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Post Info TOPIC: I beat Hep C in ONE month (benefits of being healthy)


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RE: I beat Hep C in ONE month (benefits of being healthy)
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Glad you're not anemic. But pretty hard to exercise with an HgB of 9.2, many HCV folks on treatment become anemic to the point going up a fight of stairs is difficult. I exercise a lot I've ridden my bike 180 miles in the last four days and lifted weights. But this was not possible while on tx. It was pretty depressing not to be able to exercise. I think one thing to remember is tx is different for everyone. Some people may lose it mentally in a line at the supermarket, so people will have minimal mental sx. The same thing goes for physical sx, or the lack of.

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11


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HI there and welcome. I so appreciate hearing the positive stories too. My doctor says that a lot of this battle is mental and emotional as well as physical and that if we can keep our spirits up, it has a very big effect on tx. I'm a walker, or was before this...now I'm just a 'sometimes' walker. When I'm weak and it's 105 degrees, I don't get to walk. When I feel that I can, it just does wonders for me physically and mentally. Nothing better for me than fresh air, nature, and the outdoors so I can see the sunshine and clouds. I'm so glad that you are having the energy to exercise. That is my biggest issue right now, weakness. I will say that I have lost over ten pounds in two weeks due to the meds so that's always nice for a gal.

You keep up the good work and may the force be with you. You do you, that is basically what each of us have to do. Thanks for sharing.

Peace, ~wrath

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This little light of mine - I'm gonna let it shine...



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Nooneverwins wrote:

Look I got on here to post my story to help people. I just pretend I don't have it and I'm telling you what happened for me. My Doctor told me to keep exercising and keep an active lifestyle, so if you're 45 years old with a laundry list of medical conditions like rheumatoid arthritis, diabetes and kidney failure, then yes I wouldn't recommend weight lifting and cardio. The fact that I had hep C never even bothered me, and the meds really don't have any side effects on me lately, I just feel a little fatigued but as a full time student/ working, and being a husband, it may just be that. So to whoever said "you cant beat this in 4 weeks", good luck to you and maybe go for a jog and get back to me on how much better you feel. Thanks to everyone who gave positive feedback and to everyone who obviously is my Gastroenterologist on this forum, I appreciate your review of my most recent lab results.




 Sir my statement wasnt meant to be offensive and i am sorry if you took it that way. It is a known fact we cannot beat this in 4 weeks alone like your topic stated. If that were the case we would all stop tx at week 4 or w/e time we become UND. Wish you all the best .Fyi i do work out regularly but no way in the world would i EVER say i beat this in one month. Im 30 yrs old very active and very healthy other than hep c!



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Geno 1 A Started Tx 8-3-11, Viral Load  21.2 Million,  4 Week Lead of Soc ,9-1-11 <43 On Soc alone started victrelis 9-3 ,8 week pcr vL und.Week 12 Vl Und, Did Week 24 PCR Results UND @ Week 24!!! 1-11-12,End Of Tx 2-15-2012 !!



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and Im sure the virus will come back if I stop, however as of now my PCR (Viral Load) is 0.0. Undetectable. And I'm continuing treatment btw.



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Look I got on here to post my story to help people. I just pretend I don't have it and I'm telling you what happened for me. My Doctor told me to keep exercising and keep an active lifestyle, so if you're 45 years old with a laundry list of medical conditions like rheumatoid arthritis, diabetes and kidney failure, then yes I wouldn't recommend weight lifting and cardio. The fact that I had hep C never even bothered me, and the meds really don't have any side effects on me lately, I just feel a little fatigued but as a full time student/ working, and being a husband, it may just be that. So to whoever said "you cant beat this in 4 weeks", good luck to you and maybe go for a jog and get back to me on how much better you feel. Thanks to everyone who gave positive feedback and to everyone who obviously is my Gastroenterologist on this forum, I appreciate your review of my most recent lab results.

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It would be intersting to see some documentation on exercise while in tx. My week 12 hemoglobin levels were at 13.5 which is still within normal limits, so while exercise has been harder, it's still very doable . . .  most days.  The other days, I skip. hmm

Regards,

David

 



-- Edited by Captain Over on Saturday 6th of August 2011 09:08:59 PM

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Genome 1A, diagnosed in 2010, probably from blood transfusion in 1985. VL 1.5-7.0  Biopsy 2/2    Began clinical trial for Telaprevir 5/2011. Week 4 - UND and liver enzymes in  normal range. Week 12 UND.  Hope to finish tx 10-26-11

BJ


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Gidday Everyone,

I hate to be the bearer of bad tidings guys but excessive exercise while you are doing tx is detrimental to the tx you are undergoing.  The longer you are on tx the harder doing anything will become because the ribavirin itself will bring the oxygen levels in your blood right down, and continuing to exercise at excessive rates will SEVERELY affect your bodies ability to produce vital biproducts.

I have nothing against anybody trying to keep toned while on tx but maintaining exercise levels that you were capable of prior to tx, while doing tx is dangerous.

