Hep C Discussion Forum

nandrews4 · nandrews4

Hey everyone, I was diagnosed with Hep C about 2-3 months ago, contracted through sharing needles (dumb, I am aware). Got tested 1st time in 2011-negative then positive this year, thus have not had the virus too long. I am currently 2 weeks sober, and living in a sober living and attending an intensive...

Shine Just Shine · Shine Just Shine

Hi all I'm on here for both my husband and myself. We've known were both C positive since 2007?? Anyway, just looking to finally approach this silent beast now and find dietary advice and treatment opinions. It's time. There's fatty liver disease happening and not sure how serious that can get but...

hepcinbama · hepcinbama

new to site!

Hep-C Dragon Slayer · Hep-C Dragon Slayer

Getting ready to start taking the new Hep C drugs. My doctor has me taking both Sovaldi and Olysio which has me confused along with Ribavirin. I cannot take the Interferon because my Biopsy shows Sarcoidosis in my liver which also has caused cirrhosis. So I will be taking the combination of these ne...

hummingbird · hummingbird

Hi. My new insurance and a grant has covered everything. Thank you Obamacare! I'm attempting to wait patiently for the meds to get shipped. The dr prescribed the wrong brand of interferon. So I've been on the phone all week trying to no avail to reach the dr's office (leaving messages). Also the specia...

Omar · Omar

Hi All I have been recently diagnosed with Hep C type 3. I work and live in Dubai and have been advised by doctors to start the treatment with peg-interferon and Ribavirin for 6 months. I am originally from Pakistan and surfing the internet found that Sovaldi will be available in Pakistan in the next 2 mo...

tgcd78 · tgcd78

Hello! I'm tgcd78. I'm on day 8 of the clinical trial OPTIMIST taking once a day Sovaldi (400mg) and Simeprevir (150mg). I feel so fortunate to be on this trial. I found out I was Hep C positive when I was pregnant with my first baby in 2008. I may have had Hep C all my life but never tested until then. ...

dianna · dianna

Hello to all the members on this site It was a the last leap year we had in 2012 my hubby had his liver transplant, what a journey, it took him 18 months to get back to some normality. The new treatment Sofosbuvir has come to trials in our hospital just now but are treating Geno Type 3. Have been advised Geno...

Douglas · Douglas

SIX MONTHS TODAY ! LIVER TRANSPLANT ANNIVERSARY STILL HAVE HCV genotype 1B WHAT DO I DO NEXT ?? Does anyone have experience/advice on Hepatitis C / Near Death / Liver Transplant injury? GammaGuard contamination I contend my HEPATITIS C (HCV) story and all started approx 16 years ago with a medic...

Post from a new member · Mike716

Hi, all! I'm new to this forum so posting first in the New Members section. I'm a 70-year-old New Yorker, diagnosed HCV+ in 2008 with genotype 1b. I had a biopsy then that gave F1/A2, and have been followed since then with blood tests, ultrasound scans, and a few Fibroscans and Fibrotests. I'm currentl...

Housewife01 · Housewife01

Hello, my name is Sarah and I'm from Australia and I am 22. ive been diagnosed for 6-8 months but have apparently had HEPC for 4 years (long story short I had some terrible doctors) I have started treatments and am finding some things really hard. I guess I'm here to find people like me, going through wha...

Lighthouse · Lighthouse

I am from omaha ne and just started treatment today .....savoldi and ribavirin my faith is strong and I am using GODS POWER to carry me through ...GOD BLESS TO ALL

Didi · Didi

I have had HCV since 1981 blood trans and got the Sovaldi/ RIBA and my DR is old school gave me RIBA eeeekkkk so on the 17th PS already approved for Olysio 3.50 for 4,000.00 and onto fighting the dragon !! ran a HCV group on msn for about 10 yrs .. was didi in hepatitis neighborhood so if ya all remember me say...

