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Hep Me


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RE: hey everyone
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The sx gods are being kind to me so far Mano.  I have muscle aches which I'm just taking over the counter ibuprofen for. A couple of nights I've had to take sleep pill even though I'm real tired - but I had sleep probs going into tx and if anything it seems that some of the meds are helping to make me sleep better. 

I realize it's early in my treatment, two and a half weeks, so anything could change.  But to worry about that is not good for my head so I try to stay positive by just living in the moment.  I was talking to someone about that last night - living the whole thing one day at a time.  And for me, that is something easier said than done, I have to work at constantly.

You sound like you're doing a bit better today, Mano.  I like the positive quote by Cummings.

Hang in there,
Randy

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"Ah but I was so much older then, I'm younger than that now."  Bob Dylan
Mano


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Hey Randy cheers for the advice.. how are u hanging on with the treatment?!.. u feel really crappy?.. 
my main worry right now is money and how will I make money if im unable to work on treatment... guess ill cross that bridge when i get there.. does anyone have any experience with support from the council if ure unable to work?..

Mano



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29 co-infectedVL (28Feb)=140.000 / genotype 4/ fibroscan 6.2 / acute phase infected less 6 months
started 24 weeks treatment 180mg pegasys + 1000 riba 11th March 2011. UND at week 3
Hep Me


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Hey Mano,

Still feeling crappy huh? My feelings and thoughts go out to ya man. Just hang in there until that appointment and think about asking them if they can prescribe something to pick up your mood - if possible before tx starts.

A lot of people actually feel bad prior to or during treatment, so you're not alone. Sometimes when I'm feeling down I take a hot bath and try to bring my thoughts around to some of the most pleasant things I ever experienced.  Sometimes it helps, sometimes not - but I thought it might be worth mentioning.

Sorry I can't offer any other ideas to help you feel better,

Hang tough,
Randy



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"Ah but I was so much older then, I'm younger than that now."  Bob Dylan
morgan


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hi mano sorry ur feeling bad i was like that last week,im learning to take 1 day at a time its hard but we r all in it together,this forum is helping me a lot.were do u live r u in the uk smile

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ty


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Hi Mano,  I'm sorry to hear that you are feeling so bad.  It sounds like the way I felt when I first started going to the Doctor to find out what was wrong with me.  Actually, once I started treatment I felt bad, but not worse, and everyone else kept telling me I looked much better, lol. 
     Feeling ill does mess with your mind, so be extra kind and forgiving to yourself right now.  Just know that you are doing the best that you can and  that's all any of us have to give.  I used to tell people to treat themselves like they would their best friend, we're usually much harder on ourselves.

    Your appointment next week should ease your mind a bit, because at least you will have a plan for getting better.  I'll keep you in my thoughts, tysmile



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
Catie


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Hiya Mano smile

Feeling so ill must be the pits and no wonder you're feeling low - seeing your doc and finding out how things stand will at least be a start on getting things straightened out - having a direction to head for can feel so much better - more in control and empowered - than just drifting and worrying - it is a scary thing indeed but theres a mass of help out there - I urge you to ask and keep on asking until you get what you need and deserve

in case you don't have it - this is the hep c trust in the uk - http://www.hepctrust.org.uk/

and this is the UK hep c forum wehre you might find some local face to face support - http://www.hepcukforum.org/phpBB2/index.php

take good care and I know you're tired but I do hoe you can INSIST and PESIST untill you get the help that feels right for you - Cate smile




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Gene Kranz, Apollo program flight director said,

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James10500


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Hi Mano,

Sorry to hear you're not feeling well. Be strong and try to hang in there ! At least you know what's wrong with you, I tried for a few years to get this diagnosed and finally someone figured it out. I was sleeping for 12 hours or taking naps most days. Low energy, mood changes, irrational behavior. All that time wasted not knowing I was sick. At least you won't have to live the majority of your life not knowing you're sick.

Hang in there,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
missycat


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Oh Im so sorry to hear you feel like that!!! to tell you the truth i feel like crap most of the time too, but i think when we feel down our mind plays tricks on us. some days i feel so low and feel pains and other days i feel ok. What i find helps me is sitting and remembering good times in my life,put yourself back there,to those happy times, cause thy will come again! I know they will else whats the point in all this,and i dont just mean fighting hep c. we all have lifes!!! hep c is only 1 part of it :) :) keep your chin up! love kaz

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Lift the hearts of those around you, share the goal that's in your sight. Keep strong, if i can do it anyone can! tx finished virus free :))))
Mano


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just checking in..
not feeling good at all at the moment.. my liver really hurts, have headaches and sore muscles all day and havent started treatment yet!...
got my 1st hiep c appointment next week should know then what is going to happen treatment wise..
really down right now how come i feel like crap and most people feel nothing.. im just scared im gonna feel even worse on tx..
been getting really depressed, lost a freelance job I had and not sure im in condition to work at the moment either.. its hard right now to find the strength to look for more work when i feel like **** and im so worried about my health..



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29 co-infectedVL (28Feb)=140.000 / genotype 4/ fibroscan 6.2 / acute phase infected less 6 months
started 24 weeks treatment 180mg pegasys + 1000 riba 11th March 2011. UND at week 3
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Hep C Discussion Forum -> General Discussion -> hey everyone
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