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Howdy folks
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Howdy folks from Florida. Hoping all with this nasty virus find SVR. Lots of new meds happening and I'm fortunate to have just started. Looking forward to learning and sharing info.
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Groupergetter
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8
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1266
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Newly diagnosed Hep C 3A, starting Sovaldi/Ribavirin
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My husband and I were both diagnosed in June of 2013 through our Primary Care Dr, and just got into a GI/Hep Specialist last week. Blood work, ultrasounds, exams, and... ...my liver is fine, Genotype 3A, viral load of 7,785. ...my husband has what they called an "echogenic lesion" on his l...
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Miss Cara
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9
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2091
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New member introduction
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Dear all, I have been diagnosed with HCV in 2009, which I appear to have gotten in a hospital in the 80s, when I was a child growing up in Eastern Europe. I am just now joining this forum, because I have finally decided to go ahead and start the treatment. My doctor just prescribed the 12wk course of Peg-IN...
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zavr
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28
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3585
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Hi all
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I am a new member to this board but not new to HCV. I was diagnosed in 2000, genotype 1a. I've probably had HCV since the 70s. After being diagnosed I became an active member of some online support group/message boards similar to this one. After modifying my diet and my lifestyle for a considerable perio...
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JaneyMae
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18
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5534
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Newly diagnosed New to forum
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Hi all! I am in Australia and have just been diagnosed am about to start treatment soon and believe it will be Ribravirin and Interferon . I am to have a fibrosis scan yet to ascertain extent of liver damage - and just recently had blood test to determine genotype, so I do not know much at this point. ...
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redfrog10
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6
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1284
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tired of sick and tired
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31 years and no major effects! then august 2013 1900 alt and 1300 ast alkaline 187 bilirubin1.7lipase133 13.55afp-tm. got a biopsy in nov -f3 got aprove for solv-ribapack 12 week got meds but cant start cause platettes are to low like 139.doctor says I also have recuurring ebstien bar that drive my n...
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mikeymo1000
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8
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1472
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New Person
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I am a 63 year old woman. HCV Antibodies detected in 1992. Likely infected in 1976 blood transfusion. Now seem to have active disease. Viral load 2.5 million. Normal ultrasound. AST 77 ALT 74. Type 1B. Scheduling biopsy. Dr. recommending mix including Interferon. Oncologist friend says "av...
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JeanInMaine
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4
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1560
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Sofosbuvir and Ledipasvir?
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Does anyone know when sofosbuvir and Ledipasvir will come to market? I've been diagnosed with early stage cirrhosis and I would like to start treatment soon.
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skewedButNotBroken
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9
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3093
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Healthcare and hepaotologist
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Neighborhood Healthcare in El Cajon has recommended I seek out a hepatologist due to my diagnosis of Hep C. I have applied for Medi-cal. This can take 30-45 days. I feel like I need to be more pro-active. Should I apply for Medicare as well? If I receive the Medi-cal what is my next step? Seems like I'm not...
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cortezpirasea
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0
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793
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Just another Hep C Boomer loving the support--and with questions and concerns
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Hi everyone, Time for my formal introduction. I am SO happy to have found you all. Recently joining this forum has been a relief, and made me realize how much this disease has been a lonely 40-year journey. It feels great to have met a group of people with whom I can talk openly about treatment and concern...
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Dee738
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6
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1026
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Hello Everyone
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I am a 39 yr old single mother of two and grandma to 1. I have recently been diagnosed with Hep C, Auto Immune Hep, Fatty Liver disease, and stage 4 cirrhosis as well as recently Type 2 Diabetes. I am currently awaiting the prior approval from my insurance for the Sovaldi since they do not believe that I wil...
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weenadm
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4
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1128
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Hello to all
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Hello I'm Dan, Newbie here, getting ready for tx. soon. Just wanted to introduce myself here. I will be starting sovaldi/Olysio/Riba hopefully this wed. if UPS delivers on time. TX nieve GT1a Q 80K pos. stage 3 fibrosis. Hopefully this combo will slay those little unwanted critters once and for go...
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Blueyes
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11
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1447
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i'm back ...
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Hi everybody, I joined this board almost 2 years ago and my husband had three weeks of treatment left. Well, he cleared the virus only to have it return a few months after. We have been trudging on and trying to stay positive and healthy. He will be starting the new 12 week treatment eventually and I heard...
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Happiest Mango
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1
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838
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Recently told test showed hep c antibodies
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More tests are being done? I'm guessing to find out what geno type I have? Doctor didn't tell me a single word about nothing. Just that more blood would be taken. And possibly be referred to a hepatologist. A little stunned and a lot scarred. Next appointment is march 19 and I'm wondering what questions...
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cortezpirasea
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3
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936
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Received my genotype
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Hi all, just signed into the hospital portal and saw that my genotype is 1b. April I'm scheduled for an ultrasound, and then I guess treatment will be discussed with me. I'm looking forward to starting treatment and I feel positive, thanks to all of you guys who post, give your experience, and your ad...
