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JoAnneh


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RE: Start treatment regimen tomorrow
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I had to have help w med too! While on Invicek I slept
So much my husband would wake me up long enough to down almond mile w olive oil 20grams of fat
And I would fall back to sleep.
We are here to answer any questions

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
MeeMee2637


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Thank you Mary Jane. I will heed your words and stay in the forum. Regards, Wanda

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Mary Jane


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Wanda aka Mee Mee...sun.gif

Flu like stuff symptoms are the basics for the interferon as others have mentioned.. Riba, sore throat & sinus, some get the cough. Dosage depends on your doc and pharmacy I had the 600 mg & 400 mg 2 X  a day time released so I made sure the second one was taken by about 6:30 p.m. since the Ribivirin tends to keep you awake, but after week 8 the anemia hit bad and I had to have a blood transfusion, as I mentioned before they reduced my Riba dose. Not to scare you, just keep you informed, as this site helped me understand this part of the treatment as well.

 When you start the Incevick stay connected to the forum.. as Ken stated that drug kicked my bootie too.. I was a walking zombie, brain fog, and no energy eating became a force to be reckoned with.. You will get very creative with the 20-grams of fat intake.. as your taste buds change..this is another sx effect to deal with.. and with me the first 2 weeks in on the " purple pills" let's just say I had a fan blowing on me, casue it felt like a permanent " hot flash"..  Be prepared, stay focused, and know it is do-able ..for most of us. it's as much physical journey as it is  mental one......you got this.. wishing you the best on your first dart aka shot.. I am week #17 of 24.. may you hit SVR at 4 weeks and keep on rollin... MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
MeeMee2637


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I am so happy for you. I have a wonderful husband that I hope and pray doesn't feel like this is more than he bargained for. Thank you and please let us know how soon you start feeling better. Regards, Wanda

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packerfan24


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I am going to be honest with you as everyone on this board is. Everyone has different side effects. The incevil kick my butt. All I wanted to do is sleep. Eating 20g of fat before takig the pill was a pain in the butt. I lost 11 pounds during tx.  Needed to lol. I found it hard walking from one room to the next. Could not stand for long peroids of time. I would have my morning meal all set the night before. My wife was a blessing during all this what a BIG help she was. I HOPE YOU HAVE SOMEONE TO HELP YOU. I am now on my last shot of my last week. I see the light. At first they told me 48 weeks,but I was responding well to tx the cut it down to 36 weeks. Now they said 24 weeks so here I am in week 24. Good luck with your tx

 

Ken 



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Packerfan24
MeeMee2637


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I love you already!

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JoAnneh


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Wanda,
I had tremors with interferon 11 years ago
And sick as a dog for about 5 straight hours
with my 1st injection.
It was awful. NOT this time. U will
Be so relieved how much easier it is.


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
MeeMee2637


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Thank you so much Brad. By the way you said "was" , can I assume you are done with treatment? I am glad

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MeeMee2637


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Hi JoAnne, They want me to take the first injection this afternoon. I am thinking sometime around 2ish. I know when I did the old interferon 17 yrs ago, it was about 7 hours before the Mac trucks starting rolling over me. I had a horrendous reaction with high fever, throwing up, massive headache, diahhrea, and mild seizures. I was by myself that time and was terrified of the effects that lasted 2 days. I have been told that the new PegInteferon is somewhat better. I am trusting in that! I am also hoping that yours, and all of my new forum friends, never had to go thru those side effects. You will never know how comforting it is to know that there are those that understand the trepidation and fears. Regards, Wanda

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JoAnneh


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Wanda, how do you feel today after talk g your 1st shot?
We are all in the same boat and thus forum
Gives so much comfort and advice!!

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
MeeMee2637


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Mary Jane, Thank you for all the great suggestions and I will definitely take your advice! I take my first injection in 6 hours and start the Riboviren tomorrow morning. By the way, I am lactose intolerant so were your probiotics in pill form since the yogurt didn't work? Also, what week of treatment are you in? Thanks for your help. Wanda

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Mary Jane


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Hello Mee Mee..

