Hep C Discussion Forum

longld · longld

Maybe a crazy observation but I notice that most Hep C patients feel that they must tell how they got (or believe they got) Hep C when getting on the forum or speaking in public - why is this important? My Doctor asked me how I got mine and I explained my belief but then asked her why she cared? - she quickly e...

Dee · Dee

Hi everyone. I am Dee. I am a 50 year old wife and mother. I was diagnosed with Hep C in 1998 when i did pre op blood work for cancer surgery. It was concluded at that time, that I had been infected with the virus back in 1985 during two blood transfusion given during delivery of my son. I was later diagnosed...

Greg D · Greg D

Hello and thank you all for being here! This site is a wool blanket in front of a hot fire on a cold night in north central Canada. I work in a municipal sewage treatment center and collection system for a city of 70,000. I have all my protective shots i.e. Twinrex, flu shot, and some I can't spell. I am also i...

rbenny · rbenny

I was diagnosed in jan, 2013... geno 2. seems like may be some liver damage so possible i had for a long time. had mri, ultrasound, colonoscopy. as of jan 6 began 400 mil sovaldi, and 1200 mg ribavarion daily... viral load around 90,000, not sure if doctor is doing all testing needed. no biopsy done...

Liamc · Liamc

Hi, I have read a lot of very useful information on this site and now it's time to take the plunge. i am a genotype 3a fibroscan Kpa 9.6 age 59. I have been managing the hep c with good diet supplements and exercise in the hope that an interferon free drug would come on the market( like many others I think).Up...

robertsamx · robertsamx

Im looking into treatment for 3a, looking at trials. one trial has 3 arms. (12 week sofos,riv,peg) (16 weeks sofos,riv) and the third is (24 weeks sofos,riv) GILIAD is puting on the trial. I have had hep 3a for 30+ years, never been treated, my fibro scan was 37 one month ago. alt 440 the other one...

Gulla · Gulla

Hello. I am in week 13 of PegIntron, Copegus and Victrelis and my main problem is tinnitus. I get loud tinnitus for 2-3 days and then some days without. I am of course also very tired, but the ringing in my head makes me even more tired. Has anyone experienced tinnitus and does anyone know what to do about i...

Bookworm · Bookworm

My boyfriend has Hep C. I am trying to get information that I can give to him. I just found out about the new drug Solvaldi that the FDA approved. Apparently, it is already being prescribed by doctors. What constitutes being a good candidate for this drug? I see that it is used in combination with an...

mdmfoo · mdmfoo

I most likely acquired HCV in the late 60's, early 70's, from ex husband (deceased). First clue was in the early 70's when I tried to give blood, then later in 80's was told I had liver disease of unknown origin. In the late 90's I was experiencing early neurological difficulties, blood tests came back w...

Lulu · Lulu

Does anyone know how I can pay for my script?

Hep-C Dragon Slayer · Hep-C Dragon Slayer

I read in a lot of post that the VL is anywhere between 200,000 and 8,000,000. Also read that under 15 is good. What I cant seem to grasp is how the VL measures success. What is the connection to having less then 15 VL and achieving UND SVR and having 16 or more stating detected and start or continuing tx ?...

globetrotter · globetrotter

Hi guys I am wondering if anybody has any advice on getting through the mental weariness (not depressed just feel frustrated). Im at week 10 and am struggling to find a way to accept that I am now in this for the full 48 weeks due to being detected at 4 weeks. Im a former nurse so understand what is going on....

boatrider1 · boatrider1

could somebody please help me with how you found out? My liver enzyme alt spgt is 63 other liver test normal could i have hep c? doctor dont think hep c and didnt test for it is this right? i worked in an environment where lots have it any thoughts thank you in advance! what was your alt when you found out?

jenjen · jenjen

Hi new friends, I am new to this forum, but have gained a lot of information just looking through everything. I have an appointment with a dr tomorrow in hopes to begin the new treatment. Just a little background: Geno 1a. I haven't checked the viral load in about a year, but when I checked it was over 5 mi...

