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Post Info TOPIC: I need some opinions/advice
newlife


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Thank you very much everybody!

 

newlife

 



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newlife
Greg


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Hi Newlife,

WOW Congratulations on your result, thats the best news so happy for you. All the very best for your newlife.

Greg



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
Deidre


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It's rare, but a few people get infected and then their own immune system beat its it.

( so far the cases I have heard of this, all seem to be males..jus an observation)

It sounds like you are one of these rare ones. Congrats! 

You've gotten a second chance, now please go out an do something good with it.

Remember all the people that loose their lifes each year due to this disease..do something good for those that no longer can, eveen if that is learning all you can, and teaching others about this disease.



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 2nd time on tx Started 3 combo ( Incivek) 8/6/11 VL 2,940,000 Biopsy 2/2 w/bridging and some necrosis/Fibrosis/Inflammation.  4th week det, but in und range, 6th ,9th  13th, 19th, 23 ( under 5)-UNDETECTABLE Going for 30 weeks
Cinnamon Girl


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Hi newlife, congrats on that result!  smile  Onwards towards your new life!

All the best, Jill xxx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
newlife


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Thank you Dover514! I seem to have more lives than a cat wink

 

newlife



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newlife
dover514


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congratulations newlife,

no better news than a negative



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Dave

Diagnosed 1999, Hep C Genotype 1, w/ Cirrhosis and scarring. Failed to respond to Riba & Interferon Combo in 2000, last VL=3.8 mil on 9/1/11 starting Incivek, Riba, & Pegasys tx around 9/23/2011
ty


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     Hi newlife!  I'm not the expert on all the new testing, but my results are expressed just like yours.  When I get my 6 month post tx test in early October and I get the result that you have, my doctor says that I am cured.  So congratulations!  Knowing what I know now though, I will still be careful around blood in the future anyway.  Take care, tysmile 



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
newlife


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My tests came back Negative. Praise the Lord! My count was undetectable they said - they are mailing me the results but the numbers were somethnig like 43 out of 59,000,000. What does that mean? Do I still technically have it and should me wife and I still be extra careful with my blood when I am bleeding or something?

newlife



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newlife
newlife


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@Deidre -   Thanks for the advice! Labcorp's test on me was a:

                     HCV RNA by PCR, Qn Rfx Geno

                 So hopefully that is the right test I need to take the next step.

                 I am still waiting lol.....

 

@ Greg -       Thanks for your support buddy!

 

newlife



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newlife
Greg


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Hi newlife,

Welcome to the forum, I'd just like to wish you all the very best on your journey. Sorry to hear about your delay in getting your test results, hope they arrive soon.

Best wishes,
Greg



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
Deidre


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don't forget to make them do a geno type test. If you have a viral load, it won't be the viral load that dictates what treatment you need to do, it will be what geno type you are.

With some doctors unfortuneatly, sometimes it's all about us knowing what questions to ask. Don't count on the doctors to always be on the ball. You have to be your own advocate now. Study, learn, it will help you much!



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 2nd time on tx Started 3 combo ( Incivek) 8/6/11 VL 2,940,000 Biopsy 2/2 w/bridging and some necrosis/Fibrosis/Inflammation.  4th week det, but in und range, 6th ,9th  13th, 19th, 23 ( under 5)-UNDETECTABLE Going for 30 weeks
Deidre


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It's the hurry up and wait game. We all end up having to play it. I know It sucks..

 

By the way I did want  to give you the heads up, and let you know, that even if your job isn't body hard, you'll find concentration very difficult on treatment. Brain fog, and headaches. Be sure you cut yourself some slack..maybe you can get a helper, for the days when you just don't want to get out of bed. It happens to the best of us.

Treatment is still doable, just don't expect to much from yourself at the time, or you are setting yourself up for stress. Remember that while on treatment, just about every cell you have is changing.

I just went from  basicly 3 million viral count, to undetectable in 4 weeks. I can be watching tv flat on my back, but my insides are going through their own workout.

It's no picnic....but if you get cured, it sure is worth it!



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 2nd time on tx Started 3 combo ( Incivek) 8/6/11 VL 2,940,000 Biopsy 2/2 w/bridging and some necrosis/Fibrosis/Inflammation.  4th week det, but in und range, 6th ,9th  13th, 19th, 23 ( under 5)-UNDETECTABLE Going for 30 weeks
newlife


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So, I am anxiously waiting for my test results from Labcorp.

They were done on the 2nd and now it has been a whole week

and no word yet no. The phlebotomist, at the time of the test, told

me that I would have my results by this past Wednesday - and

that was giving it time because of the holiday weekend and all.

