monitor it with my yearly physical but it didn't happen was tested again in 2013 and went through SLVD/ Rbvrn 24 week treatment 03/2014 - 08/2014 post treatmen...

Zaika · Zaika

Hello! I finished treatment 1 month ago and would like to know if I can celebrate with a glass of champagne. I was on sovaldi/ribo pack for 24 weeks. What is the effect of alcohol after treatment? Thank you.

Alias Arizona · Alias Arizona

Can someone please tell me exactly what Hep C treatment entails? I mean do they give a an Rx to fill, shots, cut your legs off, what exactly do they do. Please tell me EXACTLY what they do, how many times a month do you have to see a specialistst, how is medication administered, how much does it cost, does...

Rose 57 · Rose 57

Can someone please tell me what this may mean? I am blearey eyed from trying to decipher it with the help of the great google and my follow up isnt until the 18th.. Here is exactly how it reads: QuestOnly- HEPATITIS C VIRUL RNA, PCR QUANTITATIVE Test Resul...

New member introduction · bbintn

Hello, I just finished 12 weeks of Solvadi/Pegasys/Ribavirin treatment and found this forum when looking for info on how long it will take to start feeling better. As you all probably know, this treatment was a real bear. I've never had such depression in all my life and my energy levels are practical...

canythingbutaverage · canythingbutaverage

Greetings! I've been a member(lurker) here for a few months, but i believe it's about time i post something. I am a vertical transfer, and was diagnosed at 13. When i was 22 i took and failed my first treatment(tx), a Peg/Rib tx. When i was 24, i tired again, a stronger dosage, but again no effect. At 25 i to...

angie · angie

Considering treatment with Harvoni. Have applied for Support Path but not eligible because I am on Medicare Part B and D. Out of pocket will be over 12k, can't afford. If anyone has any suggestions of can refer me to a group discussing this topic let me know. Angie

tombee31 · tombee31

Hi all newbie here, I have recently been diagnosed with Hep C (last week) so this is all new to me. I would just like to run through my story and get your opinions if that's OK? I'll try to keep it brief and to the point. In 1996 I became very ill, after a couple of years of extensive tests I received a diagnosis...

johnsshutts · johnsshutts

My insurance company has my urgent appeal for harvoni, It was mailed last Thursday by priority mail. I was told that it had to be mailed, not faxed? They received it Tuesday, and in put it in their system yesterday. They told me yesterday, that they will make a decision today or tomorrow. I will make a lo...

rltan · rltan

Hi,everyone just started going on my 3rd day, and SE very mild including a little insomnia which is getting better, have no head aches. does anyone know if nicotine can effect tx?

Ro · Ro

Just got the results from last Friday which would was the completion of week #2 on treatment. I really cannot believe the results! In over 40 years I have never had normal range levels, YET here they are! Such a difference from labs drawn prior to start of treatment!! SGOT - 37 SGPT - 41 TOTAL BIL - .8...

Harvoninme · Harvoninme

I started Harvoni on Halloween and will take my last pill on Christmas Day, so I'm almost half-way through treatment. I'm 1a, TX naive. I had my first blood test at 2 weeks. My VL dropped from 315k to 30. I have been having some mild side effects, but my liver tests were good. I'll go in for more tests next we...

hepCFREEwanab · hepCFREEwanab

Received that very expensive bottle of Harvoni. Treatment was approved for 12 weeks. Spoke to the pharmacist who confirmed that it's OK for my husband to continue taking the supplements while on treatment. We also agreed that to minimize any SE it would be best if the pill is taken at night. I am pr...

beingsassy · beingsassy

okay, in a few I'm going to get my last labs. I will see the doctor on 12/3 and will know if I achieved the golden SVR status. The closer it gets the more nervous I get. But I will soon know. I was UND a month ago so I am hopeful. Thank you for all the support you have given me. Will let you know the results in a few da...

pauliep · pauliep

Hi- I'm 62 years old diagnosed with genotype 1b in 1989. Probably picked up hep-C the easy way along with hep-B back in 1969. Today is my second day on Harvoni. I had a biopsy in 1998 and subsequent treatment with interferon/Ribavirin which had to be terminated after about 6 weeks; really nasty stuff. M...

