Hep C Discussion Forum

jimbob · jimbob

Hello everyone. From my bio. Im 63, gt 1a, F2, VL 5m, F2. Last checkup 7/13 and all numbers were normal. First diag. 1996. Had this since 1970. Been reading this board for a couple of years. I waited a lotta years for a better treatment to come along. I thought Incivek was it-had followed its progress for...

Gig · Gig

Hey All Names Gig post Liver Trasplt 3 yr peg and rib 6 yr ago non responder. Got Liver Cancer moved me up on Transplant List got Tranplt was home in 3 days was like being born again. Went from feeling so bad for so long told the Dr. as soon as I woke up after surgery I feel better couldn't believe the differenc...

Dave · Dave

Hi all, this is my first post. I was diagnosed in early 1993. I was young and resigned myself to the fate of an early death. I lived recklessly with drinking and drugs but after about 5 years passed, I realized I was healthy and had no symptoms. I got proactive and saw a doctor, the doc said I was undetecta...

rebeca · rebeca

Yesterday I had an appointment with my hepatologist. He check my viral load ( in 8 months up to 1.300.000,from 800.000 , do you know if this is significant? ) . Another lab test, normal. We commented, about future treatments with sofosbuvir ,when approved in Europe, and the possibility of waiting ....

kristi6 · kristi6

Hi I am into my 7th wk of triple therapy with peg/rib/vict. I have noticed my side effects are not as bad every other wk after I get my injection on the left side of the abdomen, than on the right. I find the side effects are pretty bad when I have the shot on my right side. Could it be, because the liver is on th...

michele · michele

Hi guys,I havent been in awhile the last time I was here I got some really good advice and encouragement from some senior members :). I have a couple things to discuss and hopefully ya,ll can help again. I recently visited with my ENT because I have been haveing some sinus and throat issues, i have a horri...

Hi Everyone, new member · Irish Lass

Hi All, Just an intro from my biography....contracted HCV in Feb 91 (from anti-D, I'm Rhesus Negative), told in UK in 95 (it was non-A/non-B then.) Moved to Ireland in 97, treated by Prof. Hegarty at St.Vincent's hospital Dublin. Was one of the first people in Europe to use Ribavirin/Pegylated Inte...

Eliza · Eliza

Hi everyone I'm Eliza & I'm new here. I've come to this forum to look for some answers and hopefully find that I'm not alone. I finished Hep C combination treatment in March this year so it's been about 8 months. I had a horrid time with side effects whilst on treatment some of which have had a lastin...

DeRanger · DeRanger

Just a posting from my "biography", introducing myself. HCV over 35 years, liver cancer survivor, triple therapy patient (Interferon, ribavirin, victrelis) one week to go to end of treatment, 48 weeks - genotype 1a. Viral load from 5 million+ to non-detectable by week 8, been that way...

PL · PL

Hi - this is my first time posting so I'm hoping I'm including everything you need to give me some advice. I started treatment with Pegatron on Sept. 6 for what I had hoped was 24 weeks. I have genotype 3 and my liver is a stage 2. I was told I have a 70-80% chance of a cure. My starting viral load was low at...

Ginny · Ginny

My doctor just told me that the protocol for Victrellis has recently changed. I'm in week 9 of the Vic and was told I would only take it for 12 weeks. Now that's been changed and I have to take it for the remainder of my 48 weeks! Anyone else been told this? My Hgb is at 10 now and the Vic has been much more dif...

gerewolf · gerewolf

My wife Julia has been diagnosed with Hep C. She is Chinese and apparently when she had an hysterectomy in China 27 years ago a blood transfusion was infected. Tests have shown no liver damage. We have talked to 3 doctors, one advised starting treatment right away, another said we could wait until t...

newmex · newmex

hello all, just starting treatment with boceprevir. Have tried ribavirin and interferon before , but due to side effects and not good response quit and tried to wait til all oral treatment came out. Now have progressed to stage 4 cirrhosis and am hoping can get svr with this triple treatment. Know it...

