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Hep C Discussion Forum -> General Discussion -> Hep C insane itching - NOT TREATMENT RELATED
Post Info TOPIC: Hep C insane itching - NOT TREATMENT RELATED
John William


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RE: Hep C insane itching - NOT TREATMENT RELATED
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Hello Karen and welcome to the forum, glad you found your way here!

I type this as I try to concentrated on not scratching. Look under the Forums and Search "Side Effects, Favorite Helpers". Here  you will find that the itching is like a plague and there are several recomendations for relief. It really does seem to be the most common side effect.

I am sorry to hear that your tx was not a success. There are new drugs and tx coming out on a pretty regular bases these days so hopefully one will be taylor made for your requirements and end your Hep once and for all.

The newest one is posted in the New Members Forum and is a 4X TX.

Keep the chin up,  regards, John



__________________

"my plan is to live forever.........so far so good"

Genotype 3a, started 2 X tx Aug 19/11on Rib/Peg 36 wk tx, VL <43 UND in wk 8, Enzymes were 78 now at 22.

August 31/12 alls good in the blood work!

November 5/12 SRV Obtained, YAHOO! YEEPEE!
Urbansquaw


Newbie

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Thanks for your response and for the validation.  No one in my support group has this itching.  For me, it's really a problem.  Will persevere.... no other choice! 



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Karen


hepatitis C, genotype 1a, initial "standard of care" treatment failed in '99, incivek treatment begun 7/12 never became undetectable.  Failed after 17 weeks.
Cinnamon Girl


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Hi Urbansquaw and welcome from me too.  Sorry to hear your tx failed, how disappointing for you, especially as you now have a long wait till you can do it again.

I also had a lot of problems with itching for about 2 years before I did my tx, on all the places you mention.  It was also quite bad while on tx.  Luckily my tx was successful and the itching completely cleared up once I`d recovered from tx. 

I didn`t ever find anything that completely stopped it although hydrocortizone cream helped a lot, also keeping cool and wearing loose clothing.  I also used a cornstarch based body powder which I found very soothing and which seemed to help.  

 Other people here will probably be able to add to that, as itching is such a major side effect of tx.

All the best to you, love, Jill xx

ps - if you click on `search` at the top of the page and type in `itching` that will take you to a list of other threads where itching has been discussed and people have shared various different remedies which have helped them.  Good luck!



-- Edited by Cinnamon Girl on Tuesday 3rd of January 2012 09:46:00 PM

__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
borowif


Senior Member

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Posts: 196
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Hi there & welcome to the site,

I've not been active here for a while although have kept up with posts. Unfortunately itching is a predominant sign of liver disease. I had dreadful itching both before & during tx, especially on my legs- calves  & feet especially.

I'm sorry I dont have any remedies but I did find that applying an ice compress would help.

I wish you all the very best & hope you start the new tx A.S.A.P.

With fond regards

Lesley x

 



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You got your health, You got your wealth!!
Urbansquaw


Newbie

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Hoping for some suggestions on dealing with pervasive itching I had prior to treatment and, again, post-treatment as the medication failed.  My enzymes and viral load are very high.  I get itching, worse at night, where I am scratching incessantly and causing lesions on my skin.  There is no rash and it seems to strike my inside of the arms, breasts, neck, feet and calves the most. 

I've consulted with three dermatologists to no avail.  My dr. tried a treatment that I mixed with water (didn't work) and I'm now on Ursodiol with little to no results.  Oatmeal baths do little, as well.  It feels like it's the INSIDE of my skin itching and it's been suggested that the toxins not processed by my diseased liver are finding their way out of my body through the skin.

Since my treatment failed, I need to be able to cope for a few years minimum till the next drugs come out.  Nighttimes are nightmarish and I'm itching during the work day.  Please help!



__________________

Karen


hepatitis C, genotype 1a, initial "standard of care" treatment failed in '99, incivek treatment begun 7/12 never became undetectable.  Failed after 17 weeks.
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