Lawmatt · Lawmatt

After my 12 week bloods I have no virus detected and ride of that crazy telapraver will try and put up blood results for any one who is on this cruel treatment if it helps when I stopped the telapraver about a week after I started feeling so much better and had injection last night with almost no side effe...

perry · perry

Hi all. Back again afater a few months. A few of you may remember that I was going to run across USA ( NY to LA). Well I succeeded in doing that in a ne wrecord ( masters) and have been back in NZ now for almost 3 weeks. Now to get started on trweatment - Drs were going to start me 3 months ago but talked them out of i...

1rmf · 1rmf

I'm a 61-year-old male who, two weeks ago, was diagnosed HepC positive/chronic (whatever that means). Never been diagnosed "positive" before so never treated. Then, yesterday I was told my viral load was <15/undetectable. A CT Scan of my liver showed no damage, blood test shows liv...

Topic		Started By	Replies	Views	Last Post
	Hi new here and still waiting on treatment (Preview) Hi, I am new and waiting on treatment. I have genotype 2 and hope something in the near future comes out that isn't as harsh as the current treatment (ribavirin). Nice to meet everyone and I'm also here to learn as much as I can on how to take the best possible care of my health. I have learned a lot in the...	Dawnh	4	793	Jan 22, 2015 by Dawnh
	Hi (Preview) Hello everyone. This is Max Adam from New York. I am a health expert and a MD from New York.	maxadam	1	748	Jan 22, 2015 by Cinnamon Girl
	Starting Harvoni today (Preview) Hello. My first day on the forum and taking my first Harvoni tablet tonight at 8 PM Pacific time. From Wa. State. I have medicare with Kaiser Permanente. I'm looking forward to being "cured" from hep C. I'm in stage 3. I have been waiting for this day for a long time. I'm glad it is finally here....	rblood	14	1473	Jan 21, 2015 by Tig
	Hello Everyone! I am new and just started Harvoni yesterday! (Preview) I got the fedex and took one immediately...pretty peach-colored quadrangle. I arranged them in a pill organizer by day and now I wait. It all seems a bit anitclimactic and silly, but that first pill was a very emotional experience. I am happy to be in the club! All I feel today is a headache. I'll take...	dharmabum	14	1322	Jan 17, 2015 by dharmabum
	NJ_Mel - New Member :) (Preview) Hi All, New member here, introduced to the forum by a friend Rubye! Here's my story... On a beautiful spring day in 2014, I worked all day, jumped on a train, and headed for a conference. When I got to the city, I walked to the hotel, which was about a mile from the station. It was a beautiful evening, so a...	NJ_Mel	11	1431	Jan 3, 2015 by NJ_Mel
	New member (Preview) Hi new to this forum I am hcv pos for an assumed 40 years cirrhotic fibroscan 23 am on astral 1 trial sof andgs5816	Marktq1	3	854	Jan 1, 2015 by Matt Chris
	Need Opinions Concerning Gastro Dr Please (Preview) Hello, I have my first visit with my new Gastro Dr tomorrow morning. The physician's assistant who ordered all my tests and blood work has informed me that she does not believe that I will be afforded treatment because my tests show no liver damage and it is not enlarged as she thought when she exam...	Rose 57	10	1496	Jan 1, 2015 by skewedButNotBroken
	New to the forum (Preview) New to the forum and have had HCV for at least 14 years that I know of, probably came from a dirty needle stick that occured in 1977 when working in an ICU. I spent 37 years working as a Critical Care RN and in the early years we never used any precautions like gloves in dealing with patients, so the number of t...	mikeinco	6	951	Jan 1, 2015 by RudiRoo
	Silent Dr but I recieved correspondance Re: Harvoni (Preview) It seems that is spite of Dr. Silence, I have been getting a bunch of stuff regarding Harvoni to send in. They most recently requested Pharmacy Information . I hope that is good ... I see Dr on Friday . No word on Fibroscan, but my cancer Dr with whom I do follow ups with ( He actually talks to me ), ...	Brian1412	22	3102	Dec 30, 2014 by Brian1412
