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Post Info TOPIC: Need info
ty


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RE: Need info
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Hi William,

    Welcome to the forum!  I agree with the others, get the high quality PCR test and you will know if you have Hep C or not.  I think your doctor meant that if you have blood to blood contact you can catch it again even if you don't have it now.  Good luck on the test and take care, tysmile



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
Ron Gilbert


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I wasn't intending to interrupt your thread William,

I tend to post random stuff sometimes and I'm trying to stop doing that. I grew up in Ohio though, so I understand how weather along the east coast can have life changing effects.

Post any time William. We are happy that you joined us.

Ron

 



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Genotype 1a Diagnosed in 1991. Started tx April 27 2011 for 48 wks. VL before tx  1.6 - 4.6 million. RVR-week 4, UND-week 8 

Vitamin D3 suppliments can increase chances of reaching SVR. See Nutrition section for links.
PJ


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The storms weren't too bad where I am, Ron, thanks for asking.

There are major US cities that were really hit hard, like nothing I remember in the past.  Scary stuff.

Now we've just settled into our July weather a bit early...hazy, hot and humid.

 



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Diagnosed in 2006. Probably infected in the late 70s or early 80s. Genotype 1B. Starting TX on 5/5/11 with the SOC and Teleprevir. 
Ron Gilbert


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How did you fare in all those storms PJ?



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Genotype 1a Diagnosed in 1991. Started tx April 27 2011 for 48 wks. VL before tx  1.6 - 4.6 million. RVR-week 4, UND-week 8 

Vitamin D3 suppliments can increase chances of reaching SVR. See Nutrition section for links.
PJ


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Yeah, I missed the part about the "normal load" and assumed he meant he'd been infected and cleared on his own.

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Diagnosed in 2006. Probably infected in the late 70s or early 80s. Genotype 1B. Starting TX on 5/5/11 with the SOC and Teleprevir. 
Ron Gilbert


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It sounds like he is not infected, but geez what is the Dr. talking about?

I'm reading my own labs from now on and just got my most recent ones.

On mine Hep C is either flagged "abnormal" or not. My last one is NOT flagged.

The doctor told me I'm undetectable and that was it.

On the results (qualitative) where it used to say 1.6 million (VL) it says <615 and also has the range listed as <615. I'm assuming that means "less than" 615 which puts it off the chart on the low side.

NO VIRUS DETECTED.

I assume his Dr calls it "acceptable range" instead of "undetected" causing confusion.

I agree with Moo, get a different Dr.

Ron

 



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Genotype 1a Diagnosed in 1991. Started tx April 27 2011 for 48 wks. VL before tx  1.6 - 4.6 million. RVR-week 4, UND-week 8 

Vitamin D3 suppliments can increase chances of reaching SVR. See Nutrition section for links.
Moocow


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Methinks you need a second opinion........ either you are still infected or you shed the virus.

Get that PCR done and make sure they do a qualitative, not a quantitive.



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Remember.......
Pillage before you burn.
James10500


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There is no such thing as "active" and "inactive" hep c. You either have the virus or you don't.

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
william


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 He said he dodn't detect any signs of the desease in my levels. It shows I have had it and brought to my attention. I have been tested in the past. I was asked at the time, if I wanted treatment if it was active. Of course I said yes. When the results were in she said that everything checked out great. There was no need for treatment. To stay away from alcahol and drugs.



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Moocow


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And just what is a "normal" viral load?



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Pillage before you burn.
James10500


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There is no normal viral load. If you have a viral load you have hep c. If by marker you mean HCV anti bodies, yes you will have anti bodies for a very long time if you have cleared the virus or if you have the virus. The anti bodies are thing s in your body that fight the virus, they are not the virus and do not contain the virus.

Not sure what you read that contradicts blood to blood STREAM is necessary for transmission but it's wrong. The disease is spread paranterally and that's the only way it's spread.

So if your last PCR was undetectable you don't have HCV.

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Ron Gilbert


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Same here PJ, never passed it to my spouse.

Never heard of a marker, hope someone can answer this question. I don't see how you can be contagious with something you don't have? I have heard that our blood is not useful even after we are SVR but I don't know if that means we are contagious or not.

As far as teller her, honesty is the best policy. After you get the fact (likely that you just cant donate blood) tell her everything. I got used to telling people before a relationship.

Now that your engaged it may be more difficult, BUT YOU ARE NOT INFECTED. That is a huge difference and I don't even know how that would show up on a blood test unless that is some special and very expensive test???

Ron



-- Edited by Ron Gilbert on Thursday 2nd of June 2011 09:30:35 PM

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Genotype 1a Diagnosed in 1991. Started tx April 27 2011 for 48 wks. VL before tx  1.6 - 4.6 million. RVR-week 4, UND-week 8 

Vitamin D3 suppliments can increase chances of reaching SVR. See Nutrition section for links.
PJ


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Well, you are one of the lucky ones who fought off the dragon on your own - way to go!!

When the doc says blood to blood he is correct. There is a lot of misinformation out there. This webpage has some good info: www.hepatitis-central.com.

On a personal note, I was married for 20 years, and my (now ex) husband does not have HCV, though I had it the entire time that I was married.

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Diagnosed in 2006. Probably infected in the late 70s or early 80s. Genotype 1B. Starting TX on 5/5/11 with the SOC and Teleprevir. 
william


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I am lost and need some help understanding. I was told in the late 70's I had hep A nor B. In 1992 I was told I had hep C. I have been seen in the past by a infectious desease doctor and told I had Hep. C but my body fought it and I have a just the marker. I have been tested several times since then. I still show the marker but all my test results are perfectly normal. Nothing to worry about stay away from alcahol and rec. drugs I have done all the above.

 When my wife was alive I questioned the dangers for her and my children. I was told just don't share toothbrushes and or razors. That the likelyhood of contraction was rare. My doctor a 2 years ago said blood to blood only! Of course now I am seeing things on the web that contradict this.

 Here is the delima my doctor again today said I am doing great. No signs of activity, the viral load is within normal parimeters, enzymes are the same normal. That I contracted at some point but my body fought it off. I just have the marker. Iam engaged to get married and I don't know what is right and what is wrong.

 If just have the marker am I contagious. He said most likely not unless you have the again blood to blood contact! I want to tell her I am going to have another test called a PCR I think. Not real sure of it does. Help with any of these questions would be helpful and appreciated.

 



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