Hep C Discussion Forum

Larry2384 · Larry2384

I started new treatment today of sovaldi and ribavirin and hoping this treatment might cure my type 2 diabetes problem when I am undetectable. I just took my first day's dose without issues. I am a new member and this is my first post. I hope to find someone out there to share my experience with and pe...

yonniman2000 · yonniman2000

I'm Jay,, I'm a health care worker in my 50's from South Jersey near Philadelphia, USA. Just got Dx with HCV 1a after loosing 30 lbs. I've read a lot but I'm really scared. I'd like to make friends through this forum. I'm waiting for my appointment with the GI group. I'm worried about my health and m...

shnub53 · shnub53

Hey everybody have a bad rash. might get taken off meds looking to control it any advice.

pizzacake · pizzacake

Hello! I'm finally joining you! I've been reading this forum for years. You are all so supportive and smart! I've had Hep C for 40+ years. I'm 61 and G1a. I've been considering treatment for three or four years but wasn't willing to do a whole year. My GI doc said I shouldn't wait any longer. So I'm beginn...

New member looking for info · Manshan

Hey everybody. I'm here on behalf of my dad. I'd get him to come by it took me three month to teach him how use his cell. He's been on treatment for 15 weeks now. He I'd twelve weeks on incivik with copegus. Now he i only on copegus the pill and a weekly shot. He just came back from his weekly shot and was taken un...

Ro · Ro

Hi, introducing myself, I am a retired nurse who is geno 1A and has failed treatment twice:( I was diagnosed late '70s with non A nonB. Definitive diagnosis of C was made early 90s. 10 years ago, my first treatment was interferon with RIBA, then switched from interferon to Infergen. I developed sev...

AngieV123 · AngieV123

I have been trying to start treatment since July and today I finally got a start date of 2/14. I go in that morning to begin triple TX with sovaldi for 12 weeks. I am kind of glad that things got pushed back when they did because now I get to start the new stuff. Anyone else doing the triple tx with this? I am ex...

AzHiGirl · AzHiGirl

Hi everyone, I posted here back in August. Then I disappeared, sorry about that. I started the Sovaldi / Olysio tx friday. Its time to kick this Hep C's a$$! That being said, I went home sick from work today. Headache, nausea & very fatigued. I'm also feeling weak. It's still a hundred times better t...

bodford · bodford

I became aware I had the hep-c virus during a routine blood donation (Red Cross) in 1988. At that time it was non-A, non-B hepatitis. I had been in a county jail for 5 months where we had to shave for visitors each Saturday. We shared razors which were nasty and rusty. I suspect that is where I acquired the v...

spockyspock · spockyspock

Finally! Saw my GI/Liver spec. for first time today. 10 years since diagnosed, guessing I have had this genome 2a for many more years. Dr. wants to get me on the Solv./Rib. as soon as my 2nd liver biop (a decade since initial) gets done(hopefully next week). Highly motivated, got insurance throug...

JohnHarold · JohnHarold

9 "business days" doc told me "day or two" before results I have hep c antibody, and a slow thyroid which the doc said is below hypothyroidism levels but gave me meds for it anyway. I have lost weight, very, very, slowly. But haven't lost any in a long time either(I might have gai...

kurt · kurt

Hi all, I'm Kurt and I'm a retired firefighter/paramedic who has been living Hep C for 20 years. I'm starting my 4th week of treatment on Sovaldi/Olysio and so far it looks good. Viral load has gone from 3,000,000 to undetectable and my ALT went from 349 to 16.

Fireman Rob · Fireman Rob

So I called the doctor's office today and got word I'm Genotype 1, Bummer. But I expected as much when the virus was discovered. With the doc being out of town for two weeks, I'm having a hard time getting the Medical Assistant to understand my request for the Solvaldi/Olysio treatment option. I'...