Sigh....hmm

newlife



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newlife
newlife


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I don't work a normal job. I run a website from home and it's basically non strenuous on my body. Also, I am all about doing what I have to do to preserve my life for myself and my family, so whatever I need to do (tests or treatment) I will do. I will have the VL test results back come Wednesday and after I know the results I will take the next step towards recovery (if needed). I deeply appreciate your input and thank you Deidre! smile

newlife



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newlife
Deidre


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Any possibility that if you weren't working and only your wife was, you'd be eligable for the sliding scale fee clinic? I know it wouldn't be easy, but like I said, there is a strong possibility you wouldn't be able to work while on treatment anyway.

Remember this is your life we are talking about, so it may be worth it to stop working so you can get the treatment ( hopefully for only 6 months) and would be well worth it if it ends up saving your life, because you got cured.

You will also need to get a genotype test. This will help you know which treatment you need to do.

I'm not trying to scare you, but I want to be completely honest. It's not a walk in the park, but, think how much better you'll feel, if and when you beat it.



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 2nd time on tx Started 3 combo ( Incivek) 8/6/11 VL 2,940,000 Biopsy 2/2 w/bridging and some necrosis/Fibrosis/Inflammation.  4th week det, but in und range, 6th ,9th  13th, 19th, 23 ( under 5)-UNDETECTABLE Going for 30 weeks
newlife


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Thanks Deidre smile

I have only applied for Charity Care in my area and I am not eligable because my wife and I both bring in too much money to qualify - but we also don't have enough to afford continual doctors visits and treatment. I'm stuck in the middle class dilemma. Our local clinic does have sliding scale offers and I am sure if I have a viral load and need continued treatment that I will take full advantage of it.

I guess I will just wait and see what my results are and take it from there.

 

newlife



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newlife
Deidre


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500 sounds about right to me. Are there any sliding scale fee clinics in your area?

I don't have insurance either. While yes if you qualify by income you can get the treatment (meds) freefrom the manufacturers, you will stillhave to go to the doctor every month and have several blood tests a month, which is not paid for from the drug manufacturer. There will also more than likely be other meds you will need.

This is why I asked if there is any sort of sliding scale fee clinic. Or even state assistance you might be able to get, t be able to do treatment.

Many, many cannot work while on treatment. A few manage to pull it off, but more don't than do.

 You are going to have to start doing some research, as the drug companies won't give them to you, without both a perscription from your doctor, and knowing you have a doctor to see you every month, and run the blood tests.

The blood tests are very important, as not only are these very strong drugs, that can cause problems with other parts of your body, but they also dictate how long ( by your viral load while on them) you need to take the drugs for.



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 2nd time on tx Started 3 combo ( Incivek) 8/6/11 VL 2,940,000 Biopsy 2/2 w/bridging and some necrosis/Fibrosis/Inflammation.  4th week det, but in und range, 6th ,9th  13th, 19th, 23 ( under 5)-UNDETECTABLE Going for 30 weeks
newlife


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I went today for the Qualitative HCV RNA test and I should have the results by Wednesday or so. It cost me $100 for the script for blood work and $501 for the test. Sheesh!! Very expesive but well worth it to know.

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newlife
jrc209


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I am also uninsured and pay $200 for VL Test. If you do need treatment i am getting triple therapy free from the drug company. If you need info message me.



-- Edited by jrc209 on Friday 2nd of September 2011 03:45:27 AM

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Geno 1 A Started Tx 8-3-11, Viral Load  21.2 Million,  4 Week Lead of Soc ,9-1-11 <43 On Soc alone started victrelis 9-3 ,8 week pcr vL und.Week 12 Vl Und, Did Week 24 PCR Results UND @ Week 24!!! 1-11-12,End Of Tx 2-15-2012 !!
newlife


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I got tested a while back for HCV and my results concluded that I have been exposed. My test results are as follows:

HCV Ab w/Rflx to RIBA

HCV Ab                                       >11.0 H    s/co ratio      0.0 -0.9     01

Does this mean that there is a strong posibilty that I may have an active viral load?

 

I am not insured and when I first went to get a script to get bloodwork for a Qualitative HCV RNA, I found out that I couldn't afford the $500+ or whatever it was to get the test done. Should that be the right price or is that too much? Well, anyways, 1 year later (tomorrow morning) I am finally able to afford the test to see if I have an active viral load. Should I expect to pay this price or has the price gone down since last year? confuse

newlife



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