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Post Info TOPIC: anyone around?
Mano


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RE: anyone around?
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i checked it before mate thanks anyway..
i think i checked and ready every study done on treatment of acute hep c available on the net in this couple of weeks to b honest..
off to bed night mate



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29 co-infectedVL (28Feb)=140.000 / genotype 4/ fibroscan 6.2 / acute phase infected less 6 months
started 24 weeks treatment 180mg pegasys + 1000 riba 11th March 2011. UND at week 3
James10500


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Tela got fast tracked so that means 6 months. So it should be approved May 23. How quickly it actually gets out to market I'm not sure. And what that means for the U.K. I am not sure how that works. But you stand a much better chance to clear it in the acute stage. Here is an interesting article for you to read.

http://www.hivandhepatitis.com/2009icr/easl/docs/050509_a.html

A couple of posts below a put a link to a book (PDF) there is a section on coinfestion you may be interested in reading.

Be well,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Mano


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Hey James im seeing my the specialist in a couple of weeks and in case i havent cleared they wanna treat str8 away.. so think it will before Telaprevir? comes out..




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29 co-infectedVL (28Feb)=140.000 / genotype 4/ fibroscan 6.2 / acute phase infected less 6 months
started 24 weeks treatment 180mg pegasys + 1000 riba 11th March 2011. UND at week 3
James10500


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Hey Guys,

-Mano, hopefully by the time you treat Telaprevir will have such a success rate that you will only need to treat for 24 weeks regardless of geno.

Good luck with your new project.  Take refuge in your work.

-Randy good luck this weekend !!

Here is a book for you guys and all.



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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
cloudguard


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You have the odds in your favor take heart and bull your way through it. keep using this support site and know we are out there and we are with you.

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Winston Churchill
Hep Me


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Yeah, could be worse. And 24 weeks tx is what the doc said - you're right.  Congrats on the new job, is it work that you think you'll like? 

Sometimes it's hard to find that balance without having something like hep c to throw in the mix, I can relate. 

The one thing I had to keep in mind (to keep my mind), is that, like James10500 indicated earlier, is it's a slow moving disease.  I was all freaked out too at first.
It will get better.  I think it's good you found out at such a young age, you are fortunate about that.

Randy

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"Ah but I was so much older then, I'm younger than that now."  Bob Dylan
Mano


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hey Randy
geno 2 is a good thing.. or at least could be worse.. so that means probably 24weeks on tx right?..
i am stressed, trying to focus on work, just started a new freelance job and need to do well so im pushing myself but at same time seems so insignificant if i could only clear this virus...
been hard to find a balance of working/distract myself/rest enough/keep active/not letting depression get to me.
its all too complicated all of a sudden. hello 30's. someone said they would be my best years- theyre looking like **** from where im standing..


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29 co-infectedVL (28Feb)=140.000 / genotype 4/ fibroscan 6.2 / acute phase infected less 6 months
started 24 weeks treatment 180mg pegasys + 1000 riba 11th March 2011. UND at week 3
Hep Me


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Hi Mano,
How are ya doing today?  I'm back at work on my computer, I'll be around for the next 8 hrs or so if ya need to talk.  It may take a bit for a reply as I am working too.


Thanks Cinnamon Girl, nice to meet you.  I've read a few of your posts elsewhere. cool cat.


Take care all,
Randy

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"Ah but I was so much older then, I'm younger than that now."  Bob Dylan
ty


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Hi Mano,  I know it's hard waiting for the news about genotype, I can't stand to wait for anything.  It's interesting to me that your Doc woudn't grasp how important that info would be to you. Oh well, it does sometimes take a couple of weeks to find out.
     My Doc had to check with other Docs before planning my tx, becuse of other issues, maybe relating to the Hep C, maybe not.  It's always more complicated than I want it to be...
  Don't feel like your complaining too much, we've all been where you are at.  It's stressful when you first find out the news.  I think that was the best thing about actually starting tx was that I could stop worrying about the future and start complaining about the side effects! LOLbiggrin

Leslie and Jill - It must have been a virus.  I spent last night updating my security software and the problem seems to be solved, thank goodness!

Take care, tysmile



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
Cinnamon Girl


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Hi Mano, I haven`t got round to saying hello to you yet, there`s been a lot of new people on the site lately.  So sorry you`re getting so stressed but that`s perfectly understandable.  My hep C nurse actually recommended going on ADs before I started tx, then at a certain point I found it helpful to increase the dose.  I had to wait to find out my genotype, viral load, etc, and yes it`s very frustrating.   Of course the one thing you want to know is your genotype as it dictates how long you`re gonna be on tx! 

Please don`t worry about sharing your worries here - no-one is getting sick of your story - we all understand what it`s like and want to help each other as much as poss through this.  Hang on Mano, take each day as it comes and deal with each isssue as it comes up.  You are among friends here.

Hi Randy - don`t think I`ve said hello to you yet either.

Ty - sorry you`ve got that prob with computer, hope you can resolve it somehow.

