Hep C Discussion Forum

Tess · Tess

Hi, I am a 60 year old woman and have had Hep C for 32 years, supposedly from a blood transfusion in '82. Was diagnosed in 2001 after checking for Lyme Disease due to chronic neck pain. No Lyme, but they found HCV. Since then I have been monitored with regular biopsies and blood work. Moderate fibrosis...

Castraaa · Castraaa

i started treatment 2 weeks ago. I was on my dads insurance until i turned 26 which was a couple weeks ago. Insurance told me they would cover costs until the end of treatment since I started before the policy officially ended. I went to refill my script and they told me they won't do it, and are no longer co...

Castraaa · Castraaa

i just started treatment 2 weeks ago w the interferon, ribiviron, sovaldi combo for genotype one. I've been experiencing awful aches. I'm hoping someone here can help w a question I have. Is anyone taking any pain medications with this same combo? Will opiate based meds interfEr with treatment?

JoshuaShareWIK · JoshuaShareWIK

My name is Joshua Schlabach and I am producer at ShareWIK Media Group which is a health and wellness company in Atlanta, Ga. We are producing a number of video segments for HealthGrades's Personal Story Network focusing on Hepatitis C and how HCV really isn't a death sentence. I would love to talk to so...

swarm · swarm

Hello all, So I felt I needed to join and try to get some answers as I am very scared and having a tough time. So after thinking i was tested for HCV over 9 years ago when I first got sober, I looked back into my medical records and we did not see any testing. After seeing my Dr recently for a lump in my sternum are...

new member: harvini appeal · johnsshutts

Thanks for having me, everyone. My name is John Shutts fron Corpus Christi, Tx. I am calling my insurance today on my harvini appeal. I am going to tell them all of the severe symptoms I am having because of my chronic hep c disease. Just because I am between stage 1 and 2, with a little bit of scarring, do...

new member · liverking

New member, will have to learn all the terms, abbrev. and other hepc related stuff. Was diagnosed over 25 years ago and have seemed to manage it well enough, take milk thistle religiously, don't smoke or drink anymore and didn't really exhibit any extreme side-affects. Hard to explain, but I "f...

Brian1412 · Brian1412

Well, it took some time, but I now have a very good Dr, I did my type, Viral load etc last week and I will have the results next appointment Nov 7..( I will get them from records before that ) My Dr is a highly regarded Gastro, and I like her. she is the one that fixed my bleeding ulcers. At least wit...

LC · LC

So I found out a month ago that I have HCV, and I am not yet sick from this. My Dr is proposing Incivek triple therapy (he also said this doesn't necessarily need immediate treatment) and I am a 1a with a VL of 753,000. I don't know what stage of deterioration my liver is at yet, which may end up being a det...

johnsshutts · johnsshutts

I called my insurance company and Gilead about my appeal for harvoni. It looks like it is going to take a long time for my appeal, up to 30 days. My doctor faxed my appeal last Thurs. morning. Insurance company has not even put it in their system yet. It looks like the insurance is going to take their good ol...

Tess1971 · Tess1971

I have noticed that everywhere I go that I am always the only one in Tennessee. There are NO support groups of any kind here either. This is why I seek out forums on the internet.

lizabear · lizabear

Hello all, my name is Liza, This is a long long introduction, it covers more than my hepc status, I am in crisis mode right now. I apologise if this is something I should not have posted, but I am in desparate straits and need to reach out to the larger community, as I am not finding the help I need in my loca...

justvlm · justvlm

Hello everyone. I've been lurking here off and on for a long time. I opted to not treat after being diagnosed in 2007, biopsy of stage 0/1, grade 0/1. I'm not sure if the GI fired me or the other way around. She just couldn't believe I wouldn't ingest poison for 6 months, question her superior knowled...

Brian1412 · Brian1412

OK, I have the lab report HCV log 10- 7,37 Hep C Geno 1 a with I think it is RT? after the geno type so 1 a rt.. I have a whole page of results for the blood test, so I don't know what else to include. Let me know and I will post everything. I don't have a scanner I guess I got the jack pot. 1a is the most diffi...

Ro · Ro

Just received a call from my doctor to schedule an appointment this week as the new treatment Harvoni ((Ledipasivir/Sofosbuvir in 1 pill) is to be approved on Oct 10 and they believe I am a candidate. As a 2 time non-responder, geno 1A with Q8k morph, and chirrotic liver, I am overwhelmed with digesti...

Josh Haynie · Josh Haynie

hello everyone who is just finding this place..... you have stumbled upon the greatest hep C and all other things health site on the internet..... i found this place by chance on google while surfing around hep info .... Im glad God said hay look here ....i dont belive in chance or randomness :) any...

