Hep C Discussion Forum

Kirstin · Senior Member

RE: Oh well... It's time

Greg · Guru

Hi Kirstin,

Glad we still have our cheeky aussie sheila here.

Kirstin · Senior Member

LOL I am in Australia, your 2 cents worth now means I own your house lol .. Sorry, about that, it was just way too tempting lol

Thanks sweetie, I think we all can sound abrupt, especially when the rage kicks in. I dont normally let things get to me, I tend to just laugh things off.. But now, certain things bother me. I'll get over it. Also missing some other members, worried about them.

We all have our moments huh?

britlitkaren · Senior Member

Kirstin, It sounds like you may stay w us. I truly hope so. Veteran voices speaking love have so much healing. At times I may sound abrupt. Especially when I'm distressed. It's not ez to convey emotion thru this venue. However, I hear a lot of warmth in ur posts. I smile as I type. Words are powerful. For good or for bad. I've never been on a forum like this before w so much illness. I'm glad we can be honest and work through stuff. God knows we've got enuff going on! It's like a family. We have to take care w how we treat each other. You've earned a lot of people's respect. That says a lot. My $.02, Karen (I know that my 2 cents isn't worth a lot in the UK. Haha. Couldn't resist.)

Kirstin · Senior Member

Thanks Becca

After speaking to others, again, your pm's were greatly appreciated, I have decided to stay. What would I do without you lot huh?

BeccaJune · Senior Member

Kirsten,

I think I can speak for a few others here in saying that I wish you would reconsider and not leave the forum. cry

I will really miss your post. I like your humor, your honesty, and your willingness to accept me as your friend here. I feel honored that you mentioned me, and yes it's been a pleasure.

Love and well wishes,

Becca

Kirstin · Senior Member

Allow me to explain something here..

From the moment I joined the forum I have had a couple of people that have constantly pm'd me about how my Dr's were wrong, I should seek different opinions etc because they thought I didnt need AD's. It drove me insane. Fortunately those people are either no longer a member or have stopped efforts in trying to sway me onto them, after I have spoken to them privately about my situation, my dr's stand on them & the fact that I have a support system looking out for me.

Then James started in on them, I wasn't going to go through the same as I had previously with those others. I needed to put a stop to it.

It got to the point where anytime I saw any of my doctors I would harrass them about their decision about me & AD's. I would constantly question them about that, I was becoming anxious & stressed. James doesn't know me, he doesn't live in my house, he is not my doctor. I am not depressed in anyway shape or form. I see the funny in most things & on a whole, pretty much dealing with the tx in a much better way then most people do. I have, of course, my bad days. But that just what they are... bad DAYS.. Not weeks or months but days. For me, being constructive is being there for each other. A pat on the back for those times when you don't feel very good. A 'Its going to be okay' every now & again. Not a two sentence response about how everyone should take this or that. Thats what my Dr's job is.

It also wasn't just about the subject of AD's.. It was also rude comments that have been made to others.

James is free to help others, if they want that kind of advice. I don't. We have, like he has stated had much nicer experiences & conversations in the past but the way that I stand right now, after his comments about AD's the last few times I have posted a thread & the stress that those have caused me, I would rather nip it in the bud right now. I dont want it to progress to the stage where I have been before with others. I wish him nothing but the best.

I do hope that this conversation is now over & he respects my wishes..

Cinnamon Girl · Guru

I find this so distressing.....dear Kirstin, it makes me very sad that you feel this way, if you do go we will all miss you and your friendly and supportive comments. I hope you`ll change your mind.

I speak as I find though and I must say a word in defence of James. As far as I`m concerned he has been a friend to me and to others on this forum while going through tx and I`m grateful for that.

So sorry, this is dreadful. All the best to you, I do hope things will turn out well for you.

Lots of love, Jill xxx

Minerva · Guru

James, I think Kirstin has made it clear she would rather you didn't respond. It would be appreciated if you could now respect that.

Hx

James10500 · Guru

Kirstin, I apologize for not helping you. Go to your thread , I feel like crap and read what I posted. I never had a problem with anyone on this forum except Ron, that I know of. And I honestly don't feel posting studies about AD's and tx is peddling. How can three post possibly make you so angry ?

This is what I posted;

It's called "riba rage", this is why people on tx take Zoloft

I never said you should take Zoloft. Then in response to you saying it's not RIBA, I said this.

Ya it's kind of mis leading. Riba Rage is the term but it is caused by the INF. All I know is I had the same issues took AD's and it helped. I think Greg had a similar experience at the start of tx. Perhaps he can elaborate on that. Good luck with it, James

Again no where do I say you should take AD's I am sharing my experience, and that of others.

And finally.

http://onlinelibrary.wiley.com/doi/10.1002/hep.23699/abstract The Major Depression Inventory (MDI) was used to estimate the value of routine medical interviews in diagnosing major depression among patients receiving peginterferon alfa-2a and ribavirin therapy for chronic hepatitis C virus (HCV) infection (n = 325). According to criteria from the MDI and Diagnostic and Statistical Manual of Mental Disorders (DSM-IV), 19 patients (6%) had major depression at baseline. An additional 114 (37%) developed depression while on HCV combination therapy, with baseline MDI score and female sex independently predicting the emergence of major depression during treatment in a multivariate analysis. Only 36 (32%) of the 114 patients developing major depression according to MDI/DSM-IV criteria were correctly diagnosed during routine medical interviews. The emergence of major depression frequently led to premature discontinuation of peginterferon/ribavirin therapy, and an on-treatment MDI score increment exceeding 30 points (i.e., a validated marker of idiopathic DSM-IV major depression) was correlated with impaired outcome of HCV therapy (P = 0.02). This difference was even more pronounced among patients with an on-treatment increase in MDI score greater than 35 points (P = 0.003). Conclusion: We conclude that (1) depressive symptoms among patients undergoing HCV therapy are commonly overlooked by routine clinical interviews, (2) the emergence of depression compromises the outcome of HCV therapy, and (3) the MDI scale may be useful in identifying patients at risk for treatment-induced depression. (Hepatology 2 It's pretty simple actually, the meds cut off the flow of serotonin, the AD's simply return the flow to normal or near normal levels. Don't fool yourself into thinking that this only causes depression. It manifests as anger as well. But what would I know I only did 24 weeks of tx, I was one of the lucky g2's Good luck everyone hoping for SVR for all ! James

