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Post Info TOPIC: Really Annoyed
ty


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RE: Really Annoyed
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Hi Kirstin, Hi from me as well.  I would be the last person on earth to talk about patience, LOL.  I like everything done yesterday!  I know it's hard waiting when you just want to get this behind you and move on with your life, but it will happen soon enough.  Maybe all the waiting is your psych test and they are just trying to see if you snap, LOL.  Take care, tysmile

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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
espaeddie


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Hi little quote I read .when things go wrong as they some times will when the road your trudfing seems all uphill when the funds arte low and the debts are high and you want to smile but you have to. Sigh when care is pressing you down a bit rest if you must but don't you Quit life is queer with its twists and turnsas everyone of us sometimes learns and many a failure turns about when he might have won had he stuck it outDont give upthough the paceb seems slow you may succeed withanother blow success is failureturned inside out The silver hint of the clouds of doubtand you never can tell how close you are it may be near when it seems so far So stickto the fight when your hardest hit its whenthings seem worst that you MUST NOT QUIT all the best eddie love and hugs xx

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Brothers /sisters in arms If at first you dont suceed try, try and try again
Kirstin


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Hi Dee, yup, thats me alrite..
The waiting is the hardest, I have been perparing for this for what feels forever now.. Just alot of flase starts it seems. I, unfortunately, wasn't blessed with alot of patience, tho I believe I have done well  thus far frustrated.gif. Just want to get it started & over & done with.... but realize that I will just have to go with the flow.. damn it! lol

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Genotype 3a Started tx 11 May 2011 for 24 weeks. With scarring. VL before tx= 4 million.. UND@4 weeks. UND@12 
DGiga


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Hi Kirsten, Love the pic. Is that you? The whole process of tx is a waiting procedure. From day one, right up to the last day of tx and beyond. You have to be patient because this is important for your health. Did they tell you the results of your biopsy yet? I guess you don't know what stage you are.
I see a private doctor, a Gastroenterologist but there is no difference. They give us all the run around. Even when I refill my needles I have to wait for one reason or another and have to make another trip back to the pharmacy. It is all a "waiting game" but it is well worth it. You have to persevere in order to survive Hep C. Things will fall in place, you will see.   Hugs Dee

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Type 1b with cirrhosis. Started treatment April 9, 2010 for 48 wks. Maintained negative PCR from week 11 during tx but now I am detectable again.
                                                                                                           
James10500


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I never could understand why it took a month between every step in the process for me. The stress got to me , and it's understandable. I hope you can find some peace and joy in your day.

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
BJ


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Gidday Kirstin,

It's the hardest part about starting tx, the wait.  I think it was you I told about my first day start that didn't, I was furious, it was only afterwards that I realised they do it to everybody.  With your visit to the psych still pending, I think the best thing you could do is call them on Monday morning, and without blowing up - 'cause you don't know why you didn't get the appointment - tell them what was meant to be happening, and see if you can get to the bottom of it.

Patience is not a virtue at this stage for you, but a neccessity unfortunatelycry there always seems to be something else and you think it will never end and then bingo, they are dragging you in and you're banging a needle into ya' for your first shot:)

Going private in Oz is not a very good idea because it'll cost you a packet and you'll miss out on all the government benefits.  As it is, up here in Queensland I actually go to the hospital clinic for the tx but otherwise do lots of stuff with my GP 'cause we get on well and he's known me for 30 years so he knows what's best for me.  But I'd never turn my back on the clinic, even if it does feel like they a killing me some days.smile

The hospital clinic is good because it links all the sevices that I otherwise need like pharmacy, diet, psych services etc; so don't burn your bridges there, just hang in there and see if you can call them and get it all straightened out.  Maybe it's part of the testing procedure, stuffing the patient around to see if they cope ?.....who knows, it can't be long now Kirstin, you've gotta' be strong for many different things going through tx, and the wait before starting tx, is definitely one of them.nod.gif

Cheers,

Brendan.



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Geno 1b 72wk tx (Sept '09- Feb '11) Tx sucks, Sx's suck, but no one quits on my watch.   Pre-tx VL - 7.6 Million - Wk 4 - 480,000 - Wk 12 - 19,000....Wks 24, 36, 48 and 72 PCRs were all - negative :-))))Achieved SVR August 2011 

Kirstin


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I am so confused/annoyed/po'd right now. The last time I visited the liver clinic & spoke to one of the Dr's there he told me that my next appointment there, scheduled for the 16th Dec, would be my starting date for treatment. Just the biospy, which I had done, then a visit to a shrink (which the clinic would organize & I would recieve a time & date in the mail for that appointment), then a start date of the 16th.. Well, my appointment at the clinic is this coming thursday & still no word of an assessment with the psychiatrist... Which I know means no treatment will start this week... I am growing so tired of this, it's been going on since last May.. The waiting is really starting to wear me down & I truly don't know how many more visits to the clinic, blood tests I can go through with no action, no advancement & no trying to get rid of this bloody disease... All I want is to get going with this, but I keep just hitting brick walls it seems. I am even thinking about going through the treatment as a private patient, perhaps it will speed things along?. Anyone here done that?. Is it better, are things more efficient that way?. All I know is that I am at my wits end &  almost ready to just chuck it all in..




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Genotype 3a Started tx 11 May 2011 for 24 weeks. With scarring. VL before tx= 4 million.. UND@4 weeks. UND@12 
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