New member · Mugsy

Hello everyone. I am awaiting approval from the pharmacy (my insurance uses Diplomat Pharmacy) to set me up with Interferon, Riba and Sovaldi and then it's time to start this12 week battle. I have been infected with genetype 1b since 1972. Was tested for Hepatitis during my first pregnancy in 1982 an...

db · db

Hi all, After somewhat obsessively reading these posts the last week or so, I figured I should jump in and say hi. I'm glad to see that my side effects are common to the sovaldi/ riba 12 week program. I've had many but not all (insomnia, rash, low energy, fever comes and goes) but generally better mood....

ladym · ladym

Has anyone had any trouble eating of this treatment? I have only been on the treatmet for 11 days, but I have not been able to eat anything in 5 days, please help.

Beacon · Beacon

Hello everyone. I was diagnosed with Hep C in Sept 2013. More tests revealed that I was F4(cirrhosis). Child Pugh score A based on my albumin, bilirubin, INR, etc. Up until this dx all ALT/AST levels were normal. So it was like ok you have hvc and you have progressed to cirrhosis. My insurance is with Blu...

ros · ros

hello everyone my name is Ray. I'm recently diagnosed. I'm hoping for some support.

Gator Man · Gator Man

I was told that there will be new data presented regarding the COSMOS trial at the upcoming EASL-ILC meeting in London. While I am not privy to any specifics, I was informed that the results will be favorable in general, and especially for cohort 2 consisting of treatment naive and prior null responde...

Allison Redcoat · Allison Redcoat

My nurse told me 3 - 4 weeks and I would hear from my insurance company and then the meds would be mailed to me and I then have to make an appt so the nurse can show me how to administer it properly. It's been almost 6 weeks and I haven't heard anything from anyone! I have a call into the nurse but so far I still hav...

New member · CarrieR

Hello all. I am new at this and look forward to sharing my experience with the new drugs. Savaldi just approved me got my letter today. Now just waiting for olysio. My doc just started working with them. I am not sure how long it will take but savaldi took about 3months. I really hope it will be soon so I don'...

Gracie · Gracie

Well guys, I have had a very emotional weekend. Only those of you who have got the call telling you to stop treatment understand what a kick in the gut that can be. I had a temper tantrum cry baby attack that involved leg kicks and pillow punches (my husband knew enough to give me some time alone), then I gra...

Richstar · Richstar

Well friends i am coming to a close with my tx Sovald/ Olysio with just.... actually 3 days left of meds...Latest results were Undetected will all my Liver functions and levels normal.going for an Mri in 2 weeks and for more Labs. I am Grateful to my maker for giving wisdom to those involved in the proces...

Scott18927 · Scott18927

Hello, I am new to this forum and there is a lot of good information on this. I was diagnosed with Hep C Geno 2 in 2000. I have attempted the traditional treatment twice but could not finish because of the depression. I was a heavy drinker throughout all those years. Just recently I have decided to quit...

ladonna · ladonna

my husband has gone thru 2 treatments with no luck. we are waiting to see if his new doc will try the new meds. he was cirrhosis pretty bad. rick gets so chilled all the time. then he will over heat. I guess im just looking for ideas to help him. being the caregiver it gets hard. I also have hep c but it seems ok....

Richstar · Richstar

Hi, New to the forum and i wanted to stop in and share. I was diagnosed with Hep C stage 1 back in July of 2013. By late August i was at stage 3. I have been on the Olysio/Sovaldi tx for 15 days, just had blood work done today and will know next wed. how im doing. First two days i had some nausea and dealt wi...

Fireman Rob · Fireman Rob

Hi Again, Thanks so much for all the great advice and helping me sleep at night with your real world scenarios! The responses I've received in other posts have seriously been "stress savers" for my wife and I both. I just called the Dr. Office to see if my Genotype Lab is returned and was no...

Dzdayscomin · Dzdayscomin

Hi everyone I've been reading for a while but I thought maybe people could find mutual benefit in my existence here. So here is my Hep c story. I'm a 53 yr old male that found out I had this disease Jan. 2012 , I didn't know I had it, and other than always being tired and achy.....and being a 31 year married man...