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pl1952
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8
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1222
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Hello, im new.
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Hello my name is Nathan i am 21 years old and was diagnosed with Hep C genotype 1 when i was about 8 or 9 years of age. I contracted the virus at birth and my mother has no clue how she got it. When i was about the age on 17 i started noticing swelling on my feet. I then went to a doctor specializing in hep c and he sai...
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nathan
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11
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1598
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Hello Everybody
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New member here, I've been reading the posts, great forum here and I wanted to introduce myself. I'm Genotype 1, diagnosed 30 years ago. I went through the triple therapy in 2005, cleared the virus but relapsed shortly after. I'm now getting ready for the Solvaldi/Olysio combination. My prescript...
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Mark Y
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11
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2042
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hi new here
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looking for any help paying for sovaldi, my insurance will only pay half which leaves the remaining fee way out of reach for me.If anyone knows of any financial assistance programs I would really appreciate your help
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henry
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2
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1007
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14 weeks in... Can Finally see the light!
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During a wellness visit to my Primary care Dr.. It was found that I have Hep C.... I am a Genoetype1 and have had the Virus in my body and have been living with it for 14 + Years... I got Hep C from getting a tattoo in 1999 when I met my Brother for the first time... This came from what I though was a professional s...
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lakegirl
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5
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1479
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Hi
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Just wanted to introduce myself. I am new to the board. My name is Tim. I live in NH. I'm 38 and was diagnosed about 15 years ago. I just started treatment yesterday. So far, so good. Only 12 weeks for me, I almost feel guilty seeing some others with much longer tx times on here. Good luck to all!!
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TimS44
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15
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1780
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New to the Discussion Forum
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Hi All, I have G1a, prior non responder (to a very early protease inhibitor trial about 5 and half years ago), am now resistant to protease inhibitors, compensated cirrhosis, live in the UK. had HCV since the late 70's. I'm awaiting confirmation for a place on a Gilead trial, sofusbuvir, ledipasvir a...
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Dario
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10
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2105
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Need Help with Some Test Results
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Hey guys, I went Tuesday to get bloodwork done; first time seeing a liver dr.; my next appt. is in April, but they provided me with a link to access the results of the bloodwork that was done. I know the ALT AST are important; I'm not sure which test is the viral load test, and which other tests results are i...
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pl1952
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10
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1503
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jointback pain during treatment
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Hi, I'm a new member here. I'm in week 20/48. I was a non responder 12 years ago, but currently responding to Pegasis, co-pegasis and Victrelis. I've developed serious hip pain that runs down the front of the femur, and at times I cannot stand. I've read this is considered a serious side effect. I've bee...
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vibi
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3
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1298
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Introduction
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Hi all, Came upon this forum yesterday and thought I'd contribute as well as read and learn. This is treatment day 13 for me using Sovaldi/Olysio/Riba combo. Lots of useful info here, btw. Thanks all! Thus far, minimal side effects. I would say increased insomnia has been the most noticeable fea...
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OldenSlow
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7
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1734
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Howdy Howdy. Newbie's Story.
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Hello everyone! New to this forum, although not necessary to HCV. Original DX was in October 2000. I had just turned 17 years old the month before, although I probably had the virus for at least 5-7 years prior, if not more. Still not completely sure of how it was acquired though, but I can recall being...
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PeppyHepper
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8
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1999
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New here.
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I'm Mike. I'm 54 and live alone in Mississippi USA. I've been on dissability for 2 years for multiple health issues. I get out and do stuff occasionally but I usually camp out in my bed watching TV or on my computer. I was diagnosed with HepC and HIV in 1994. I've done good on the HIV taking my meds. But I...
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wmlj1960
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11
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2882
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New Member
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Hi everyone, I would just like to introduce myself. I'm a new member and have had Hep C I guess about 30 years now. I've been clean and sober since 1989. Tomorrow is my first visit with a hep Dr. to get information on treatment, which I plan on doing. My husband will be coming and joining me as well. He'...
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pl1952
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14
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1406
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Best Vitamins to take?
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I went to the Dr today.. and as expected all of my Blood counts are very Low... My Dr suggested that I take a multi vitamin and Iron supplement to help maintain my levels ( even Low) so she doesn't have to reduce my Riba dose.... I only have 2 1/2 months left... Dose anyone have any suggestions on vitamins th...
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lakegirl
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5
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1331
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new here
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Hi everyone, my name is karen and I recently got diagnosed with hep c genotype 3 in october 2012. It came as a complete surprise to me and I was shocked. I got diagnosed by accident because I went to my doctor for a physical and he did some blood work and came to find out my liver enzymes were slightly elevate...
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karen18
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4
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923
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wiryn is my name
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wirynhurs
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1
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788
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