beingsassy · beingsassy

Okay, I am about to take my last ribavirin. Already done with the sovaldi. Thank you to everyone, especially Jimbob, for the encouragement to keep going when I felt like quitting. Next labs in 3 weeks and will post the results once I know them. Thank you so much for all the help. I plan on sticking around t...

rogerw · rogerw

Hi my name is Roger and I just joined the forume. have been stalking the board for about a month and it seems like a good site.I just took my first dose of sovaldi and ribavirin about 30 minutes ago so just started the journy. Thanks Roger

Marypetrecz · Marypetrecz

I have hep c, and am 1a. I had major problems it's ribo and interferon and had to stop after 4 months in 2005. i started the olysio and sovaldi on April 14th. I feel really good and am so happy to be on these drugs. i am a grandmother with 5 little girls and will be able to live out my life enjoying and sharing m...

warrenb · warrenb

Hi there Just completed a week ago 12 week triple therapy with interferon, ribavirin, and Sovaldi. First time treatment Gen type 1a, had HCV for 32 years. early cirrhosis. Started treatment 1/31/14 with first interferon shot. Undetectable within 21 days of start. Side effects were anemia an...

js · js

Hello and greetings. New here, a brief bio of my adventures with HCV. Infected 1970 while in military. HCC in 1998, transplant 1999. I have done well with the transplant but the HCV has pretty well destroyed the new liver. Stage 4 cirrhosis and now have edema I am guessing from portal vein hyperte...

thepoet · thepoet

I'm on day 19 of treatment with Sovaldi and Ribavirin. I am genotype 4c. After 2 weeks of treatment, my doc says my VL went from 600,000 to 43...AMAZING...my ALT from 99 to 31 and AST from 114 to 29. I am feeling so alive and energetic. My only side effect is insomnia and the doc says to take my second dose of...

Turnsit · Turnsit

Does anyone other than me have a terrific appetite? All the comments I am reading are about loss of appetite. I am just curious, its not a problem as I only eat really healthy foods and am not craving anything I should not be eating. I have noticed to when the weather is still and hot on the island, I itch a lo...

david a · david a

Hi all , I've been reading this forum for about a year now and feel it's time to take part . I was diagnosed about two years ago , geno 2b . last VL was 750,000 . I was approved for Peg/Riba last year but opted to wait for new meds . I'm about to be denied treatment for Sovaldi/Riba as I guess my insurance co , Un...

CharlieC · CharlieC

Hello. Glad to have found this forum. Was suggested I post in the Newbie section so here I am. This is my 8th day on Daclatasvir/Solvadi combination. I have heard such fantastic things about the combo and was wondering if anyone out there is on the same treatment now or has been.

jh1947 · jh1947

Just wanted to say hi to the community! I diagnosed with active Hep C about 6 months ago. I'm 66, and have likely had it since 1968 or 69 from a transfusion and/or needle stick while in the army. I am very early Stage 2, genotype 2 (not sure of the letter). My doctor at the University of North Carolina has pre...

thecommodore · thecommodore

Hello, and thank you all for having me in your forum. Here is my situation: I am a 51 year old male, and today I learned that I may have Hep C. I am otherwise in good health, but blood work done after a routine checkup in March showed me with slightly elevated bilirubin - 1.6 when the "reference range&...

momof2boyz · momof2boyz

My son decided to give blood at his school last month. He wanted to know his blood type :) We received a letter that he has the C antibody. Had more testing done at the drs. Now going to All Childrens to the Gastro dr. We went last week, they drew more blood. We have another appt for next month. Supri...

annabanana · annabanana

Hi I am new to the forum. I was diagnosed in 2002 but haven't pursued treatment as the doctors felt the treatment was worse than the disease. I am genotype 3A and have always had very low viral loads (highest being 400,000) and normal enzymes. I haven't had a biopsy but all tests say I don't have any fib...

sandypsych · sandypsych

Hi All I think that I'm considered a 'returning new member'. My husband has been diagnosed with Hep C for several years. Tried the HALT-C clinical trials many moons ago (no luck), then Interferon/Ribavarin (sick with low platelets). More recently tried Incivek triple therapy, cleared at 8 wee...

beingsassy · beingsassy

Hi, first post on this forum. I've had HCV for over 20 years and am on week 9 of sovaldi and ribavirin. I started treatment with a viral load of 19 million and my last lab, after 51/2 weeks, was at 21. My doctor wanted me to be und by now but I'm happy with the results. I have about 31/2 weeks left with genotype 2...