RudiRoo · RudiRoo

Hi everyone, Like many others I've been a lurker, now joining in as I finally have some hope ahead of me. I was approved for FREE Sovaldi/Olysio and was feeling so blessed and excited. Then I went to look up some information and stumbled across some scary posts on another board. I went to a site called Adv...

pltmt · pltmt

Greetings all, Today I am celebrating - 1 year post liver transplant due to this terrible malady. By the time I was diagnosed with Hep C back in 2010, my liver was already at stage 4 sclerosis. I tried the dual & triple medication treatments, my body was in such bad condition, I ended up being hospit...

New Member · Teri

New to this forum - not sure how to post, ask questions, etc... Maybe I'm doing it right? Would like some input on what I'm in for, questions to ask Dr., I guess everything right now.

moodyblue8363 · moodyblue8363

Hello all, New to this forum to try and gain information about Hep C that I have. I recently had blood work done and the test results are Hepatitis C Quantitation 3,566,240 IU/mL 01 HCV log10 6.552 log10 IU/mL Is there anyone that understands these levels? Thanks!

fortworthmatt · fortworthmatt

I have the opportunity to change my insurance from BlueCross Blue Shield to Aetna. Has anyone had either one of these companies deny thier treatment? Any thought on high deductable vs low deductable? Also both companies use Expressscripts for perscritpions - so does the healtcare company pay for t...

WarriorPoet · WarriorPoet

Hello Everyone! It's great to be part of this group. I hope this post doesn't violate any forum rules, but it is extremely beneficial for the community. I'm a CNN producer on the show, Inside Man, looking to tell a story about Hepatitis C treatment. We would like to speak with patients who are in stage 3 o...

Uncle Barney · Uncle Barney

Hello I'm new to this site, hope I've posted in the right place.. I'm starting the Merck C-Edge trial on Monday. I'm also on a methadone program. I know I'm lucky to have a chance on the trial, but I haven't been on any other medication for the hep c. So I'm worried about the unknown of being on a trial and the...

Drifter · Drifter

Side effects are bad headaches , fatigued , no appetite.. Missed work all week .. I do my 3rd injection tomorrow..

hellokitty30 · hellokitty30

hi. ive recently been given my results im 1b genotype...and 10 weeks pregnant..i got my HCV RCN VIRAL LOAD results back and my doctor said she had no idea what it meant and told me the people at liver clinic will tell me the results but im probably not seeing them till after the baby... '''?? can anyone h...

New Member · Drifter

New member..started treatment 13 days ago Interferon , Sovaldi , and Ribavirin Bad headaches and no appetite..been drinking lots of water.. I have missed 4 days at work..Dr. told me to take it easy until Monday.. Anxiety is coming over me...

JLynch30 · JLynch30

I relapsed on solvaldi/ribravirin/interferon - any word if I will be eligible for new treatment?

hippiechick · hippiechick

I posted this in the Clinical Trial thread, maybe I should have started here? Abbvie Topaz II (This may be the first arm of this trial as I can not find any mention of it anywhere.) Took my first dose July 21. The regimen is: ABT-450/Ritonavir/2 ABT-267 75mg/50mg/12.5mg (2 per day) ABT-333 250 mg (2 per d...

Gator Man · Gator Man

"The examples used in Stahls story tonight were a year or two old. But in my business we often think of the moment when a story hits 60 Minutes as peak hype. It might be time for drug industry executives to think out loud about how to decide what will limit cancer drug costs, and when costs should be...