Hep-C Dragon Slayer · Hep-C Dragon Slayer

I guess the enzymes show she was exposed to the virus and her immune system is fighting the virus but we are concerned about the future. Does anyone know if having enzymes can possible turn into obtaining the virus ? What does being positive for the enzymes actual mean ? Medical definition an...

bones · bones

I was very lucky to have gotten the two new drugs Sovadi and Olysio and I am now on day two and could not be happier almost no side effects. I have gotten a mild headache this evening but thats it. Compared to the interferon and rib treatment I had three years ago it,s like a miracle if it works. I just can not b...

New member from Canada · Bunny

I am wondering if there are any members here from Canada?

New member · MattStarr

Hello Everyone, I'm new to this website, and excited to be able to connect with you all. I am a living success story of Hep C recovery and a liver transplant. I hope to be able to help others on their journey. Looking forward to connecting, Matt -- Edited by MattStarr on Wednesday 8th of January 2014 07:20...

skewedButNotBroken · skewedButNotBroken

Liver CT guided needle biopsyChronic hepatitis CGrade 2 of 4 (mild portal hepatitis without limiting plate necrosis and rare necrotic hepatocytes).Stage 1 of 4 (negative for fibrosis and cirrhosis)Three levels show liver with intact lobular architecture. Central veins are present and intact...

Mila · Mila

Hi Everybody! I have my Sovaldi and Ribaviron in hand and will begin the required genotype 3 6-month treatment this week. I was diagnosed with genotype 3a around 1995 and went through one year of daily alphaInterferon a injections, which was pure hell; obviously, I relapsed. My labs last week were...

suffering · suffering

Does anyone know if marijuana use has any effect on the liver. I have researched potential effects on the body with its use and other than minor lung irritation and temporary mind alteration, as well as a very euphoric feeling, I see where it has no impact on the human body. It would seem to me its use woul...

mindovermatter · mindovermatter

Dear all, I have started treatment for Hep c.I am GT 3. I took my first shot on 31st December. So far side effects have been minimal. I have had fever a couple of times. I am otherwise feeling good. I am active on Medhelp and have been silently devouring information about Hep C treatment on this site as wel...

CodeNameBleu · CodeNameBleu

Hello everyone! So great to be here! I was diagnosed with Hep C Genotype 1 and a viral load of 51,000 in 2012 after going through a procedure for a lung condition. I have to be honest and i say i had no clue what Hep C was. After a lot of research i decided to start treatment as soon as i could, as i could just visu...

jamesy · jamesy

I was diagnosed out of the blue and started treatment and now after 9 months I have completed my treatment and am now clear so if anyone needs any advice or reassurance then please get in touch

Gracie · Gracie

Hello All, I am 1a, previously treated 13 years ago, non responder.Started Incevik, Copeg, Peg last Saturday (this is day 3).So far not too bad. Feeling a bit "off" but not real sick.I actually took today off thinking I'd need it, but was up taking my incevik at 7 and stayed up and went to wo...

Barnacle · Barnacle

I have likely had HCV since about 1972. Family Dr originally was just watching it doing regular blood tests. I don't know or understand the numbers but about a year ago he said it was becoming more active and I should look into treatment. Originally it was going to be a biopsy but ended up getting fibros...

KathyB · KathyB

My name is Kathy. I am 55 years old and have genotype1. It is difficult to understand, I just do what they tell me to. I started triple therapy (Ribovarin, Victrellis, and the Pegasus shots). My health hasn't been so good to begin with. my white blood count went down to .300. So now I also have to take...

CandaceV · CandaceV

Hi, My name is Candace and my husband has Hep C. He's 59 and has had it for probably 40 years. He was tested for it in July and it was positive. It took 5 months for me to get him back to the doctor for the test to determine if it was chronic or not. He was tested for that last week, the doctor called today and s...