newtohep · newtohep

Hi mallani This is about your post on the other thread that I started. You have said that I have tried several IP addresses. I do not get you. And you say that I am here to have fun. I do not understand why did you get such an impression. I am not here to have fun. There is nothing funny about this disease....

newtohep · newtohep

I have had sex with a sex worker 2 months back. I used protection. When, I removed the condom, I felt something sticky on my fingers - it was the vaginal fluid. Without washing my hand, I used water to clean my penis with the same hand. After this, I took some water on the same hand and repeatedly gargled and...

LTChaos · LTChaos

All three of my children are clear of the virus. This is such a relief, now I can focus on my own care & getting better. I am Very thankful right now.

LTChaos · LTChaos

I am feeling very overwhelmed, sad, ashamed, devastated. I am 44 years old, mother to 3 elementary aged children. I started feeling stomach pain recently, and thought I was having gallstones. During the ultrasound, they said there was a small hemangioma on my liver, and my liver enzymes were sli...

jtthatsme55 · jtthatsme55

I have my paper work her it tells me what number I have that are high right now Iron 159 reference 35-150 so just a little high This number are label as hep panel I have 3 high numbers in this category Total protein 8.5 reference 6.4-8.2 Alt 232 reference 30-65 this is the one the doc is most concerned a...

Calgarygal · Calgarygal

I am genotype 1, VL of 7,700,000 on combo treatment. I took my first shot two days ago, and other than a headache I feel fine. Is this the honeymoon period??

jtthatsme55 · jtthatsme55

I got the results of my blood test today im genotype 1 with a viral load just under a million with stage 2 liver damage im going to start treatment in either Dec or January

jtthatsme55 · jtthatsme55

I have just recently been told I have hep a and hep c im 21 and I contracted them threw IV drug use I am now clean and just looking for support with people who live with hep c and have gone threw treatment. Tomorrow I go to my first appointment with my hepatalogist what should i expect on my first visit

dragonfly79 · dragonfly79

hello i was in a 2 year relationship w/ someone that was diagnosed w/ hep c and i went to get tested and it came back clear i was not infected. we have been split up for 2 weeks now and i feel lost i love him very very much and he has the same feelings for me too ( we went to junior high school together) and he was in...

rebeca · rebeca

Today I feel really depressed, last week I decided not to treat with dual therapy, because there are a % 50 of healing in genothype 1a. As you now, in Spain,at the moment I can´t take another way. Yesterday I started to beat myself about it. Now I´m thinking here the new therapies will not arrive a...

Lida Rose · Lida Rose

Hello! I was diagnosed in 2002. 1b. Liver in relatively good shape, hope to start new drug treatment next summer... I'm looking for support and community. Thanks... Lida Rose -- Edited by Lida Rose on Friday 25th of October 2013 02:29:05 AM

AngieV123 · AngieV123

I finally got to see the specialist again. I was ready to start treatment in August but for some reason they were dragging their feet with it. I'm kind of glad they did because I want to see if sofosbuvir is going to make it's way to the public in a few months. The doctor said there is no reason why I can't wait...

michele · michele

I am haveing a biopsy done next week and I am very nervous, my genotype is 2b and they are comeing out with a new treatment after the first of the year to treat my specific genotype that dosent affect anxiety or depression because I suffer from both.......my liver tests are always normal and my viral load...

bigedawg23 · bigedawg23

Greetings I recently made the decision to start treatment. I got the results of my biopsy, Hep C genotype 1...Stage II Cirrosis. Happy to find a support network and I'm sure i'll be using you guys advice alot. I'm scared to death from all the horror stories I've heard about treatment but I'm 38 years old...

rebeca · rebeca

Hello everyone, As you know I live in Spain so, at the moment I can only access the dual therapy. Next december, I have an appointment with the hepatologist, and I have to decide. My status: 50 yo. Genotype 1a.VL 800.000. Fibroscan, in June 2013, (7.4.) F2 (in beginning of F2 ). IL28B CC genotype. I hav...

rebeca · rebeca

Hello all, I want to share a very strong feeling and very bad for me. I´m 50 years old. When I was 23, I tried intravenous heroine,3 or 4 time, I left this world without any problem. I studied and I got a good job. Now I have a couple and a good life. In 1993,20 years ago, my doctor detected the virus. I have nev...

