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Hep C Discussion Forum -> General Discussion -> Please give me your advice and suggestions..not sure to start treatment or not
Post Info TOPIC: Please give me your advice and suggestions..not sure to start treatment or not
LC


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RE: Please give me your advice and suggestions..not sure to start treatment or not
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After getting the results back on my biopsy, I have pretty much decided to wait.  I don't think that I will have to wait too long for an interferon-free tx either.  wink



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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
krowdog


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Hi David.

I totally agree with JIme (Jim) and Mallani.

The biopsy is still the most accurate guage of liver damage.  If you get one, and it shows little damage, personally I'd wait.

Also, as was mentioned, this disease usually moves slowly.  I had my Hep C for almost 30 years, and was only a 2 (on a 0 to 4  damage scale).

When I started Tx (treatment), these newer drugs, like PS 7977, were not as far along in development. These drugs appear to be very effective, and without the use of interferon, have a lot less side effects.  Many expect them to be available within a couple of years.

Anyway, try not to sweat it. Take your time, and get informed.

Best wishes,

Brad

 

 



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
mallani


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Hi David, Thanks for posting your results. You obviously have found a doctor, so should be able to get information from him/her. Your Viral Load is quite high, and your blood counts and LFT's are normal. The fact you were tested for Hep B and C with normal LFT's, makes me think you probably suspect how you acquired HCV. That is not our concern. You don't mention where you live so we cannot give you any suggestions as to what treatments may be available. You may decide to wait for the newer treatments as you are young and unlikely to have significant liver damage.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JIme


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Welcome David. Here my 2 cents.

Gather all the info you can. Then get a biopsy.

Biopsy = informed decision

If you are Stage 2 or less I would wait till the new drugs are approved. Hep C moves slow.  You are young and have time.

Good luck.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
urespa2


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Welcome DavidC,

In response to your question as to whether or not to start treatment, doctors have a lot of experience in treating HVC. And, today the options of drug choices are so vast and expensive, that if given the privilege to get the virus out of your body, why not take it.

I too was deathly afraid of the side effects...but so far they have been mild to none, all manageable.

Plus this forum is a great place to find support for just about any question you might have.

Best of luck.



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Geno 1a  Start Pegasys, Ribavirin, and Incivek August 24th 2012
DavidC


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Hello,

I am 30 years old and 67 kg , I am sure to start treatment or not. I will share with you my test results. And by the way , I wish the best to all of you get well soon and let this goddamn HVC die :

Genotype : 1b

Viral load : 3662170

 and here are blood results don't know if you are familier with them but here we go :

Hematology :

C.B.C :  7600

W.B.C : 4.9

Hb : 13.6

Het 39

M.C.V : 79.6

M.C.H :27.8

M.C.H.C : 34.9

Platelates : 279000

PT  :13.2

PT control time : 13.00

PT parient activity : 96

INR : 34

 

Biochemistry  

FBS : 85

Urea : 47

Cretinine : 0.9

Total Cholestrerol : 141

triglycerides : 60

S.G.O.T _AST : 27

S.G.P.T _ALT : 43

Alk.phospharase 257

 

Immunology :

HBS AG(ELISA)  Negative

HBs-Ab 1.0

HCV -Ab : positive

 

Doctor wrote me the following stuff:

1- Peg-intron (120)

2-Rebetol

 

I am really afraid of starting peg-intron and I am afraid of side affects of it and not sure if it will  help me and if dosage is right ..

I hate this HCV

 

Thank you guys 



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greenqueen


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Hi David and welcome


 

DavidC wrote:

Hello,

I am new to forum. I am shocked and depressed also by HCV news. And it is really hard to find a doctor. I dont know if I am allowed to post test results and if someone can help me with it.

I want to find out if I a chronically C and I want to detect approxim,atly when I am infected

 

Thanks 

 

 

Glad to hear you've found a doctor and my advice would be to discuss all your concerns with them and then you can make an informed decision about whether or not you wish to treat.

Steff xx

 

PS Have moved this to General Discussion

 


 

 


 



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
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