Gig · Gig

Hey All Here goes first time here. Well I'm post Liver Transplant 3 yr treated pre transplant Inter and Rib 22 months of hell. Lasted a few months being und. short lived. Now I just started trial Sofasbuvir/Ledipasvir Rib 24 week trial. I am now on week 5 so far VL pre treatment 800 k week 4 und VL don't kno...

Leanna83 · Leanna83

I tested positive for hepatitis c antibodies in jan and my s/co was 4.85, wasn't told to get additional test and think anything of it. Dec I had to be tested for work and of course I'm positive for the antibodies again and this time my signal to cut off is 4.04. My (AST ALT) are normal (19 20). I am so terrifie...

Topic		Started By	Replies	Views	Last Post
	Why is it important where I received my HepC? (Preview) Maybe a crazy observation but I notice that most Hep C patients feel that they must tell how they got (or believe they got) Hep C when getting on the forum or speaking in public - why is this important? My Doctor asked me how I got mine and I explained my belief but then asked her why she cared? - she quickly e...	longld	9	993	Jan 31, 2014 by Enavigo3891
	Co-Infected Newbie Treatment starts today. Hep C Type 2 B - HIV Positive - Sovaldi and Ribavirin treatment (Preview) Hi everyone. I am Dee. I am a 50 year old wife and mother. I was diagnosed with Hep C in 1998 when i did pre op blood work for cancer surgery. It was concluded at that time, that I had been infected with the virus back in 1985 during two blood transfusion given during delivery of my son. I was later diagnosed...	Dee	8	1218	Jan 30, 2014 by Dee
	Sewage Treatment worker (Preview) Hello and thank you all for being here! This site is a wool blanket in front of a hot fire on a cold night in north central Canada. I work in a municipal sewage treatment center and collection system for a city of 70,000. I have all my protective shots i.e. Twinrex, flu shot, and some I can't spell. I am also i...	Greg D	5	1047	Jan 30, 2014 by Greg D
	have some questions... (Preview) I was diagnosed in jan, 2013... geno 2. seems like may be some liver damage so possible i had for a long time. had mri, ultrasound, colonoscopy. as of jan 6 began 400 mil sovaldi, and 1200 mg ribavarion daily... viral load around 90,000, not sure if doctor is doing all testing needed. no biopsy done...	rbenny	5	1097	Jan 30, 2014 by longld
	New to the forum. (Preview) Hi, I have read a lot of very useful information on this site and now it's time to take the plunge. i am a genotype 3a fibroscan Kpa 9.6 age 59. I have been managing the hep c with good diet supplements and exercise in the hope that an interferon free drug would come on the market( like many others I think).Up...	Liamc	11	1364	Jan 28, 2014 by Liamc
	3a treatment (Preview) Im looking into treatment for 3a, looking at trials. one trial has 3 arms. (12 week sofos,riv,peg) (16 weeks sofos,riv) and the third is (24 weeks sofos,riv) GILIAD is puting on the trial. I have had hep 3a for 30+ years, never been treated, my fibro scan was 37 one month ago. alt 440 the other one...	robertsamx	8	2920	Jan 26, 2014 by Cinnamon Girl
	Tinnitus (Preview) Hello. I am in week 13 of PegIntron, Copegus and Victrelis and my main problem is tinnitus. I get loud tinnitus for 2-3 days and then some days without. I am of course also very tired, but the ringing in my head makes me even more tired. Has anyone experienced tinnitus and does anyone know what to do about i...	Gulla	21	3038	Jan 24, 2014 by hepcat60
	New to the Forum (Preview) My boyfriend has Hep C. I am trying to get information that I can give to him. I just found out about the new drug Solvaldi that the FDA approved. Apparently, it is already being prescribed by doctors. What constitutes being a good candidate for this drug? I see that it is used in combination with an...	Bookworm	5	1043	Jan 23, 2014 by Hep-C Dragon Slayer