Scruffy · Scruffy

Nine weeks into triple tx incivek. I was on a trial about ten years ago, back when you had to mix the inter. I was about 190lbs and could bench 300lbs typical 1970's biker. You know the look that gave hep c its bad name hahaha. Only side effect I had was the first shot. I didn't respond well so tx was stopped....

Topic		Started By	Replies	Views	Last Post
	new to board (Preview) Hello everyone. From my bio. Im 63, gt 1a, F2, VL 5m, F2. Last checkup 7/13 and all numbers were normal. First diag. 1996. Had this since 1970. Been reading this board for a couple of years. I waited a lotta years for a better treatment to come along. I thought Incivek was it-had followed its progress for...	jimbob	13	1241	Dec 27, 2013 by jimbob
	newbie (Preview) Hey All Names Gig post Liver Trasplt 3 yr peg and rib 6 yr ago non responder. Got Liver Cancer moved me up on Transplant List got Tranplt was home in 3 days was like being born again. Went from feeling so bad for so long told the Dr. as soon as I woke up after surgery I feel better couldn't believe the differenc...	Gig	2	846	Dec 27, 2013 by 2willy
	Trying to understand why symptoms after so long undetectable (Preview) Hi all, this is my first post. I was diagnosed in early 1993. I was young and resigned myself to the fate of an early death. I lived recklessly with drinking and drugs but after about 5 years passed, I realized I was healthy and had no symptoms. I got proactive and saw a doctor, the doc said I was undetecta...	Dave	2	1051	Dec 14, 2013 by Scruffy
	News from Spain (Preview) Yesterday I had an appointment with my hepatologist. He check my viral load ( in 8 months up to 1.300.000,from 800.000 , do you know if this is significant? ) . Another lab test, normal. We commented, about future treatments with sofosbuvir ,when approved in Europe, and the possibility of waiting ....	rebeca	3	1139	Dec 14, 2013 by rebeca
	Side Effects after Peg (Preview) Hi I am into my 7th wk of triple therapy with peg/rib/vict. I have noticed my side effects are not as bad every other wk after I get my injection on the left side of the abdomen, than on the right. I find the side effects are pretty bad when I have the shot on my right side. Could it be, because the liver is on th...	kristi6	12	1764	Dec 8, 2013 by jamesy
	I have a question about medication (Preview) Hi guys,I havent been in awhile the last time I was here I got some really good advice and encouragement from some senior members :). I have a couple things to discuss and hopefully ya,ll can help again. I recently visited with my ENT because I have been haveing some sinus and throat issues, i have a horri...	michele	2	1202	Dec 7, 2013 by Tig
	Hi Everyone, new member (Preview) Hi All, Just an intro from my biography....contracted HCV in Feb 91 (from anti-D, I'm Rhesus Negative), told in UK in 95 (it was non-A/non-B then.) Moved to Ireland in 97, treated by Prof. Hegarty at St.Vincent's hospital Dublin. Was one of the first people in Europe to use Ribavirin/Pegylated Inte...	Irish Lass	5	1280	Dec 5, 2013 by Bloomster
	Post Treatment (Preview) Hi everyone I'm Eliza & I'm new here. I've come to this forum to look for some answers and hopefully find that I'm not alone. I finished Hep C combination treatment in March this year so it's been about 8 months. I had a horrid time with side effects whilst on treatment some of which have had a lastin...	Eliza	12	2041	Nov 26, 2013 by mallani
	Hi Folks (Preview) Just a posting from my "biography", introducing myself. HCV over 35 years, liver cancer survivor, triple therapy patient (Interferon, ribavirin, victrelis) one week to go to end of treatment, 48 weeks - genotype 1a. Viral load from 5 million+ to non-detectable by week 8, been that way...	DeRanger	19	2321	Nov 21, 2013 by DeRanger