	Not officially diagnosed yet (Preview) Hi Everyone =) My names Maria and Im really glad to gave found a forum where there seems to be so many educated and experienced users. I just wanted to share a little background and recieve some advice. I just moved to Puerto Rico from Florida. In March I started using drugs IV for the first time. My ex int...	bokeygirl	15	1642	Dec 20, 2014 by Tig
	Lurker comes out of the shadows (Preview) Hi all. I feel like I know you already because I have been reading up on Hep C here nightly. Although I decided to come out of the shadows now because I just got the call that my Harvoni is ready to be picked up tomorrow at the pharmacy. It was a blessing/shocked/surprise since I only just saw the GI Liver...	fourlocos	15	1314	Dec 14, 2014 by Tig
	Bob54 Intro (Preview) Hi all, I was diagnosed with Hep-C in Dec of 2008 but am pretty sure i contracted it back in the 80's while in the Air Force. I am Genotype 1b, although I have no idea how that is determined. My viral load is 11,000,000 ml, Biopsy results indicate Stage F0, no fibrosis, however Fibrospect II results score...	Bob54	9	1101	Dec 11, 2014 by fourlocos
	New member (Preview) Hello all I'm new. GT3 believe I've had HCV since late 1970s from tattoo. Was diagnosed 2003 was told it was mild not to get treated. My Dr. was to monitor it with my yearly physical but it didn't happen was tested again in 2013 and went through SLVD/ Rbvrn 24 week treatment 03/2014 - 08/2014 post treatmen...	inthewind	10	2352	Dec 11, 2014 by inthewind
	Effects of alchogol after sovaldi/ ribo pack treatment (Preview) Hello! I finished treatment 1 month ago and would like to know if I can celebrate with a glass of champagne. I was on sovaldi/ribo pack for 24 weeks. What is the effect of alcohol after treatment? Thank you.	Zaika	2	890	Dec 8, 2014 by Matt Chris
	Please tell me what Hep C treatment entails. (Preview) Can someone please tell me exactly what Hep C treatment entails? I mean do they give a an Rx to fill, shots, cut your legs off, what exactly do they do. Please tell me EXACTLY what they do, how many times a month do you have to see a specialistst, how is medication administered, how much does it cost, does...	Alias Arizona	11	1122	Dec 7, 2014 by Alias Arizona
	Please Share Your Knowledge With Me . (Preview) Can someone please tell me what this may mean? I am blearey eyed from trying to decipher it with the help of the great google and my follow up isnt until the 18th.. Here is exactly how it reads: QuestOnly- HEPATITIS C VIRUL RNA, PCR QUANTITATIVE Test Resul...	Rose 57	7	1181	Dec 6, 2014 by Alias Arizona
	New member introduction (Preview) Hello, I just finished 12 weeks of Solvadi/Pegasys/Ribavirin treatment and found this forum when looking for info on how long it will take to start feeling better. As you all probably know, this treatment was a real bear. I've never had such depression in all my life and my energy levels are practical...	bbintn	18	2767	Dec 6, 2014 by Miss B
	A bittersweet hello. I am new here! (Preview) Greetings! I've been a member(lurker) here for a few months, but i believe it's about time i post something. I am a vertical transfer, and was diagnosed at 13. When i was 22 i took and failed my first treatment(tx), a Peg/Rib tx. When i was 24, i tired again, a stronger dosage, but again no effect. At 25 i to...	canythingbutaverage	7	1833	Dec 5, 2014 by Greg D
	I'm new (Preview) Considering treatment with Harvoni. Have applied for Support Path but not eligible because I am on Medicare Part B and D. Out of pocket will be over 12k, can't afford. If anyone has any suggestions of can refer me to a group discussing this topic let me know. Angie	angie	3	748	Dec 5, 2014 by Tig