	Awaiting insurance approval for Sofosbuvir (Preview) I most likely acquired HCV in the late 60's, early 70's, from ex husband (deceased). First clue was in the early 70's when I tried to give blood, then later in 80's was told I had liver disease of unknown origin. In the late 90's I was experiencing early neurological difficulties, blood tests came back w...	mdmfoo	2	846	Jan 22, 2014 by mdmfoo
	sofosbuvir (Preview) Does anyone know how I can pay for my script?	Lulu	3	1574	Jan 20, 2014 by Tig
	Viral count and being detected with HCV. What does it really mean ? (Preview) I read in a lot of post that the VL is anywhere between 200,000 and 8,000,000. Also read that under 15 is good. What I cant seem to grasp is how the VL measures success. What is the connection to having less then 15 VL and achieving UND SVR and having 16 or more stating detected and start or continuing tx ?...	Hep-C Dragon Slayer	1	775	Jan 18, 2014 by Cinnamon Girl
	Another newbie (Preview) Hi guys I am wondering if anybody has any advice on getting through the mental weariness (not depressed just feel frustrated). Im at week 10 and am struggling to find a way to accept that I am now in this for the full 48 weeks due to being detected at 4 weeks. Im a former nurse so understand what is going on....	globetrotter	19	1288	Jan 15, 2014 by globetrotter
	hep c (Preview) could somebody please help me with how you found out? My liver enzyme alt spgt is 63 other liver test normal could i have hep c? doctor dont think hep c and didnt test for it is this right? i worked in an environment where lots have it any thoughts thank you in advance! what was your alt when you found out?	boatrider1	5	800	Jan 15, 2014 by globetrotter
	Hello- new to the forum and have appt tomorrow (Preview) Hi new friends, I am new to this forum, but have gained a lot of information just looking through everything. I have an appointment with a dr tomorrow in hopes to begin the new treatment. Just a little background: Geno 1a. I haven't checked the viral load in about a year, but when I checked it was over 5 mi...	jenjen	7	1068	Jan 15, 2014 by Tig
	I have HCV G1, my wife lab results came back negative for the virus but positive for the enzymes. (Preview) I guess the enzymes show she was exposed to the virus and her immune system is fighting the virus but we are concerned about the future. Does anyone know if having enzymes can possible turn into obtaining the virus ? What does being positive for the enzymes actual mean ? Medical definition an...	Hep-C Dragon Slayer	4	1078	Jan 11, 2014 by Tig
	new combo treatment of Sovadi and Olysio (Preview) I was very lucky to have gotten the two new drugs Sovadi and Olysio and I am now on day two and could not be happier almost no side effects. I have gotten a mild headache this evening but thats it. Compared to the interferon and rib treatment I had three years ago it,s like a miracle if it works. I just can not b...	bones	1	1555	Jan 11, 2014 by Cinnamon Girl
	New member from Canada (Preview) I am wondering if there are any members here from Canada?	Bunny	10	1035	Jan 10, 2014 by Gracie
	New member (closed) success story liver transplant hep c recovery (Preview) Hello Everyone, I'm new to this website, and excited to be able to connect with you all. I am a living success story of Hep C recovery and a liver transplant. I hope to be able to help others on their journey. Looking forward to connecting, Matt -- Edited by MattStarr on Wednesday 8th of January 2014 07:20...	MattStarr	3	1465	Jan 10, 2014 by Cinnamon Girl
	I took the plunge and got a biopsy. Here are my results Please any feedback will be greatly appreciated (Preview) Liver CT guided needle biopsyChronic hepatitis CGrade 2 of 4 (mild portal hepatitis without limiting plate necrosis and rare necrotic hepatocytes).Stage 1 of 4 (negative for fibrosis and cirrhosis)Three levels show liver with intact lobular architecture. Central veins are present and intact...	skewedButNotBroken	4	1419	Jan 10, 2014 by skewedButNotBroken