Lawmatt · Lawmatt

-- Edited by Lawmatt on Friday 3rd of October 2014 09:58:45 PM

Topic		Started By	Replies	Views	Last Post
	If you reached SVR - - was it worth it? (Preview) Hi, I am a 60 year old woman and have had Hep C for 32 years, supposedly from a blood transfusion in '82. Was diagnosed in 2001 after checking for Lyme Disease due to chronic neck pain. No Lyme, but they found HCV. Since then I have been monitored with regular biopsies and blood work. Moderate fibrosis...	Tess	11	1799	Nov 12, 2014 by Tess
	Insurance? (Preview) i started treatment 2 weeks ago. I was on my dads insurance until i turned 26 which was a couple weeks ago. Insurance told me they would cover costs until the end of treatment since I started before the policy officially ended. I went to refill my script and they told me they won't do it, and are no longer co...	Castraaa	35	1831	Nov 11, 2014 by Castraaa
	Hi (Preview) i just started treatment 2 weeks ago w the interferon, ribiviron, sovaldi combo for genotype one. I've been experiencing awful aches. I'm hoping someone here can help w a question I have. Is anyone taking any pain medications with this same combo? Will opiate based meds interfEr with treatment?	Castraaa	0	724	Nov 8, 2014 by Castraaa
	Looking for people to share their stories to help others with HCV (closed) (Preview) My name is Joshua Schlabach and I am producer at ShareWIK Media Group which is a health and wellness company in Atlanta, Ga. We are producing a number of video segments for HealthGrades's Personal Story Network focusing on Hepatitis C and how HCV really isn't a death sentence. I would love to talk to so...	JoshuaShareWIK	4	926	Nov 6, 2014 by Cinnamon Girl
	New here, pretty scared :( (Preview) Hello all, So I felt I needed to join and try to get some answers as I am very scared and having a tough time. So after thinking i was tested for HCV over 9 years ago when I first got sober, I looked back into my medical records and we did not see any testing. After seeing my Dr recently for a lump in my sternum are...	swarm	11	1315	Nov 4, 2014 by Fireman Rob
	new member: harvini appeal (Preview) Thanks for having me, everyone. My name is John Shutts fron Corpus Christi, Tx. I am calling my insurance today on my harvini appeal. I am going to tell them all of the severe symptoms I am having because of my chronic hep c disease. Just because I am between stage 1 and 2, with a little bit of scarring, do...	johnsshutts	8	1996	Nov 2, 2014 by LC
	new member (Preview) New member, will have to learn all the terms, abbrev. and other hepc related stuff. Was diagnosed over 25 years ago and have seemed to manage it well enough, take milk thistle religiously, don't smoke or drink anymore and didn't really exhibit any extreme side-affects. Hard to explain, but I "f...	liverking	8	1261	Oct 31, 2014 by LC
	Finally (Preview) Well, it took some time, but I now have a very good Dr, I did my type, Viral load etc last week and I will have the results next appointment Nov 7..( I will get them from records before that ) My Dr is a highly regarded Gastro, and I like her. she is the one that fixed my bleeding ulcers. At least wit...	Brian1412	11	1433	Oct 30, 2014 by Brian1412
	Thinking about delaying treatment ( 1 2 ) (Preview) So I found out a month ago that I have HCV, and I am not yet sick from this. My Dr is proposing Incivek triple therapy (he also said this doesn't necessarily need immediate treatment) and I am a 1a with a VL of 753,000. I don't know what stage of deterioration my liver is at yet, which may end up being a det...	LC	62	5554	Oct 30, 2014 by LC
	Harvoni appeal (Preview) I called my insurance company and Gilead about my appeal for harvoni. It looks like it is going to take a long time for my appeal, up to 30 days. My doctor faxed my appeal last Thurs. morning. Insurance company has not even put it in their system yet. It looks like the insurance is going to take their good ol...	johnsshutts	5	1021	Oct 27, 2014 by johnsshutts
	Anyone in Tennessee (Preview) I have noticed that everywhere I go that I am always the only one in Tennessee. There are NO support groups of any kind here either. This is why I seek out forums on the internet.	Tess1971	11	1507	Oct 25, 2014 by Cinnamon Girl
	Hello I am new to this forum, I was dx in 1998, did pegasys, replapsed, geno 1a (Preview) Hello all, my name is Liza, This is a long long introduction, it covers more than my hepc status, I am in crisis mode right now. I apologise if this is something I should not have posted, but I am in desparate straits and need to reach out to the larger community, as I am not finding the help I need in my loca...	lizabear	17	1741	Oct 25, 2014 by skewedButNotBroken
	no longer lurking (Preview) Hello everyone. I've been lurking here off and on for a long time. I opted to not treat after being diagnosed in 2007, biopsy of stage 0/1, grade 0/1. I'm not sure if the GI fired me or the other way around. She just couldn't believe I wouldn't ingest poison for 6 months, question her superior knowled...	justvlm	18	1355	Oct 24, 2014 by LC
	My Lab Tests Geno 1a (Preview) OK, I have the lab report HCV log 10- 7,37 Hep C Geno 1 a with I think it is RT? after the geno type so 1 a rt.. I have a whole page of results for the blood test, so I don't know what else to include. Let me know and I will post everything. I don't have a scanner I guess I got the jack pot. 1a is the most diffi...	Brian1412	6	1059	Oct 23, 2014 by Brian1412