Audreyanna · Audreyanna

Ive actually signed up on this website in 2011 but it was a very bad year as my close friend, husband and then mother all passed away so I never got around to posting anything. Feeling much better now, especially with the new treatments available! How exciting. i was diagnosed in 1997 and tried the inte...

Fireman Rob · Fireman Rob

Hi All, Thanks for the kind words as I have already posted in another thread on this forum. I'm a 32 year old male recently diagnosed with Hep C. Five weeks ago, I participated in a blood drive at work and received a letter in the mail from the Red Cross saying my blood tested positive for the Antibodie...

Topic		Started By	Replies	Views	Last Post
	Started New Treatment today with Sovaldi (Sofosbuvir) and Ribavirin (Preview) I started new treatment today of sovaldi and ribavirin and hoping this treatment might cure my type 2 diabetes problem when I am undetectable. I just took my first day's dose without issues. I am a new member and this is my first post. I hope to find someone out there to share my experience with and pe...	Larry2384	36	7176	May 10, 2014 by Huey
	Hi everyone.. just got diagnosed with HCV 1a (Preview) I'm Jay,, I'm a health care worker in my 50's from South Jersey near Philadelphia, USA. Just got Dx with HCV 1a after loosing 30 lbs. I've read a lot but I'm really scared. I'd like to make friends through this forum. I'm waiting for my appointment with the GI group. I'm worried about my health and m...	yonniman2000	6	1000	May 9, 2014 by Fireman Rob
	rash (Preview) Hey everybody have a bad rash. might get taken off meds looking to control it any advice.	shnub53	2	949	May 7, 2014 by Cinnamon Girl
	Long time reader, first time on treatment (Preview) Hello! I'm finally joining you! I've been reading this forum for years. You are all so supportive and smart! I've had Hep C for 40+ years. I'm 61 and G1a. I've been considering treatment for three or four years but wasn't willing to do a whole year. My GI doc said I shouldn't wait any longer. So I'm beginn...	pizzacake	8	1637	May 7, 2014 by pizzacake
	New member looking for info (Preview) Hey everybody. I'm here on behalf of my dad. I'd get him to come by it took me three month to teach him how use his cell. He's been on treatment for 15 weeks now. He I'd twelve weeks on incivik with copegus. Now he i only on copegus the pill and a weekly shot. He just came back from his weekly shot and was taken un...	Manshan	1	887	May 6, 2014 by Tig
	Introducing myself (Preview) Hi, introducing myself, I am a retired nurse who is geno 1A and has failed treatment twice:( I was diagnosed late '70s with non A nonB. Definitive diagnosis of C was made early 90s. 10 years ago, my first treatment was interferon with RIBA, then switched from interferon to Infergen. I developed sev...	Ro	6	1380	May 5, 2014 by Isiscat2011
	Finally have a treatment start date! (Preview) I have been trying to start treatment since July and today I finally got a start date of 2/14. I go in that morning to begin triple TX with sovaldi for 12 weeks. I am kind of glad that things got pushed back when they did because now I get to start the new stuff. Anyone else doing the triple tx with this? I am ex...	AngieV123	4	959	May 5, 2014 by warrenb
	Just started Sovaldi & Olysio tx (Preview) Hi everyone, I posted here back in August. Then I disappeared, sorry about that. I started the Sovaldi / Olysio tx friday. Its time to kick this Hep C's a$$! That being said, I went home sick from work today. Headache, nausea & very fatigued. I'm also feeling weak. It's still a hundred times better t...	AzHiGirl	11	2641	Apr 30, 2014 by Tig
	Hi, just introducing myself. (Preview) I became aware I had the hep-c virus during a routine blood donation (Red Cross) in 1988. At that time it was non-A, non-B hepatitis. I had been in a county jail for 5 months where we had to shave for visitors each Saturday. We shared razors which were nasty and rusty. I suspect that is where I acquired the v...	bodford	6	1182	Apr 30, 2014 by jimbob