	Hi! I'm new, 3a, and beginning Solvaldi & Ribaviron this week. (Preview) Hi Everybody! I have my Sovaldi and Ribaviron in hand and will begin the required genotype 3 6-month treatment this week. I was diagnosed with genotype 3a around 1995 and went through one year of daily alphaInterferon a injections, which was pure hell; obviously, I relapsed. My labs last week were...	Mila	4	1897	Jan 9, 2014 by Karen
	Marijuana and HEP C (Preview) Does anyone know if marijuana use has any effect on the liver. I have researched potential effects on the body with its use and other than minor lung irritation and temporary mind alteration, as well as a very euphoric feeling, I see where it has no impact on the human body. It would seem to me its use woul...	suffering	2	1071	Jan 9, 2014 by Zlikster
	started treatment (Preview) Dear all, I have started treatment for Hep c.I am GT 3. I took my first shot on 31st December. So far side effects have been minimal. I have had fever a couple of times. I am otherwise feeling good. I am active on Medhelp and have been silently devouring information about Hep C treatment on this site as wel...	mindovermatter	13	1325	Jan 8, 2014 by Greg D
	Hello Beautiful people :) (Preview) Hello everyone! So great to be here! I was diagnosed with Hep C Genotype 1 and a viral load of 51,000 in 2012 after going through a procedure for a lung condition. I have to be honest and i say i had no clue what Hep C was. After a lot of research i decided to start treatment as soon as i could, as i could just visu...	CodeNameBleu	5	1661	Jan 6, 2014 by Cinnamon Girl
	Post treatment (Preview) I was diagnosed out of the blue and started treatment and now after 9 months I have completed my treatment and am now clear so if anyone needs any advice or reassurance then please get in touch	jamesy	2	824	Jan 2, 2014 by Tig
	Started Treatment 3 Days Ago... Weird Itchiness. (Preview) Hello All, I am 1a, previously treated 13 years ago, non responder.Started Incevik, Copeg, Peg last Saturday (this is day 3).So far not too bad. Feeling a bit "off" but not real sick.I actually took today off thinking I'd need it, but was up taking my incevik at 7 and stayed up and went to wo...	Gracie	11	2074	Jan 2, 2014 by dustbear
	New here lots of questions (Preview) I have likely had HCV since about 1972. Family Dr originally was just watching it doing regular blood tests. I don't know or understand the numbers but about a year ago he said it was becoming more active and I should look into treatment. Originally it was going to be a biopsy but ended up getting fibros...	Barnacle	10	1793	Jan 2, 2014 by dustbear
	Hello everyone (Preview) My name is Kathy. I am 55 years old and have genotype1. It is difficult to understand, I just do what they tell me to. I started triple therapy (Ribovarin, Victrellis, and the Pegasus shots). My health hasn't been so good to begin with. my white blood count went down to .300. So now I also have to take...	KathyB	15	2209	Jan 2, 2014 by dustbear
	New here, many questions (Preview) Hi, My name is Candace and my husband has Hep C. He's 59 and has had it for probably 40 years. He was tested for it in July and it was positive. It took 5 months for me to get him back to the doctor for the test to determine if it was chronic or not. He was tested for that last week, the doctor called today and s...	CandaceV	7	1011	Jan 1, 2014 by Kellie
	Trial experiance (Preview) Hey All Here goes first time here. Well I'm post Liver Transplant 3 yr treated pre transplant Inter and Rib 22 months of hell. Lasted a few months being und. short lived. Now I just started trial Sofasbuvir/Ledipasvir Rib 24 week trial. I am now on week 5 so far VL pre treatment 800 k week 4 und VL don't kno...	Gig	14	1047	Dec 30, 2013 by Milliganus
	Worried (Preview) I tested positive for hepatitis c antibodies in jan and my s/co was 4.85, wasn't told to get additional test and think anything of it. Dec I had to be tested for work and of course I'm positive for the antibodies again and this time my signal to cut off is 4.04. My (AST ALT) are normal (19 20). I am so terrifie...	Leanna83	3	867	Dec 28, 2013 by Cinnamon Girl
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