Nobody wipes the virus out in  4 weeks either.  If you think I'm wrong and you are right, stop tx.  If you did, the hepC would be bouincing of the walls of your liver within days.  Never count the chickens before they hatch when you are dealing with Hepc, particularly when you are geno 1.

If you are intent on maintaining this ridiculous execise regime, speak to your doctor.  I wish you the best in your fight against HepC, please consider what I am telling you.

Cheers,

Brendan.



-- Edited by BJ on Saturday 6th of August 2011 08:30:34 AM

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Geno 1b 72wk tx (Sept '09- Feb '11) Tx sucks, Sx's suck, but no one quits on my watch.   Pre-tx VL - 7.6 Million - Wk 4 - 480,000 - Wk 12 - 19,000....Wks 24, 36, 48 and 72 PCRs were all - negative :-))))Achieved SVR August 2011 



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Hi, and welcome aboard! Love the enthusiasm. It'll get you through a lot.

I've been trying to keep up my exercise regimen- stretching, yoga/body weight exercises, some weights and cardio (65-80%). I still have the muscle strength, but it's like I'm exercising in Denver, not at sea level. I can still do most of it, but take much longer rests in between, and get short of breath much easier. Instead of an hour at the gym, it takes me 1.5 hours to get through the same workout, but that's OK . . . . I'm doing it.

I, too, am convinced that regular exercise helps a lot.



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Genome 1A, diagnosed in 2010, probably from blood transfusion in 1985. VL 1.5-7.0  Biopsy 2/2    Began clinical trial for Telaprevir 5/2011. Week 4 - UND and liver enzymes in  normal range. Week 12 UND.  Hope to finish tx 10-26-11



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Sir no offense you have a great thing going but you cannot beat this in 4 weeks

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Geno 1 A Started Tx 8-3-11, Viral Load  21.2 Million,  4 Week Lead of Soc ,9-1-11 <43 On Soc alone started victrelis 9-3 ,8 week pcr vL und.Week 12 Vl Und, Did Week 24 PCR Results UND @ Week 24!!! 1-11-12,End Of Tx 2-15-2012 !!



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What a dynamite testimony! I'm w u buddy! I havent exercised the last couple of weeks. 110 + heat plus feet swelling. But I'm up and doing yoga! LOVE ir attitude. I'm so happy ur body cooperated w triple therapy. Not everyone gets such quick n great results. There are so many variables. Congratulations to YOU! Karen

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Diag 8-10. 1st VL 600,000. Gen 1a. Grade 4 Stage 4 cirrhosis w/ Esophogeal varices level 2. Viral load 1,750,000 7/12/10. Triple Therapy w/ Telaprevir began 7-15-11


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Hi Welcome to the forum.


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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11


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I created this account to maybe inspire some of you to live healthier and understand that the benefits of physical exercise are well worth pushing yourself to stay active.

I was diagnosed with Hepatitis C genotype 1A in December of 2009 and have no idea how long I have had it before then. A life in the fast lane finally caught up to me when I tried to donate blood and got a letter in the mail saying I was positive. I went about a year and a half just pretending I didn't have it and living my life with this terrible skeleton in my closet. For about a year I had this burning in my side wher my liver is and it scared me to get it checked out so I tried to see if it would go away on it's own. It never did and ultimately the pain was from gallstones. I was relieved but at that point I was ready to start treatment for the Hep C anyway to at least do something about it.

I have always been active in the gym and lived a healthy lifestyle so when my doctor told me that being African American and having genotype 1A would make it even harder to get rid of, he emphasized the benefits of keeping up with my training routine.  I was told that I would be on treatment for a year  and if it didn't work we would explore other options.  I forget my viral load but I remember my enzyme levels were 650 and 141 (forget the acronyms for each one) . 700 is toxic for the liver so i was pretty bummed  that I was that close to the cutoff. after one week of Peg/Ribavirin treatment my levels dropped to almost normal and my viral load plummeted down to normal levels. I started exercising even more and having the mindset that this was NOT going to stop and again, I pretended I didn't even have the disease. Of course I had side effects- fatigue, headaches from hell, mouth sores, and just overall feeling like crap sometimes but if you push through it and keep up with your life exercising, I found that this is the better option than sitting around waiting for the medicine to work.

My wife is a military lab tech so she does all my testing and we would compare my results every week and find out how I was doing.  last week she called me damn near crying because she had just seen my most recent results saying that my liver levels were normal and that my viral load had gone down to 0.0%. I didn't belive her until we looked at my inital lab testing and seen what my viral load was before. I am not supposed to see my gastroenterologist for another month so I'm not sure if he even knows that I'm down to 0.0. Matter a fact, I'm not even supposed to know because she could get in trouble for violating HIPAA precautions by showing me information not given by a doctor.

I truly believe that exercising and staying positive about getting through this is the key to a beating hep c. Again, I am african american (which makes it harder to get rid of any genotype) AND i had good ol' genotype 1A which is a double whammy. I beat it in one month after starting treatment. Keep exercising people! If you're not, then start exercising and run this disease out of your body. if you have any questions, feel free to ask! good luck!



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