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Moderator

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Good tips from Obs, Nick.  Be the kind and squeaky wheel. 

However long you have to wait, at least you that now you can be cured.  The treatment will come, and then it will go.  Hang in there.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Guru

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Very glad to hear you have an appointment booked....

may I suggest you phone the gatekeeper and ask her to please put you on a cancellation list, just in case  smile.... I have found being very charming to the telephone answerer can help with wait time 

Canada may have universal health care but waiting for tests or specialists is horrendous here...



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 

Tig


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Hi Nick,

I’m glad you got it sorted out, but having to wait until May is unfortunate. Must be a limited number of specialists. It would be wise for them to start sharing the patient load and getting this virus under control. At least you have an appointment!



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Newbie

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Have spoken with my GP - she cannot understand why my appointments at the hospital have stalled unless someone at the hospital ticked the wrong box on the computer - she has written to the hospital and this seems to have kick-started the process -  I now have an appointment booked in May with the Hepatology Team in Peterborough City Hospital . Let's hope they don't cancel this one as well!



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Tig


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Aye-aye-aye! Wrong test, huh? I would insure that you don’t have to cover the cost of their error. I believe the correct test will result in good news.



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Moderator

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Geez, 5.  Wrong test?  We really have to stay on top of this stuff, don't we? So many cooks, so little communication.

Good to see improvement, anyway we can.

Take care!

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Guru

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well, they gave hubby the wrong blood test, he got a nash fibrosure, who knew? anyway it was better than his last nash but he tested for the HCV fibroSURE ; that tests for level of fibrosis.

stay tuned.



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Guru

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hubby just got a new fibrosure blood test and has gone from 71 down to 31.... that's some liver repairing going on there , so at least he can now see how important the harvoni was.

i'll get one at my next dr.appt. 



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Moderator

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That's right, Nick. From all the reports we see here, the new DAA are really tolerable and they work. Get cured fast! We will support you in any way we can.  Let use know what you learn from your doctor or liver specialist (my preference).  I had even more questions answered here than at my clinic. First hand experience provides a lot of help.

Wishing you a speed cure.

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


Admin

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Hi Nick,

You're in the right place! This forum was started in 2007 by "LaurieBluesGuy" in the UK. There have been a few administrators and mods since you were here last. Jill (Cinnamon Girl) was my predecessor, mentor and friend. Together we have have witnessed some excellent improvements in care. Welcome back!

The new drugs are excellent. If you have any questions at all, please let us know what they are and we'll do our best to get them answered.



__________________

Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

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Welcome Nick,

or perhaps welcome back if this IS the forum you visited before. I think with the new DAAs a lot of people are getting cured and the side effects are minimal to none ......specially compared to the havoc interferon wreaked on everyone who did it...some of the support sites may have shut down as there wasnt the same need.

thankfully Tig has kept this wonderful one running. 

Do you have a liver specialist or if not...can your family Dr get you an appointment with one asap? 

I hope you get your treatment soon..once you start those pills it will breeze by and youll be rid of the dragon. 



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



Guru

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hi NickE,

yep with the new DAA's we zip thru the 8 or 12 week course and the virus vanishes.....it's so wonderful.

i am doing well a year and a half later with the usual stuff from being 67 i think.

welcome back

5



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Newbie

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Hello people

I was previously on a HepCUK forum which no longer seems to exist - or am I misremembering? This one seems new but strangely familiar!

I was diagnosed with Hep C about 2008, went on two courses of Riba and Interferon (12 months then 18 months) in subsequent years, neither of which worked long term in ridding me of HCV. Decided to give treatment (and feeling unwell because of side effects) a rest for a few years, particularly as I am now self employed. Recently been made aware of new treatments with new drugs that have fewer side effects. Got as far a Ultrasound of my liver but keep getting cancelled hospital appointments - hoping to get that sorted soon by getting my GP involved again. 

I have some questions but will put them elsewhere in appropriate discussion groups.

Regards

Nick

Peterborough UK



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