NEW MEMBER · Roses

Hello I am a new member I am from Long Island New York.

Huey · Huey

I have genotype 3a and am on week 12 of the 24 week Tx Sovaldi and ribavirin combo. I am working a 40 hour day but no overtime. From my perspective if you are taking this, Rest is the best and you need some exercise too. So striking a balance between work, diet and rest is the Key to tolerance.

Topic		Started By	Replies	Views	Last Post
	Starting treatment next week...? (Preview) Hey everyone, I was diagnosed with Hep C about 2-3 months ago, contracted through sharing needles (dumb, I am aware). Got tested 1st time in 2011-negative then positive this year, thus have not had the virus too long. I am currently 2 weeks sober, and living in a sober living and attending an intensive...	nandrews4	16	1513	Jul 9, 2014 by Turnsit
	Introduce (Preview) Hi all I'm on here for both my husband and myself. We've known were both C positive since 2007?? Anyway, just looking to finally approach this silent beast now and find dietary advice and treatment opinions. It's time. There's fatty liver disease happening and not sure how serious that can get but...	Shine Just Shine	8	1204	Jul 1, 2014 by TazKat
	greatings from alabama (Preview) new to site!	hepcinbama	16	1625	Jun 26, 2014 by Huey
	Combo drug prescription of Sovaldi and Olysio with Ribavirin ! ( 1 2 ) (Preview) Getting ready to start taking the new Hep C drugs. My doctor has me taking both Sovaldi and Olysio which has me confused along with Ribavirin. I cannot take the Interferon because my Biopsy shows Sarcoidosis in my liver which also has caused cirrhosis. So I will be taking the combination of these ne...	Hep-C Dragon Slayer	85	29918	Jun 23, 2014 by Isiscat2011
	starting tx (Preview) Hi. My new insurance and a grant has covered everything. Thank you Obamacare! I'm attempting to wait patiently for the meds to get shipped. The dr prescribed the wrong brand of interferon. So I've been on the phone all week trying to no avail to reach the dr's office (leaving messages). Also the specia...	hummingbird	7	1674	Jun 21, 2014 by jimbob
	New to this Forum (Preview) Hi All I have been recently diagnosed with Hep C type 3. I work and live in Dubai and have been advised by doctors to start the treatment with peg-interferon and Ribavirin for 6 months. I am originally from Pakistan and surfing the internet found that Sovaldi will be available in Pakistan in the next 2 mo...	Omar	21	1650	Jun 18, 2014 by Marypetrecz
	Hi from NYC (Preview) Hello! I'm tgcd78. I'm on day 8 of the clinical trial OPTIMIST taking once a day Sovaldi (400mg) and Simeprevir (150mg). I feel so fortunate to be on this trial. I found out I was Hep C positive when I was pregnant with my first baby in 2008. I may have had Hep C all my life but never tested until then. ...	tgcd78	14	2037	Jun 14, 2014 by Huey
	DIANNA DIARY - HUBBY HAD LIVER TRANSPLANT 2 YEARS AGO (Preview) Hello to all the members on this site It was a the last leap year we had in 2012 my hubby had his liver transplant, what a journey, it took him 18 months to get back to some normality. The new treatment Sofosbuvir has come to trials in our hospital just now but are treating Geno Type 3. Have been advised Geno...	dianna	5	995	Jun 12, 2014 by dianna
	NEWBEE 6 MONTH TRANSPLANT ANNIVERSARY TODAY STILL HCV 1B! (Preview) SIX MONTHS TODAY ! LIVER TRANSPLANT ANNIVERSARY STILL HAVE HCV genotype 1B WHAT DO I DO NEXT ?? Does anyone have experience/advice on Hepatitis C / Near Death / Liver Transplant injury? GammaGuard contamination I contend my HEPATITIS C (HCV) story and all started approx 16 years ago with a medic...	Douglas	9	1167	Jun 11, 2014 by Isiscat2011
