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Post Info TOPIC: Hepatitis C and Complementary and Alternative Medicine (CAM)


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RE: Hepatitis C and Complementary and Alternative Medicine (CAM)
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My basic understanding (and I mean really basic) is that SVR means just that--sustained viral response--there is no virus detectable.   Being SVR does not mean that the damage done to the liver is gone.  It takes time for the liver to heal and with some it does not heal.  So while the liver may no longer be diseased, it still has/can have sustained damage from Hep C. There are new drugs coming out that are hoping to reverse the damage done to the liver (anti-fibrotics) but are currently being tested only on those with fatty liver disease.  And they are only in early Phase 1 testing.  Hopefully, they will be successful and will eventually be available to all with liver damage.  But that may take a few years. 

That is why it is suggested that people treat early when they have Hep C so the disease does not have as much time to damage the liver.  Those with cirrhosis have considerable damage.

I'm sure Mallani has better information, but this is my understanding of what I have read or have been told.

Suziq   



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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR



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A very interesting list especially the ones with a *.

My hepa doctor did tell me to stay away from St. John's Wort while on tx.

Supplements that are specifically associated with hepatotoxicity (liver
poisoning) are designated with an *.

It appears that the * affects the liver whether you are on treatment or not!

Those with liver disease should avoid vitamin A supplementation unless under medical supervision. Likely safe for healthy
people if daily consumption does not exceed 4,000 IU retinol or 15,000 IU betacarotene.

Question: Does SVR mean a person has no liver disease? confuse

 

 



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"



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Thanks for the Link - I just shared it with everyone I could.



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Genotype 1a - Take Everything With a Grain of Salt -  Never Say Never -  Make Love Your Aim



Guru

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Nutmegs have been used to 'get high'.

http://idiotsguides.com/static/didyouknow/potpourri/07-22-11-nutmeg.html



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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From the Dietary Supplements to avoid Section: "Eating as few as two whole nutmegs can cause death"
Am I the only one who had no clue about this one?



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Genotype 1a - Take Everything With a Grain of Salt -  Never Say Never -  Make Love Your Aim



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Overview

Dietary Supplements to avoid

CAM Resources

Making Safer and Wiser Choices

Herbs and Hep C

Self-Help Acupressure for Hep C

 

 




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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.

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