	Week 9 of Treatment and Looking for Encouragement Please (Preview) Hi - this is my first time posting so I'm hoping I'm including everything you need to give me some advice. I started treatment with Pegatron on Sept. 6 for what I had hoped was 24 weeks. I have genotype 3 and my liver is a stage 2. I was told I have a 70-80% chance of a cure. My starting viral load was low at...	PL	19	3298	Nov 17, 2013 by Zlikster
	Victrelllis for 44 weeks instead of 12? (Preview) My doctor just told me that the protocol for Victrellis has recently changed. I'm in week 9 of the Vic and was told I would only take it for 12 weeks. Now that's been changed and I have to take it for the remainder of my 48 weeks! Anyone else been told this? My Hgb is at 10 now and the Vic has been much more dif...	Ginny	2	1083	Nov 16, 2013 by Cinnamon Girl
	To wait for new medication (Preview) My wife Julia has been diagnosed with Hep C. She is Chinese and apparently when she had an hysterectomy in China 27 years ago a blood transfusion was infected. Tests have shown no liver damage. We have talked to 3 doctors, one advised starting treatment right away, another said we could wait until t...	gerewolf	22	1882	Nov 12, 2013 by Kellie
	just starting triple drug treatment with boceprevir (Preview) hello all, just starting treatment with boceprevir. Have tried ribavirin and interferon before , but due to side effects and not good response quit and tried to wait til all oral treatment came out. Now have progressed to stage 4 cirrhosis and am hoping can get svr with this triple treatment. Know it...	newmex	14	1494	Nov 12, 2013 by mallani
	hi mallani (closed) (Preview) Hi mallani This is about your post on the other thread that I started. You have said that I have tried several IP addresses. I do not get you. And you say that I am here to have fun. I do not understand why did you get such an impression. I am not here to have fun. There is nothing funny about this disease....	newtohep	2	952	Nov 11, 2013 by Cinnamon Girl
	Anyone here got HCV from sex? (closed) (Preview) I have had sex with a sex worker 2 months back. I used protection. When, I removed the condom, I felt something sticky on my fingers - it was the vaginal fluid. Without washing my hand, I used water to clean my penis with the same hand. After this, I took some water on the same hand and repeatedly gargled and...	newtohep	14	1552	Nov 11, 2013 by mallani
	Good News (Preview) All three of my children are clear of the virus. This is such a relief, now I can focus on my own care & getting better. I am Very thankful right now.	LTChaos	3	972	Nov 8, 2013 by Cinnamon Girl
	Newly Diagnosed & terrified (Preview) I am feeling very overwhelmed, sad, ashamed, devastated. I am 44 years old, mother to 3 elementary aged children. I started feeling stomach pain recently, and thought I was having gallstones. During the ultrasound, they said there was a small hemangioma on my liver, and my liver enzymes were sli...	LTChaos	17	1762	Nov 7, 2013 by Loopy Lisa
	paperwork results my high numbers help (Preview) I have my paper work her it tells me what number I have that are high right now Iron 159 reference 35-150 so just a little high This number are label as hep panel I have 3 high numbers in this category Total protein 8.5 reference 6.4-8.2 Alt 232 reference 30-65 this is the one the doc is most concerned a...	jtthatsme55	7	1353	Nov 4, 2013 by Cinnamon Girl
	Just started treatment and looking to learn from the pros (Preview) I am genotype 1, VL of 7,700,000 on combo treatment. I took my first shot two days ago, and other than a headache I feel fine. Is this the honeymoon period??	Calgarygal	4	1216	Nov 4, 2013 by Cinnamon Girl
	well its offical (Preview) I got the results of my blood test today im genotype 1 with a viral load just under a million with stage 2 liver damage im going to start treatment in either Dec or January	jtthatsme55	9	1365	Nov 3, 2013 by jtthatsme55