	Post from a new member (Preview) Hi, all! I'm new to this forum so posting first in the New Members section. I'm a 70-year-old New Yorker, diagnosed HCV+ in 2008 with genotype 1b. I had a biopsy then that gave F1/A2, and have been followed since then with blood tests, ultrasound scans, and a few Fibroscans and Fibrotests. I'm currentl...	Mike716	10	1287	Jun 10, 2014 by Mike716
	New to this, (Preview) Hello, my name is Sarah and I'm from Australia and I am 22. ive been diagnosed for 6-8 months but have apparently had HEPC for 4 years (long story short I had some terrible doctors) I have started treatments and am finding some things really hard. I guess I'm here to find people like me, going through wha...	Housewife01	14	1192	Jun 10, 2014 by Turnsit
	HELLO FROM OMAHA (Preview) I am from omaha ne and just started treatment today .....savoldi and ribavirin my faith is strong and I am using GODS POWER to carry me through ...GOD BLESS TO ALL	Lighthouse	7	944	Jun 8, 2014 by OldenSlow
	Am new but newbut no to HCV (Preview) I have had HCV since 1981 blood trans and got the Sovaldi/ RIBA and my DR is old school gave me RIBA eeeekkkk so on the 17th PS already approved for Olysio 3.50 for 4,000.00 and onto fighting the dragon !! ran a HCV group on msn for about 10 yrs .. was didi in hepatitis neighborhood so if ya all remember me say...	Didi	3	976	Jun 5, 2014 by jimbob
	Last dose (Preview) Okay, I am about to take my last ribavirin. Already done with the sovaldi. Thank you to everyone, especially Jimbob, for the encouragement to keep going when I felt like quitting. Next labs in 3 weeks and will post the results once I know them. Thank you so much for all the help. I plan on sticking around t...	beingsassy	4	846	Jun 5, 2014 by Scruffy
	new to forum (Preview) Hi my name is Roger and I just joined the forume. have been stalking the board for about a month and it seems like a good site.I just took my first dose of sovaldi and ribavirin about 30 minutes ago so just started the journy. Thanks Roger	rogerw	9	1117	Jun 4, 2014 by Fireman Rob
	Newbie here taking the sovaldi and olysio (Preview) I have hep c, and am 1a. I had major problems it's ribo and interferon and had to stop after 4 months in 2005. i started the olysio and sovaldi on April 14th. I feel really good and am so happy to be on these drugs. i am a grandmother with 5 little girls and will be able to live out my life enjoying and sharing m...	Marypetrecz	4	1156	Jun 4, 2014 by Marypetrecz
	Just started browsing forum just completed treatment (Preview) Hi there Just completed a week ago 12 week triple therapy with interferon, ribavirin, and Sovaldi. First time treatment Gen type 1a, had HCV for 32 years. early cirrhosis. Started treatment 1/31/14 with first interferon shot. Undetectable within 21 days of start. Side effects were anemia an...	warrenb	4	1178	Jun 4, 2014 by warrenb
	Hello all (Preview) Hello and greetings. New here, a brief bio of my adventures with HCV. Infected 1970 while in military. HCC in 1998, transplant 1999. I have done well with the transplant but the HCV has pretty well destroyed the new liver. Stage 4 cirrhosis and now have edema I am guessing from portal vein hyperte...	js	8	1119	May 31, 2014 by Kay
	Hello from Brooklyn (Preview) I'm on day 19 of treatment with Sovaldi and Ribavirin. I am genotype 4c. After 2 weeks of treatment, my doc says my VL went from 600,000 to 43...AMAZING...my ALT from 99 to 31 and AST from 114 to 29. I am feeling so alive and energetic. My only side effect is insomnia and the doc says to take my second dose of...	thepoet	29	3285	May 30, 2014 by thepoet
	I have a huge appetite (Preview) Does anyone other than me have a terrific appetite? All the comments I am reading are about loss of appetite. I am just curious, its not a problem as I only eat really healthy foods and am not craving anything I should not be eating. I have noticed to when the weather is still and hot on the island, I itch a lo...	Turnsit	15	2610	May 26, 2014 by Tig