	Confused (Preview) Hi all newbie here, I have recently been diagnosed with Hep C (last week) so this is all new to me. I would just like to run through my story and get your opinions if that's OK? I'll try to keep it brief and to the point. In 1996 I became very ill, after a couple of years of extensive tests I received a diagnosis...	tombee31	31	2099	Dec 4, 2014 by tombee31
	Harvoni Urgent Appeal ( 1 2 3 ) (Preview) My insurance company has my urgent appeal for harvoni, It was mailed last Thursday by priority mail. I was told that it had to be mailed, not faxed? They received it Tuesday, and in put it in their system yesterday. They told me yesterday, that they will make a decision today or tomorrow. I will make a lo...	johnsshutts	101	6303	Dec 4, 2014 by Josh Haynie
	Just Started Harvoni (Preview) Hi,everyone just started going on my 3rd day, and SE very mild including a little insomnia which is getting better, have no head aches. does anyone know if nicotine can effect tx?	rltan	5	2523	Dec 2, 2014 by Cinnamon Girl
	week #3 harvoni (Preview) Just got the results from last Friday which would was the completion of week #2 on treatment. I really cannot believe the results! In over 40 years I have never had normal range levels, YET here they are! Such a difference from labs drawn prior to start of treatment!! SGOT - 37 SGPT - 41 TOTAL BIL - .8...	Ro	7	1502	Dec 1, 2014 by B161
	Hi. I'm New (Preview) I started Harvoni on Halloween and will take my last pill on Christmas Day, so I'm almost half-way through treatment. I'm 1a, TX naive. I had my first blood test at 2 weeks. My VL dropped from 315k to 30. I have been having some mild side effects, but my liver tests were good. I'll go in for more tests next we...	Harvoninme	4	1052	Nov 25, 2014 by Tess
	Starting HARVONI TONIGHT!!!! YEA!!!! (Preview) Received that very expensive bottle of Harvoni. Treatment was approved for 12 weeks. Spoke to the pharmacist who confirmed that it's OK for my husband to continue taking the supplements while on treatment. We also agreed that to minimize any SE it would be best if the pill is taken at night. I am pr...	hepCFREEwanab	8	936	Nov 25, 2014 by Matt Chris
	Last labs (Preview) okay, in a few I'm going to get my last labs. I will see the doctor on 12/3 and will know if I achieved the golden SVR status. The closer it gets the more nervous I get. But I will soon know. I was UND a month ago so I am hopeful. Thank you for all the support you have given me. Will let you know the results in a few da...	beingsassy	7	1130	Nov 21, 2014 by beingsassy
	ON HARVONI-DAY 2 (Preview) Hi- I'm 62 years old diagnosed with genotype 1b in 1989. Probably picked up hep-C the easy way along with hep-B back in 1969. Today is my second day on Harvoni. I had a biopsy in 1998 and subsequent treatment with interferon/Ribavirin which had to be terminated after about 6 weeks; really nasty stuff. M...	pauliep	11	1600	Nov 19, 2014 by hrsetrdr
	12 week bloods "NO virus DETECTED" (Preview) After my 12 week bloods I have no virus detected and ride of that crazy telapraver will try and put up blood results for any one who is on this cruel treatment if it helps when I stopped the telapraver about a week after I started feeling so much better and had injection last night with almost no side effe...	Lawmatt	5	1099	Nov 18, 2014 by mallani
	back after a wee journey!!! (Preview) Hi all. Back again afater a few months. A few of you may remember that I was going to run across USA ( NY to LA). Well I succeeded in doing that in a ne wrecord ( masters) and have been back in NZ now for almost 3 weeks. Now to get started on trweatment - Drs were going to start me 3 months ago but talked them out of i...	perry	10	1229	Nov 16, 2014 by Groupergetter
	Diagnosed HepC positive two weeks ago, yesterday told viral load (Preview) I'm a 61-year-old male who, two weeks ago, was diagnosed HepC positive/chronic (whatever that means). Never been diagnosed "positive" before so never treated. Then, yesterday I was told my viral load was <15/undetectable. A CT Scan of my liver showed no damage, blood test shows liv...	1rmf	1	691	Nov 13, 2014 by Tig
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