Good luck ..BEST advice stay connected to this forum.. many of us have worn and still wearing those shoes.. The Incivek is different for all but there are some general common side effects.. For me Nauesa 24/7 .. so first week in  I called the doc office.. since you have to eat the 20grams of fat, I had to use phenergan suppositories and then later switched to Zofran rapid melts.. My sinus dried out so bad , I got some of that Simply Saline spray and still use it.. You will drink beause the medication makes ya thirsty.. I did find the Biotene mouth wash is a lifesaver for overnight cotton mouth. I still have to use eye drops, and I have completed the 12 week run on the purple pills.. For the backside others can offer suggestions but the best thing and it was recommended by my doc was probiotics , yogurt didn't do the trick for me.. Baby wipes come in handy, and a good comfy bed.. I have not been able to work.. I took a hit with the anemia  but that is due from the Ribavirin so they lowered my dosage.. The pro-click pen is nice. Oh, and I was blessed I did not have the " RASH" but very dry skin use a good quality lotion apply apply apply.. all the best to you peace and love MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
krowdog


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Hi MeeMee, Welcome.

I  *was* Geno 1a also, and did the Incivek Tx.  I like to put it this way... It was very uncomfortable, but doable.

You read about all the side effect at once, and it looks horrid.  But really, you just deal with the sides one by one as they come up. Stay in touch with your doc, and the members here, and you'll get plenty of great tips on making things easier.

For me, the worst was the anemia, but then again, I worked the whole time (And a busy job it is that I do!).  Everybody is different, of course, but we all manage ;)

Oh, I DID miss one day of work, the day after my FIRST Pegasys shot.  It was just like having the flu, but it passed quickly.

Well, good luck to you,

Brad 

 



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
MeeMee2637


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See, I needed that perspective! . Thanks again Mark.

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MeeMee2637


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I can't see if you are still in treatment or if you are done. Would you mind sharing?

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marktrux


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Taking some leave from work is never a bad idea when starting treatment, the unknown can be very scary. the SX vary greatly from person to person but rash is one of the most common. For some people it is intolerable for others it not so bad. Probably the most important thing is to stay well hydrated and stay on top of the sides and it should be doable. Personally i think the 3-a-week interferon was worse than the pegasys, since it's time released there seems to be less intense ups and down and the human body adjusts pretty well to the "new normal". As for the 2 reported deaths in the U.S related to Incivek, just remember, last year in the U.S. 13 people were killed by snack vending machines. And no one lives in fear of vending machines. Sometimes it"s really all about perspective.



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JoAnneh


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Yes I had trouble w rash but it was doable.
There are med that help. Do a search on rash
And read about it.
Take 2 Tylenol and Benadryl w shot if your
Doc approves. The once a week shot
Is SO much easier than 3 shots a week.
There have been times where I can't tell
I took a shot! Trust me its easier!

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
MeeMee2637


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THANK you Mark. (Dumb auto spell!)

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MeeMee2637


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Thai you for your words and understanding Mark.

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MeeMee2637


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Forgot to say I am Genotype 1a.

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MeeMee2637


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JoAnne, you are so sweet. I am 57 and scheduled to start tomorrow. I took leave from working while I see how well I do this time as I had extreme side effects from just the interferon last time (18 years ago). I am very concerned with the FDA report for the Incevek that reports deaths of patients that got the severe rash. Did you experience any rash?

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JoAnneh


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Meemaw, I started all three medicines in same day.


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
JoAnneh


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Meemee,
What genotype are you?
Yes I took Invicek for 12 weeks along
W Interferon and RIBA!
When do u start?
Do u work? How old are you?
U can do this, I
Remember the panic.

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
JIme


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I took it for 8 weeks and tolerated it pretty well. Everybody reacts differently.

If you use the search feature and enter Incivek you will find lots of info. Als, try triple tx, telaprevir, and side effects from triple tx. 

You do fine. Many have gone before you...lol.  Good luck.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
MeeMee2637


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Thank you so much for your encouraging words. Have you taken Telaprevir? I am anxious about that one the most after reading the 12/19/12 FDA report on it.

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MeeMee2637


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Thank you so much for your reply. I am doing a 4 week lead in with PegInteferon and Riboviren, then adding Incevek(telaprevir) for 12 weeks, then just the PegInteferon and Riboviren for the remaining 32 weeks.

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JoAnneh


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If u went thru the 3 shots a week u can do this! The once a week
Is much better. Hopefully u will be able to finish in 24 weeks.
We are here for u

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
marktrux


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So, which combo are you gonna do? They both can be very daunting but they also can have very high rewards. There a lots of member who have either done or are doing each, so ask lots of questions, someone will always be there with an answer. Good luck and drinks lots of water.LOL



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MeeMee2637


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I just found this forum and look forward to sharing with those who truly understand. Was diagnosed in 1995, underwent 5 1/2 months of the old, 3 injection per week interferon plan. Was considered non responder and treatment stopped. The new triple therapy sounds so scary that I am petrified. My admiration for those that have made it thru.

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