	Harvoni..new treatment??? (Preview) Just received a call from my doctor to schedule an appointment this week as the new treatment Harvoni ((Ledipasivir/Sofosbuvir in 1 pill) is to be approved on Oct 10 and they believe I am a candidate. As a 2 time non-responder, geno 1A with Q8k morph, and chirrotic liver, I am overwhelmed with digesti...	Ro	25	4683	Oct 23, 2014 by Brian1412
	WELCOME ! (Preview) hello everyone who is just finding this place..... you have stumbled upon the greatest hep C and all other things health site on the internet..... i found this place by chance on google while surfing around hep info .... Im glad God said hay look here ....i dont belive in chance or randomness :) any...	Josh Haynie	0	726	Oct 21, 2014 by Josh Haynie
	Starting TX Feeling nervous (Preview) Hi everyone, Like many others I've been a lurker, now joining in as I finally have some hope ahead of me. I was approved for FREE Sovaldi/Olysio and was feeling so blessed and excited. Then I went to look up some information and stumbled across some scary posts on another board. I went to a site called Adv...	RudiRoo	28	1521	Oct 21, 2014 by RudiRoo
	Second life (Preview) Greetings all, Today I am celebrating - 1 year post liver transplant due to this terrible malady. By the time I was diagnosed with Hep C back in 2010, my liver was already at stage 4 sclerosis. I tried the dual & triple medication treatments, my body was in such bad condition, I ended up being hospit...	pltmt	5	1044	Oct 20, 2014 by wmlj1960
	New Member (Preview) New to this forum - not sure how to post, ask questions, etc... Maybe I'm doing it right? Would like some input on what I'm in for, questions to ask Dr., I guess everything right now.	Teri	10	1117	Oct 20, 2014 by Cinnamon Girl
	Hepatitis C Quantitation Test Results (Preview) Hello all, New to this forum to try and gain information about Hep C that I have. I recently had blood work done and the test results are Hepatitis C Quantitation 3,566,240 IU/mL 01 HCV log10 6.552 log10 IU/mL Is there anyone that understands these levels? Thanks!	moodyblue8363	14	1214	Oct 19, 2014 by Tig
	Aetna vs BCBS for treatment (Preview) I have the opportunity to change my insurance from BlueCross Blue Shield to Aetna. Has anyone had either one of these companies deny thier treatment? Any thought on high deductable vs low deductable? Also both companies use Expressscripts for perscritpions - so does the healtcare company pay for t...	fortworthmatt	5	2066	Oct 16, 2014 by Dzdayscomin
	CNN Documentary on Hepatitis C - Looking for Subject (Preview) Hello Everyone! It's great to be part of this group. I hope this post doesn't violate any forum rules, but it is extremely beneficial for the community. I'm a CNN producer on the show, Inside Man, looking to tell a story about Hepatitis C treatment. We would like to speak with patients who are in stage 3 o...	WarriorPoet	3	924	Oct 15, 2014 by WarriorPoet
	Starting Merck C-Edge phase 3 trial on methadone program (Preview) Hello I'm new to this site, hope I've posted in the right place.. I'm starting the Merck C-Edge trial on Monday. I'm also on a methadone program. I know I'm lucky to have a chance on the trial, but I haven't been on any other medication for the hep c. So I'm worried about the unknown of being on a trial and the...	Uncle Barney	10	1107	Oct 12, 2014 by Isiscat2011
	Side effects (Preview) Side effects are bad headaches , fatigued , no appetite.. Missed work all week .. I do my 3rd injection tomorrow..	Drifter	2	825	Oct 11, 2014 by Tig
	pregnant and recently diagnosed (Preview) hi. ive recently been given my results im 1b genotype...and 10 weeks pregnant..i got my HCV RCN VIRAL LOAD results back and my doctor said she had no idea what it meant and told me the people at liver clinic will tell me the results but im probably not seeing them till after the baby... '''?? can anyone h...	hellokitty30	15	1477	Oct 11, 2014 by Milliganus
	New Member (Preview) New member..started treatment 13 days ago Interferon , Sovaldi , and Ribavirin Bad headaches and no appetite..been drinking lots of water.. I have missed 4 days at work..Dr. told me to take it easy until Monday.. Anxiety is coming over me...	Drifter	10	1381	Oct 11, 2014 by skewedButNotBroken
	New treatment (Preview) I relapsed on solvaldi/ribravirin/interferon - any word if I will be eligible for new treatment?	JLynch30	7	1099	Oct 8, 2014 by Huey
	New here, started clinical trial July 14 (Preview) I posted this in the Clinical Trial thread, maybe I should have started here? Abbvie Topaz II (This may be the first arm of this trial as I can not find any mention of it anywhere.) Took my first dose July 21. The regimen is: ABT-450/Ritonavir/2 ABT-267 75mg/50mg/12.5mg (2 per day) ABT-333 250 mg (2 per d...	hippiechick	3	1326	Oct 7, 2014 by LC
	Forbes article regarding 60 minutes last night on high cancer drug costs (Preview) "The examples used in Stahls story tonight were a year or two old. But in my business we often think of the moment when a story hits 60 Minutes as peak hype. It might be time for drug industry executives to think out loud about how to decide what will limit cancer drug costs, and when costs should be...	Gator Man	3	1105	Oct 6, 2014 by Tig
	My bloods current ( don't really understand them ) (Preview) -- Edited by Lawmatt on Friday 3rd of October 2014 09:58:45 PM	Lawmatt	4	948	Oct 6, 2014 by Scruffy
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