If those posts are out on line I certainly am sorry. Don't leave the forum because of this. If you don't want me to respond to your threads I won't you could have simply sent me a message asking me not to respond.

James

Kirstin · Senior Member

EVERYONE did help me James, apart from you. You seem to have a problem & not just with me.

The decision to take AD's is mine & my medical team, not yours. Peddle it elsewhere, it's not welcome with me.

I wish what upon you?. The only thing that I wish for is for you to stop with your rudeness. I have never said anything to you about your treatment, what meds you have taken etc etc. I have been nothing but supportive to others here.. Suggesting & insinuating/diagnosing others are two different things. I have repeatly told you that I have a medical team who is looking after me, have decided I do not need AD's at this time, due to other medical factors that you have no idea about and you have continued with instructing me that I do. I have been polite with you, I have no beef or any kind of problem with anyone else here. I expect the same from you.

Like others, I wish to no longer converse with you in any way.

Good luck to you as well.

I want to thank all those who pm'd me. Thank you for your support & care. Means more then you know

-- Edited by Kirstin on Wednesday 27th of July 2011 01:49:48 PM

James10500 · Guru

I'm not on AD's Kirstin. I used AD's on treatment. You came to this forum, and EVERYONE tried to help you and was kind to you.

We went from talking about the dog crapper guy, and talking about your 3D TV to hating in two weeks. I didn't call you a name. I said I get the feeling you wish I'll will upon me. For what trying to suggest things to make tx easier for you. Ya I think that's pretty pathetic. Obviously your entire rant is directed toward me.

Good luck with everything,

James

PJ · Senior Member

I will miss you, Kirstin, and wish you all the best.

Hugs,
PJ

Kirstin · Senior Member

Just had to reply to you James... You know what I find pathetic?.. People who call others names & then edit their posts.. Not only pathetic but gutless.. Glad you have your AD's, except Dr should have added Anti-A-holes to your list of meds. You dont try to help people. You are condescending & rude. I would never talk to people the way you have in the past.. Just a bully.. How those AD's working for ya?!

James10500 · Guru

Just trying to help, by suggesting things that helped me and others on the forum. Good luck may you attain SVR, James

-- Edited by James10500 on Wednesday 27th of July 2011 03:52:39 AM

Greg · Guru

Hi Kirstin,

Sorry to see you go my friend, I hope you achive all that you wish for and more.

Much Love,
Greg xxx

Kirstin · Senior Member

This was meant for the 'Disagreements on the Forum' thread, but it is now closed. So I shall post what I wanted to say here..

Disagreements are one thing, some comments that have been made go far beyond that. For me, I have just let most of the smartass comments slide. I just prefer that some people don't post any comments on any of my threads. I am, as we all, are going through enough without all the bickering from people who are supposed to understand, who are going through the same.

I know that this will probably be my last post here. I came to this forum in the hope that I would recieve support & encouragement. That I could discuss the very thing that is in the forefront of all of our lives.. HepC..

What I have found though, particulary recently, are those, who instead of supporting, allowing people to have their bad days, have decided to take on the role of doctor. I am sorry to offend anyone but enough is enough for me. I have my own doctors including Dr Jacob George who is a Professor of Gastroenterology and Hepatic Medicine.. http://www.wmi.org.au/ourpeople/Pages/JacobGeorge.aspx . My GP, a clinical nurse & a wonderful psychologist, Archana, who visits me on her own time as well as scheduled sessions. I will take medical advice from them, even though at times I will question them all. I will not though, take medical advice from those who continue to basically tell me that my medical team, after many many years of training & practising are wrong. I would love to tell some of you what you can do with your advice about AD's but I am lady, especially from those of you who, even though having no qualms in basically diagnosing & prescibing AD's for me, haven't even bothered to actually look at the correct spelling of my name, unbelieveable... This is NOT a medical forum, none of you are medical practitioners. Perhaps there wouldnt be any bickering, any fighting etc if certain people would stop trying to shove their idea's down other people throats.

It's such a shame, not that long ago I would make it the first thing I would do.. To log on & see how everyone was getting on. Now, well, I just couldn't be bothered. I don't want to read posts that have absolutely NOTHING to do about the subject this very page was set up for, posts I find disturbing to say the least. I don't want to write a post about how I am feeling only to be told to take AD's. I have, after reading responses to some my posts have become increasingly frustrated & even angered. This is not what I came here for, this is what I most definitely don't need any extra of, so its become an easy decision for me to quit this site.

For Greg, Randy, PJ, Kaz, Sherri, Jill, Beth, Heather, Dee, Beth, Brendan, Steve, Annie, Ty, Steff , BeccaJune & yes, even you Ron ;-P Its been a pleasure.. I send to you my love & best wishes for the future. May you live well, live long

Kirstin xxx

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