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Hep C Discussion Forum -> General Discussion -> SYMPTOMS
Post Info TOPIC: SYMPTOMS
Tig


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RE: SYMPTOMS
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Hi everyone and thanks for the info. I've had problems with tinnitus for years and years, this new noise, like running water, just like you left the hose running outside and you can hear it from inside the house! It's very loud! I've been on therapy for 5 weeks now and this issue didn't start until the second day I was on the Victrelis. Never did notice any tinnitus differences from the Interferon but I'm convinced it's the Vic because each time I've taken it today the noise gets much more intense for a few hours following ingestion. After that it does quiet down some but it's still noticeable. So now I've got the high pitch ringing I've had for years battling for supremacy over the rushing water, ha, ha!! I have to admit it's something different all the time with this stuff. I appreciate all of your help and the idea's being shared. It's all good to know!! 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Neil_Canuck


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Hi Tig. Like Jill  said, tinnitus seems to be a common side effect. The only thing to worry about is hearing voices....and answering them.   Lol.

 



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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
Cinnamon Girl


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Hi Tig, sounds like it could have been something like tinnitus, which some of our members have reported experiencing while on tx.  It sometimes tends to come and go, like a lot of side effects.  Has it gone now?

Well done for getting started on the victrelis, best of luck! smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


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I started Victrelis yesterday and would like to know if the issue I'm experiencing is a shared problem. After my 4th dose I was really tired, I didn't sleep well at all last night. I took a nap and slept about an hour and when I woke up I was startled by the sound of rushing (running) water. I checked everywhere and determined that what I was hearing was actually in my head!! I'm hearing things now! Has anyone else had these symptoms? This isn't going to be much fun listening to for 10 months!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Zlikster


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Hi Tig, thats most certainly from interferon. Lots of people, including me, has tinnitus issues from interferon shots. As i talked with other folks on this forum, most of em say that it goes away after the therapy stops (2 week up till 1 years after). I am worried it might stay as perm sx, but i took that risk (my profession is with music/audio so it's my biggest worry).

You will soon get used to is psychologically. You said it sounds like rushing water? thats means it's pretty much like white noise. You can play white noise (or sound of waves, waterfalls, rain) beside your bed to mask it, if you have troubles sleeping. If it's tonal (usually high pitched tone), you can also mask it or try to subdue it with playing tones in similar range (there are software that can automate it, like Tinnitus tamer).

i am really annoyed by the fact that there are no official words of precaution about tinnitus sx in interferon prescription. You can only find only online some words about what meds are noted to cause tinnitus. My doc said that tinnitus as sx from interferon is really rare, but it think it's well common sx, but people do not complain to their docs much.

who knows what else interferon saturation might cause...hope soon interferon will be thing of the past for hcv therapies.

best



-- Edited by Zlikster on Saturday 22nd of June 2013 12:35:59 AM

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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
greenqueen


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Hi Pat,

I had spider nevi and moderate liver damage, so it doesn't mean someone has cirrhosis.

Hep C can cause a variety of different symptoms - there 's some more info below smile

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Extrahepatic.pdf

Love Steff xx

 



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
pmrad5


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Ron,

Thanks for the info. I am scheduled to go to Duke Med. Cnt. for blood work and bx later this month. I'm just trying to self-diagnose. I'm just hoping that I haven't progressed that far.

Pat

geno 1a vl 3.7 mil. male 47 probably infected 1989-90 former heavy drinker



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Ron Gilbert


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Hi Pat,

Doctors like us to think that a biopsy is the only way to know, but a simple search brought me to this article that you may find helpful at MedicineNet.com:

http://www.medicinenet.com/cirrhosis/article.htm

Hope you find this helpful.

Ron 



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Genotype 1a Diagnosed in 1991. Started tx April 27 2011 for 48 wks. VL before tx  1.6 - 4.6 million. RVR-week 4, UND-week 8 

Vitamin D3 suppliments can increase chances of reaching SVR. See Nutrition section for links.
pmrad5


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Kirsten,

I'm just trying to figure out where I stand with this goofy disease. I have good days and bad days. Mainly with fatigue.

Pat



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Kirstin


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Hi Pat,

Yes, I had symptoms but I most of them I attributed to just working hard. Mostly I was tired all of the time.. I suffered alot of liver pain but I believe that had more to do with the drinking. I am not really sure if it were from the hepc or all of the above. It was probably a combination of all of it. I started getting headaches & a pin's & needles type of feeling in my hands & feet. Like I said though, I wasn't treating myself all that well before I found out about my status so to be honest I don't know what symptoms were from what.. no 



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Genotype 3a Started tx 11 May 2011 for 24 weeks. With scarring. VL before tx= 4 million.. UND@4 weeks. UND@12 
pmrad5


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Thanks Kirsten,

Did you have any other symptoms before treatment?

Pat



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Kirstin


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Hi Pat.. I have/had terrible spider naevi, it covered my chest & upper arms.. Once I had it pointed out to me & the reason for it I thought for sure I had cirrhosis. After my biospy I was surprised to find out that I only have stage 1 fibrosis/scarring.. After I started TX I watched it fade as my liver started to heal, thats how I knew I would be UND at 4 weeks.. All good



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Genotype 3a Started tx 11 May 2011 for 24 weeks. With scarring. VL before tx= 4 million.. UND@4 weeks. UND@12 
pmrad5


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Has anyone had spider nevi and not had cirrhosis?

Pat



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