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Post Info TOPIC: Feeling Frustrated


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RE: Feeling Frustrated
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Aww, thanks hun! I'm looking forward to the move too for all the above reasons. It probably will also be easier to get regular blood work etc to make sure every thing's okay with the WBC, which will make me breathe easier too.

Lindsay

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Supporter for my fiancee LadyAlaise (Renee).  Where else would I be but beside her on this journey?!?



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You guys are all awesome :)
Lindsay and I move into our new apartment in Waltham MA the last day of June & first day of July :D
I CAN'T WAIT!
Lindsay is out of her cast and is weight bearing :) And although I generally feel like crud most days I actually look forward to doing laundry and dishes :D Or making dinner for my lovely lady :D
I know we are both about to breathe a sigh of relief lol :) No more having to Skype in between visits, having to count down the days until a visit lol :)
Lindsay really is my light in the darkness :) I am so blessed and lucky to have her in my life :)

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Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1



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Isiscat2011 wrote:
Ha!  Alan, you romantic dude, you. biggrin

 I am guilty as charged. Which brings me to one of the little-known side effects of this treatment that I haven't mentioned yet. It has brought out the sentimental old fool in me, and I get choked up at the drop of a hat. That would be a problem for a lot of guys. But I really don't care. I get teary-eyed whenever I want to. I sorta' hope this side effect lingers.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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news wrote:

It seems there is a lot of love there. Let it drive your decisions. One thing seems certain to me, at least. You two are more powerful together than you are apart. I would find a way to share a home during these tough times.

Alan


That's three votes for the love birds sharing a nest.  Do you think we will be invited to the wedding?  Ha!  Alan, you romantic dude, you. biggrin



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.



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It seems there is a lot of love there. Let it drive your decisions. One thing seems certain to me, at least. You two are more powerful together than you are apart. I would find a way to share a home during these tough times.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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Hi Lindsey, I totally understand, I would be worried with her on the bus too. Don't you gals have a couple of friends you could talk into hanging out for awhile, maybe just periodically? OR why don't you move in together before the surgery? ya ...like Isis said, this experience will make you or break you and I'm with the former also. Remember ...it's temporary.

 So sorry about that foot though, what a hassle, I've brook both feet (not at the same time!) and driving was very dangerous (and pretty painful on an occasion where a boy on a bike shot out in front of me YIKES!!! E brake),  I didn't need serious surgery though, so honey, you better take care, and when they say stay off the foot....uh huh, uh huh, ya... you're listeningevileye Best wishes to you both, Love from Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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You two love and need each other.  So, how about her moving in with you and letting the cleaning and laundry go a little bit, just for a while (or better yet let the school people help out while you guys chill).  Work out the details around that plan.

Either this experience will seal the relationship in cement or you will kill each other.  (I'm betting on the former.)

Wow, I can't believe my mouth is walking into someone else's domestic situation.  This might be brutal, for me that is.yawn



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.



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Last fall, I had foot surgery to repair a chronic major foot break that was acutely retriggered.  I was fortunate that I was back to partial weight bearing by the time that Renee started her treatment regimine and was there for her during the first week of treatment and periodically would spend time together each month.  Last week, I found out that my surgery failed, and that I needed to have a more invasive/intensive surgery.  Renee and I planned on moving in together in May, but my doctor said he did not recommend putting off the surgery until mid-May/early-June and will not permit me to move until July at this point. Major bummer!!!!!  What also flat out sucks is that I can no longer drive since the surgery was on my right foot, and Renee will have to take a bus out here.  I'm nervous because of her compromised immune system being out on a bus.  I'm nervous about relying on her for help when I know she doesn't feel great either, knowing that I don't really trust people at school quite enough yet to do things like my laundry or help me clean my apartment (rides and grocery runs are okay for them to help me with though).  I just feel like I'll be the burden when Renee is going through side effects of treatment.  I just don't know how to balance the need to care for myself and be there to help Renee without either one of us feeling exhausted. Sorry....just needed to ramble a bit!

Lindsay



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Supporter for my fiancee LadyAlaise (Renee).  Where else would I be but beside her on this journey?!?

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