	let's git it started! (Preview) Finally! Saw my GI/Liver spec. for first time today. 10 years since diagnosed, guessing I have had this genome 2a for many more years. Dr. wants to get me on the Solv./Rib. as soon as my 2nd liver biop (a decade since initial) gets done(hopefully next week). Highly motivated, got insurance throug...	spockyspock	2	864	Apr 30, 2014 by jimbob
	Hello all, cant stop googling, 2 days until Viral Load confirmation (Preview) 9 "business days" doc told me "day or two" before results I have hep c antibody, and a slow thyroid which the doc said is below hypothyroidism levels but gave me meds for it anyway. I have lost weight, very, very, slowly. But haven't lost any in a long time either(I might have gai...	JohnHarold	7	1439	Apr 30, 2014 by JohnHarold
	new to forum (Preview) Hi all, I'm Kurt and I'm a retired firefighter/paramedic who has been living Hep C for 20 years. I'm starting my 4th week of treatment on Sovaldi/Olysio and so far it looks good. Viral load has gone from 3,000,000 to undetectable and my ALT went from 349 to 16.	kurt	11	1144	Apr 27, 2014 by Isiscat2011
	Received My Genotype Today, treatment Plan Unknown (Preview) So I called the doctor's office today and got word I'm Genotype 1, Bummer. But I expected as much when the virus was discovered. With the doc being out of town for two weeks, I'm having a hard time getting the Medical Assistant to understand my request for the Solvaldi/Olysio treatment option. I'...	Fireman Rob	7	1371	Apr 27, 2014 by Isiscat2011
	New member (Preview) Hello everyone. I am awaiting approval from the pharmacy (my insurance uses Diplomat Pharmacy) to set me up with Interferon, Riba and Sovaldi and then it's time to start this12 week battle. I have been infected with genetype 1b since 1972. Was tested for Hepatitis during my first pregnancy in 1982 an...	Mugsy	11	1646	Apr 25, 2014 by Isiscat2011
	Hello, an introduction (Preview) Hi all, After somewhat obsessively reading these posts the last week or so, I figured I should jump in and say hi. I'm glad to see that my side effects are common to the sovaldi/ riba 12 week program. I've had many but not all (insomnia, rash, low energy, fever comes and goes) but generally better mood....	db	19	2389	Apr 12, 2014 by db
	Eating (Preview) Has anyone had any trouble eating of this treatment? I have only been on the treatmet for 11 days, but I have not been able to eat anything in 5 days, please help.	ladym	16	1618	Apr 10, 2014 by TazKat
	New to the forum (Preview) Hello everyone. I was diagnosed with Hep C in Sept 2013. More tests revealed that I was F4(cirrhosis). Child Pugh score A based on my albumin, bilirubin, INR, etc. Up until this dx all ALT/AST levels were normal. So it was like ok you have hvc and you have progressed to cirrhosis. My insurance is with Blu...	Beacon	9	2099	Apr 10, 2014 by Beacon
	Hello (Preview) hello everyone my name is Ray. I'm recently diagnosed. I'm hoping for some support.	ros	5	960	Apr 3, 2014 by Bloomster
	EASL-ILC meeting in London, April 9-13 (Preview) I was told that there will be new data presented regarding the COSMOS trial at the upcoming EASL-ILC meeting in London. While I am not privy to any specifics, I was informed that the results will be favorable in general, and especially for cohort 2 consisting of treatment naive and prior null responde...	Gator Man	1	837	Apr 3, 2014 by Cinnamon Girl
	Do insurance companies cover the new treatment (interferon/ribavirin & incivek/victrelis)? (Preview) My nurse told me 3 - 4 weeks and I would hear from my insurance company and then the meds would be mailed to me and I then have to make an appt so the nurse can show me how to administer it properly. It's been almost 6 weeks and I haven't heard anything from anyone! I have a call into the nurse but so far I still hav...	Allison Redcoat	3	1500	Apr 1, 2014 by Allison Redcoat