	new here looking for support (Preview) I have just recently been told I have hep a and hep c im 21 and I contracted them threw IV drug use I am now clean and just looking for support with people who live with hep c and have gone threw treatment. Tomorrow I go to my first appointment with my hepatalogist what should i expect on my first visit	jtthatsme55	19	2013	Nov 1, 2013 by jtthatsme55
	frightend (Preview) hello i was in a 2 year relationship w/ someone that was diagnosed w/ hep c and i went to get tested and it came back clear i was not infected. we have been split up for 2 weeks now and i feel lost i love him very very much and he has the same feelings for me too ( we went to junior high school together) and he was in...	dragonfly79	12	1126	Nov 1, 2013 by dragonfly79
	I need some support (Preview) Today I feel really depressed, last week I decided not to treat with dual therapy, because there are a % 50 of healing in genothype 1a. As you now, in Spain,at the moment I can´t take another way. Yesterday I started to beat myself about it. Now I´m thinking here the new therapies will not arrive a...	rebeca	11	1613	Oct 27, 2013 by rebeca
	Hello, the forum! (Preview) Hello! I was diagnosed in 2002. 1b. Liver in relatively good shape, hope to start new drug treatment next summer... I'm looking for support and community. Thanks... Lida Rose -- Edited by Lida Rose on Friday 25th of October 2013 02:29:05 AM	Lida Rose	11	1144	Oct 26, 2013 by rebeca
	decided to wait for sofosbuvir (Preview) I finally got to see the specialist again. I was ready to start treatment in August but for some reason they were dragging their feet with it. I'm kind of glad they did because I want to see if sofosbuvir is going to make it's way to the public in a few months. The doctor said there is no reason why I can't wait...	AngieV123	2	902	Oct 22, 2013 by Matt Chris
	Nervous about biopsy (Preview) I am haveing a biopsy done next week and I am very nervous, my genotype is 2b and they are comeing out with a new treatment after the first of the year to treat my specific genotype that dosent affect anxiety or depression because I suffer from both.......my liver tests are always normal and my viral load...	michele	6	1185	Oct 22, 2013 by HR
	Starting treatment (Preview) Greetings I recently made the decision to start treatment. I got the results of my biopsy, Hep C genotype 1...Stage II Cirrosis. Happy to find a support network and I'm sure i'll be using you guys advice alot. I'm scared to death from all the horror stories I've heard about treatment but I'm 38 years old...	bigedawg23	3	873	Oct 21, 2013 by Kellie
	I have to decide to treat or not (Preview) Hello everyone, As you know I live in Spain so, at the moment I can only access the dual therapy. Next december, I have an appointment with the hepatologist, and I have to decide. My status: 50 yo. Genotype 1a.VL 800.000. Fibroscan, in June 2013, (7.4.) F2 (in beginning of F2 ). IL28B CC genotype. I hav...	rebeca	7	1388	Oct 20, 2013 by rebeca
	I feel guilty (Preview) Hello all, I want to share a very strong feeling and very bad for me. I´m 50 years old. When I was 23, I tried intravenous heroine,3 or 4 time, I left this world without any problem. I studied and I got a good job. Now I have a couple and a good life. In 1993,20 years ago, my doctor detected the virus. I have nev...	rebeca	13	1693	Oct 19, 2013 by rebeca
	Hiya's (Preview) Nine weeks into triple tx incivek. I was on a trial about ten years ago, back when you had to mix the inter. I was about 190lbs and could bench 300lbs typical 1970's biker. You know the look that gave hep c its bad name hahaha. Only side effect I had was the first shot. I didn't respond well so tx was stopped....	Scruffy	9	2038	Oct 18, 2013 by shotgungirl
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