	Hi from Seattle (Preview) Hi all , I've been reading this forum for about a year now and feel it's time to take part . I was diagnosed about two years ago , geno 2b . last VL was 750,000 . I was approved for Peg/Riba last year but opted to wait for new meds . I'm about to be denied treatment for Sovaldi/Riba as I guess my insurance co , Un...	david a	3	800	May 25, 2014 by mallani
	Treatment Daclatasvir and Solvadi (Preview) Hello. Glad to have found this forum. Was suggested I post in the Newbie section so here I am. This is my 8th day on Daclatasvir/Solvadi combination. I have heard such fantastic things about the combo and was wondering if anyone out there is on the same treatment now or has been.	CharlieC	0	732	May 22, 2014 by CharlieC
	Hello! (Preview) Just wanted to say hi to the community! I diagnosed with active Hep C about 6 months ago. I'm 66, and have likely had it since 1968 or 69 from a transfusion and/or needle stick while in the army. I am very early Stage 2, genotype 2 (not sure of the letter). My doctor at the University of North Carolina has pre...	jh1947	17	2320	May 22, 2014 by jimbob
	Hello! Not sure if I am infected or not? (kind of long) (Preview) Hello, and thank you all for having me in your forum. Here is my situation: I am a 51 year old male, and today I learned that I may have Hep C. I am otherwise in good health, but blood work done after a routine checkup in March showed me with slightly elevated bilirubin - 1.6 when the "reference range&...	thecommodore	16	1418	May 21, 2014 by Cinnamon Girl
	My son (16 years old) was just diagnosised (Preview) My son decided to give blood at his school last month. He wanted to know his blood type :) We received a letter that he has the C antibody. Had more testing done at the drs. Now going to All Childrens to the Gastro dr. We went last week, they drew more blood. We have another appt for next month. Supri...	momof2boyz	25	2528	May 19, 2014 by Turnsit
	Newbie (Preview) Hi I am new to the forum. I was diagnosed in 2002 but haven't pursued treatment as the doctors felt the treatment was worse than the disease. I am genotype 3A and have always had very low viral loads (highest being 400,000) and normal enzymes. I haven't had a biopsy but all tests say I don't have any fib...	annabanana	5	1470	May 15, 2014 by Cinnamon Girl
	I'm back again! (Preview) Hi All I think that I'm considered a 'returning new member'. My husband has been diagnosed with Hep C for several years. Tried the HALT-C clinical trials many moons ago (no luck), then Interferon/Ribavarin (sick with low platelets). More recently tried Incivek triple therapy, cleared at 8 wee...	sandypsych	7	1035	May 13, 2014 by Isiscat2011
	Hi (Preview) Hi, first post on this forum. I've had HCV for over 20 years and am on week 9 of sovaldi and ribavirin. I started treatment with a viral load of 19 million and my last lab, after 51/2 weeks, was at 21. My doctor wanted me to be und by now but I'm happy with the results. I have about 31/2 weeks left with genotype 2...	beingsassy	9	2566	May 12, 2014 by Scruffy
	NEW MEMBER (Preview) Hello I am a new member I am from Long Island New York.	Roses	4	838	May 11, 2014 by beingsassy
	Greetings (Preview) I have genotype 3a and am on week 12 of the 24 week Tx Sovaldi and ribavirin combo. I am working a 40 hour day but no overtime. From my perspective if you are taking this, Rest is the best and you need some exercise too. So striking a balance between work, diet and rest is the Key to tolerance.	Huey	0	605	May 10, 2014 by Huey
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