Take care all, love from Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Greg


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Hi Mano,
I haven't spoken with you before, but can understand your feelings of stress, it's a bloody lot to take in and deal with mate, and I feel for you. Just hang in there you have all these wonderful people here on this great site, I myself have only been here just over a week and have found so many new great friends who really understand what your going through. When I was  stressed I would  go down to the beach and scream at the wind, sounds crazy I know but it worked for me a few years back when I was going through a rough patch. You have us to scream at if you want. Sorry I'm raving on it's late time to say good night. Take care.
peace.gif
Greg


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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
suzir


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hi there, hope your ok and not getting to stressed, its all a bit scary with all the new medical jargon, it scares me anyway, just try and deal with stuff in the now, try not to look to far in front, i was doing that, 1 day at a time, let me know how your doing, xconfuse

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borowif


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Hi Ty

I've had that with my laptop. A whole series of 0 00s keep popping up. I think its me but then If your havin the same problem, cud it be a cheeky virus or something?
Anyway hope you are keeping on the Up side of things.
How much longer for you now?

Take care
Lesley xx

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Hep Me


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Hey Mano,

Seems like I had to wait at least two or three weeks to find out my genotype.  Mine turned out to be 2a.  I start treatment sometime between Thursday and Sunday.  I'm in the US and they said 2a is more common to Asian countries. So anything's possible.

I doubt your doc is hiding it, I think I recall them saying it takes a couple weeks for the test.  Maybe they're just backlogged.

I don't know where everybody's at, but a lot of the states are getting hammered by a storm right now. I just went out for a bit and it's quite slippery and nasty out.  I tend to like adverse weather though.

Maybe there is some kind of assistance to help you with the cost of the treatment. 

Randy



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James10500


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Yes I see what he is saying regarding trying to knock it out in the accute stage. Mano I understand what you're going through, I was in SHOCK when I walked out of that docs office. It's pretty much consumed my life since April 2010.

I don't think anyone is sick of your story.  It's hard at first but everyday you learn to live with it a bit better.

-- Edited by James10500 on Wednesday 2nd of February 2011 02:28:10 AM

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Mano


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about liver biopsy still.. he says theres no damage with such small time frame..
but i mean i got tested neg 28 nov 2010.. but my enzymes where high on 2nd week jan. i was feeling unwell most dec and jan to be honest.

can i have had it for longer then my neg text on the 28nov and been damaging my liver for a year or so?... and when do the enzymes go up immediately after infection or they can go up months or years or even never?..
so many questions.


__________________
29 co-infectedVL (28Feb)=140.000 / genotype 4/ fibroscan 6.2 / acute phase infected less 6 months
started 24 weeks treatment 180mg pegasys + 1000 riba 11th March 2011. UND at week 3
Mano


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the specialist says he wont ask for a biopsy he wants to treat str8 away cause i was tested negative on 28th nov 2010 so infection is very recent and the thinks its our best shot at it.. i agree with him i have read quite alot of papers reporting dramatically bigger chances of SVR even on genotype1.
but I am just so bloody anxious about everything.. every little ache, little pain.. im concerned about my digestive system nad wat has that to do with hep c.. this is i  found i had it been feeling like **** late dec beg jan 201s1...
guess ppl here start getting fed up of listening my story but really need to get it out of me chest dunnow what for but i feel like im going to explode. i know so little. and im so scared of the very real possibility of going on treatment for 56weeks... i dont know what to think right now.. im scared of what it will do to my body and my mind..


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29 co-infectedVL (28Feb)=140.000 / genotype 4/ fibroscan 6.2 / acute phase infected less 6 months
started 24 weeks treatment 180mg pegasys + 1000 riba 11th March 2011. UND at week 3
James10500


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Mano it's not you !! The traffic is pretty heavy lately for us. I would go on AD's pre tx if I had or have to do it again. It's not strange at all to worry about genotype. Have you got a liver biopsy yet ? You need to do that to assess your tx time frame. If your liver is stage 1 you can wait for new meds, that may lessen tx time. Also it will give you more time to save money and prepare for the future. Remember Hep C is very slow moving I am stage 3 but I'vee had it for 40 years. And I also know stage 1's that have had it 30ish years. It is different for everyone. But to get a clear picture you need a liver biopsy.

Best wishes,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Mano


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hey Randy how u keeping?
im still waiting for find out about my genotype but talked with me Dr. yesterday he says i shudnt be hanging on that but the results in 3 weeks to see if its coming down.. what does he mean.. its only normal im curious about genotype but he says most new infections are geno1.
:( so maybe he knows and doesnt wanna depress me more.. really thinking of asking to be put on AD before treatment.. got so much stuff in my head in particular money issues, how to pay rent, when am i gonna work.. all sucks right now..
and no one ever seems to be around in the forum.. is it me? i have too much time on me hands?



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29 co-infectedVL (28Feb)=140.000 / genotype 4/ fibroscan 6.2 / acute phase infected less 6 months
started 24 weeks treatment 180mg pegasys + 1000 riba 11th March 2011. UND at week 3
Hep Me


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Yeah, I'm here Mano.  I'm working but I'll be around off and on all night.  I'll check in when not busy.

Randy

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"Ah but I was so much older then, I'm younger than that now."  Bob Dylan
ty


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Hi mano,  I'm on, but I can't type.  Computer puts "O" between every letter!  Take care, tysmile

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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
James10500


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What's up Mano ?

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Mano


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need to talk..

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29 co-infectedVL (28Feb)=140.000 / genotype 4/ fibroscan 6.2 / acute phase infected less 6 months
started 24 weeks treatment 180mg pegasys + 1000 riba 11th March 2011. UND at week 3
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