	New member (Preview) Hello all. I am new at this and look forward to sharing my experience with the new drugs. Savaldi just approved me got my letter today. Now just waiting for olysio. My doc just started working with them. I am not sure how long it will take but savaldi took about 3months. I really hope it will be soon so I don'...	CarrieR	9	1541	Apr 1, 2014 by maddie
	The Last Three Days and Looking Ahead (Preview) Well guys, I have had a very emotional weekend. Only those of you who have got the call telling you to stop treatment understand what a kick in the gut that can be. I had a temper tantrum cry baby attack that involved leg kicks and pillow punches (my husband knew enough to give me some time alone), then I gra...	Gracie	8	1511	Apr 1, 2014 by Cinnamon Girl
	Finishing tx Sovaldi/Olysio (Preview) Well friends i am coming to a close with my tx Sovald/ Olysio with just.... actually 3 days left of meds...Latest results were Undetected will all my Liver functions and levels normal.going for an Mri in 2 weeks and for more Labs. I am Grateful to my maker for giving wisdom to those involved in the proces...	Richstar	14	2674	Mar 30, 2014 by Tig
	New to this forum with some questions (Preview) Hello, I am new to this forum and there is a lot of good information on this. I was diagnosed with Hep C Geno 2 in 2000. I have attempted the traditional treatment twice but could not finish because of the depression. I was a heavy drinker throughout all those years. Just recently I have decided to quit...	Scott18927	12	1399	Mar 30, 2014 by Groupergetter
	chills and overheating (Preview) my husband has gone thru 2 treatments with no luck. we are waiting to see if his new doc will try the new meds. he was cirrhosis pretty bad. rick gets so chilled all the time. then he will over heat. I guess im just looking for ideas to help him. being the caregiver it gets hard. I also have hep c but it seems ok....	ladonna	5	1363	Mar 24, 2014 by Gracie
	Hi, New to forum (Preview) Hi, New to the forum and i wanted to stop in and share. I was diagnosed with Hep C stage 1 back in July of 2013. By late August i was at stage 3. I have been on the Olysio/Sovaldi tx for 15 days, just had blood work done today and will know next wed. how im doing. First two days i had some nausea and dealt wi...	Richstar	17	2576	Mar 22, 2014 by Richstar
	Average Time Frame From Diagnosis to Treatment? (Preview) Hi Again, Thanks so much for all the great advice and helping me sleep at night with your real world scenarios! The responses I've received in other posts have seriously been "stress savers" for my wife and I both. I just called the Dr. Office to see if my Genotype Lab is returned and was no...	Fireman Rob	8	1443	Mar 21, 2014 by Loopy Lisa
	Hello and thanks (Preview) Hi everyone I've been reading for a while but I thought maybe people could find mutual benefit in my existence here. So here is my Hep c story. I'm a 53 yr old male that found out I had this disease Jan. 2012 , I didn't know I had it, and other than always being tired and achy.....and being a 31 year married man...	Dzdayscomin	4	1412	Mar 18, 2014 by Dzdayscomin
	Hi everyone! (Preview) Ive actually signed up on this website in 2011 but it was a very bad year as my close friend, husband and then mother all passed away so I never got around to posting anything. Feeling much better now, especially with the new treatments available! How exciting. i was diagnosed in 1997 and tried the inte...	Audreyanna	12	1576	Mar 17, 2014 by Audreyanna
	New Diagnosis and Introduction (Preview) Hi All, Thanks for the kind words as I have already posted in another thread on this forum. I'm a 32 year old male recently diagnosed with Hep C. Five weeks ago, I participated in a blood drive at work and received a letter in the mail from the Red Cross saying my blood tested positive for the Antibodie...	Fireman Rob	7	1763	Mar 16, 2014 by TazKat
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